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Health and Retirement Study: Core Interview COVID-19 Module
Source: University of MichiganDate Published: 9/11/2020Format: PDFAnnotation: As a longitudinal study with rich measurement across a large number of social, health, and economic domains, the Health and Retirement Study (HRS) was designed to capture the impact of unexpected societal events, even without additional measurement specific to the event. To complement these longitudinal measures, HRS has developed several areas of content specifically in response to the coronavirus pandemic designed to dovetail with existing assessment. Information on lifestyle and psychosocial functioning is collected through a self-administered questionnaire (SAQ). Additional questions in the psychosocial SAQ were added to the 2020 wave of data collection. These questions obtain information on lifestyle, personal relationships, work, and feelings in response to the pandemic. These questions cover five subtopics: 1) pandemic-specific concerns related to health, finances, friends and family, and the future; 2) changes in social contact with family and friends, including social support given and received and changes in relationship quality; 3) impact on activities including pandemic-specific behaviors such as wearing a mask, washing hands, social distancing, and using hand sanitizer; 4) additional questions about work status that indicate if the respondent was an essential worker and whether or not they could work at home during the pandemic; and 5) emotional well-being, resilience, and coping during the pandemic.
Population: Adults only
Length: 77 questions
Mode of Administration: Online (e.g., computer-assisted interview)
Administered by: Professional Interviewer
Self Administered
Language(s): English...[more] [less]Type: Guideline/Assessment ToolAccess Notes: Free/Publicly Available
Web page for questionnaires: https://hrs.isr.umich.edu/data-products/covid-19
Web page for documentation, including a codebook: https://hrs.isr.umich.edu/documentation
Available Formats: PDF
Contact Information:
David Weir
Director of Health and Retirement Study
dweir@umich.eduIncludes Research Tools: Yes.ID: 23766. From: Disaster Lit®a database of the U.S. National Library of Medicine. -
Hidden Impact of COVID-19 on Children: A Global Research Series
Source: Save the Children InternationalDate Published: 9/10/2020Format: PDFAnnotation: This global study, with several documents, reveals the hidden impacts of COVID-19 pandemic response measures that are impacting children’s health, nutrition, education, learning, protection, well-being, family finances, and poverty.
Population: Adults and teens (NOTE: it’s ages 11 and up, actually)
Length: approximately 100 questions
Time to Complete: 25 minutes
Mode of Administration: Online (e.g., computer-assisted interview)
Administered by: Parent/Teacher; Self Administered
Language(s): English; Albanian; Amharic; Arabic; Bangla; Burmese; Dari; Filipino/Tagalog; French/ Hindi; Iindonesian; Korean; Khmer; Lao; Mongolian; Mindanao; Nepali; Pashto; Portuguese; Serbian; Sinhala; Spanish; Tamil; Thai; Urdu; Vietnamese...[more] [less]Type: ReportAccess Notes: Free/Publicly Available
Contact: Please contact the research team (attn: Melissa Burgess or Silvia Mila Arlini) at evidence.aro@savethechildren.org with any questionsIncludes Research Tools: Yes.ID: 23693. From: Disaster Lit®a database of the U.S. National Library of Medicine. -
Coronavirus Victimization Distress Scale (CVDS)
Source: Fordham UniversityDate Published: 8/2020Format: PDFAnnotation: The Coronavirus Victimization Distress Scale (CVDS) is a brief self-report questionnaire developed by Fordham University's Center for Ethics Education and Applied Developmental Psychology Program as part of the Pathways to Health Study. The CVDS assesses bully and cyberbully victimization distress results from being viewed as having coronavirus. Questions include distress about being verbally and physically bullied, treated rudely or unfairly, verbally taunted in public, and cyberbullied because of coronavirus.
Population: Adults and Teens
Ethnic/Religious Groups
Sexual or Gender Minorities
Length: 5 items
Time to Complete: Less than 5 minutes
Mode of Administration: Online (e.g., computer-assisted interview)
Administered by: Self Administered
Language(s): English...[more] [less]Type: Guideline/Assessment ToolAccess Notes: Free/Publicly Available
Available Formats: PDF
Contact Information:
Celia B. Fisher, Ph.D.
Center for Ethics Education
Fordham University
Email: Fisher@fordham.edu
Administrator:
Lori Merone
Email: lmerone@fordham.eduIncludes Research Tools: Yes.ID: 23535. From: Disaster Lit®a database of the U.S. National Library of Medicine. -
COVID-19: Documenting Challenges Faced by California Families with Children 0-5 Years Old on WIC
Source: University of California, DavisDate Published: 8/2020Format: PDFAnnotation: This is a mixed-method, interviewer-administered tool to (1) identify barriers that WIC (Special Supplemental Nutrition Program for Women, Infants, and Children) participants in California are experiencing in using WIC food benefits (e.g., access to WIC-eligible foods); and (2) identify additional short-term unmet basic needs (e.g., food and housing insecurity, as well as access to unemployment benefits, healthcare, childcare, and social support while required to remain at home) of low-income families during the COVID-19 pandemic.
Questions Adapted From: U.S. Household Food Security Survey Module, USDA ERS: Q43
COVID-19 Community Outcomes (COCO) Needs Assessment, Stanford University: Q1, Q4
The Epidemic Pandemic Impacts Inventory (EPII): Q10a
Patient Health Questionnaire-2 (PHQ-2): Q48
Population: Adults Only
Length: 55 questions
Time to Complete: 30-35 minutes
Mode of Administration: Telephone
Administered by: Professional Interviewer
Language(s): English; Spanish
COVID-19 Documenting Challenges Faced by California Families with Children 0-5 Years Old on WIC: Full Questionnaire https://www.phenxtoolkit.org/toolkit_content/PDF/UCANR_WIC.pdf
COVID Impacts: Diagnosis; Overall Impact https://www.phenxtoolkit.org/toolkit_content/PDF/UCANR_WIC_Impacts.pdf
WIC participation and enrollment: Federal Assistance https://www.phenxtoolkit.org/toolkit_content/PDF/UCANR_WIC_Participation.pdf
WIC services: Sources of information about COVID-19 https://www.phenxtoolkit.org/toolkit_content/PDF/UCANR_WIC_Services.pdf
Shopping for WIC foods: Food Security https://www.phenxtoolkit.org/toolkit_content/PDF/UCANR_WIC_Foods.pdf
General food shopping: Food Security; Dietary Intake https://www.phenxtoolkit.org/toolkit_content/PDF/UCANR_WIC_General_Food.pdf
Immigration status: Personal Demographics https://www.phenxtoolkit.org/toolkit_content/PDF/UCANR_WIC_Immigration.pdf
Mental health: General Mental Health https://www.phenxtoolkit.org/toolkit_content/PDF/UCANR_WIC_Mental_Health.pdf
COVID-19 Documenting Challenges Faced by California Families with Children 0-5 Years Old on WIC (Spanish): Full Questionniare https://www.phenxtoolkit.org/toolkit_content/PDF/UCANR_WIC_Spanish.pdf
COVID Impacts (Spanish): Diagnosis; Overall Impact https://www.phenxtoolkit.org/toolkit_content/PDF/UCANR_WIC_Impacts_Spanish.pdf
WIC participation and enrollment (Spanish): Federal Assistance https://www.phenxtoolkit.org/toolkit_content/PDF/UCANR_WIC_Participation_Spanish.pdf
WIC services (Spanish): Sources of information about COVID-19 https://www.phenxtoolkit.org/toolkit_content/PDF/UCANR_WIC_Services_Spanish.pdf
Shopping for WIC foods (Spanish): Food Security https://www.phenxtoolkit.org/toolkit_content/PDF/UCANR_WIC_Foods_Spanish.pdf
General food shopping (Spanish): Food Security; Dietary Intake https://www.phenxtoolkit.org/toolkit_content/PDF/UCANR_WIC_General_Food_Spanish.pdf
Immigration status (Spanish): Personal Demographics https://www.phenxtoolkit.org/toolkit_content/PDF/UCANR_WIC_Immigration_Spanish.pdf
Mental health (Spanish): General Mental Health https://www.phenxtoolkit.org/toolkit_content/PDF/UCANR_WIC_Mental_Health_Spanish.pdf...[more] [less]Type: Guideline/Assessment ToolAccess Notes: Free/Publicly Available
Link to Spanish survey: https://www.nlm.nih.gov/dr2/WIC_COVID_Interview_Guide_SPANISH.pdf
Citation(s):
Ritchie, LD & Whaley, SE (2020). COVID-19: Documenting Challenges Faced by California Families with Children 0-5 Years Old on WIC.
Available Formats: PDF
Contact Information:
Lorrene Ritchie, PhD, RD
Director and Cooperative Extension Specialist, Nutrition Policy Institute
University of California Division of Agriculture and Natural Resources
Email: lritchie@ucanr.eduIncludes Research Tools: Yes.ID: 23584. From: Disaster Lit®a database of the U.S. National Library of Medicine. -
Survey Tool and Guidance: Rapid, Simple, Flexible Behavioural Insights on COVID-19
Source: World Health Organization, Regional Office for EuropeDate Published: 7/29/2020Format: PDFAnnotation: This 42-page document provides guidance to Member States in the WHO European Region that wish to conduct behavioral insights studies related to COVID-19. This tool is evidence-informed; can be regularly applied; is flexible to adjust to the changing situation; and follows high ethical standards....[more] [less]Type: Guideline/Assessment ToolAccess Notes: Free/Publicly Available
Contact information: Katrine Habersaat (habersaatk@who.int) or Martha Scherzer (scherzerm@who.int)
Direct link to document: https://apps.who.int/iris/bitstream/handle/10665/333549/WHO-EURO-2020-696-40431-54222-eng.pdf?sequence=1&isAllowed=y
Link to resource in Russian: https://apps.who.int/iris/handle/10665/333550ID: 23230. From: Disaster Lit®a database of the U.S. National Library of Medicine. -
COVID-19 Survey for Workers
Source: University of California, DavisDate Published: 7/16/2020Format: PDFAnnotation: The purpose of this COVID-19 survey is to facilitate a rapid research response to the COVID-19 pandemic that will describe the affected population of frontline workers, their vulnerabilities, and their most urgent needs; and identify critical unmet needs and compare across geographic areas, types of facilities, job types, and sociodemographic characteristics.
Population: Adult Workers
Length: 80 questions
Time to Complete: 15-20 minutes
Mode of Administration: Online (e.g., computer-assisted interview)
Pen and Paper
Telephone
Administered by: Self Administered
Language(s): English, Spanish
Survey for Workers: Full Questionnaire https://www.phenxtoolkit.org/toolkit_content/PDF/UCD_Workers.pdf
Covid-19 Infection: General Symptoms; Diagnosis https://www.phenxtoolkit.org/toolkit_content/PDF/UCD_Workers_Infection.pdf
The Workplace: Employment; Personal Protective Equipment; Health Care https://www.phenxtoolkit.org/toolkit_content/PDF/UCD_Workers_Workplace.pdf
Demographics: Personal Demographics; Chronic Health Conditions https://www.phenxtoolkit.org/toolkit_content/PDF/UCD_Workers_Demographics.pdf
Changes to your life since COVID-19: Overall Impact https://www.phenxtoolkit.org/toolkit_content/PDF/UCD_Workers_Life_Changes.pdf
Financial situation: Economic Insecurity https://www.phenxtoolkit.org/toolkit_content/PDF/UCD_Workers_Financial.pdf
Living situation: Personal Demographics; Home Life https://www.phenxtoolkit.org/toolkit_content/PDF/UCD_Workers_Living_Situation.pdf
Knowledge about COVID-19 protection measures: Attitudes; Knowledge
https://www.phenxtoolkit.org/toolkit_content/PDF/UCD_Workers_Knowledge.pdf
Pregnancy: Current Pregnancy; Past Pregnancy https://www.phenxtoolkit.org/toolkit_content/PDF/UCD_Workers_Pregnancy.pdf...[more] [less]Type: Guideline/Assessment ToolAccess Notes: Free/Publicly Available
Public survey available: https://is.gd/COVID19WorkerSurvey
Available Formats: PDF
Contact Information:
University of California, Davis
Natalie Nardone, nlnardone@ucdavis.eduIncludes Research Tools: Yes.ID: 23745. From: Disaster Lit®a database of the U.S. National Library of Medicine. -
Global COVID-19 Clinical Platform: Rapid Core Case Report Form (CRF)
Source: World Health Organization (WHO)Date Published: 7/13/2020Format: PDFAnnotation: The eight-page, three-module COVID-19 Rapid Core Case Report Form (CRF) is designed to collect data obtained through examination, interview, and review of hospital notes. Data may be collected prospectively or retrospectively.
In response to the COVID-19 pandemic, the World Health Organization (WHO) has launched a global COVID-19 anonymized clinical data platform (the “COVID-19 Data Platform”) to enable State Parties to the International Health Regulations (IHR) (2005) to share with WHO anonymized clinical data related to patients with suspected or confirmed infections with SARS-CoV-2 (collectively “anonymized COVID-19 data”). The anonymized COVID-19 data received by WHO will remain the property of the contributing Entity and will be used by WHO for purposes of verification, assessment and assistance pursuant to the IHR (2005), including to inform the public health and clinical operation response in connection with the COVID-19 outbreak. To help achieve these objectives, WHO has established an independent Clinical Advisory Group to advise WHO on global reporting and analysis of the anonymized clinical COVID-19 data. State Parties and other entities are invited to contact WHO to obtain more information about how to contribute anonymized clinical COVID-19 data to the WHO Data Platform. To preserve the security and confidentiality of the anonymized COVID-19 data, State Parties and other entities are respectfully requested to take all necessary measures to protect their respective log-in credentials and passwords to the COVID-19 Data Platform.
The anonymized COVID-19 data will be stored in the WHO COVID-19 Data Platform, which is a secured, access-limited, password protected electronic platform. WHO will (i) protect the confidentiality and prevent the unauthorized disclosure of the anonymized COVID-19 data; (ii) implement and maintain appropriate technical and organizational security measures to protect the security of the anonymized COVID-19 data and the COVID-19 Data Platform. In accordance with Article 11(4) of the IHR (2005), WHO will not make the anonymized COVID-19 data generally available to other State Parties or entities until such time as any of the conditions set forth in paragraph 2 of Article 11 are first met, and following consultation with affected countries/entities. Pursuant to that same Article 11, WHO will not make the anonymized COVID-19 data available to the public, unless and until the anonymized COVID-19 data have already been made available to State Parties, and provided that other information about the COVID-19 epidemic has already become publicly available and there is a need for the dissemination of authoritative and independent information. To contribute data to the WHO COVID-19 Data Platform or to receive more information, please contact: COVID_ClinPlatform@who.int.
The Rapid Core CRF is designed to collect data obtained through examination, interview and review of hospital notes. Data may be collected prospectively or retrospectively. The data collection period is defined as the period from hospital admission to discharge, transfer, death, or continued hospitalization without possibility of continued data collection.
This CRF has 3 modules:
Module 1: to be completed on the first day of admission to the health centre.
Module 2: to be completed daily during hospital stay for as many days as resources allow. Continue to follow-up patients who transfer between wards.
Module 3: to be completed at discharge or death.
Population: All/Anyone
Length: 19 items
Mode of Administration: Pen and Paper
Administered by: Specialist/Doctor/Expert
Language(s): English...[more] [less]Type: Guideline/Assessment ToolAccess Notes: Direct link to document: https://apps.who.int/iris/rest/bitstreams/1287200/retrieve
Free/Publicly Available
Contact: World Health Organization (WHO), COVID_ClinPlatform@who.intIncludes Research Tools: Yes.ID: 23004. From: Disaster Lit®a database of the U.S. National Library of Medicine. -
Global COVID-19 Clinical Platform with Pregnancy Module – CRF-P
Source: World Health Organization (WHO)Date Published: 7/13/2020Format: PDFAnnotation: This 13-page Pregnancy Module Case Report Form (CRF-P) should be completed for pregnant women or recently pregnant women who delivered within 21 days from onset of COVID-19 symptoms. Data may be collected retrospectively if the patient data are obtained after the admission date.
In response to the COVID-19 pandemic, the World Health Organization (WHO) has launched a global COVID-19 anonymized clinical data platform (the “COVID-19 Data Platform”) to enable State Parties to the International Health Regulations (IHR) (2005) to share with WHO anonymized clinical data related to patients with suspected or confirmed infections with SARS-CoV-2 (collectively “anonymized COVID-19 data”). The anonymized COVID-19 data received by WHO will remain the property of the contributing Entity and will be used by WHO for purposes of verification, assessment and assistance pursuant to the IHR (2005), including to inform the public health and clinical operation response in connection with the COVID-19 outbreak. To help achieve these objectives, WHO has established an independent Clinical Advisory Group to advise WHO on global reporting and analysis of the anonymized clinical COVID-19 data. State Parties and other entities are invited to contact WHO to obtain more information about how to contribute anonymized clinical COVID-19 data to the WHO Data Platform. To preserve the security and confidentiality of the anonymized COVID-19 data, State Parties and other entities are respectfully requested to take all necessary measures to protect their respective log-in credentials and passwords to the COVID-19 Data Platform.
The anonymized COVID-19 data will be stored in the WHO COVID-19 Data Platform, which is a secured, access-limited, password protected electronic platform. WHO will (i) protect the confidentiality and prevent the unauthorized disclosure of the anonymized COVID-19 data; (ii) implement and maintain appropriate technical and organizational security measures to protect the security of the anonymized COVID-19 data and the COVID-19 Data Platform. In accordance with Article 11(4) of the IHR (2005), WHO will not make the anonymized COVID-19 data generally available to other State Parties or entities until such time as any of the conditions set forth in paragraph 2 of Article 11 are first met, and following consultation with affected countries/entities. Pursuant to that same Article 11, WHO will not make the anonymized COVID-19 data available to the public, unless and until the anonymized COVID-19 data have already been made available to State Parties, and provided that other information about the COVID-19 epidemic has already become publicly available and there is a need for the dissemination of authoritative and independent information. To contribute data to the WHO COVID-19 Data Platform or to receive more information, please contact: COVID_ClinPlatform@who.int.
The CRF is designed to collect data obtained through examination, interview and review of hospital notes. Data may be collected retrospectively if the patient data are obtained after the admission date. The data collection period is defined as the period from hospital admission to discharge, transfer, death, or continued hospitalization without possibility of continued data collection. This CRF-P should be completed for pregnant women or recently pregnant women who delivered within 21 days from onset of symptoms. If COVID symptoms started more than 21 days after the end of the pregnancy, please complete the Rapid Core CRF only.
The Pregnancy CRF has 3 sections:
Module 1: to be completed on the first day of admission to the health centre.
Module 2: to be completed daily during hospital stay for as many days as resources allow. Continue to follow-up patients who transfer between wards.
Module 3: to be completed at discharge or death.
Population: Pregnant or Lactating Women; High Risk/Special/Unique Populations
Length: 33 items
Mode of Administration: Pen and Paper
Administered by: Specialist/Doctor/Expert
Language(s): English
WHO Global COVID-19 Clinical Platform: Pregnancy Case Report Form (CRF): Full questionnaire https://www.phenxtoolkit.org/toolkit_content/PDF/WHO_Pregnancy_CRF.pdf
Hospital Admission Case Record Form: General Symptoms; Diagnosis; Personal Demographics https://www.phenxtoolkit.org/toolkit_content/PDF/WHO_Pregnancy_CRF_Admission.pdf
Daily Case Record Form: General Symptoms; Diagnosis https://www.phenxtoolkit.org/toolkit_content/PDF/WHO_Pregnancy_CRF_Daily.pdf
Treatment and Outcome Case Record Form: Treatment; Outcomes https://www.phenxtoolkit.org/toolkit_content/PDF/WHO_Pregnancy_CRF_Treatment.pdf...[more] [less]Type: Guideline/Assessment ToolAccess Notes: Direct link to document: https://apps.who.int/iris/rest/bitstreams/1287196/retrieve
Free/Publicly Available
Contact: World Health Organization (WHO), COVID_ClinPlatform@who.intIncludes Research Tools: Yes.ID: 23005. From: Disaster Lit®a database of the U.S. National Library of Medicine. -
Impact of the Novel Coronavirus (COVID-19) on Patients with Cancer
Source: Stanford UniversityDate Published: 7/13/2020Format: PDFAnnotation: The purpose of this study is to understand the spread of the COVID-19 and the impact on patients with cancer. Specifically, we want to understand how COVID-19 has impacted patient's lives and their cancer care. The objective is to enhance our knowledge of the evolving COVID-19 pandemic among patients with cancer. The data collected in this survey will help to understand how cancer care is being affected for patients with cancer and potential ways to mitigate this impact.
Population: Adults Only
Length: 74 Questions
Time to Complete: 5-10 minutes
Mode of Administration: Face-to-face
Online (e.g., computer-assisted interview)
Pen and Paper
Telephone
Administered by: Lay Interviewer
Professional Interviewer
Self Administered
Specialist/Doctor/Expert
Trained Lay Examiner/Interviewer
Language(s): English, Spanish, Vietnamese
Impact of the novel Coronavirus (COVID-19) on Patients with Cancer: Full Survey https://www.phenxtoolkit.org/toolkit_content/PDF/Impact.of.COVID19.on.Patients.with.Cancer.pdf
Overall Cancer Care: Health Care; Chronic Health Conditions https://www.phenxtoolkit.org/toolkit_content/PDF/Stanford_COVID19_on_Patients_with_Cancer_Overall_Care.pdf
Care Delays or Interruptions (due to COVID-19 pandemic): Health Care https://www.phenxtoolkit.org/toolkit_content/PDF/Stanford_COVID19_on_Patients_with_Cancer_Care_Delays.pdf
Challenges Due to COVID-19 Pandemic: Overall Impact; Sources of information about COVID-19 https://www.phenxtoolkit.org/toolkit_content/PDF/Stanford_COVID19_on_Patients_with_Cancer_Challenges.pdf
Novel Coronavirus Testing: Status; Diagnosis https://www.phenxtoolkit.org/toolkit_content/PDF/Stanford_COVID19_on_Patients_with_Cancer_Testing.pdf
Demographics: Personal Demographics; Health History https://www.phenxtoolkit.org/toolkit_content/PDF/Stanford_COVID19_on_Patients_with_Cancer_Demographic.pdf...[more] [less]Type: Guideline/Assessment ToolAccess Notes: Free/Publicly Available
Programmed online survey link: https://stanforduniversity.qualtrics.com/jfe/form/SV_ctKS6ZSMYdEYoXX
Available Formats: PDF
Contact Information:
Manali I. Patel, MD, MPH, MS
Email: manalip@stanford.edu
Stanford University School of MedicineIncludes Research Tools: Yes.ID: 23056. From: Disaster Lit®a database of the U.S. National Library of Medicine. -
COVID-19 Impact Survey
Source: National Alzheimer’s Coordinating Center (NACC)Date Published: 7/2/2020Format: PDFAnnotation: The COVID-19 Impact Survey was used to gather data on the effect of the pandemic on participants enrolled in the clinical cores of the National Institute on Aging (NIA) Alzheimer's Disease Research Centers, a population of mostly older Americans with cognitive status ranging from normal to mild cognitive impairment to dementia (resulting from Alzheimer's disease and a range of other etiologies). An additional survey was created for the co-participants.
Questions Adapted From: N/A
Population: Adults Only
Length: 21 questions for the participant, 10 for the co-participant
Time to Complete: 15 minutes for participant, 10 minutes for co-participant
Mode of Administration: Face-to-face
Online (e.g., computer-assisted interview)
Pen and Paper
Telephone
Administered by: Self Administered
Specialist/Doctor/Expert
Trained Lay Examiner/Interviewer
Language(s): English
COVID-19 Impact Survey: Full Questionnaire https://www.phenxtoolkit.org/toolkit_content/PDF/NACC_COVID.pdf
COVID-19 Impact Survey - Participant: Diagnosis; General Mental Health; Overall Impact https://www.phenxtoolkit.org/toolkit_content/PDF/NACC_COVID_Participant.pdf
COVID-19 Impact Survey - Co-participant: General Mental Health; Overall Impact; Health Care https://www.phenxtoolkit.org/toolkit_content/PDF/NACC_COVID_Coparticipant.pdf
COVID-19 Technology Accessibility Survey: Technology Use https://www.phenxtoolkit.org/toolkit_content/PDF/NACC_Covid_Tech_Survey.pdf...[more] [less]Type: Guideline/Assessment ToolAccess Notes: Free/Publicly Available; Direct link to document: https://www.alz.washington.edu/NONMEMBER/Covid-impact-surveys.pdf
Available Formats: PDF
Contact Information: National Alzheimer's Coordinating Center, Elizabeth Robichaud, naccmail@uw.edu
Survey originally developed by the ADRC Clinical Task Force, Allan Levey, MD, PhD, ChairIncludes Research Tools: Yes.ID: 23179. From: Disaster Lit®a database of the U.S. National Library of Medicine.
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