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Youth Risk Behavior Surveillance System (YRBSS)
Source: Centers for Disease Control and Prevention (CDC)Date Published: 6/9/2016Format: TextAnnotation: The Youth Risk Behavior Surveillance System (YRBSS) monitors six types of health-risk behaviors that contribute to the leading causes of death and disability among youth and adults: behaviors that contribute to unintentional injuries and violence; sexual behaviors that contribute to unintended pregnancy and sexually transmitted diseases, including HIV infection; alcohol and other drug use; tobacco use; unhealthy dietary behaviors; and inadequate physical activity. YRBSS also measures the prevalence of obesity and asthma among youth and young adults. Questionnaires are available for both high school and middle school aged participants. This resource was identified by the NIH Disaster Research Response Program (DR2) for researchers looking for pre- and post-disaster data collection instruments.
Ease of Use in Disaster Setting: Moderate
Flesch-Kincaid Reading Level: 6.1
Population: Adults and teens
Length: The number of questions varies from middle to high school questionnaires and from year to year. The 2015 standard high school questionnaire contains 89 questions, while the middle school questionnaire contains 49 questions.
Administered by: Self Administered/Self Report
Language(s): English...[See more] [See less]Type: Guideline/Assessment ToolAccess Notes: Free/Publicly Available
Citation(s):
Ying L, Chen C, Lin C, Greenberger E, Wu X, Jiang L. The relationship between post-traumatic stress symptoms and suicide ideation among child survivors following the Wenchuan earthquake. Suicide Life Threat Behav. 2015 Apr;45(2):230-42. doi: 10.1111/sltb.12118. Epub 2014 Sep 10. PubMed PMID: 25196443. https://www.ncbi.nlm.nih.gov/pubmed/25196443. Subscription required.
Zhou X, Wu X, An Y, Fu F. Longitudinal relationships between post-traumatic stress symptoms and sleep problems in adolescent survivors following the Wenchuan earthquake in China. PLoS One. 2014;9(8):e104470. doi: 10.1371/journal.pone.0104470. Epub 2014 Aug 12. PubMed PMID: 25105288; PubMed Central PMCID: PMC4126730. https://www.ncbi.nlm.nih.gov/pubmed/25105288. Subscription not required.
Contact information:
Institution: Centers for Disease Control and Prevention
Web: https://wwwn.cdc.gov/dcs/ContactUs/FormIncludes Research Tools: Yes.ID: 12934. From: Disaster Lit®a database of the U.S. National Library of Medicine. -
BRFSS (Behavioral Risk Factor Surveillance System) Adverse Childhood Experiences (ACE) Module
Source: Centers for Disease Control and Prevention (CDC)Date Published: 3/2/2016Format: PDFAnnotation: The BRFSS (Behavioral Risk Factor Surveillance System) Adverse Childhood Experiences (ACE) module was adapted from the original CDC-Kaiser ACE Study and is used to collect information on child abuse and neglect, and household challenges. Childhood experiences, both positive and negative, have a tremendous impact on future violence victimization and perpetration, and lifelong health and opportunity. The ACE score, a total sum of the different categories of ACEs reported by participants, is used to assess cumulative childhood stress. Study findings repeatedly reveal a graded dose-response relationship between ACEs and negative health and well-being outcomes across the life course. This resource was identified by the NIH Disaster Research Response Program (DR2) for researchers looking for pre- and post-disaster data collection instruments.
Ease of Use in Disaster Setting: Easy
Flesch-Kincaid Reading Level: 7.5
Population: All/Anyone
Length: 11 questions
Administered by: Lay Interviewer
Language(s): English, Spanish...[See more] [See less]Type: Guideline/Assessment ToolAccess Notes: Free/Publicly Available
Citation(s):
Tursich M, Neufeld RW, Frewen PA, Harricharan S, Kibler JL, Rhind SG, Lanius RA. Association of trauma exposure with proinflammatory activity: a transdiagnostic meta-analysis. Transl Psychiatry. 2014;4:e413. doi: 10.1038/tp.2014.56. Epub 2014 Jul 23. PubMed PMID: 25050993; PubMed Central PMCID: PMC4119223. https://www.ncbi.nlm.nih.gov/pubmed/25050993. Subscription not required.
Contact Information:
Institution: Centers for Disease Control and Prevention
Web: https://wwwn.cdc.gov/dcs/ContactUs/FormIncludes Research Tools: Yes.ID: 13464. From: Disaster Lit®a database of the U.S. National Library of Medicine. -
Parenting Stress Index
Source: Psychological Assessment Resources, Inc. (PAR)Date Published: 2016Format: TextAnnotation: For details, see the record from HSRR (Health Services and Sciences Research Resources), a database of the U.S. National Library of Medicine. This resource was identified by the NIH Disaster Research Response Program (DR2) for researchers looking for pre- and post-disaster data collection instruments.
Ease of Use in Disaster Setting: Moderate...[See more] [See less]Type: Guideline/Assessment ToolAccess Notes: Proprietary-Cost/Purchase
Citation(s):
Gorzka PA. Homeless parents: parenting education to prevent abusive behaviors. J Child Adolesc Psychiatr Nurs. 1999; 12(3). 101-109. PMID: 10690063. https://www.ncbi.nlm.nih.gov/pubmed/10690063. Subscription not required.
Contact information:
Institution: Psychological Assessment Resources, Inc.
Phone: 1-800-331-8378Includes Research Tools: Yes.ID: 15249. From: Disaster Lit®a database of the U.S. National Library of Medicine. -
Emergency Nutrition Assessment (ENA)
Source: Action Against Hunger (ACF)Date Published: 7/9/2015Format: TextAnnotation: The purpose of the Emergency Nutrition Assessment (ENA) for Standardized Monitoring and Assessment of Relief and Transitions (SMART) is to make nutrition assessments and mortality rate calculations in emergency situations as easy and reliable as possible. It focuses on the most important indicators (anthropometric and mortality data), checks the plausibility of the entered data, and gives out an automatic report. Since the software cannot explain why children are malnourished or mortality rates are high, the results of the survey have to be complemented with other information (e.g., from the Food Security part of ENA or discussions with key informants); collection of this additional information on the household level has a high risk to reduce the quality of the anthropometric and mortality data. This resource was identified by the NIH Disaster Research Response Program (DR2) for researchers looking for pre- and post-disaster data collection instruments.
Population: All/Anyone
Administered by: Specialist/Doctor/Expert
Language(s): English, French, Spanish...[See more] [See less]Type: Guideline/Assessment ToolAccess Notes: Free/Publicly Available
Citation(s):
Amagai T, Ichimaru S, Tai M, Ejiri Y, Muto A. Nutrition in the Great East Japan Earthquake Disaster. Nutr Clin Pract. 2014 Oct;29(5):585-94. Epub 2015 Jan 22. PubMed PMID: 25606634. https://www.ncbi.nlm.nih.gov/pubmed/25606634. Subscription required.
Amagai T, Ichimaru S, Tai M, Ejiri Y, Muto A. Disaster Nutrition in the Great East Japan Earthquake Disaster. Nutr Clin Pract. 2014 Jul 23. doi: 10.1177/0884533614543833. Epub 2014 Jul 25. PubMed PMID: 25057050. https://www.ncbi.nlm.nih.gov/pubmed/25057050. Subscription required.
Tursich M, Neufeld RW, Frewen PA, Harricharan S, Kibler JL, Rhind SG, Lanius RA. Association of trauma exposure with proinflammatory activity: a transdiagnostic meta-analysis. Transl Psychiatry. 2014;4:e413. doi: 10.1038/tp.2014.56. Epub 2014 Jul 23. PubMed PMID: 25050993; PubMed Central PMCID: PMC4119223. https://www.ncbi.nlm.nih.gov/pubmed/25050993. Subscription not required.
Contact information:
Institution: Action Against Hunger Canada/Action contre la Faim Canada
Address: 720 Bathurst St., Suite 500, Toronto, ON, M55 2R4, CanadaIncludes Research Tools: Yes.ID: 12907. From: Disaster Lit®a database of the U.S. National Library of Medicine. -
Routine Assessment of Patient Index Data 3
Source: American College of RheumatologyDate Published: 4/2015Format: PDFAnnotation: For details, see the record from HSRR (Health Services and Sciences Research Resources), a database of the U.S. National Library of Medicine. This resource was identified by the NIH Disaster Research Response Program (DR2) for researchers looking for pre- and post-disaster data collection instruments.
Ease of Use in Disaster Setting: Easy
Flesch-Kincaid Reading Level: Grade 4.3...[See more] [See less]Type: Guideline/Assessment ToolAccess Notes: Free/Publicly Available
Contact information:
Institution: American College of Rheumatology
Phone: 404-633-3777Includes Research Tools: Yes.ID: 15255. From: Disaster Lit®a database of the U.S. National Library of Medicine. -
Proximity to Natural Gas Wells and Reported Health Status: Results of a Household Survey in Washington County, Pennsylvania
Source: National Institute of Environmental Health Sciences [National Institutes of Health] (NIEHS)Date Published: 8/2014Format: PDFAnnotation: This Community Assessment for Public Health Emergency Response (CASPER) questionnaire was used in a community near natural gas wells in Pennsylvania. This assessment of reported health symptoms and health status is based on questions drawn from publicly available surveys. Symptom questions, covering a range of organ systems that had been mentioned in published reports, asked respondents whether they or any household members had experienced each condition during the past year. The health assessment also asked a number of general yes/no questions about concerns of environmental hazards in the community, such as whether respondents were satisfied with air quality, water quality, soil quality, environmental noise, odors, and traffic, but did not specifically mention natural gas wells, hydraulic fracturing, or other natural gas extraction activities. The survey was pretested with focus groups in the study area in collaboration with a community-based group and revised to ensure comprehensibility of questions. This resource was identified by the NIH Disaster Research Response Program (DR2) for researchers looking for pre- and post-disaster data collection instruments.
Ease of Use in Disaster Setting: Easy
Flesch-Kincaid Reading Level: 5.7
Population: Residential/Workplace
Length: 78 questions
Administered by: Lay Interviewer
Language(s): English...[See more] [See less]Type: Guideline/Assessment ToolAccess Notes: Free/Publicly Available
Citation(s):
Rabinowitz PM, Slizovskiy IB, Lamers V, Trufan SJ, Holford TR, Dziura JD, Peduzzi PN, Kane MJ, Reif JS, Weiss TR, Stowe MH. Proximity to natural gas wells and reported health status: results of a household survey in Washington County, Pennsylvania. Environ Health Perspect. 2015 Jan;123(1):21-6. PubMed PMID: 25204871. https://www.ncbi.nlm.nih.gov/pubmed/25204871. Subscription not required.
Contact information:
Contact person: P.M. Rabinowitz
Institution: University of Washington School of Public Health, Department of Environmental and Occupational Health
Address: 1959 NE Pacific St., F551 Health Sciences Center, Box 357234, Seattle, WA 98195
Phone: 206-685-2654
E-mail: peterr7@uw.eduIncludes Research Tools: Yes.ID: 12943. From: Disaster Lit®a database of the U.S. National Library of Medicine. -
PhenX Toolkit
Source: National Human Genome Research Institute [National Institutes of Health] (NHGRI)Date Published: 1/31/2014Format: TextAnnotation: This resource provides 794 standard measures related to complex diseases, phenotypic traits, and environmental exposures. Use of PhenX measures facilitates combining data from a variety of studies, and makes it easy for investigators to expand a study design beyond the primary research focus. It includes these sections relevant to post-disaster data collection: Alcohol Substance Abuse, Demographics, Environmental Exposure, Psychiatric Psychosocial, and Social Environments. This resource was identified by the NIH Disaster Research Response Program (DR2) for researchers looking for pre- and post-disaster data collection instruments....[See more] [See less]Type: Database/DatasetIncludes Research Tools: Yes.ID: 8030. From: Disaster Lit®a database of the U.S. National Library of Medicine. -
Child Health Assessment and Monitoring Program (CHAMP)
Source: North Carolina Department of Health and Human ServicesDate Published: 2013Format: PDFAnnotation: The Child Health Assessment and Monitoring Program (CHAMP) is the first survey of its kind in North Carolina to measure the health characteristics of children, ages 0 through 17. Conducted in both English and Spanish, the CHAMP surveys are revised each year to meet the child health surveillance needs of North Carolina. This resource was identified by the NIH Disaster Research Response program (DR2) for researchers looking for pre- and post-disaster data collection instruments.
Ease of Use in Disaster Setting: Moderate
Flesch-Kincaid Reading Level: 3.8
Population: Children/teens only
Length: 25 sections
Time to Complete: 20 minutes
Administered by: Trained Lay Examiner/Interviewer Administration
Language(s): English, Spanish...[See more] [See less]Type: Guideline/Assessment ToolAccess Notes: Free/Publicly Available
Citation(s):
Miles D, et al. Health and educational status of children raised by a caregiver with a disability. Disability and Health Journal. 2011:4(3):185-191. PubMed PMID: 21723525. https://www.ncbi.nlm.nih.gov/pubmed/21723525. Subscription required.
Contact information:
Institution: State Center for Health Statistics, Division of Public Health, North Carolina Department of Health and Human Services
Address: 2422 Mail Service Center, Raleigh, NC 27699-2422
Phone: 919-855-4494
Fax: 919-715-7899
Email: CHAMPStaff@dhhs.nc.gov
Web: http://www.schs.state.nc.us/units/stat/champ/Includes Research Tools: Yes.ID: 14806. From: Disaster Lit®a database of the U.S. National Library of Medicine. -
GuLF STUDY: Gulf Long-Term Follow-Up Study
Source: National Institute of Environmental Health Sciences [National Institutes of Health] (NIEHS)Date Published: 9/7/2011Format: TextAnnotation: This web page provides information and materials about a health study for individuals who helped with the oil spill response and cleanup, took training, signed up to work, or were sent to the Gulf to help in some way after the Deepwater Horizon disaster. This resource was identified by the NIH Disaster Research Response Program (DR2) for researchers looking for pre- and post-disaster data collection instruments....[See more] [See less]Type: Web PageIncludes Research Tools: Yes.ID: 5300. From: Disaster Lit®a database of the U.S. National Library of Medicine. -
SF (Short Form)-12v2 Health Survey
Source: Optum, Inc.Date Published: 2011Format: TextAnnotation: The 12-Item Short Form Health Survey (SF-12) contains 12 questions that were all selected from the SF-36 Health Survey. The questions were combined, scored, and weighted to create two scales that provide glimpses into mental and physical functioning and overall health-related quality of life. The SF-12 provides a solution to the problem faced by many investigators who must restrict survey length. The instrument was designed to reduce respondent burden while achieving minimum standards of precision for purposes of group comparisons involving multiple health dimensions. The SF-12 was developed for the Medical Outcomes Study (MOS), a multi-year study of patients with chronic conditions. The SF-12v2 is a generic measure and does not target a specific age or disease group. This resource was identified by the NIH Disaster Research Response Program (DR2) for researchers looking for pre- and post-disaster data collection instruments.
Ease of Use in Disaster Setting: Easy
Flesch-Kincaid Reading Level: Grade 6.7
Population: Adults Only
Length: 12 questions
Time to Complete: Two to five minutes
Administered by: Self Administered/Self Report, Lay Interviewer, Specialist/Doctor/Expert
Language(s): English, Afrikaans, Albanian, Arabic, Armenian, Bahasa, Bengali, Bosnian, Bulgarian, Cebuano, Chinese, Czech, Croatian, Danish, Dutch, Kannada, Kazakh, Korean, Latvian, Lithuanian, Polish, Portuguese, Punjabi, Estonian, Farsi, Finnish, French, Ganda, Georgian, German, Greek, Gujarati, Hebrew, Hindi, Hungarian, Italian, Japanese, Malay, Malayalam, Marathi, Montenegrin, Norwegian, Oriya, Romanian, Russian, Serbian, Sesotho, Slovak, Slovenian, Spanish, Swedish, Tagalog, Tamil, Telugu, Thai, Tswana, Turkish, Ukranian, Urdu, Vietnamese, Xhosa, Yoruba, Zulu, and Icelandic...[See more] [See less]Type: Guideline/Assessment ToolAccess Notes: Proprietary - Cost/Purchase required
Citation(s):
Boscarino JA, Adams RE. PTSD onset and course following the World Trade Center disaster: findings and implications for future research. Soc Psychiatry Psychiatr Epidemiol. 2009 Oct;44(10):887-98. Epub 2009 Mar 7. PubMed PMID: 19277439. https://www.ncbi.nlm.nih.gov/pubmed/19277439. Subscription not required.
Ware J Jr, Kosinski M, Keller SD. A 12-Item Short-Form Health Survey: construction of scales and preliminary tests of reliability and validity. Med Care. 1996 Mar;34(3):220-33. PubMed PMID: 8628042.https://www.ncbi.nlm.nih.gov/pubmed/8628042. Subscription required.
Gandek B, Ware JE, Aaronson NK, Apolone G, Bjorner JB, Brazier JE, Bullinger M, Kaasa S, Leplege A, Prieto L, Sullivan M. Cross-validation of item selection and scoring for the SF-12 Health Survey in nine countries: results from the IQOLA Project. International Quality of Life Assessment. J Clin Epidemiol. 1998 Nov;51(11):1171-8. PubMed PMID: 9817135. https://www.ncbi.nlm.nih.gov/pubmed/9817135. Subscription required.
Available Formats: Fixed Form, Fax, E-form, Mobile Applications (Tablet), Interactive Voice Response (IVR) via telephone
The SF-12 is not available on the RAND Health website. Use of the SF-12 is governed by QualityMetric, which has no affiliation with RAND. RAND Health has put the following Medical Outcomes Study (MOS) short form health surveys in the public domain for non-commercial use, by posting them on the RAND Health website: SF-36 and SF-20.
Contact information:
Institution: QualityMetric
Address: 24 Albion Road, Building 400, Lincoln, RI 02865
Phone: 401-334-8800; 800-572-9394; International: 001-1-401-334-8800
Fax: 401-334-8801
Email: jsassi@qualitymetric.com; info@qmetric.com
For purchase and access information:
Institution: Optum, Inc.
https://campaign.optum.com/content/optum/en/optum-outcomes/what-we-do/health-surveys/sf-12v2-health-survey.html
Institution: Hospital for Special Surgery
Web: https://www.hss.edu/physician-files/huang/SF12-RCH.pdfIncludes Research Tools: Yes.ID: 8125. From: Disaster Lit®a database of the U.S. National Library of Medicine.
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