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  1. Mortality in Puerto Rico after Hurricane Maria: Household Survey Instrument
    Source: Harvard University, Harvard T.H. Chan School of Public Health
    Date Published: 5/29/2018
    Format: PDF
    Annotation: To develop a more accurate estimate of deaths attributed to Hurricane Maria in Puerto Rico, a team led by Harvard T. H. Chan School of Public Health epidemiologists conducted a randomized community household survey in Puerto Rico in 2017-2018. Respondents were asked about displacement, infrastructure loss, and causes of death. The survey instrument can be found in Section I of the Supplementary Appendix in Kishore N, Marques D, Mahmud A, et al. Mortality in Puerto Rico after Hurricane Maria. N Engl J Med. DOI: 10.1056/NEJMsa1803972. This resource was identified by the NIH Disaster Research Response Program (DR2) for researchers looking for pre- and post-disaster data collection instruments.

    Ease of Use in Disaster Setting: Easy
    Population: All/Anyone
    Length: 10 items with subparts
    Time to Complete: 10 minutes
    Administered by: Lay interviewer
    Language: English    ...[See more] [See less]
    URL: https://www.nejm.org/doi/suppl/10.1056/NEJMsa1803972/suppl_file/nejmsa1803972_appendix.pdf
    Type: Guideline/Assessment Tool
    Access Notes: Citation (s):
    Kishore N, Marques D, Mahmud A, Kiang MV, Rodriguez I, Fuller A, Ebner P, Sorensen C, Racy F, Lemery J, Maas L, Leaning J, Irizarry RA, Balsari S, Buckee CO. Mortality in Puerto Rico after Hurricane Maria. N Engl J Med. 2018 May 29. doi: 10.1056/NEJMsa1803972. PMID: 29809109. Subscription not required.
    Free/Publicly Available: https://www.nejm.org/doi/full/10.1056/NEJMsa1803972

    Contact information:
    Dr. Caroline O. Buckee, Harvard T.H. Chan School of Public Health, cbuckee@hsph.harvard.edu
    Includes Research Tools: Yes.
    ID: 17405. From: Disaster Lit®a database of the U.S. National Library of Medicine.
  2. Health and Demographic Disparities in Recovery from Hurricane Katrina (HDDR-HK): KATRINA@10 Study
    Source: Tulane University
    Date Published: 2018
    Format: PDF
    Annotation: Instrument (survey questions and codebook) used for the most recent wave of data collection for three Katrina cohorts. Includes modules on: Housing and Mobility; Health; Social Capital and Resources; Risk Behaviors, Trauma & Exposure; Family Dynamics & Household Constraints; Neighborhood; Children; Recovery & Outlook; and Demographics.

    Questions Adapted From: General self efficacy scale; flourishing scale; impact of events scale; K-6; life events checklist; perceived social support; physical neighborhood disorder; post-traumatic growth inventory; sense of community index; short form health survey; social neighborhood disorder
    Population: Adults Only
    Length: 93 questions
    Time to Complete: 60 minutes
    Mode of Administration: Face-to-face
    Online (e.g., computer-assisted interview)
    Telephone
    Administered by: Trained Lay Examiner/Interviewer
    Language(s): English; Vietnamese    ...[See more] [See less]
    URL: https://www.nlm.nih.gov/dr2/Katrina_at10_Codebook.pdf
    Type: Guideline/Assessment Tool
    Access Notes: Permission/Request required.

    Tulane University, Center for Studies of Displaced Populations (CSDP), Katrina@10 study website: https://sph.tulane.edu/katrina10.

    Available Formats: PDF

    Contact Information:
    Mark VanLandingham, Ph.D., Contact PI
    Tulane University
    mvanlan@tulane.edu
    Includes Research Tools: Yes.
    ID: 23563. From: Disaster Lit®a database of the U.S. National Library of Medicine.
  3. Oregon State University Chemical Exposure Disaster Study Protocol
    Source: Oregon State University
    Date Published: 9/2017
    Format: Text
    Annotation: The Oregon State University Superfund Research Program and the Pacific Northwest Center for Translational Environmental Health are focused on chemical exposures before, during and after disasters. The Centers developed a broad Disaster Protocol, enabling rapid responses to disasters. In the case of Hurricane Harvey, using the pre-positioned protocol, researchers were able to obtain project-specific human subjects ethical approval and initiate data collection within three weeks of Harvey making landfall in Houston. The protocol pairs the passive sampling wristband with a short, self-report, online-based questionnaire administered via Qualtrics. The passive sampler can be stored at room temperature and mailed to participants with simple written instructions. Participants wear the wristband, typically for seven days. During that time, the wristband passively sequesters exposure to semi-volatile and volatile organic compounds. Participants return the wristband via mail with a pre-paid envelope. Currently, the wristband can be analyzed for over 1,530 chemical analytes. Training materials and recruitment materials are available online: https://superfund.oregonstate.edu/disaster-irb
    The associated Questionnaire can be found: https://dr2.nlm.nih.gov/search/?q=24239

    Language(s): English    ...[See more] [See less]
    URL: https://disasterinfo.nlm.nih.gov/content/files/Oregon%20State%20University%20Chemical%20Exposure%20Disaster%20study%20protocol_04062021.doc
    Type: Study Design/Protocol
    Access Notes: Free/Publicly Available

    Citation(s):
    Rohlman, D., Bethel, J., Hoffman, P., Tidwell, LG and Anderson, KA. Oregon State University Chemical Exposure Disaster Study Protocol. Superfund Research Program, Pacific Northwest Center for Translational Environmental Health Research, Oregon State University, Corvallis, OR.

    Available Formats: Text

    Contact Information: Diana Rohlman, PhD. Oregon State University. diana.rohlman@oregonstate.edu
    Includes Research Tools: Yes.
    ID: 24238. From: Disaster Lit®a database of the U.S. National Library of Medicine.
  4. Oregon State University Chemical Exposure Disaster Questionnaire
    Source: Oregon State University
    Date Published: 9/1/2017
    Format: Text
    Annotation: The Oregon State University Superfund Research Program and the Pacific Northwest Center for Translational Environmental Health are focused on chemical exposures before, during and after disasters. The Centers developed a broad Disaster Protocol, enabling rapid responses to disasters. In the case of Hurricane Harvey, using the pre-positioned protocol, researchers were able to obtain project-specific human subjects ethical approval and initiate data collection within three weeks of Harvey making landfall in Houston. The questionnaire includes virtual consent and assent, consent to receive individual results from the study, and evaluates informed consent via questions gauging comprehension of study activities and types of data being collected. Modules included in the survey: i) Demographics; ii) Exposure History specific to flooding; iii) Environmental Health; iv) Occupational History, using elements sourced from the Disaster Response Research (DR2) platform.
    Oregon State University Chemical Exposure Disaster Study Protocol Data Dictionary: https://disasterinfo.nlm.nih.gov/content/files/Oregon%20State%20University%20Chemical%20Exposure%20Disaster%20Data%20Dictionary.xlsx
    Assent statement template: https://disasterinfo.nlm.nih.gov/content/files/OSU%20Chemical%20Exposure%20Disaster%20Assent%20Template.docx
    Chemical Exposure Consent Template: https://disasterinfo.nlm.nih.gov/content/files/OSU%20Chemical%20Exposure%20Disaster%20Consent%20Template.docx

    The associated protocol can be found: https://dr2.nlm.nih.gov/search/?q=24238

    Questions Adapted From: ACE Toolkit. General Survey Module G: Emergency Response. https://www.atsdr.cdc.gov/ntsip/ace_toolkit.html
    Question 22
    Question 23b
    Question 23c
    Adapted from the NIOSH Deepwater Horizon Roster Form, Gulf Coast Oil Spill Initial Survey. https://www.nrt.org/sites/2/files/ERHMS_Final_060512.pdf (Page 117)
    Question 23
    Question 48-50
    Community Assessment for Public Health Emergency Response (CASPER): Appendix B: Question Bank https://www.cdc.gov/disasters/surveillance/pdf/casper_toolkit_version_2_0_508_compliant.pdf
    Question 24a-d
    Question 31-32
    Question 35
    Question 37
    ATSDR Exposure Form: https://www.atsdr.cdc.gov/csem/exphistory/docs/CSEMExposHist-26-29.pdf
    Question 45-46
    WTC Health Registry Hurricane Sandy Survey http://www.nyc.gov/html/doh/wtc/downloads/pdf/registry/wtchr-sandy-survey.pdf
    Question 24e-f
    Question 25-30
    Question 33-34
    Adapted Question 36a-c
    o Question 42
    o Question 44
    o Question 49
    o Question 51
    o Adapted Question 53
    Population: Age 5+
    Length: 55 questions
    Time to Complete: 15 minutes
    Mode of Administration: Online (e.g., computer-assisted interview)
    Face-to-face
    Special Considerations: The survey was originally developed to be delivered online via iPAD, following face-to-face verbal consent. The tool has since been revised to include electronic consent.
    Language(s): English    ...[See more] [See less]
    URL: https://disasterinfo.nlm.nih.gov/content/files/OSU%20Chemical%20Exposure%20Questionnaire_04062021.docx
    Type: Guideline/Assessment Tool
    Access Notes: Free/Publicly Available

    Citation(s):
    Rohlman, D., Bethel, J., Hoffman, P., Tidwell, LG and Anderson, KA. Oregon State University Chemical Exposure Disaster Study Protocol. Superfund Research Program, Pacific Northwest Center for Translational Environmental Health Research, Oregon State University, Corvallis, OR.

    Available Formats: Text

    Contact Information: Diana Rohlman, PhD. Oregon State University. diana.rohlman@oregonstate.edu
    Includes Research Tools: Yes.
    ID: 24239. From: Disaster Lit®a database of the U.S. National Library of Medicine.
  5. University of Iowa Protocols: Disaster Response Research Project
    Source: University of Iowa (UI)
    Date Published: 4/21/2016
    Format: Text
    Annotation: The University of Iowa's IRB protocol's intent is to establish an umbrella IRB approval for rapid response research in the event of disasters, including floods, fires, earthquakes or chemical spills. The IRB application is created in such a way as to be easily modifiable to fit the needs of the specific organization or disaster that it is being used in response to. This protocol has been successfully used in the field in response to the Iowa Flood of 2008, the Iowa City Landfill fire of 2013, and for a train derailment that occurred in 2014.
    The University of Iowa's Protocols propose that when a disaster occurs, health and home survey information, as well as biological samples, will be collected from all consenting individuals in the vicinity of the disaster area. The University of Iowa has developed an IRB application, questionnaires, and consent documents to facilitate this data collection.

    Disaster Response Research Project Questionnaire Part I https://disasterinfo.nlm.nih.gov/content/files/Disaster_Response_Health_Questionnaire_Part1(1).docx
    Disaster Response Research Project Questionnaire Part II https://disasterinfo.nlm.nih.gov/content/files/Disaster_Response_Health_Questionnaire_Part2.docx
    IRB Protocol: Disaster Response Research https://disasterinfo.nlm.nih.gov/content/files/IRB_Protocol_Disaster_Response_508-compliant(1).pdf
    Informed Consent Document https://disasterinfo.nlm.nih.gov/content/files/Informed_consent_Disaster_Response-2-1(1).docx
    Minor Assent Document https://disasterinfo.nlm.nih.gov/content/files/Child_assent_document_Disaster_Response(1).docx
    Protocol Amendment Checklist https://disasterinfo.nlm.nih.gov/content/files/Disaster_Response_Protocol_Amendment_Checklist.docx
    Disaster Response Research Recruitment Phone Script https://disasterinfo.nlm.nih.gov/content/files/Disaster_Response_phone_script.docx
    Disaster Response Home Inspection Checklist https://disasterinfo.nlm.nih.gov/content/files/Disaster_Response_Home_Inspection.docx

    Questions Adapted From:
    Questions on questionnaires obtained from ECRHS http://www.ecrhs.org/Quests/ECRHSIImainquestionnaire.pdf
    1-5, 7-9, 11-12, 14-20, 21-38, 41, 43, 45-49, 52, 54, 56-63, 64-65 68, 71-83; Questions modified from ECRHS
    10, 13; Questions from LEIP
    6, 39, 40, 42, 44, 50, 51, 55, 64-67, 69-70; Questions modified from SF-36
    84-97
    Language(s): English    ...[See more] [See less]
    URL: https://disasterinfo.nlm.nih.gov/content/files/IRB_Protocol_Disaster_Response_508-compliant(1).pdf
    Type: Study Design/Protocol
    Access Notes: Free/Publicly Available

    Available Formats: Text
    Includes Research Tools: Yes.
    ID: 24219. From: Disaster Lit®a database of the U.S. National Library of Medicine.
  6. UTMB Rapid Acquisition of Pre- and Post-Incident Disaster Data Protocol (UT-RAPIDD)
    Source: University of Texas Medical Branch (UTMB)
    Date Published: 4/8/2016
    Format: Text
    Annotation: Similar to the NIEHS Rapid Acquisition of Pre- and Post-Incident Disaster Data (RAPIDD) protocol, the UTMB RAPIDD (UT-RAPIDD) protocols main goal is to establish a human subject's research protocol for future research response before or following a natural or manmade disaster including floods, earthquakes, or chemical spills. A research registry of community members and/or first responders who live in close proximity to the disaster area will be created based on their exposure to the disaster. The protocol then provides the steps for collecting sociodemographic, health status, occupational exposure and lifestyle information from that cohort before or immediately following exposure to a disaster area. Additionally, the protocol outlines the collection, processing, and storage of biological samples that will be collected before or immediately after exposure to a disaster area. The UT-RAPIDDs primary goal is to have all steps of a research study completed prior to a disaster so that rapid implementation and data collection can occur.

    UT-RAPIDD Informed Consent form https://disasterinfo.nlm.nih.gov/content/files/RAPIDD_Informed_Consent_UTMB_5-23-16(1).docx
    UTMB Initial Study Approval https://disasterinfo.nlm.nih.gov/content/files/Initial%20FB%20Approval.pdf

    Questions Adapted From: Modified from RAPIDD Protocol
    Language(s): English    ...[See more] [See less]
    URL: https://disasterinfo.nlm.nih.gov/content/files/UPDATED_RAPIDD_Protocol_for_UTMB_IRB_6-7-16_508-compliant.docx
    Type: Study Design/Protocol
    Access Notes: Free/Publicly Available

    Available Formats: Text

    Contact Information: Sharon Croisant, MS, PhD
    Principal Investigator
    Department of Preventive Medicine and Community Health
    Director, Community-Based Research Facility, UTMB Center in Environmental Toxicology
    spetrone@utmb.edu
    Includes Research Tools: Yes.
    ID: 24220. From: Disaster Lit®a database of the U.S. National Library of Medicine.
  7. Rapid Acquisition of Pre- and Post-Incident Disaster Data (RAPIDD) Study Protocol
    Source: National Institute of Environmental Health Sciences [National Institutes of Health] (NIEHS)
    Date Published: 7/16/2015
    Format: PDF
    Annotation: This 62-page document provides a pre-planned research study protocol to be used for rapidly implementing a new study at the time of a disaster. The protocol provides the information and documents for creating a research registry of disaster response workers who are rostered before or immediately after deployment to a disaster area. The protocol provides the steps for gathering sociodemographic, health status, occupational exposure, and lifestyle information of the cohort before or immediately after deployment to a disaster area. The protocol includes documents needed to conduct the research such as an informed consent form, enrollment information and questionnaires. The goal is to have all documents and steps developed before a disaster for rapid deployment at the time of a disaster. Researchers may also use this protocol as a model for developing additional ready-to-use protocols for other disaster research efforts....[See more] [See less]
    URL: https://www.nlm.nih.gov/dimrc/RAPIDD_Protocol_v8.0_2015-07-16_508_CLEAN.pdf
    Type: Study Design/Protocol
    Access Notes: Documents included in the Study Protocol:
    RAPIDD Core Registry Form: https://www.nlm.nih.gov/dimrc/RAPIDD_Core_Registry_Form_V3_0_20150421_CLEAN-508.pdf

    RAPIDD Core Specimen Collection Questionnaire: https://www.nlm.nih.gov/dimrc/RAPIDD_Core_Specimen_v1_0_20150304.pdf

    RAPIDD Basic Health Registry Form: https://www.nlm.nih.gov/dimrc/RAPIDD_Basic_Registry_v4_0_20150421_CLEAN-508_a.pdf

    RAPIDD Basic Specimen Collection Questionnaire: https://www.nlm.nih.gov/dimrc/RAPIDD_Basic_Specimen_v1_0_20150304.pdf

    RAPIDD Enhanced Health Registry Form: https://www.nlm.nih.gov/dimrc/RAPIDD_Enhanced_Registry_v4_0_20150421_CLEAN-508.pdf

    RAPIDD Enhanced Specimen Collection Questionnaire: https://www.nlm.nih.gov/dimrc/RAPIDD_Enhanced_Specimen_v2_0_20150421.pdf

    RAPIDD Informed Consent Form: https://www.nlm.nih.gov/dimrc/RAPIDD_ICF_v4.0_20150421_508_OPS.pdf

    RAPIDD Answers to Your Questions: https://www.nlm.nih.gov/dimrc/RAPIDD_FAQs_V4.0_20150421_508.pdf

    Appendix B: Protocol Amendment Checklist: https://www.nlm.nih.gov/dimrc/RAPIDD_Appendix_B_508.pdf

    Appendix D: Example of Protocol Implementation During a Disaster Scenario: https://www.nlm.nih.gov/dimrc/RAPIDD_Appendix_D_508-1.pdf
    Includes Research Tools: Yes.
    ID: 12463. From: Disaster Lit®a database of the U.S. National Library of Medicine.
  8. Emergency Nutrition Assessment (ENA)
    Source: Action Against Hunger (ACF)
    Date Published: 7/9/2015
    Format: Text
    Annotation: The purpose of the Emergency Nutrition Assessment (ENA) for Standardized Monitoring and Assessment of Relief and Transitions (SMART) is to make nutrition assessments and mortality rate calculations in emergency situations as easy and reliable as possible. It focuses on the most important indicators (anthropometric and mortality data), checks the plausibility of the entered data, and gives out an automatic report. Since the software cannot explain why children are malnourished or mortality rates are high, the results of the survey have to be complemented with other information (e.g., from the Food Security part of ENA or discussions with key informants); collection of this additional information on the household level has a high risk to reduce the quality of the anthropometric and mortality data. This resource was identified by the NIH Disaster Research Response Program (DR2) for researchers looking for pre- and post-disaster data collection instruments.

    Population: All/Anyone
    Administered by: Specialist/Doctor/Expert
    Language(s): English, French, Spanish    ...[See more] [See less]
    URL: http://smartmethodology.org/survey-planning-tools/smart-emergency-nutrition-assessment/
    Type: Guideline/Assessment Tool
    Access Notes: Free/Publicly Available

    Citation(s):
    Amagai T, Ichimaru S, Tai M, Ejiri Y, Muto A. Nutrition in the Great East Japan Earthquake Disaster. Nutr Clin Pract. 2014 Oct;29(5):585-94. Epub 2015 Jan 22. PubMed PMID: 25606634. https://www.ncbi.nlm.nih.gov/pubmed/25606634. Subscription required.

    Amagai T, Ichimaru S, Tai M, Ejiri Y, Muto A. Disaster Nutrition in the Great East Japan Earthquake Disaster. Nutr Clin Pract. 2014 Jul 23. doi: 10.1177/0884533614543833. Epub 2014 Jul 25. PubMed PMID: 25057050. https://www.ncbi.nlm.nih.gov/pubmed/25057050. Subscription required.

    Tursich M, Neufeld RW, Frewen PA, Harricharan S, Kibler JL, Rhind SG, Lanius RA. Association of trauma exposure with proinflammatory activity: a transdiagnostic meta-analysis. Transl Psychiatry. 2014;4:e413. doi: 10.1038/tp.2014.56. Epub 2014 Jul 23. PubMed PMID: 25050993; PubMed Central PMCID: PMC4119223. https://www.ncbi.nlm.nih.gov/pubmed/25050993. Subscription not required.

    Contact information:

    Institution: Action Against Hunger Canada/Action contre la Faim Canada
    Address: 720 Bathurst St., Suite 500, Toronto, ON, M55 2R4, Canada
    Includes Research Tools: Yes.
    ID: 12907. From: Disaster Lit®a database of the U.S. National Library of Medicine.
  9. 2015 Bastrop County CASPER (Community Assessment for Public Health Emergency Response) Questionnaire
    Source: Centers for Disease Control and Prevention (CDC)
    Date Published: 4/23/2015
    Format: PDF
    Annotation: The survey instrument used in the 2015 Community Assessment for Public Health Emergency Response (CASPER) in Bastrop, Texas, consisted of questions addressing several areas of concern for local emergency management and public health officials involved in the disaster response and recovery efforts for a wildfire. A similar instrument was also previously administered in 2011 in Bastrop, Texas. Subject areas included structural damage to the residence, access to basic services such as utilities, access to medical care, physical and mental health status, evacuation behaviors, wildfire-related communications, and pet and livestock issues, preparedness, and recovery. This resource was identified by the NIH Disaster Research Response Program (DR2) for researchers looking for pre- and post-disaster data collection instruments.

    Ease of Use in Disaster Setting: Easy
    Flesch-Kincaid Reading Level: 5.7
    Population: Residential/Workplace
    Length: 33 questions
    Administered by: Lay Interviewer
    Language(s): English    ...[See more] [See less]
    URL: http://online.liebertpub.com/doi/suppl/10.1089/hs.2015.0060/suppl_file/Supp_App2.pdf
    Type: Guideline/Assessment Tool
    Access Notes: Free/Publicly Available

    Citation(s):
    Kirsch KR, Feldt BA, Zane DF, Haywood T, Jones RW, Horney JA. Longitudinal Community Assessment for Public Health Emergency Response to Wildfire, Bastrop County, Texas. Health Secur. 2016 Mar-Apr; PubMed PMID: 27081889. https://www.ncbi.nlm.nih.gov/pubmed/27081889. Subscription not required.

    Contact information:

    Contact person: Jennifer Horney, PhD
    Institution: Texas A&M University
    Address: Epidemiology and Biostatistics, 1266 TAMU
    College Station, TX 77843
    E-mail: horney@sph.tamhsc.edu
    Includes Research Tools: Yes.
    ID: 12945. From: Disaster Lit®a database of the U.S. National Library of Medicine.
  10. About NIOSH (National Institute for Occupational Safety and Health) and the Respirator Use Questionnaire: About NIOSH-Approved Disposable N95 Respirators; Respirator Use Questionnaire, New Orleans, Louisiana
    Source: National Institute for Occupational Safety and Health [Centers for Disease Control and Prevention] (CDC NIOSH)
    Date Published: 2015
    Format: Text
    Annotation: The National Institute for Occupational Safety and Health (NIOSH) is working with people on behalf of the State of Louisiana to encourage and explore public use of masks and respirators. This survey targets those who have experienced hurricanes living in New Orleans. Questions relate to disaster experience, health, visual evaluation, and demographics. NIOSH aims to promote cautionary tools such as masks among certain populations to minimize public inhalation of mold and other contaminants. This resource was identified by the NIH Disaster Research Response Program (DR2) for researchers looking for pre- and post-disaster data collection instruments.

    Ease of Use in Disaster Setting: Easy
    Flesch-Kincaid Reading Level: 6.1
    Population: High Risk/Special/Unique Populations
    Length: 23 questions
    Administered by: Lay Interviewer
    Language(s): English    ...[See more] [See less]
    URL: https://www.nlm.nih.gov/dimrc/Respirator_Use_Questionnaire_New_Orleans.doc
    Type: Guideline/Assessment Tool
    Access Notes: Contact information:
    Centers for Disease Control and Prevention, 800-CDC-INFO.
    Includes Research Tools: Yes.
    ID: 11420. From: Disaster Lit®a database of the U.S. National Library of Medicine.
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