Gov. Office Status

NIH Repository of COVID-19 Research Tools

This website provides access to COVID-19 related data collection tools (CRFs, DCFs, instruments, surveys, questionnaires) that are currently in use. We hope that investigators will consider choosing from these tools rather than developing new ones. The source of each instrument has been verified and contact information is provided in case additional information is needed. We are also striving to provide access to study protocols/study designs and data dictionaries to enhance timeliness for end use, as well as data interoperability and harmonization. Please note, these data collection tools cannot be considered broadly validated and investigators are encouraged to perform validation studies.

Another important resource is the PhenX Toolkit which provides access to many of the COVID-19 instruments contained in the DR2 collection, but broken down into specific topic areas for improved ease of use. The PhenX Toolkit also provides recommended standard data collection protocols for conducting biomedical research.

To submit a COVID-19 related data collection tool and study protocols for consideration, please click here

 


COVID-19 Related Resources 
This page provides links to websites where researchers can find COVID-19 related resources in addition to those available in the DR2 Resources Portal.

 

NIH COVID-19 Research Resources

Disaster Research Response (DR2) COVID-19 Collection 
All COVID-19 resources, including surveys, questionnaires, protocols, data dictionaries, and other related tools located in the DR2 Resources Portal

PhenX Toolkit COVID-19 Research Collections
Recommended collections of measurement protocols to support research on COVID-19, including Specialty Collections

 

NIH COVID-19 Common Data Elements (CDE) 

COVID-19 Therapeutic Trial Common Data Elements
Recommended common data elements for use in all therapeutic clinical trials for COVID-19, including NHLBI-CONNECTS trials

NIH RADx Common Data Elements 
A set of 12 common data elements required to be used in data collection and generation by all studies involving human participants under the NIH Rapid Acceleration of Diagnostics (RADx) program

NIH RADx-UP Common Data Elements
A set of common data elements and standardized study questions to be used in projects supported under the NIH Rapid Acceleration of Diagnostics-Underserved Populations (RADx-UP) program

 

Other Common Data Elements (CDE) Repositories 

National Cancer Institute (NCI) CDE Browser
CDEs primarily derived from data collection forms, spreadsheets, researcher data dictionaries, and protocols used in clinical trials

NIH CDE Repository

Structured human and machine-readable definitions of data elements that have been recommended or required by NIH Institutes and Centers and other organizations for use in research and for other purposes

 

Other COVID-19 Research Tool Repositories 

COVID-19 & Social Determinants of Health Data Collection Instrument Repository 
Created by the Social Science Extreme Events Research (SSEER) network and the CONVERGE facility at the Natural Hazards Center at the University of Colorado Boulder

Societal Experts Action Network (SEAN) COVID-19 Survey Archive 
Compiled by SEAN, an expert group convened by the National Academies of Sciences, Engineering, and Medicine

 

COVID-19 Research Data Platforms

Harvard Dataverse COVID-19 Collection
Free data repository open to all researchers from any discipline, both inside and outside of the Harvard community, to share, archive, cite, access, and explore research data

ISARIC COVID-19 Data Sharing Platform
Hosted by a global federation of clinical research networks

openICPSR COVID-19 Data Repository
Free repository for data examining the social, behavioral, public health, and economic impact of the novel coronavirus global pandemic

 

COVID-19 Training Material

NIH Worker Training Material - developed by the NIEHS Worker Training Program

Other Instructional/Training Material - curated in the National Library of Medicine's Disaster Lit database

 

COVID-19 Research Funding

Information for NIH Applicants and Recipients of NIH Funding

Protocols to collect human health data following a disaster. Pre-approved by an Institutional Review Board (IRB) for rapid use. More...

  • NIEHS RAPIDD Protocol
  • University of Iowa Disaster Response Research Protocol
  • UTMB Rapid Acquisition of Pre- and Post-Incident Disaster Data Protocol

Data Collection Tools for surveys, surveillance forms, and biospecimen and environmental sampling tools for medical and public health research in disasters. More...

Training resources for preparing scientists to conduct research in the field after a disaster.

Exercises on data collection and research as part of disaster response and recovery, conducted by the DR2 Program. More...

Upcoming events

Publications by or about the NIH Disaster Research Response Program

Past meetings, exercises, and presentations. More...

Federal agencies, private institutions, NGOs and networks are developing their disaster-related medical and public health research capabilities. More...

About the Disaster Research Response Program and efforts to address the challenging issues of disaster research. Includes Program background, a fact sheet and videos. More...