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  1. RADx Common Data Elements
    Source: National Institutes of Health (NIH)
    Date Published: 3/25/2021
    Format: Text
    Annotation: The RADx program represents an unprecedented investment by the NIH to mitigate the COVID-19 pandemic by accelerating access to testing. There is much to be learned, both in the present as well as over time. To glean the maximum value from the data generated through RADx, all studies involving human participants are required to collect information on 12 key data elements, referred to as common data elements (CDEs).
    Guidance: https://disasterinfo.nlm.nih.gov/content/files/RADx_Exec_Guidance_equired_CDE.docx
    Letter: https://disasterinfo.nlm.nih.gov/content/files/RADX_2021-03-25_Letter.docx
    PDF version: https://disasterinfo.nlm.nih.gov/content/files/RADxExecCommRequiredCDEs2_RADx.pdf
    REDCap: https://disasterinfo.nlm.nih.gov/content/files/RADx%20Exec%20Comm%20Required%20CDEs2%20_%20REDCap.pdf
    Data Dictionary https://disasterinfo.nlm.nih.gov/content/files/RADxExecCommRequiredCDEs2_DataDictionary_2021-04-19.csv


    Includes Common Data Elements From: Yes
    Language(s): English    ...[See more] [See less]
    URL: https://disasterinfo.nlm.nih.gov/content/files/RADx_Exec_Comm_Required_CDE.docx
    Type: Guideline/Assessment Tool
    Access Notes: Free/Publicly Available

    Available Formats: Text

    Contact Information: Dr. Patti Brennan email: patti.brennan@nih.gov
    Includes Research Tools: Yes.
    ID: 24244. From: Disaster Lit®a database of the U.S. National Library of Medicine.
    REDCap: Yes.
  2. RADx-UP Common Data Elements
    Source: Duke University
    Date Published: 1/11/2021
    Format: Text
    Annotation: RADx-UP is a part of RADx, the overall National Institutes of Health (NIH) initiative to help speed innovation in the development and implementation of COVID-19 testing. In order to ensure consistency in how RADx-UP projects collect data for the RADx Data Hub and simplify the analysis of that data, the NIH defined a set of Common Data Elements (CDEs). The NIH CDEs provide a standard set of study questions that RADx-UP projects are required to use in their COVID-19 testing studies. The RADx-UP Coordination and Data Collection Center (CDCC) also provided an Informed Consent Form (ICF) data sharing language template to help standardize the consent process.

    The consistent use of the CDEs and ICF data sharing language by RADx-UP projects will allow the RADx-UP consortium to aggregate data from across all the populations and communities that projects study and engage. In addition, the CDCC will be able to deposit that collected data with the RADx Data Hub, leading to rapid and increased learning about this pandemic.

    REDCap Data Dictionary Codebook PDF: https://radx-up.org/wp-content/uploads/2021/01/RADx-UP-_-REDCap20201230_codebook-.pdf
    RADx-UP Data Dictionary Codebook CSV (updated Jan. 11th): https://radx-up.org/wp-content/uploads/2021/01/RADxUPDev_DataDictionary_2020-12-30.csv
    RADx-UP PDF form for paper data collection: https://radx-up.org/wp-content/uploads/2021/01/RADxUP_20201230_forms.pdf
    Spanish REDCap Data Dictionary Codebook PDF: https://radx-up.org/wp-content/uploads/2021/01/RADxUPDev_ES_20201230_codebook_20210127.pdf
    Spanish REDCap Data Codebook CSV: https://radx-up.org/wp-content/uploads/2021/01/RADxUPDev_DataDictionary_2020-12-30_ES-US_20210127.csv
    Spanish RADx-UP PDF form for paper data collection: https://radx-up.org/wp-content/uploads/2021/01/RADxUPDev_ES_20201230_forms_202010127.pdf
    Data Transfer Agreement
    RADx-UP CDCC Data Transfer Agreement: https://radx-up.org/wp-content/uploads/2021/02/RADx-UP-CDCC-Data-Transfer-Agreement-15Jan21.pdf
    Data Harmonization Guidance
    NIH Guidance on RADx-UP Data Harmonization: https://radx-up.org/wp-content/uploads/2021/01/RADx-UP_Data_Harmonization_Guidance_CDEs.pdf
    Informed Consent Data Sharing
    RADx-UP Informed Consent Data Sharing Template Language: https://radx-up.org/wp-content/uploads/2021/02/RADx-UP-ICF-template_v.1.0_12.30.2020.pdf
    RADx-UP Informed Consent Data Sharing Template Language (Spanish): https://radx-up.org/wp-content/uploads/2021/02/RADx-UP-ICF-template_v.1.0_12.30.2020_ES-US.pdf

    Population: Adults
    Length: 265 questions
    Mode of Administration: Online (e.g., computer-assisted interview), Paper/written
    Language(s): English, Spanish    ...[See more] [See less]
    URL: https://radx-up.org/learning-resources/cdes/
    Type: Guideline/Assessment Tool
    Access Notes: Free/Publicly Available

    RADx-UP Toolkit https://radx-up.org/toolkit/: The Rapid Acceleration of Diagnostics-Underserved Populations (RADx-UP) Coordination and Data Collection Center (CDCC) toolkit provides resources and materials to support the work of our RADx-UP projects and partners.

    Available Formats: Text

    Contact Information: Laura Johnson (DCRI) Email: laura2.johnson@duke.edu
    Includes Research Tools: Yes.
    ID: 24221. From: Disaster Lit®a database of the U.S. National Library of Medicine.
    REDCap: Yes.
  3. C4R COVID-19 Questionnaire: Collaborative Cohort of Cohorts for COVID-19 Research
    Source: Columbia University
    Date Published: 1/2021
    Format: PDF
    Annotation: The purpose of this questionnaire is to ascertain data on COVID-19 testing, self-reported COVID-19 diagnoses and hospitalizations, symptoms, recovery, re-infection, and vaccination. It also assesses the impact of the pandemic on access to healthcare, finances, health-related behaviors, social interactions, and mood. This questionnaire can be administered to individuals with no prior COVID assessments as well as those with prior COVID assessments. If prior assessments are available, text is provided to guide the interviewer to gather new information.

    Questions Adapted From: Please see page 2 of the questionnaire.
    Population: Adults only
    Mode of Administration: Online (e.g., computer-assisted interview)
    Pen and Paper
    Telephone
    Administered by: Professional Interviewer
    Self Administered
    Specialist/Doctor/Expert
    Trained Lay Examiner/Interviewer
    Language(s): English, Spanish, Chinese    ...[See more] [See less]
    URL: https://disasterinfo.nlm.nih.gov/content/files/C4R_Wave%202_Questionnaire_Final.pdf
    Type: Guideline/Assessment Tool
    Access Notes: Free/Publicly Available
    Find information about Data collection for the Collaborative Cohort of Cohorts for COVID-19 Research (C4R): https://c4r-nih.org/content/data-collection
    Redcap data dictionary and codebook are available upon request.

    As part of the NIH NHLBI CONNECTS program, the C4R observational study is collecting participant data and samples to better understand COVID-19 and the associated symptoms and side effects. Find more information on the CONNECTS component of the C4R study: https://nhlbi-connects.org/secure/study/6.

    Citation(s):
    C4R Investigators (2020). C4R Questionnaire.

    Available Formats: PDF

    Contact Information: c4r@cumc.columbia.edu
    Includes Research Tools: Yes.
    ID: 24223. From: Disaster Lit®a database of the U.S. National Library of Medicine.
    REDCap: Yes.
  4. National Social Life, Health, and Aging Project (NSHAP) COVID-19 Study: Survey Questionnaire
    Source: NORC at the University of Chicago (NORC)
    Date Published: 9/14/2020
    Format: PDF
    Annotation: This is a brief self-report questionnaire that probes how the coronavirus pandemic has changed older adults' lives. It is designed to be administered via web survey, phone interview, or paper-and-pencil mail-back instrument. The questionnaire was designed for respondents in the National Social Life, Health and Aging Project (NSHAP) (https://www.norc.org/Research/Projects/Pages/national-social-life-health-and-aging-project.aspx ), on whom considerable background information is already available. This questionnaire is thus limited to assessing specific domains in which respondents may have been affected by the coronavirus pandemic, and includes: (1) COVID experiences, (2) health and health care, (3) job and finances, (4) social support, (5) marital status and relationship quality, (6) social activity and engagement, (7) living arrangements, (8) household composition and size, (9) mental health, (10) elder mistreatment, (11) health behaviors, and (12) positive impacts of the coronavirus pandemic. Questions about engagement in racial justice issues since the death of George Floyd in police custody were also added to facilitate analysis of the independent and compounding effects of both the COVID-19 pandemic and reckoning with longstanding racial injustice in America.

    Questions Adapted From:
    The following questions were adapted from the Health and Retirement Study (HRS) 2020: COVID experiences (Q1-3), health care (Q6), job and finances (Q10), social support (Q13-16), social relationship quality (Q20), and living arrangements (Q32-33, 35-36).
    The following questions were adapted from previous National Social Life, Health and Aging Project (NSHAP) rounds: physical health (Q4), marital status (Q17) and relationship quality (Q18), mental health (Q39-40, 44-48), elder mistreatment (Q49-50), and health behaviors (Q52, 54-55, 57, 59).
    Items about social activity and engagement (Q21-24, 26-29) were adapted from the National Health and Aging Trends Study (NHATS) COVID-19 Questionnaire. o An item about change in marital quality (Q19) was adapted from the Monmouth University Poll.
    Two items (Q42-43) were adapted from the Generalized Anxiety Disorder 2-item scale. Citation: Kroenke K, Spitzer RL, Williams JB, Monahan PO, Löwe B. Anxiety disorders in primary care: prevalence, impairment, comorbidity, and detection. Ann Intern Med. 2007;146:317-25.
    Items about the positive impacts of the pandemic (Q60-61) were adapted from the Coronavirus Health Impact Survey (CRISIS) and the COVID Response Tracking Study.
    Items about household composition and size (Q37-38) were also adapted from the COVID Response Tracking Study.
    Includes Common Data Elements From: Health and Retirement Study, National Health and Aging Trends Study, National Social Life Health and Aging Project, COVID Response Tracking Study, Monmouth University Poll, Coronavirus Health Impact Survey
    Population: Adults Only
    Length: 62 items
    Time to Complete: 20-25 minutes
    Mode of Administration: Online (e.g., computer-assisted interview)
    Pen and Paper
    Telephone
    Administered by: Self Administered
    Trained Lay Examiner/Interviewer
    Language(s): English

    Data Dictionary: https://disasterinfo.nlm.nih.gov/content/files/NSHAP_COVID19_Study_Data%20Dictionary.pdf    ...[See more] [See less]
    URL: https://disasterinfo.nlm.nih.gov/content/files/NSHAP_COVID19%20Study_Instrument.pdf
    Type: Guideline/Assessment Tool
    Access Notes: Free/Publicly Available

    Available Formats: PDF

    Contact Information: NORC at the University of Chicago, Dr. Louise Hawkley, hawkley-louise@norc.org
    Includes Research Tools: Yes.
    ID: 24240. From: Disaster Lit®a database of the U.S. National Library of Medicine.
    REDCap: Yes.
  5. COVID-19 Survey for Workers
    Source: University of California, Davis
    Date Published: 7/16/2020
    Format: PDF
    Annotation: The purpose of this COVID-19 survey is to facilitate a rapid research response to the COVID-19 pandemic that will describe the affected population of frontline workers, their vulnerabilities, and their most urgent needs; and identify critical unmet needs and compare across geographic areas, types of facilities, job types, and sociodemographic characteristics.

    Population: Adult Workers
    Length: 80 questions
    Time to Complete: 15-20 minutes
    Mode of Administration: Online (e.g., computer-assisted interview)
    Pen and Paper
    Telephone
    Administered by: Self Administered
    Language(s): English, Spanish


    Survey for Workers: Full Questionnaire https://www.phenxtoolkit.org/toolkit_content/PDF/UCD_Workers.pdf
    Covid-19 Infection: General Symptoms; Diagnosis https://www.phenxtoolkit.org/toolkit_content/PDF/UCD_Workers_Infection.pdf
    The Workplace: Employment; Personal Protective Equipment; Health Care https://www.phenxtoolkit.org/toolkit_content/PDF/UCD_Workers_Workplace.pdf
    Demographics: Personal Demographics; Chronic Health Conditions https://www.phenxtoolkit.org/toolkit_content/PDF/UCD_Workers_Demographics.pdf
    Changes to your life since COVID-19: Overall Impact https://www.phenxtoolkit.org/toolkit_content/PDF/UCD_Workers_Life_Changes.pdf
    Financial situation: Economic Insecurity https://www.phenxtoolkit.org/toolkit_content/PDF/UCD_Workers_Financial.pdf
    Living situation: Personal Demographics; Home Life https://www.phenxtoolkit.org/toolkit_content/PDF/UCD_Workers_Living_Situation.pdf
    Knowledge about COVID-19 protection measures: Attitudes; Knowledge
    https://www.phenxtoolkit.org/toolkit_content/PDF/UCD_Workers_Knowledge.pdf
    Pregnancy: Current Pregnancy; Past Pregnancy https://www.phenxtoolkit.org/toolkit_content/PDF/UCD_Workers_Pregnancy.pdf    ...[See more] [See less]
    URL: https://www.nlm.nih.gov/dr2/UCD_COVID-19_Survey_for_Workers.pdf
    Type: Guideline/Assessment Tool
    Access Notes: Free/Publicly Available
    Public survey available: https://redcap.ucdmc.ucdavis.edu/redcap/surveys/index.php?s=AXALYRE8RF
    Available Formats: PDF

    Contact Information:
    University of California, Davis
    Natalie Nardone, nlnardone@ucdavis.edu
    Includes Research Tools: Yes.
    ID: 23745. From: Disaster Lit®a database of the U.S. National Library of Medicine.
    REDCap: Yes.
  6. Costs and Socioeconomic Consequences of Self-isolation and Quarantine for COVID-19 on Vulnerable Populations
    Source: University of California, San Francisco (UCSF)
    Date Published: 6/5/2020
    Format: PDF
    Annotation: This is a self-report, administered questionnaire collected via REDCap (Research Electronic Data Capture system) to assess the costs and socioeconomic consequences of non-pharmaceutical public health interventions to mitigate community transmission of COVID-19 such as stay-at-home/shelter-in-place, self-isolation, and quarantine on high-risk populations (primarily those who are low-income, non-U.S. born, or for whom English is a second language).

    This survey is to be administered to all participants who have not had symptoms consistent with COVID-19. This includes participants who may have been quarantined due to being in contact with a person with confirmed COVID-19, but they themselves do not or have not had the disease. Questions and answers of this section should reflect ALL costs related to social distancing, quarantine, and shelter-in-place orders, including lost income, housing instability, and food insecurity. All of the questions are referring to the time period of the shelter-in-place order during which all individuals are asked to stay at home except for those who are considered essential workers or to do essential activities like grocery shopping or accessing health services from March 19 to May 31, 2020.

    Population: Adult Workers
    Adults Only
    Length: Approximately 30 questions
    Time to Complete: 20 minutes
    Mode of Administration: Face-to-face
    Telephone
    Administered by: Trained Lay Examiner/Interviewer
    Language(s): English, Spanish, Mandarin, Cantonese

    Costs and Socioeconomic Consequences of Self-isolation and Quarantine for COVID-19 on Vulnerable Populations: Full Questionnaire https://www.phenxtoolkit.org/toolkit_content/PDF/UCSF_Shelter_In_Place.pdf
    Costs Associated with Social Distancing, Quarantine, and “Shelter-in-Place” Orders: Economic Insecurity; Economic Impact https://www.phenxtoolkit.org/toolkit_content/PDF/UCSF_Shelter_In_Place_Costs.pdf
    Income Changes because of Social Distancing, Quarantine, or Shelter-in-Place Orders: Economic Impact https://www.phenxtoolkit.org/toolkit_content/PDF/UCSF_Shelter_In_Place_Income.pdf
    Accommodations for Employment: Economic Insecurity; Employment https://www.phenxtoolkit.org/toolkit_content/PDF/UCSF_Shelter_In_Place_Accomodations.pdf
    Changes in Food Security: Food Security https://www.phenxtoolkit.org/toolkit_content/PDF/UCSF_Shelter_In_Place_Food_Security.pdf    ...[See more] [See less]
    URL: https://www.nlm.nih.gov/dr2/Final_Shelter_in_place_Costing_Survey_06052020.pdf
    Type: Guideline/Assessment Tool
    Access Notes: Permission/Request required

    Available Formats: PDF

    Contact Information:
    Neeta Thakur, MD MPH and Priya B. Shete, MD MPH
    Division of Pulmonary and Critical Care Medicine
    University of California, San Francisco, and San Francisco General Hospital
    Email: neeta.thakur@ucsf.edu or priya.shete@ucsf.edu
    Includes Research Tools: Yes.
    ID: 23630. From: Disaster Lit®a database of the U.S. National Library of Medicine.
    REDCap: Yes.
  7. Determining Economic Burden Related to COVID-19 and COVID-19-like symptoms: COVID-19 Cost Survey
    Source: University of California, San Francisco (UCSF)
    Date Published: 6/5/2020
    Format: PDF
    Annotation: This is a self-report, administered questionnaire collected via REDCap (Research Electronic Data Capture system) to assess the costs and socioeconomic consequences of having COVID-19 or COVID-19 like symptoms.

    Population: Adults Only
    Length: Approximately 30 questions
    Time to Complete: 20 minutes
    Mode of Administration: Face-to-face
    Telephone
    Administered by: Trained Lay Examiner/Interviewer
    Language(s): English, Spanish, Mandarin, Cantonese

    Determining Economic Burden related to COVID-19 and COVID-19-like symptoms: Full Questionnaire https://www.phenxtoolkit.org/toolkit_content/PDF/UCSF_COST.pdf
    Costs associated with care-seeking for COVID19 related symptoms and COVID19 diagnosis: Economic Impact; Health Care https://www.phenxtoolkit.org/toolkit_content/PDF/UCSF_COST_Costs.pdf
    Income Changes: Employment; Economic Insecurity https://www.phenxtoolkit.org/toolkit_content/PDF/UCSF_COST_Income.pdf    ...[See more] [See less]
    URL: https://www.nlm.nih.gov/dr2/Final_COVID19COSTSURVEY_06052020.pdf
    Type: Guideline/Assessment Tool
    Access Notes: Free/Publicly Available

    Available Formats: PDF

    Contact Information:
    Neeta Thakur, MD MPH and Priya B. Shete, MD MPH
    Division of Pulmonary and Critical Care Medicine
    University of California, San Francisco, and San Francisco General Hospital
    Email: neeta.thakur@ucsf.edu or priya.shete@ucsf.edu
    Includes Research Tools: Yes.
    ID: 23631. From: Disaster Lit®a database of the U.S. National Library of Medicine.
    REDCap: Yes.
  8. Coronavirus Impact Scale
    Source: Johns Hopkins School of Medicine
    Date Published: 5/2/2020
    Format: PDF
    Annotation: The Coronavirus Impact Scale was developed by Joan Kaufman and Joel Stoddard. It asks 12 questions, and is used to rate how COVID-19 has changed a person's life.

    Population: All/Anyone
    Length: 12 questions
    Administered by: Trained Lay Examiner/Interviewer
    Language(s): English, Spanish, French Canadian

    Coronavirus Impact Scale French Canadian Language: https://disasterinfo.nlm.nih.gov/content/files/Coronavirus%20Impact%20Scale%20-%20French%20Canadian%20-%20sondage%20mieux-%C3%AAtre.pdf
    Coronavirus Impact Scale Slovene Language: https://disasterinfo.nlm.nih.gov/content/files/Coronavirus%20Impact%20Scale%20-%20Slovene%20-%20LESTVICA%20VPLIVA%20KORONAVIRUSA.pdf
    Coronavirus Impact Scale Spanish: https://disasterinfo.nlm.nih.gov/content/files/Coronavirus%20Impact%20Scale_Spanish.pdf
    Coronavirus Impact Scale Manual: https://disasterinfo.nlm.nih.gov/content/files/COVID-19%20Impact%20Scale%20Manual.pdf
    Coronavirus Impact Scale REDCap Instrument (English): https://disasterinfo.nlm.nih.gov/content/files/instrument.csv    ...[See more] [See less]
    URL: https://disasterinfo.nlm.nih.gov/content/files/Coronavirus%20Impact%20Scale.pdf
    Authors: Kaufman, Joan; Stoddard, Joel
    Type: Guideline/Assessment Tool
    Access Notes: Free/Publicly Available
    Contact Information: Joel Stoddard, MD MAS, at joel.stoddard@cuanschutz.edu, Joan Kaufman, PhD., at joan.kaufman@kennedykrieger.org
    Includes Research Tools: Yes.
    ID: 21816. From: Disaster Lit®a database of the U.S. National Library of Medicine.
    REDCap: Yes.
  9. ABCD COVID-19 Impact Measure
    Source: University of California, San Diego (UCSD)
    Date Published: 5/2020
    Format: PDF
    Annotation: The COVID-19 Impact Measure was created to be administered to the participants of the NIH-sponsored Adolescent Brain and Cognitive Development (ABCD) longitudinal study of 11,880 diverse community youth enrolled at age 9-10 in 2016-2018 (i.e., birth years 2006-2009) at 21 research sites around the United States. The ABCD sample (63% White, 20% Latinx, 16% Black, 12% more than one race, 2% Asian, <1% American Indian, <1% Pacific Islander; half female) was targeted to match U.S. demographics as defined by the American Community Survey and is being followed until at least age 20. ABCD will send all currently enrolled participants (age range: 11-13) and their parent/guardian the opportunity to complete the ABCD COVID-19 questionnaires. The questionnaires will be administered once a month for four months. Each participant and their parent/guardian will be emailed a unique secure link to the parent and child forms to complete the survey in REDCap. Compensation will be provided upon receipt of the completed form. These measures were developed by a workgroup consisting of ABCD investigators with expertise in adolescent development, mental health, sleep, physical activity, substance use, and disaster response, and the electronic surveys underwent preliminary testing via expert review and pilot testing with adults and children.

    Note the Parent Measures contain the English and Spanish wording. The Parent Measure appears in two parts to accommodate parents who have more than one child in the ABCD Study (our design intentionally oversampled identical twins): Part 1 consists of questions that pertain to parent and family factors; Part 2 consists of questions pertaining to each child they have in the study. ABCD's COVID-19 research sends the measure multiple times over several months in 2020; to reduce participant burden, some items have skip-out branching logic and other items are given at one or two survey administrations and other items are administered each time (noted in comments in the measure PDFs).

    Domains included in the measure:
    * Family Situation: Home composition, economic impact, illness, parent support
    * Youth's Schooling: quality, quantity, methods, and supervision
    * Youth's Routine and Sleep
    * Relationships: friends and family
    * COVID Attitudes and Adherence (to public health directives)
    * Mental Health and Stress: depression, anxiety, worry, post-traumatic stress
    * Substance Use: alcohol, vaping of nicotine and cannabis, other intoxicants
    * Screen Use: for school, socializing, other reasons
    * Media Exposure to COVID-19
    * Physical Health: activity, food access, COVID-19 symptoms

    Population: Adults Only
    Children/Teens Only
    Length: ~85-90 items (Youth)* ; ~80-90 items (Parent) *Note: both measures have skip-out branching logic and not all questions may be asked to all participants.
    Time to Complete: 10-15 minutes
    Mode of Administration: Online (e.g., computer-assisted interview)
    Administered by: Self Administered
    Language(s): English, Spanish (Parent)

    ABCD COVID-19 Impact Measure - Parent Questionnaire https://www.phenxtoolkit.org/toolkit_content/PDF/UCSD_ABCD_Parent.pdf
    Family Situation: Economic Insecurity; Avoidant Behaviors https://www.phenxtoolkit.org/toolkit_content/PDF/UCSD_ABCD_Parent_Family.pdf
    Youth's Schooling: Education https://www.phenxtoolkit.org/toolkit_content/PDF/UCSD_ABCD_Parent_Schooling.pdf
    Youth's Routine and Sleep: Physical Activity; Sleep Changes https://www.phenxtoolkit.org/toolkit_content/PDF/UCSD_ABCD_Parent_Routine.pdf
    Relationships: Family Impact; Hygiene; Social Impact https://www.phenxtoolkit.org/toolkit_content/PDF/UCSD_ABCD_Parent_Relationships.pdf
    COVID Attitudes & Adherence: Conflict; Attitudes https://www.phenxtoolkit.org/toolkit_content/PDF/UCSD_ABCD_Parent_Attitudes.pdf
    Mental Health & Stress: Mental Health; Stress https://www.phenxtoolkit.org/toolkit_content/PDF/UCSD_ABCD_Parent_Mental_Health.pdf
    Substance Use: Substance Use https://www.phenxtoolkit.org/toolkit_content/PDF/UCSD_ABCD_Parent_Substance_Use.pdf
    Screen Use: Media Use https://www.phenxtoolkit.org/toolkit_content/PDF/UCSD_ABCD_Parent_Screen_Use.pdf
    Media Exposure to COVID-19: Sources of information about COVID-19 https://www.phenxtoolkit.org/toolkit_content/PDF/UCSD_ABCD_Parent_Media_Exposure.pdf
    Physical Health: Symptoms; Diagnosis; Health Care https://www.phenxtoolkit.org/toolkit_content/PDF/UCSD_ABCD_Parent_Physical_Health.pdf

    ABCD COVID-19 Impact Measure - Youth Questionnaire https://www.phenxtoolkit.org/toolkit_content/PDF/UCSD_ABCD_Youth.pdf
    School Schedule: Education https://www.phenxtoolkit.org/toolkit_content/PDF/UCSD_ABCD_Youth_School.pdf
    Youth's Routine and Sleep: Sleep Changes https://www.phenxtoolkit.org/toolkit_content/PDF/UCSD_ABCD_Youth_Routine_and_Sleep.pdf
    Parents/Guardians: Home Life https://www.phenxtoolkit.org/toolkit_content/PDF/UCSD_ABCD_Youth_Guardians.pdf
    Relationships: Family Impact; Social Impact https://www.phenxtoolkit.org/toolkit_content/PDF/UCSD_ABCD_Youth_Relationships.pdf
    Mental Health & Stress: Mental Health https://www.phenxtoolkit.org/toolkit_content/PDF/UCSD_ABCD_Youth_Mental_Health_Stress.pdf
    Substance Use: Substance Use https://www.phenxtoolkit.org/toolkit_content/PDF/UCSD_ABCD_Youth_Substance_Use.pdf
    Media Exposure to COVID-19: Sources of information about COVID-19 https://www.phenxtoolkit.org/toolkit_content/PDF/UCSD_ABCD_Youth_Media.pdf
    Screen Use: Media Use https://www.phenxtoolkit.org/toolkit_content/PDF/UCSD_ABCD_Youth_Screen_Use.pdf
    Physical Health: Physical Activity https://www.phenxtoolkit.org/toolkit_content/PDF/UCSD_ABCD_Youth_Physical_Health.pdf    ...[See more] [See less]
    URL: https://www.nlm.nih.gov/dr2/ABCD_COVID-19_Impact_Measure-Parent.pdf
    Type: Guideline/Assessment Tool
    Access Notes: Free/Publicly Available Youth Survey: https://www.nlm.nih.gov/dr2/ABCD_COVID-19_Impact_Measure-Youth.pdf
    Available Formats: PDF
    Contact Information:
    Susan Tapert, PhD.
    abcd-covid@ucsd.edu
    Includes Research Tools: Yes.
    ID: 22354. From: Disaster Lit®a database of the U.S. National Library of Medicine.
    REDCap: Yes.
  10. Coping with COVID-19: Impact on technology use, mobility, food security, depression and social isolation
    Source: University of Florida (UF)
    Date Published: 5/2020
    Format: PDF
    Annotation: The purpose of this study is to remotely survey older adults about their behaviors, social activities, food security, depression, technology use, and mobility patterns prior to and after the COVID-19 outbreak. We will also ask about practicing COVID-19 precautions during outbreak. This survey knowledge will be critical for targeting educational, policy and behavioral interventions designed to regain and/or modify older adults life activities post-COVID-19. Potential participants will either enter or click on the weblink to access the survey. The front page will contain the following information: broad purpose, optional nature of the survey, amount of time the survey takes, HIPAA compliances, risks, privacy, and research staff contact information in case of questions. The survey is approximately 200 questions depending on responses and skip patterns. It takes about 30-45 minutes to complete. The surveys are broken into logical domains and are ordered in the manner to capture the most important information first. Questions under each module listed below represent elements of validated surveys from PROMIS and others in the literature. Some have been modified to capture changes since the COVID-19 outbreak. The bottom of each module contains a “submit” button at which time the data are saved.
    Questions Adapted From: Some questions are adapted from PROMIS measures.
    Population: Adults Only
    Length: 200 questions
    Time to Complete: 30-45 minutes
    Mode of Administration: Online (e.g., computer-assisted interview)
    Special considerations for Administration: must be taken online at https://redcap.ctsi.ufl.edu/redcap/surveys/index.php?s=Y8LL3DFYCK
    Administered by: Self Administered
    Language(s): English

    Coping with COVID-19: Impact on technology use, mobility, food security, depression and social isolation https://www.phenxtoolkit.org/toolkit_content/PDF/Coping.with.COVID19.pdf
    Mobility Due To COVID: Physical Activity https://www.phenxtoolkit.org/toolkit_content/PDF/UFl_Coping_with_COVID19_Mobility.pdf
    Technology Telehealth Use During COVID: Media Use; Telehealth https://www.phenxtoolkit.org/toolkit_content/PDF/UFl_Coping_with_COVID19_Technology.pdf
    Life-space Mobility During COVID: Mental Health https://www.phenxtoolkit.org/toolkit_content/PDF/UFl_Coping_with_COVID19_Life_Space.pdf
    Mood and Sleep During COVID: Mental Health; Sleep Changes https://www.phenxtoolkit.org/toolkit_content/PDF/UFl_Coping_with_COVID19_Mood.pdf
    Socialization During COVID: Social Impact https://www.phenxtoolkit.org/toolkit_content/PDF/UFl_Coping_with_COVID19_Socialization.pdf
    Physical Activity During COVID: Physical Activity; Daily Life https://www.phenxtoolkit.org/toolkit_content/PDF/UFl_Coping_with_COVID19_Physical.pdf
    Other Activities During COVID: Overall Impact https://www.phenxtoolkit.org/toolkit_content/PDF/UFl_Coping_with_COVID19_Other.pdf
    Food Access During COVID19: Food Security https://www.phenxtoolkit.org/toolkit_content/PDF/UFl_Coping_with_COVID19_Food.pdf
    Thoughts and Feelings About COVID-19 (open ended): Overall Impact https://www.phenxtoolkit.org/toolkit_content/PDF/UFl_Coping_with_COVID19_Thoughts.pdf    ...[See more] [See less]
    URL: https://www.nlm.nih.gov/dr2/Coping_with_COVID19_UFla.pdf
    Type: Guideline/Assessment Tool
    Access Notes: Free/Publicly Available

    Available Formats: PDF

    Contact Information:
    Todd M. Manini, Ph.D., FACSM FGSA
    tmanini@ufl.edu
    Associate Professor
    Dept. of Aging and Geriatric Research
    Institute on Aging
    University of Florida College of Medicine

    Survey: https://redcap.ctsi.ufl.edu/redcap/surveys/index.php?s=Y8LL3DFYCK
    Includes Research Tools: Yes.
    ID: 22355. From: Disaster Lit®a database of the U.S. National Library of Medicine.
    REDCap: Yes.
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