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Displaying records 1 - 99 of 99
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  1. Youth Risk Behavior Surveillance System (YRBSS)
    Source: Centers for Disease Control and Prevention (CDC)
    Date Published: 6/9/2016
    Format: Text
    Annotation: The Youth Risk Behavior Surveillance System (YRBSS) monitors six types of health-risk behaviors that contribute to the leading causes of death and disability among youth and adults: behaviors that contribute to unintentional injuries and violence; sexual behaviors that contribute to unintended pregnancy and sexually transmitted diseases, including HIV infection; alcohol and other drug use; tobacco use; unhealthy dietary behaviors; and inadequate physical activity. YRBSS also measures the prevalence of obesity and asthma among youth and young adults. Questionnaires are available for both high school and middle school aged participants. This resource was identified by the NIH Disaster Research Response Program (DR2) for researchers looking for pre- and post-disaster data collection instruments.

    Ease of Use in Disaster Setting: Moderate
    Flesch-Kincaid Reading Level: 6.1
    Population: Adults and teens
    Length: The number of questions varies from middle to high school questionnaires and from year to year. The 2015 standard high school questionnaire contains 89 questions, while the middle school questionnaire contains 49 questions.
    Administered by: Self Administered/Self Report
    Language(s): English    ...[See more] [See less]
    URL: https://www.cdc.gov/healthyyouth/data/yrbs/index.htm
    Type: Guideline/Assessment Tool
    Access Notes: Free/Publicly Available

    Citation(s):
    Ying L, Chen C, Lin C, Greenberger E, Wu X, Jiang L. The relationship between post-traumatic stress symptoms and suicide ideation among child survivors following the Wenchuan earthquake. Suicide Life Threat Behav. 2015 Apr;45(2):230-42. doi: 10.1111/sltb.12118. Epub 2014 Sep 10. PubMed PMID: 25196443. https://www.ncbi.nlm.nih.gov/pubmed/25196443. Subscription required.

    Zhou X, Wu X, An Y, Fu F. Longitudinal relationships between post-traumatic stress symptoms and sleep problems in adolescent survivors following the Wenchuan earthquake in China. PLoS One. 2014;9(8):e104470. doi: 10.1371/journal.pone.0104470. Epub 2014 Aug 12. PubMed PMID: 25105288; PubMed Central PMCID: PMC4126730. https://www.ncbi.nlm.nih.gov/pubmed/25105288. Subscription not required.

    Contact information:

    Institution: Centers for Disease Control and Prevention
    Web: https://wwwn.cdc.gov/dcs/ContactUs/Form
    Includes Research Tools: Yes.
    ID: 12934. From: Disaster Lit®a database of the U.S. National Library of Medicine.
  2. BRFSS (Behavioral Risk Factor Surveillance System) Adverse Childhood Experiences (ACE) Module
    Source: Centers for Disease Control and Prevention (CDC)
    Date Published: 3/2/2016
    Format: PDF
    Annotation: The BRFSS (Behavioral Risk Factor Surveillance System) Adverse Childhood Experiences (ACE) module was adapted from the original CDC-Kaiser ACE Study and is used to collect information on child abuse and neglect, and household challenges. Childhood experiences, both positive and negative, have a tremendous impact on future violence victimization and perpetration, and lifelong health and opportunity. The ACE score, a total sum of the different categories of ACEs reported by participants, is used to assess cumulative childhood stress. Study findings repeatedly reveal a graded dose-response relationship between ACEs and negative health and well-being outcomes across the life course. This resource was identified by the NIH Disaster Research Response Program (DR2) for researchers looking for pre- and post-disaster data collection instruments.

    Ease of Use in Disaster Setting: Easy
    Flesch-Kincaid Reading Level: 7.5
    Population: All/Anyone
    Length: 11 questions
    Administered by: Lay Interviewer
    Language(s): English, Spanish    ...[See more] [See less]
    URL: https://www.cdc.gov/violenceprevention/acestudy/pdf/brfss_adverse_module.pdf
    Type: Guideline/Assessment Tool
    Access Notes: Free/Publicly Available

    Citation(s):
    Tursich M, Neufeld RW, Frewen PA, Harricharan S, Kibler JL, Rhind SG, Lanius RA. Association of trauma exposure with proinflammatory activity: a transdiagnostic meta-analysis. Transl Psychiatry. 2014;4:e413. doi: 10.1038/tp.2014.56. Epub 2014 Jul 23. PubMed PMID: 25050993; PubMed Central PMCID: PMC4119223. https://www.ncbi.nlm.nih.gov/pubmed/25050993. Subscription not required.

    Contact Information:

    Institution: Centers for Disease Control and Prevention
    Web: https://wwwn.cdc.gov/dcs/ContactUs/Form
    Includes Research Tools: Yes.
    ID: 13464. From: Disaster Lit®a database of the U.S. National Library of Medicine.
  3. Parenting Stress Index
    Source: Psychological Assessment Resources, Inc. (PAR)
    Date Published: 2016
    Format: Text
    Annotation: For details, see the record from HSRR (Health Services and Sciences Research Resources), a database of the U.S. National Library of Medicine. This resource was identified by the NIH Disaster Research Response Program (DR2) for researchers looking for pre- and post-disaster data collection instruments.

    Ease of Use in Disaster Setting: Moderate    ...[See more] [See less]
    URL: https://www.parinc.com/Products/Pkey/333
    Type: Guideline/Assessment Tool
    Access Notes: Proprietary-Cost/Purchase

    Citation(s):
    Gorzka PA. Homeless parents: parenting education to prevent abusive behaviors. J Child Adolesc Psychiatr Nurs. 1999; 12(3). 101-109. PMID: 10690063. https://www.ncbi.nlm.nih.gov/pubmed/10690063. Subscription not required.

    Contact information:
    Institution: Psychological Assessment Resources, Inc.
    Phone: 1-800-331-8378
    Includes Research Tools: Yes.
    ID: 15249. From: Disaster Lit®a database of the U.S. National Library of Medicine.
  4. Emergency Nutrition Assessment (ENA)
    Source: Action Against Hunger (ACF)
    Date Published: 7/9/2015
    Format: Text
    Annotation: The purpose of the Emergency Nutrition Assessment (ENA) for Standardized Monitoring and Assessment of Relief and Transitions (SMART) is to make nutrition assessments and mortality rate calculations in emergency situations as easy and reliable as possible. It focuses on the most important indicators (anthropometric and mortality data), checks the plausibility of the entered data, and gives out an automatic report. Since the software cannot explain why children are malnourished or mortality rates are high, the results of the survey have to be complemented with other information (e.g., from the Food Security part of ENA or discussions with key informants); collection of this additional information on the household level has a high risk to reduce the quality of the anthropometric and mortality data. This resource was identified by the NIH Disaster Research Response Program (DR2) for researchers looking for pre- and post-disaster data collection instruments.

    Population: All/Anyone
    Administered by: Specialist/Doctor/Expert
    Language(s): English, French, Spanish    ...[See more] [See less]
    URL: http://smartmethodology.org/survey-planning-tools/smart-emergency-nutrition-assessment/
    Type: Guideline/Assessment Tool
    Access Notes: Free/Publicly Available

    Citation(s):
    Amagai T, Ichimaru S, Tai M, Ejiri Y, Muto A. Nutrition in the Great East Japan Earthquake Disaster. Nutr Clin Pract. 2014 Oct;29(5):585-94. Epub 2015 Jan 22. PubMed PMID: 25606634. https://www.ncbi.nlm.nih.gov/pubmed/25606634. Subscription required.

    Amagai T, Ichimaru S, Tai M, Ejiri Y, Muto A. Disaster Nutrition in the Great East Japan Earthquake Disaster. Nutr Clin Pract. 2014 Jul 23. doi: 10.1177/0884533614543833. Epub 2014 Jul 25. PubMed PMID: 25057050. https://www.ncbi.nlm.nih.gov/pubmed/25057050. Subscription required.

    Tursich M, Neufeld RW, Frewen PA, Harricharan S, Kibler JL, Rhind SG, Lanius RA. Association of trauma exposure with proinflammatory activity: a transdiagnostic meta-analysis. Transl Psychiatry. 2014;4:e413. doi: 10.1038/tp.2014.56. Epub 2014 Jul 23. PubMed PMID: 25050993; PubMed Central PMCID: PMC4119223. https://www.ncbi.nlm.nih.gov/pubmed/25050993. Subscription not required.

    Contact information:

    Institution: Action Against Hunger Canada/Action contre la Faim Canada
    Address: 720 Bathurst St., Suite 500, Toronto, ON, M55 2R4, Canada
    Includes Research Tools: Yes.
    ID: 12907. From: Disaster Lit®a database of the U.S. National Library of Medicine.
  5. Routine Assessment of Patient Index Data 3
    Source: American College of Rheumatology
    Date Published: 4/2015
    Format: PDF
    Annotation: For details, see the record from HSRR (Health Services and Sciences Research Resources), a database of the U.S. National Library of Medicine. This resource was identified by the NIH Disaster Research Response Program (DR2) for researchers looking for pre- and post-disaster data collection instruments.

    Ease of Use in Disaster Setting: Easy
    Flesch-Kincaid Reading Level: Grade 4.3    ...[See more] [See less]
    URL: https://www.rheumatology.org/Portals/0/Files/RAPID3%20Form.pdf
    Type: Guideline/Assessment Tool
    Access Notes: Free/Publicly Available

    Contact information:
    Institution: American College of Rheumatology
    Phone: 404-633-3777
    Includes Research Tools: Yes.
    ID: 15255. From: Disaster Lit®a database of the U.S. National Library of Medicine.
  6. Proximity to Natural Gas Wells and Reported Health Status: Results of a Household Survey in Washington County, Pennsylvania
    Source: National Institute of Environmental Health Sciences [National Institutes of Health] (NIEHS)
    Date Published: 8/2014
    Format: PDF
    Annotation: This Community Assessment for Public Health Emergency Response (CASPER) questionnaire was used in a community near natural gas wells in Pennsylvania. This assessment of reported health symptoms and health status is based on questions drawn from publicly available surveys. Symptom questions, covering a range of organ systems that had been mentioned in published reports, asked respondents whether they or any household members had experienced each condition during the past year. The health assessment also asked a number of general yes/no questions about concerns of environmental hazards in the community, such as whether respondents were satisfied with air quality, water quality, soil quality, environmental noise, odors, and traffic, but did not specifically mention natural gas wells, hydraulic fracturing, or other natural gas extraction activities. The survey was pretested with focus groups in the study area in collaboration with a community-based group and revised to ensure comprehensibility of questions. This resource was identified by the NIH Disaster Research Response Program (DR2) for researchers looking for pre- and post-disaster data collection instruments.

    Ease of Use in Disaster Setting: Easy
    Flesch-Kincaid Reading Level: 5.7
    Population: Residential/Workplace
    Length: 78 questions
    Administered by: Lay Interviewer
    Language(s): English    ...[See more] [See less]
    URL: https://ehp.niehs.nih.gov/doi/10.1289/ehp.1307732
    Type: Guideline/Assessment Tool
    Access Notes: Free/Publicly Available

    Citation(s):
    Rabinowitz PM, Slizovskiy IB, Lamers V, Trufan SJ, Holford TR, Dziura JD, Peduzzi PN, Kane MJ, Reif JS, Weiss TR, Stowe MH. Proximity to natural gas wells and reported health status: results of a household survey in Washington County, Pennsylvania. Environ Health Perspect. 2015 Jan;123(1):21-6. PubMed PMID: 25204871. https://www.ncbi.nlm.nih.gov/pubmed/25204871. Subscription not required.

    Contact information:

    Contact person: P.M. Rabinowitz
    Institution: University of Washington School of Public Health, Department of Environmental and Occupational Health
    Address: 1959 NE Pacific St., F551 Health Sciences Center, Box 357234, Seattle, WA 98195
    Phone: 206-685-2654
    E-mail: peterr7@uw.edu
    Includes Research Tools: Yes.
    ID: 12943. From: Disaster Lit®a database of the U.S. National Library of Medicine.
  7. PhenX Toolkit
    Source: National Human Genome Research Institute [National Institutes of Health] (NHGRI)
    Date Published: 1/31/2014
    Format: Text
    Annotation: This resource provides 794 standard measures related to complex diseases, phenotypic traits, and environmental exposures. Use of PhenX measures facilitates combining data from a variety of studies, and makes it easy for investigators to expand a study design beyond the primary research focus. It includes these sections relevant to post-disaster data collection: Alcohol Substance Abuse, Demographics, Environmental Exposure, Psychiatric Psychosocial, and Social Environments. This resource was identified by the NIH Disaster Research Response Program (DR2) for researchers looking for pre- and post-disaster data collection instruments....[See more] [See less]
    URL: https://www.phenxtoolkit.org/
    Type: Database/Dataset
    Includes Research Tools: Yes.
    ID: 8030. From: Disaster Lit®a database of the U.S. National Library of Medicine.
  8. Child Health Assessment and Monitoring Program (CHAMP)
    Source: North Carolina Department of Health and Human Services
    Date Published: 2013
    Format: PDF
    Annotation: The Child Health Assessment and Monitoring Program (CHAMP) is the first survey of its kind in North Carolina to measure the health characteristics of children, ages 0 through 17. Conducted in both English and Spanish, the CHAMP surveys are revised each year to meet the child health surveillance needs of North Carolina. This resource was identified by the NIH Disaster Research Response program (DR2) for researchers looking for pre- and post-disaster data collection instruments.

    Ease of Use in Disaster Setting: Moderate
    Flesch-Kincaid Reading Level: 3.8
    Population: Children/teens only
    Length: 25 sections
    Time to Complete: 20 minutes
    Administered by: Trained Lay Examiner/Interviewer Administration
    Language(s): English, Spanish    ...[See more] [See less]
    URL: http://www.schs.state.nc.us/units/stat/champ/questions.htm
    Type: Guideline/Assessment Tool
    Access Notes: Free/Publicly Available

    Citation(s):
    Miles D, et al. Health and educational status of children raised by a caregiver with a disability. Disability and Health Journal. 2011:4(3):185-191. PubMed PMID: 21723525. https://www.ncbi.nlm.nih.gov/pubmed/21723525. Subscription required.

    Contact information:
    Institution: State Center for Health Statistics, Division of Public Health, North Carolina Department of Health and Human Services
    Address: 2422 Mail Service Center, Raleigh, NC 27699-2422
    Phone: 919-855-4494
    Fax: 919-715-7899
    Email: CHAMPStaff@dhhs.nc.gov
    Web: http://www.schs.state.nc.us/units/stat/champ/
    Includes Research Tools: Yes.
    ID: 14806. From: Disaster Lit®a database of the U.S. National Library of Medicine.
  9. GuLF STUDY: Gulf Long-Term Follow-Up Study
    Source: National Institute of Environmental Health Sciences [National Institutes of Health] (NIEHS)
    Date Published: 9/7/2011
    Format: Text
    Annotation: This web page provides information and materials about a health study for individuals who helped with the oil spill response and cleanup, took training, signed up to work, or were sent to the Gulf to help in some way after the Deepwater Horizon disaster. This resource was identified by the NIH Disaster Research Response Program (DR2) for researchers looking for pre- and post-disaster data collection instruments....[See more] [See less]
    URL: https://gulfstudy.nih.gov/en/index.html
    Type: Web Page
    Includes Research Tools: Yes.
    ID: 5300. From: Disaster Lit®a database of the U.S. National Library of Medicine.
  10. SF (Short Form)-12v2 Health Survey
    Source: Optum, Inc.
    Date Published: 2011
    Format: Text
    Annotation: The 12-Item Short Form Health Survey (SF-12) contains 12 questions that were all selected from the SF-36 Health Survey. The questions were combined, scored, and weighted to create two scales that provide glimpses into mental and physical functioning and overall health-related quality of life. The SF-12 provides a solution to the problem faced by many investigators who must restrict survey length. The instrument was designed to reduce respondent burden while achieving minimum standards of precision for purposes of group comparisons involving multiple health dimensions. The SF-12 was developed for the Medical Outcomes Study (MOS), a multi-year study of patients with chronic conditions. The SF-12v2 is a generic measure and does not target a specific age or disease group. This resource was identified by the NIH Disaster Research Response Program (DR2) for researchers looking for pre- and post-disaster data collection instruments.

    Ease of Use in Disaster Setting: Easy
    Flesch-Kincaid Reading Level: Grade 6.7
    Population: Adults Only
    Length: 12 questions
    Time to Complete: Two to five minutes
    Administered by: Self Administered/Self Report, Lay Interviewer, Specialist/Doctor/Expert
    Language(s): English, Afrikaans, Albanian, Arabic, Armenian, Bahasa, Bengali, Bosnian, Bulgarian, Cebuano, Chinese, Czech, Croatian, Danish, Dutch, Kannada, Kazakh, Korean, Latvian, Lithuanian, Polish, Portuguese, Punjabi, Estonian, Farsi, Finnish, French, Ganda, Georgian, German, Greek, Gujarati, Hebrew, Hindi, Hungarian, Italian, Japanese, Malay, Malayalam, Marathi, Montenegrin, Norwegian, Oriya, Romanian, Russian, Serbian, Sesotho, Slovak, Slovenian, Spanish, Swedish, Tagalog, Tamil, Telugu, Thai, Tswana, Turkish, Ukranian, Urdu, Vietnamese, Xhosa, Yoruba, Zulu, and Icelandic    ...[See more] [See less]
    URL: https://www.hss.edu/physician-files/huang/SF12-RCH.pdf
    Type: Guideline/Assessment Tool
    Access Notes: Proprietary - Cost/Purchase required

    Citation(s):
    Boscarino JA, Adams RE. PTSD onset and course following the World Trade Center disaster: findings and implications for future research. Soc Psychiatry Psychiatr Epidemiol. 2009 Oct;44(10):887-98. Epub 2009 Mar 7. PubMed PMID: 19277439. https://www.ncbi.nlm.nih.gov/pubmed/19277439. Subscription not required.

    Ware J Jr, Kosinski M, Keller SD. A 12-Item Short-Form Health Survey: construction of scales and preliminary tests of reliability and validity. Med Care. 1996 Mar;34(3):220-33. PubMed PMID: 8628042.https://www.ncbi.nlm.nih.gov/pubmed/8628042. Subscription required.

    Gandek B, Ware JE, Aaronson NK, Apolone G, Bjorner JB, Brazier JE, Bullinger M, Kaasa S, Leplege A, Prieto L, Sullivan M. Cross-validation of item selection and scoring for the SF-12 Health Survey in nine countries: results from the IQOLA Project. International Quality of Life Assessment. J Clin Epidemiol. 1998 Nov;51(11):1171-8. PubMed PMID: 9817135. https://www.ncbi.nlm.nih.gov/pubmed/9817135. Subscription required.

    Available Formats: Fixed Form, Fax, E-form, Mobile Applications (Tablet), Interactive Voice Response (IVR) via telephone

    The SF-12 is not available on the RAND Health website. Use of the SF-12 is governed by QualityMetric, which has no affiliation with RAND. RAND Health has put the following Medical Outcomes Study (MOS) short form health surveys in the public domain for non-commercial use, by posting them on the RAND Health website: SF-36 and SF-20.

    Contact information:

    Institution: QualityMetric
    Address: 24 Albion Road, Building 400, Lincoln, RI 02865
    Phone: 401-334-8800; 800-572-9394; International: 001-1-401-334-8800
    Fax: 401-334-8801
    Email: jsassi@qualitymetric.com; info@qmetric.com

    For purchase and access information:
    Institution: Optum, Inc.
    https://campaign.optum.com/content/optum/en/optum-outcomes/what-we-do/health-surveys/sf-12v2-health-survey.html

    Institution: Hospital for Special Surgery
    Web: https://www.hss.edu/physician-files/huang/SF12-RCH.pdf
    Includes Research Tools: Yes.
    ID: 8125. From: Disaster Lit®a database of the U.S. National Library of Medicine.
  11. Census Questions on Disability Endorsed by the Washington Group
    Source: Centers for Disease Control and Prevention, National Center for Health Statistics (CDC NCHS)
    Date Published: 3/2010
    Format: PDF
    Annotation: The Washington Group has developed this short set of questions for use on national censuses for gathering information about limitations in basic activity functioning among national populations. The questions were designed to provide comparable data cross-nationally for populations living in a great variety of cultures with varying economic resources. The objective was to identify persons with similar types and levels of limitations in basic activity functioning, regardless of nationality or culture. This resource was identified by the NIH Disaster Research Response Program (DR2) for researchers looking for pre- and post-disaster data collection instruments.

    Ease of Use in Disaster Setting: Easy
    Flesch-Kincaid Reading Level: 10.3
    Population: All/Anyone
    Length: 6 questions
    Administered by: Lay Interviewer
    Language(s): English    ...[See more] [See less]
    URL: https://www.cdc.gov/nchs/data/washington_group/wg_short_measure_on_disability.pdf
    Type: Guideline/Assessment Tool
    Access Notes: Free/Publicly Available

    Citation(s):
    Danquah L, Polack S, Brus A, Mactaggart I, Houdon CP, Senia P, Gallien P, Kuper H. Disability in post-earthquake Haiti: prevalence and inequality in access to services. Disabil Rehabil. 2015;37(12):1082-9. doi: 10.3109/09638288.2014.956186. Epub 2014 Sep 3. PubMed PMID: 25178862. https://www.ncbi.nlm.nih.gov/pubmed/25178862. Subscription required.

    Contact information:

    Institution: Centers for Disease Control and Prevention
    Phone: 800-CDC-INFO
    Web: https://wwwn.cdc.gov/dcs/ContactUs/Form
    Includes Research Tools: Yes.
    ID: 12951. From: Disaster Lit®a database of the U.S. National Library of Medicine.
  12. Insomnia Severity Index
    Source: U.S. Department of Veterans Affairs (VA)
    Date Published: 2010
    Format: PDF
    Annotation: For details, see the record from HSRR (Health Services and Sciences Research Resources), a database of the U.S. National Library of Medicine. This resource was identified by the NIH Disaster Research Response Program (DR2) for researchers looking for pre- and post-disaster data collection instruments.

    Ease of Use in Disaster Setting: Easy
    Flesch-Kincaid Reading Level: 8.7    ...[See more] [See less]
    URL: https://publications.theseus.fi/bitstream/handle/10024/36268/InsomniaSeverityIndex.pdf?sequence=1
    Type: Guideline/Assessment Tool
    Access Notes: Permission/Request Required

    Citation(s):
    Germain A, Richardson R, Stocker R, et al. Treatment for Insomnia in Combat-Exposed OEF/OIF/OND Military Veterans: Preliminary Randomized Controlled Trial. Behaviour research and Therapy. 2014;61:78-88. doi: https://doi.org/10.1016/j.brat.2014.07.016 Subscription not required.

    Contact information:
    Contact person: Charles M. Morin, PhD
    Institution: Universite Laval
    Address: 2325 Rue de l'Universite, Quebec, QC G1V 0A6, Canada
    Phone: 418-656-3275
    Fax: 418-656-5152
    Email: cmorin@psy.ulaval.ca
    Includes Research Tools: Yes.
    ID: 15239. From: Disaster Lit®a database of the U.S. National Library of Medicine.
  13. PROMIS (Patient Reported Outcomes Measurement Information System): Dynamic Tools to Measure Health Outcomes from the Patient Perspective
    Source: National Institutes of Health (NIH)
    Date Published: 2010
    Format: Text
    Annotation: This resource is a system of highly reliable, precise measures of patient-reported health status for physical, mental, and social well-being. PROMIS® tools measure what patients are able to do and how they feel by asking questions. PROMIS measures can be used as primary or secondary endpoints in clinical studies of the effectiveness of treatment, and PROMIS® tools can be used across a wide variety of chronic diseases and conditions and in the general population. This resource was identified by the NIH Disaster Research Response Program (DR2) for researchers looking for pre- and post-disaster data collection instruments....[See more] [See less]
    URL: http://www.healthmeasures.net/explore-measurement-systems/promis
    Type: Guideline/Assessment Tool
    Access Notes: Selected PROMIS tools are also available in Spanish.
    Includes Research Tools: Yes.
    ID: 8090. From: Disaster Lit®a database of the U.S. National Library of Medicine.
  14. CRAFFT Screening Interview: Version 2.0
    Source: Boston Children's Hospital
    Date Published: 2009
    Format: PDF
    Annotation: The CRAFFT is a behavioral health screening tool for use with children under the age of 21 and is recommended by the American Academy of Pediatrics' Committee on Substance Abuse for use with adolescents. It consists of a series of six questions developed to screen adolescents for high risk alcohol and other drug use disorders simultaneously. This version of the CRAFFT screen is intended for use by a trained clinician as a brief interview with an adolescent patient. This resource was identified by the NIH Disaster Research Response Program (DR2) for researchers looking for pre- and post-disaster data collection instruments.

    Ease of Use in Disaster Setting: Easy
    Flesch-Kincaid Reading Level: 6.3
    Population: Children/Teens Only
    Length: 9 questions
    Administered by: Specialist/Doctor/Expert, Self Administered/Self Report
    Language(s): English, Chinese, French, Haitian Creole, Hebrew, Japanese, Khmer, Laotian, Portuguese, Russian, Spanish, Turkish, and Vietnamese    ...[See more] [See less]
    URL: http://www.childrenshospital.org/~/media/microsites/ceasar/crafftii_clinician-interview_20160603.ashx?la=en
    Type: Guideline/Assessment Tool
    Access Notes: Free/Publicly Available

    Citation(s):
    Adams ZW, Danielson CK, Sumner JA, McCauley JL, Cohen JR, Ruggiero KJ. Comorbidity of PTSD, Major Depression, and Substance Use Disorder Among Adolescent Victims of the Spring 2011 Tornadoes in Alabama and Joplin, Missouri. Psychiatry. 2015;78(2):170-85. doi: 10.1080/00332747.2015.1051448. Epub 2015 Jul 15. PubMed PMID: 26168094; PubMed Central PMCID: PMC4503377. https://www.ncbi.nlm.nih.gov/pubmed/26168094. Subscription not required.

    Sumner JA, Pietrzak RH, Danielson CK, Adams ZW, Ruggiero KJ. Elucidating dimensions of posttraumatic stress symptoms and their functional correlates in disaster-exposed adolescents. J Psychiatr Res. 2014 Dec;59:85-92. doi: 10.1016/j.jpsychires.2014.09.003. Epub 2014 Sep 25. PubMed PMID: 25248557; PubMed Central PMCID: PMC4252782. https://www.ncbi.nlm.nih.gov/pubmed/25248557. Subscription not required.

    Contact information:

    Institution: Boston Children's Hospital
    Email: CeASAR@childrens.harvard.edu
    Phone: 617-355-5433
    Includes Research Tools: Yes.
    ID: 13479. From: Disaster Lit®a database of the U.S. National Library of Medicine.
  15. Pfizer Patient-Reported Outcomes
    Source: Pfizer, Inc.
    Date Published: 2009
    Format: Text
    Annotation: For details, see the record from HSRR (Health Services and Sciences Research Resources), a database of the U.S. National Library of Medicine. This resource was identified by the NIH Disaster Research Response Program (DR2) for researchers looking for pre- and post-disaster data collection instruments.

    Ease of Use in Disaster Setting: Moderate    ...[See more] [See less]
    URL: https://www.pfizerpatientreportedoutcomes.com/
    Type: Guideline/Assessment Tool
    Access Notes: Free/Publicly Available

    Contact information:
    Institution: Pfizer, Inc.
    Phone: 1-800-879-3477
    Includes Research Tools: Yes.
    ID: 15252. From: Disaster Lit®a database of the U.S. National Library of Medicine.
  16. Neurotoxin Questionnaire (Autonomic Nervous System)
    Source: National Integrated Health Associates (NIHA)
    Date Published: 2009
    Format: PDF
    Annotation: The Neurotoxin Questionnaire is a dysautonomia questionnaire approved for use in a Food and Drug Administration study on mercury toxicity, developed by Dr. Dietrich Klinghardt and Dr. Paula Bickel. This screening instrument highlights the wide range of symptoms and organs that can be affected by heavy metal toxicity, toxic chemicals, chronic infections, and anything else that affects the functional nervous system. This resource was identified by the NIH Disaster Research Response Program (DR2) for researchers looking for pre- and post-disaster data collection instruments.

    Ease of Use in Disaster Setting: Easy
    Population: Adults only
    Length: 18 questions
    Administered by: Self Administered/Self Report
    Language(s): English    ...[See more] [See less]
    URL: https://www.nihadc.com/library/detox-for-life-class-2-addit-resources/56-7-neurotoxin-questionnaire/file.html?accept_license=1
    Type: Guideline/Assessment Tool
    Access Notes: Free/Publicly Available

    Citation(s):
    Thordardottir EB, Valdimarsdottir UA, Hansdottir I, Resnick H, Shipherd JC, Gudmundsdottir B. Post-traumatic stress and other health consequences of catastrophic avalanches: A 16-year follow-up of survivors. J Anxiety Disord. 2015 May;32:103-11. doi: 10.1016/j.janxdis.2015.03.005. Epub 2015 May 4. PubMed PMID: 25935315. https://www.ncbi.nlm.nih.gov/pubmed/25935315. Subscription required.

    Contact information:

    Institution: National Integrated Health Associates
    Address: 5225 Wisconsin Ave., Suite 402, Washington DC, 20015
    Phone: 202-237-7000
    Web: https://www.nihadc.com
    Includes Research Tools: Yes.
    ID: 12922. From: Disaster Lit®a database of the U.S. National Library of Medicine.
  17. International Physical Activity Questionnaire
    Source: Disaster Research Response Program [National Institutes of Health] (DR2)
    Date Published: 2007
    Format: Text
    Annotation: For details, see the record from HSRR (Health Services and Sciences Research Resources), a database of the U.S. National Library of Medicine. This resource was identified by the NIH Disaster Research Response Program (DR2) for researchers looking for pre- and post-disaster data collection instruments.

    Ease of Use in Disaster Setting: Easy    ...[See more] [See less]
    URL: https://sites.google.com/site/theipaq/home
    Type: Guideline/Assessment Tool
    Access Notes: Free/Publicly Available
    Includes Research Tools: Yes.
    ID: 15240. From: Disaster Lit®a database of the U.S. National Library of Medicine.
  18. Barthel Index of Activities of Daily Living
    Source: University of Iowa (UI)
    Date Published: 4/2005
    Format: PDF
    Annotation: The Barthel Index of Activities of Daily Living is a quick and reliable assessment of a person's mobility and ability to perform daily self-care tasks. It shows if disability is present and estimates its extent, and determines when a patient begins to need help. Originally developed for use during inpatient rehabilitation, this tool is used extensively in the clinical setting. The Barthel Index is simple to use, as information can be obtained either from the patient's self-report or from other informed parties, such as the patient's relatives. In addition, it can be administered periodically to assess a patient's improvement over time. This resource was identified by the NIH Disaster Research Response Program (DR2) for researchers looking for pre- and post-disaster data collection instruments.

    Ease of Use in Disaster Setting: Easy
    Flesch-Kincaid Reading Level: 8.3
    Population: Adults only
    Length: 10 questions
    Administered by: Self Administered/Self Report, Lay Interviewer, Specialist/Doctor/Expert
    Language(s): English    ...[See more] [See less]
    URL: http://camapcanada.ca/Barthel.pdf
    Type: Guideline/Assessment Tool
    Access Notes: Free/Publicly Available

    Citation(s):
    Li-Tsang CW, He CQ, Lo AG, Ding SJ, Deng X, Yang YH, Zhang YT. Rehabilitation needs of the survivors of the 2013 Ya'an earthquake in China. J Rehabil Med. 2015 Aug 18;47(7):586-92. doi: 10.2340/16501977-1969. Epub 2015 Jul 1. PubMed PMID: 26121925. https://www.ncbi.nlm.nih.gov/pubmed/26121925. Subscription required.

    Li L, Reinhardt JD, Zhang X, Pennycott A, Zhao Z, Zeng X, Li J. Physical function, pain, quality of life and life satisfaction of amputees from the 2008 Sichuan earthquake: A prospective cohort study. J Rehabil Med. 2015 Apr 28;47(5):466-71. doi: 10.2340/16501977-1951. Epub 2015 Mar 12. PubMed PMID: 25758216. https://www.ncbi.nlm.nih.gov/pubmed/25758216. Subscription required.

    Contact information:

    Institution: Iowa Geriatric Education Center
    Address: 2153 Westlawn, Iowa City, IA 52242
    Email: geriatric-education@uiowa.edu
    Phone: 319-353-5756
    Includes Research Tools: Yes.
    ID: 12949. From: Disaster Lit®a database of the U.S. National Library of Medicine.
  19. Sexual Problems Measures: RAND Medical Outcomes Study
    Source: RAND Corporation
    Date Published: 2005
    Format: PDF
    Annotation: For details, see the record from HSRR (Health Services and Sciences Research Resources), a database of the U.S. National Library of Medicine. This resource was identified by the NIH Disaster Research Response Program (DR2) for researchers looking for pre- and post-disaster data collection instruments.

    Ease of Use in Disaster Setting: Easy    ...[See more] [See less]
    URL: https://www.rand.org/health-care/surveys_tools/mos/sexual-problems.html
    Type: Guideline/Assessment Tool
    Access Notes: Free/Publicly Available

    Contact information:
    Institution: RAND Corporation
    Phone: 1-877-584-8642
    Email: order@rand.org
    Includes Research Tools: Yes.
    ID: 15256. From: Disaster Lit®a database of the U.S. National Library of Medicine.
  20. Economic Living Standard Index Short Form (ELSISF)
    Source: New Zealand Government, Ministry of Social Development
    Date Published: 2005
    Format: Text
    Annotation: The Economic Living Standard Index Short Form (ELSISF) is a shortened version of the ELSI scale and can be substituted for it in many contexts. Like the full scale, the ELSISF provides a valid and reliable survey tool for measuring people's economic standard of living. The ELSISF tool yields a score that is obtained by combining information from a set of items that require four to six minutes to administer. The ELSISF User Manual will be updated on the basis of feedback from users and results from future research. This resource was identified by the NIH Disaster Research Response Program (DR2) for researchers looking for pre- and post-disaster data collection instruments.

    Ease of Use in Disaster Setting: Moderate
    Flesch-Kincaid Reading Level: 9.1
    Population: All/Anyone
    Length: 25 questions
    Time to Complete: 4-6 minutes
    Administered by: Self Administered/Self Report
    Language(s): English    ...[See more] [See less]
    URL: https://www.msd.govt.nz/documents/about-msd-and-our-work/publications-resources/monitoring/elsi-short-form-manual.doc
    Type: Guideline/Assessment Tool
    Access Notes: Free/Publicly Available

    Citation(s):
    Spittlehouse JK, Joyce PR, Vierck E, Schluter PJ, Pearson JF. Ongoing adverse mental health impact of the earthquake sequence in Christchurch, New Zealand. Aust N Z J Psychiatry. 2014 Aug;48(8):756-63. doi: 10.1177/0004867414527522. Epub 2014 Mar 14. PubMed PMID: 24622978. https://www.ncbi.nlm.nih.gov/pubmed/24622978. Subscription required.

    Contact information:

    Institution: New Zealand Ministry of Social Development
    Web: https://www.msd.govt.nz/about-msd-and-our-work/contact-us/index.html
    Includes Research Tools: Yes.
    ID: 12887. From: Disaster Lit®a database of the U.S. National Library of Medicine.
  21. Drug Use Disorders Identification Test (DUDIT)
    Source: European Monitoring Centre for Drugs and Drug Addiction
    Date Published: 2005
    Format: Text
    Annotation: The 11-item self-report Drug Use Disorders Identification Test (DUDIT) was evaluated in a sample of heavy drug users from prison, probation, and inpatient detoxification settings, and in a general Swedish population sample. The DUDIT screens effectively for drug-related problems in clinically selected groups and may prove useful in the context of public health surveys. This resource was identified by the NIH Disaster Research Response Program (DR2) for researchers looking for pre- and post-disaster data collection instruments.

    Ease of Use in Disaster Setting: Easy
    Flesch-Kincaid Reading Level: 7.1
    Population: Adults only
    Length: 11 questions
    Administered by: Self Administered/Self Report
    Language(s): English, Arabic, Bosnian, Croatian, Danish, Dutch, English, Farsi, Finnish, French, German, Hungarian, Icelandic, Norwegian, Portuguese, Sami, Spanish, Swedish, Turkish    ...[See more] [See less]
    URL: http://www.emcdda.europa.eu/best-practice/eib/dudit
    Type: Guideline/Assessment Tool
    Access Notes: Free/Publicly Available

    Citation(s):
    Berman AH, Bergman H, Palmstierna T, Schlyter F. Evaluation of the Drug Use Disorders Identification Test (DUDIT) in Criminal Justice and Detoxification Settings and in a Swedish Population Sample. Eur Addict Res. 2005;11(1):22-31. PubMed PMID: 15608468. https://www.ncbi.nlm.nih.gov/pubmed/15608468. Subscription required.

    Delker BC, Freyd JJ. From betrayal to the bottle: investigating possible pathways from trauma to problematic substance use. J Trauma Stress. 2014 Oct;27(5):576-84. doi: 10.1002/jts.21959. Epub 2014 Oct 18. PubMed PMID: 25322887. https://www.ncbi.nlm.nih.gov/pubmed/25322887. Subscription required.

    Contact information:

    Institution: Karolinska Institutet, Center for Psychiatric Research
    Address: Norra Stationsgatan 69, 7th floor, SE-113 64 Stockholm, Sweden
    Includes Research Tools: Yes.
    ID: 12915. From: Disaster Lit®a database of the U.S. National Library of Medicine.
  22. Manual Muscle Testing (MMT)
    Source: National Institute of Environmental Health Sciences [National Institutes of Health] (NIEHS)
    Date Published: 2005
    Format: PDF
    Annotation: Manual Muscle Testing is a procedure for the evaluation of the function and strength of individual muscles and muscle groups based on the effective performance of a movement in relation to the forces of gravity and manual resistance. This resource was identified by the NIH Disaster Research Response Program (DR2) for researchers looking for pre- and post-disaster data collection instruments.

    Ease of Use in Disaster Setting: Difficult
    Flesch-Kincaid Reading Level: 11.8
    Population: All/Anyone
    Administered by: Specialist/Doctor/Expert
    Language(s): English    ...[See more] [See less]
    URL: http://www.scottsevinsky.com/pt/mmt.html
    Type: Guideline/Assessment Tool
    Access Notes: Free/Publicly Available

    Citation(s):
    Li-Tsang CW, He CQ, Lo AG, Ding SJ, Deng X, Yang YH, Zhang YT. Rehabilitation needs of the survivors of the 2013 Ya'an earthquake in China. J Rehabil Med. 2015 Aug 18;47(7):586-92. doi: 10.2340/16501977-1969. Epub 2015 Jul 1. PubMed PMID: 26121925. https://www.ncbi.nlm.nih.gov/pubmed/26121925. Subscription required.
    Includes Research Tools: Yes.
    ID: 12960. From: Disaster Lit®a database of the U.S. National Library of Medicine.
  23. Teen Addiction Severity Index
    Source: National Institutes of Health (NIH)
    Date Published: 2004
    Format: PDF
    Annotation: For details, see the record from HSRR (Health Services and Sciences Research Resources), a database of the U.S. National Library of Medicine. This resource was identified by the NIH Disaster Research Response Program (DR2) for researchers looking for pre- and post-disaster data collection instruments.

    Ease of Use in Disaster Setting: Moderate
    Flesch-Kincaid Reading Level: 4
    Time to Complete: 20-45 minutes    ...[See more] [See less]
    URL: https://pubs.niaaa.nih.gov/publications/AssessingAlcohol/InstrumentPDFs/70_T-ASI.pdf
    Type: Guideline/Assessment Tool
    Access Notes: Free/Publicly Available

    Contact information:
    Contact person: Yifrah Kaminer
    Institution: University of Connecticut Health Center
    Address: 263 Farmington Avenue, Farmington, CT 06030-2103
    Includes Research Tools: Yes.
    ID: 15262. From: Disaster Lit®a database of the U.S. National Library of Medicine.
  24. Exploring Health Disparities in Integrated Communities Project
    Source: Johns Hopkins Center for Public Health Preparedness [Johns Hopkins University]
    Date Published: 2003
    Format: Text
    Annotation: For details, see the record from HSRR (Health Services and Sciences Research Resources), a database of the U.S. National Library of Medicine. This resource was identified by the NIH Disaster Research Response Program (DR2) for researchers looking for pre- and post-disaster data collection instruments.

    Time to Complete: 45 minutes    ...[See more] [See less]
    URL: https://www.jhsph.edu/research/centers-and-institutes/johns-hopkins-center-for-health-disparities-solutions/Research/ehdic.html
    Type: Guideline/Assessment Tool
    Access Notes: Free/Publicly Available
    Includes Research Tools: Yes.
    ID: 15231. From: Disaster Lit®a database of the U.S. National Library of Medicine.
  25. WTC (World Trade Center) Health Registry: Interactive Health Data Tool Methods
    Source: City of New York, Department of Health and Mental Hygiene (NYC DOHMH)
    Date Published: 2003
    Format: Text
    Annotation: This resource provides data from the World Trade Center (WTC) Health Registry 2003/2004 baseline survey through the New York City Health Department's user-friendly EpiQuery system. Users can quickly and easily search for survey data based on enrollee demographic, eligibility category, type of exposure on 9/11, or WTC-related health condition. Identifying data are grouped together to protect enrollees' confidentiality. It also provides links to the Data File User's Manuals for 2003/2004 and 2006/2007. This resource was identified by the NIH Disaster Research Response Program (DR2) for researchers looking for pre- and post-disaster data collection instruments....[See more] [See less]
    URL: https://www1.nyc.gov/site/911health/researchers/interactive-tools-and-methods.page
    Type: Guideline/Assessment Tool
    Includes Research Tools: Yes.
    ID: 8200. From: Disaster Lit®a database of the U.S. National Library of Medicine.
  26. WTC (World Trade Center) Health Registry: Health Data Tools
    Source: City of New York, Department of Health and Mental Hygiene (NYC DOHMH)
    Date Published: 2003
    Format: Text
    Annotation: This resource provides data from all the World Trade Center Health Registry's surveys: Wave 1 Adult Survey (2003-2004), Wave 2 Adult Survey (2006-2008), and Wave 3 Adult Survey (2011-2012). Users also can quickly and easily search for Wave 1 survey data based on enrollee demographic, eligibility category, type of exposure on 9/11, or WTC-related health condition using the Epiquery interactive tool. This resource was identified by the NIH Disaster Research Response Program (DR2) for researchers looking for pre- and post-disaster data collection instruments....[See more] [See less]
    URL: https://www1.nyc.gov/site/911health/researchers/health-data-tools.page
    Type: Guideline/Assessment Tool
    Includes Research Tools: Yes.
    ID: 8201. From: Disaster Lit®a database of the U.S. National Library of Medicine.
  27. Body Image Quality of Life Inventory (BIQLI)
    Source: Old Dominion University
    Date Published: 2002
    Format: Text
    Annotation: The Body Image Quality of Life Inventory (BIQLI) is valuable for quantifying how body image experiences affect a broad range of life domains, including sense of self, social functioning, sexuality, emotional well-being, eating, exercise, and grooming. The BIQLI has potential utility as a clinical assessment in discerning specifically how an individual's body image impacts his or her life and as an outcome measure of body image interventions. This resource was identified by the NIH Disaster Research Response Program (DR2) for researchers looking for pre- and post-disaster data collection instruments.

    Ease of Use in Disaster Setting: Moderate
    Population: All/Anyone
    Length: 19 questions
    Administered by: Self Administered/Self Report
    Language(s): English    ...[See more] [See less]
    URL: http://www.body-images.com/assessments/biqli.html
    Type: Guideline/Assessment Tool
    Access Notes: Proprietary - Cost/Purchase required

    Citation(s):
    Demiralp B, Ege T, Kose O, Yurttas Y, Basbozkurt M. Amputation versus functional reconstruction in the management of complex hind foot injuries caused by land-mine explosions: a long-term retrospective comparison. Eur J Orthop Surg Traumatol. 2014 May;24(4):621-6. doi: 10.1007/s00590-013-1345-4. Epub 2013 Oct 26. PubMed PMID: 24158743. https://www.ncbi.nlm.nih.gov/pubmed/24158743. Subscription required.

    Contact information:

    Contact person: Thomas F. Cash
    Institution: Old Dominion University
    Address: Department of Psychology, Norfolk, VA 23529-0267
    Email: Tcash@odu.edu
    Includes Research Tools: Yes.
    ID: 13469. From: Disaster Lit®a database of the U.S. National Library of Medicine.
  28. Pittsburgh Insomnia Rating Scale
    Source: University of Pittsburgh
    Date Published: 2002
    Format: Text
    Annotation: For details, see the record from HSRR (Health Services and Sciences Research Resources), a database of the U.S. National Library of Medicine. This resource was identified by the NIH Disaster Research Response Program (DR2) for researchers looking for pre- and post-disaster data collection instruments.

    Ease of Use in Disaster Setting: Moderate    ...[See more] [See less]
    URL: https://dta0yqvfnusiq.cloudfront.net/ncfamilydoctor/2016/01/pittsburginsomniascale.pdf
    Type: Guideline/Assessment Tool
    Access Notes: Free/Publicly Available

    Citation(s):
    Landre RG. Sleep problems, posttraumatic stress, and mood disorders among active-duty service members. J Am Osteopath Assoc. 2014; 114(2), 83-89. doi: 10.7556/jaoa.2014.021. PMID: 24481800. https://www.ncbi.nlm.nih.gov/pubmed/24481800. Subscription not required.

    Contact information:
    Institution: University of Pittsburgh
    Phone: 412-648-2206
    Email: depolokl@upmc.edu
    Includes Research Tools: Yes.
    ID: 15253. From: Disaster Lit®a database of the U.S. National Library of Medicine.
  29. Short-form 10 for Children
    Source: Optum, Inc.
    Date Published: 2001
    Format: Text
    Annotation: For details, see the record from HSRR (Health Services and Sciences Research Resources), a database of the U.S. National Library of Medicine. This resource was identified by the NIH Disaster Research Response Program (DR2) for researchers looking for pre- and post-disaster data collection instruments.

    Ease of Use in Disaster Setting: Easy    ...[See more] [See less]
    URL: https://campaign.optum.com/optum-outcomes/what-we-do/pediatric-health-surveys/children.html
    Type: Guideline/Assessment Tool
    Access Notes: Proprietary-Cost/Purchase

    Contact information:
    Institution: Optum, Inc.
    Phone: 866-306-1324
    Email: inquiry@optum.com
    Includes Research Tools: Yes.
    ID: 15258. From: Disaster Lit®a database of the U.S. National Library of Medicine.
  30. SF (Short Form)-8 Health Survey
    Source: Washington University in St. Louis (WUSTL)
    Date Published: 2001
    Format: Text
    Annotation: This resource is an eight-item survey with a single question for each of the eight domains of health: physical functioning, role limitations due to physical health, bodily pain, general health perceptions, vitality, social functioning, role limitations due to emotional problems, and mental health. This measure is a multi-purpose, short-form health survey of functional health and well-being scores, as well as psychometrically-based physical and mental health summary measures and preference-based health utility index. It is a generic measure, as opposed to one that targets a specific age, disease, or treatment group. The SF-8 represents a shorter version of the original SF-36. This resource was identified by the NIH Disaster Research Response Program (DR2) for researchers looking for pre- and post-disaster data collection instruments.

    Ease of Use in Disaster Setting: Easy
    Flesch-Kincaid Reading Level: Grade 5.7
    Population: Adults Only
    Length: Eight questions
    Time to Complete: Two to five minutes
    Administered by: Self Administered/Self Report, Lay Interviewer, Specialist/Doctor/Expert
    Language(s): English, Afrikaans, Chinese, Czech, Danish, Dutch, Korean, Polish, Portuguese, Finnish, French, Hebrew, Hungarian, Italian, Japanese, Malay, Norwegian, Romanian, Russian, Slovak, Spanish, Swedish, Tagalog, Thai, and Icelandic.    ...[See more] [See less]
    URL: https://www.optum.com/business/solutions/life-sciences/answer-research/patient-insights/sf-health-surveys/sf-8-health-survey.html
    Type: Guideline/Assessment Tool
    Access Notes: Proprietary - Cost/Purchase required

    Citation(s):
    Ware J, Kosinski M, Dewey J, Gandek B. How to Score and Interpret Single-Item Health Status Measures: A Manual for Users of the SF-8 Health Survey. 2001. Boston: QualyMetric.
    http://www.worldcat.org/title/how-to-score-and-interpret-single-item-health-status-measures-a-manual-for-users-of-the-of-the-sf-8-health-survey-with-a-supplement-on-the-sf-6-health-survey/oclc/47005803. Subscription required.

    Lefante JJ Jr, Harmon GN, Ashby KM, Barnard D, Webber LS. Use of the SF-8 to assess health-related quality of life for a chronically ill, low-income population participating in the Central Louisiana Medication Access Program (CMAP). Qual Life Res. 2005 Apr;14(3):665-73. PubMed PMID: 16022060. https://www.ncbi.nlm.nih.gov/pubmed/16022060. Subscription required.

    Roberts B, Browne J, Ocaka KF, Oyok T, Sondorp E. The reliability and validity of the SF-8 with a conflict-affected population in northern Uganda. Health Qual Life Outcomes. 2008 Dec 2;6:108. doi: 10.1186/1477-7525-6-108. PubMed PMID: 19055716; PubMed Central PMCID: PMC2612648. https://www.ncbi.nlm.nih.gov/pubmed/19055716. Subscription not required. http://www.hqlo.com/content/6/1/108. Subscription not required.

    Available Formats: Mobile applications (tablet), Interactive Voice Response (IVR) via telephone

    To preview this tool:
    Institution: Washington University in Saint Louis, School of Medicine
    Web: http://nerve.wustl.edu/SF-8%20Health%20Survey.pdf

    Institution: University of Florida, College of Medicine
    Web: http://education.med.ufl.edu/files/2010/10/SF81.pdf

    Institution: Partners in Health Network
    Web: http://www.pihn.org

    To purchase:
    Institution: SF-36
    Phone: 401-334-8800
    Fax: 401-334-8801
    Web: http://www.SF-36.org
    Includes Research Tools: Yes.
    ID: 8126. From: Disaster Lit®a database of the U.S. National Library of Medicine.
  31. Manchester Short Assessment of Quality of Life (MANSA)
    Source: University of Wales
    Date Published: 1999
    Format: PDF
    Annotation: The Manchester Short Assessment of Quality of Life (MANSA) is a brief instrument for assessing quality of life, focusing on satisfaction with life as a whole and with life domains that include social relationships, safety, leisure, finances, family, accommodation, living situation, and work. The instrument can be found in the Appendix of Priebe et al., 1999. This resource was identified by the NIH Disaster Research Response Program (DR2) for researchers looking for pre- and post-disaster data collection instruments.

    Ease of Use in Disaster Setting: Easy
    Population: All/Anyone
    Length: 25 total items; three sections; 16 questions are quality of life-specific.
    Time to Complete: 3-5 minutes for QOL section; 10-15 minutes for entire questionnaire (all 25 items)
    Administered by: Lay Interviewer, Specialist/Doctor/Expert
    Language(s): English, Dutch, German, and Swedish    ...[See more] [See less]
    URL: https://www.ncbi.nlm.nih.gov/pubmed/10443245
    Type: Guideline/Assessment Tool
    Access Notes: Permission/Request required

    Citation(s):
    Priebe S, Marchi F, Bini L, Flego M, Costa A, Galeazzi G. Mental disorders, psychological symptoms and quality of life 8 years after an earthquake: findings from a community sample in Italy. Soc Psychiatry Psychiatr Epidemiol. 2011 Jul:46(7):615-21. Epub 2010 May 5. PubMed PMID: 20442981. https://www.ncbi.nlm.nih.gov/pubmed/20442981. Subscription required.

    Priebe S, Huxley P, Knight S, Evans S. Application and results of the Manchester Short Assessment of Quality of Life (MANSA). Int J Soc Psychiatry. 1999 Spring;45(1):7-12. PubMed PMID: 10443245. https://www.ncbi.nlm.nih.gov/pubmed/10443245. Subscription required.

    Bjí¶rkman T, Svensson B. Quality of life in people with severe mental illness. Reliability and validity of the Manchester Short Assessment of Quality of Life (MANSA). Nord J Psychiatry. 2005;59(4):302-6. PubMed PMID: 16195135. https://www.ncbi.nlm.nih.gov/pubmed/16195135. Subscription required.

    Contact information:

    Contact person: Sherrill Evans, Senior Lecturer, Social Work and Social Care
    Institution: University of Wales Swansea, Department of Applied Social Sciences
    Address: Singleton Park, Swansea, SA2 8PP
    Phone: +44 (0)1792 602605
    E-mail: s.evans@swansea.ac.uk.
    Includes Research Tools: Yes.
    ID: 8999. From: Disaster Lit®a database of the U.S. National Library of Medicine.
  32. Brief Multidimensional Measure of Religiousness/Spirituality
    Source: National Institute on Aging (NIA)
    Date Published: 1999
    Format: PDF
    Annotation: This publication is the product of a national working group that examined key dimensions of religiousness/spirituality as they relate to physical and mental health outcomes. Its 12 papers include brief literature reviews, recommended instruments, and bibliographies for each of the 12 identified domains. Also included is the Brief Multidimensional Measure of Religiousness/Spirituality, an instrument substantially based on select questions from each domain. This resource was identified by the NIH Disaster Research Response Program (DR2) for researchers looking for pre- and post-disaster data collection instruments.

    Ease of Use in Disaster Setting: Difficult
    Population: Adults only
    Administered by: Self Administered/Self Report, Lay Interviewer
    Language(s): English    ...[See more] [See less]
    URL: http://fetzer.org/sites/default/files/images/resources/attachment/%5Bcurrent-date%3Atiny%5D/Multidimensional_Measurement_of_Religousness_Spirituality.pdf
    Type: Guideline/Assessment Tool
    Access Notes: Free/Publicly Available

    Citation(s):
    Henslee AM, Coffey SF, Schumacher JA, Tracy M, F HN, Galea S. Religious Coping and Psychological and Behavioral Adjustment After Hurricane Katrina. J Psychol. 2015 Sep;149(6):630-42. doi: 10.1080/00223980.2014.953441. Epub 2014 Oct 3. PubMed PMID: 25275223. https://www.ncbi.nlm.nih.gov/pubmed/25275223. Subscription required.

    Contact information:

    Institution: Fetzer Institute
    Address: 9292 West KL Avenue, Kalamazoo, MI 49009-9398
    Phone: 269-375-2000
    Includes Research Tools: Yes.
    ID: 13483. From: Disaster Lit®a database of the U.S. National Library of Medicine.
  33. Foot and Ankle Disability Index (FADI) Score
    Source: Orthopaedic Scores
    Date Published: 1999
    Format: Text
    Annotation: The Foot and Ankle Disability Index (FADI) is designed to assess functional limitations related to foot and ankle conditions. The FADI is a region-specific self-report of function with two components. It assesses activities of daily living, and more difficult tasks that are essential to sports. This resource was identified by the NIH Disaster Research Response Program (DR2) for researchers looking for pre- and post-disaster data collection instruments.

    Ease of Use in Disaster Setting: Easy
    Population: All/Anyone
    Length: 26 questions
    Administered by: Self Administered/Self Report, Lay Interviewer, Specialist/Doctor/Expert
    Language(s): English    ...[See more] [See less]
    URL: http://www.orthopaedicscore.com/scorepages/foot_and_ankle_disability_index_fadi.html
    Type: Guideline/Assessment Tool
    Access Notes: Free/Publicly Available

    Citation(s):
    Demiralp B, Ege T, Kose O, Yurttas Y, Basbozkurt M. Amputation versus functional reconstruction in the management of complex hind foot injuries caused by land-mine explosions: a long-term retrospective comparison. Eur J Orthop Surg Traumatol. 2014 May;24(4):621-6. doi: 10.1007/s00590-013-1345-4. Epub 2013 Oct 26. PubMed PMID: 24158743. https://www.ncbi.nlm.nih.gov/pubmed/24158743. Subscription required.

    Martin RL, Burdett RG, Irrgang JJ. Development of the Foot and Ankle Disability Index (FADI) J Orthop Sports Phys Ther. 1999; 29: A32-A33

    Contact information:

    Institution: Orthopaedic Scores
    https://www.orthopaedicscore.com/
    email: kurer@orthopaedicscore.co.uk
    Includes Research Tools: Yes.
    ID: 12914. From: Disaster Lit®a database of the U.S. National Library of Medicine.
  34. Pediatric Quality of Life Inventory
    Source: Mapi Research Trust
    Date Published: 1998
    Format: Text
    Annotation: For details, see the record from HSRR (Health Services and Sciences Research Resources), a database of the U.S. National Library of Medicine. This resource was identified by the NIH Disaster Research Response Program (DR2) for researchers looking for pre- and post-disaster data collection instruments.

    Ease of Use in Disaster Setting: Moderate    ...[See more] [See less]
    URL: http://www.pedsql.org/
    Type: Guideline/Assessment Tool
    Access Notes: Proprietary-Cost/Purchase

    Contact information:
    Institution: Mapi Research Trust
    Address: 27, Rue de la Villette 69003 Lyon, France
    Phone: +33 4 72 13 65 75
    Includes Research Tools: Yes.
    ID: 15250. From: Disaster Lit®a database of the U.S. National Library of Medicine.
  35. Work Limitations Questionnaire
    Source: Mapi Research Trust
    Date Published: 1998
    Format: PDF
    Annotation: For details, see the record from HSRR (Health Services and Sciences Research Resources), a database of the U.S. National Library of Medicine. This resource was identified by the NIH Disaster Research Response Program (DR2) for researchers looking for pre- and post-disaster data collection instruments.

    Ease of Use in Disaster Setting: Moderate    ...[See more] [See less]
    URL: https://eprovide.mapi-trust.org/instruments/work-limitations-questionnaire2
    Type: Guideline/Assessment Tool
    Access Notes: Proprietary - Cost/Purchase required

    Citation(s):
    Alder D, et al. Psychiatric status and work performance of veterans of Operations Enduring Freedom and Iraqi Freedom. Psychiatr Serv. 2011; 62(1), 39-46. doi: 10.1176/ps.62.1.pss6201_0039. PMID: 21209298. https://www.ncbi.nlm.nih.gov/pubmed/21209298. Subscription not required.

    Contact information:
    Institution: Mapi Research Trust
    Address: 40 Court St., Suite 410, Boston, MA 02108
    Phone: 1-888-399-2731
    Includes Research Tools: Yes.
    ID: 15266. From: Disaster Lit®a database of the U.S. National Library of Medicine.
  36. Growing Up Today Study
    Source: Harvard University, Harvard T.H. Chan School of Public Health
    Date Published: 1996
    Format: Text
    Annotation: For details, see the record from HSRR (Health Services and Sciences Research Resources), a database of the U.S. National Library of Medicine. This resource was identified by the NIH Disaster Research Response Program (DR2) for researchers looking for pre- and post-disaster data collection instruments....[See more] [See less]
    URL: http://www.gutsweb.org/
    Type: Guideline/Assessment Tool
    Access Notes: Permission/Request Required

    Contact information:
    Institution: Harvard University T.H. Chan School of Public Health
    Email: guts@channing.harvard.edu
    Includes Research Tools: Yes.
    ID: 15236. From: Disaster Lit®a database of the U.S. National Library of Medicine.
  37. Pediatric Asthma Quality of Life Questionnaire
    Source: QOL Tech
    Date Published: 1996
    Format: Text
    Annotation: For details, see the record from HSRR (Health Services and Sciences Research Resources), a database of the U.S. National Library of Medicine. This resource was identified by the NIH Disaster Research Response Program (DR2) for researchers looking for pre- and post-disaster data collection instruments.

    Ease of Use in Disaster Setting: Moderate    ...[See more] [See less]
    URL: http://www.qoltech.co.uk/paqlq.html
    Type: Guideline/Assessment Tool
    Access Notes: Proprietary-Cost/Purchase

    Contact information:
    Institution: Qoltech
    Address: 20 Marcuse Fields, Bosham, West Sussex P018 8NA, UK
    Phone: +44 (0) 1243 572124
    Includes Research Tools: Yes.
    ID: 15248. From: Disaster Lit®a database of the U.S. National Library of Medicine.
  38. Stanford Self Management Resource Center Instruments
    Source: Stanford University
    Date Published: 1996
    Format: Text
    Annotation: For details, see the record from HSRR (Health Services and Sciences Research Resources), a database of the U.S. National Library of Medicine. This resource was identified by the NIH Disaster Research Response Program (DR2) for researchers looking for pre- and post-disaster data collection instruments.

    Ease of Use in Disaster Setting: Easy    ...[See more] [See less]
    URL: https://www.selfmanagementresource.com/index.php/resources/evaluation-tools/
    Type: Guideline/Assessment Tool
    Access Notes: Free/Publicly Available
    Contact Information:
    Self Management Resource Center: http://www.selfmanagementresource.com/contact-smrc/

    Contact information (old):
    Institution: Stanford University, Patient Education Research Center
    Address: 1000 Welch Road, Suite 204, Palo Alto, CA 94304
    Phone: 650-723-7935
    Includes Research Tools: Yes.
    ID: 15261. From: Disaster Lit®a database of the U.S. National Library of Medicine.
  39. Tinnitus Handicap Inventory (THI)
    Source: American Tinnitus Association
    Date Published: 1996
    Format: PDF
    Annotation: Tinnitus is generally a subjective condition, but there are clinical ways to measure its audiometric qualities and impact on the patient. Tinnitus doesn't just impact hearing; it can cause a cascade of negative mental, cognitive, and physical consequences. The difference between tinnitus being a minor or major issue of the patient is less often related to how loud tinnitus is, but rather how the tinnitus impacts other facets of patients' lives. Clinicians and researchers have developed inventory tests, such as this one, to measure the subjective burden a patient experiences because of tinnitus. This resource was identified by the NIH Disaster Research Response Program (DR2) for researchers looking for pre- and post-disaster data collection instruments.

    Ease of Use in Disaster Setting: Moderate
    Population: All/Anyone
    Length: 25 questions
    Administered by: Self Administered/Self Report
    Language(s): English    ...[See more] [See less]
    URL: https://www.ata.org/sites/default/files/Tinnitus_Handicap_Inventory.pdf
    Type: Guideline/Assessment Tool
    Access Notes: Free/Publicly Available

    Citation(s):
    McCombe A, Baguely D, Coles R, McKenna L, McKinney C, Windle-Taylor P. Guidelines for the Grading of Tinnitus Severity: the Results of a Working Group Commissioned by the British Association of Otolaryngologists, Head and Neck Surgeons, 1999. Clin Otolaryngol Allied Sci. 2001 Oct;26(5) 26, 388-393. PubMed PMID: 11678946. https://www.ncbi.nlm.nih.gov/pubmed/11678946. Subscription required.

    Remenschneider AK, Lookabaugh S, Aliphas A, Brodsky JR, Devaiah AK, Dagher W, Grundfast KM, Heman-Ackah SE, Rubin S, Sillman J, Tsai AC, Vecchiotti M, Kujawa SG, Lee DJ, Quesnel AM. Otologic outcomes after blast injury: the Boston Marathon experience. Otol Neurotol. 2014 Dec;35(10):1825-34. doi: 10.1097/mao.0000000000000616. Epub 2014 Nov 14. PubMed PMID: 25393974. https://www.ncbi.nlm.nih.gov/pubmed/25393974. Subscription required.

    Contact information:

    Institution: American Tinnitus Association
    Phone: 800-634-8978
    Email: tinnitus@ata.org
    Includes Research Tools: Yes.
    ID: 12920. From: Disaster Lit®a database of the U.S. National Library of Medicine.
  40. Adverse Childhood Experiences (ACE) Study Questionnaires
    Source: Centers for Disease Control and Prevention (CDC)
    Date Published: 1995
    Format: Text
    Annotation: The Adverse Childhood Experiences (ACE) Study, conducted by the Centers for Disease Control and Prevention (CDC) and Kaiser Permanente, is one of the largest investigations of childhood abuse and neglect and later-life health and well-being. There are four questionnaires available: Family Health History Questionnaire (Male or Female Version), and Health Appraisal Questionnaire (Male or Female Version). This resource was identified by the NIH Disaster Research Response program (DR2) for researchers looking for pre- and post-disaster data collection instruments.

    Ease of Use in Disaster Setting: Easy
    Flesch-Kincaid Reading Level: 6.4
    Population: Adults only
    Length: 62 items-male
    68 items-female
    Administered by: Self Administered/Self Report
    Language(s): English    ...[See more] [See less]
    URL: https://www.cdc.gov/violenceprevention/acestudy/about.html
    Type: Guideline/Assessment Tool
    Access Notes: Free/Publicly Available

    Citation(s):
    Nurius PS, Green S, Logan-Greene P, Longhi D, Song C. Stress pathways to health inequalities: Embedding ACEs within social and behavioral contexts. International Public Health Journal. 2016:8(2):241-256.ePub: 2016 June 3. PubMed PMID: 4891624 https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4891624/ Subscription not required.

    Contact information:
    Institution: Centers for Disease Control and Prevention
    Address: 1600 Clifton Road Atlanta, GA 30329-4027
    Phone: 800-232-4636
    Includes Research Tools: Yes.
    ID: 14801. From: Disaster Lit®a database of the U.S. National Library of Medicine.
  41. EQ-5D
    Source: EuroQol
    Date Published: 1995
    Format: Text
    Annotation: The EQ-5D measure from EuroQol is applicable to a wide range of health conditions and treatments. It provides a simple descriptive profile and a single index value for health status and health-related quality of life, and allows respondents to graphically indicate and self assess their range of health. This instrument examines five dimensions: mobility, self care, usual activities, pain/discomfort, and anxiety/depression. This resource was identified by the NIH Disaster Research Response Program (DR2) for researchers looking for pre- and post-disaster data collection instruments.

    Ease of Use in Disaster Setting: Easy
    Population: Adults Only
    Length: Five questions and VAS (visual/vertical analog scale)
    Time to Complete: Five to eight minutes
    Administered by: Self Administered/Self Report, Lay Interviewer, Specialist/Doctor/Expert
    Language(s): English, Afrikaans, Albanian, Arabic, Bangla, Belarusian, Bengali, Bulgarian, Burmese, Cebuano, Cantonese, Chinese, Catalan, Croatian, Czech, Danish, Dutch, Kannada, Kazakh, Korean, Latvian, Lithuanian, Polish, Portuguese, Punjabi, Ilocano, Indonesian, Luganda, Shona, Farsi, Dari, Nyanja, Basque, Finnish, French, Georgian, German, Greek, Gujarati, Hiligaynon, Hebrew, Hindi, Hungarian, Italian, Malay, Malayalam, Marathi, Romanian, Russian, Serbian, Sesotho, Slovak, Slovenian, Spanish, Swedish, Tagalog, Tamil, Telugu, Thai, Turkish, Urdu, Vietnamese, Xhosa, Zulu, Icelandic, Sinhalese, Maltese, Maori, Mongolian, Moldavian, Setswana, and Macedonian    ...[See more] [See less]
    URL: https://euroqol.org/eq-5d-instruments/
    Type: Guideline/Assessment Tool
    Access Notes: Proprietary - Cost/Purchase required

    Citation(s):
    Verschuur M, Spinhoven P, van Emmerik A, Rosendaal F. Making a bad thing worse: effects of communication of results of an epidemiological study after an aviation disaster. Soc Sci Med, 2007 Oct;65(7): 1430-41. Epub 2007 Jun 18. PubMed PMID: 17576032. https://www.ncbi.nlm.nih.gov/pubmed/17576032. Subscription required.

    EuroQol Group. EuroQol--a new facility for the measurement of health-related quality of life. Health Policy. 1990 Dec;16(3):199-208. PubMed PMID:10109801. https://www.ncbi.nlm.nih.gov/pubmed/10109801. Subscription required.

    Rabin R, de Charro F. EQ-5D: a measure of health status from the EuroQol Group. Ann Med. 2001 Jul;33(5):337-43. Review. PubMed PMID: 11491192. https://www.ncbi.nlm.nih.gov/pubmed/11491192. Subscription required.

    Kind P, Brooks R, Rabin R, eds. EQ-5D concepts and methods: a developmental history. Springer. 2006. http://www.springer.com/biomed/book/978-1-4020-3711-5. Subscription required.

    Gusi N, Olivares PR, Rajendram R. The EQ-5D Health-Related Quality of Life Questionnaire. Handbook of Disease Burdens and Quality of Life Measures. 2010:87-99. Springer. http://link.springer.com/referenceworkentry/10.1007%2F978-0-387-78665-0_5. Subscription required.

    It has been noted that this tool is free access, but there are fees for commercial/pharmaceutical use.

    Contact information:

    Contact person: Dr. Frank de Charro, Business Manager
    Institution: EuroQol
    Address: PO Box 4443
    3006 AK Rotterdam
    The Netherlands
    Email: fdecharro@compuserve.com

    To purchase:
    Institution: EuroQol
    Web: https://euroqol.org/support/how-to-obtain-eq-5d/

    To preview samples of this tool:
    Institution: EuroQol
    Web: https://euroqol.org/support/how-to-obtain-eq-5d/

    Institution: Agency for Healthcare Research and Quality
    Web: https://archive.ahrq.gov/professionals/clinicians-providers/resources/rice/EQ5Dscore.html

    https://www.aaos.org/uploadedFiles/EQ5D3L.pdf

    To view user manuals:
    Institution: EuroQol
    Web: https://euroqol.org/publications/user-guides/
    Includes Research Tools: Yes.
    ID: 8132. From: Disaster Lit®a database of the U.S. National Library of Medicine.
  42. U.S. Household Food Security Survey Module
    Source: U.S. Department of Agriculture (USDA)
    Date Published: 1995
    Format: PDF
    Annotation: This questionnaire has been modified slightly from that in the original Food Security Guide, and the questions have been re-ordered to group the child-referenced questions after the adult-referenced questions. USDA has introduced new labels for describing ranges of food security and food insecurity (high, marginal, low, and very low food security). These labels are consistent with recommendations by the Committee on National Statistics, and the Economic Research Service (ERS) recommends that they be used consistently throughout the U.S. food security monitoring and research effort. This resource was identified by the NIH Disaster Research Response Program (DR2) for researchers looking for pre- and post-disaster data collection instruments.

    Ease of Use in Disaster Setting: Easy
    Flesch-Kincaid Reading Level: 9.7
    Population: All/Anyone
    Length: 18 questions
    Administered by: Lay Interviewer
    Language(s): English, Spanish    ...[See more] [See less]
    URL: https://www.ers.usda.gov/topics/food-nutrition-assistance/food-security-in-the-us/survey-tools/#household
    Type: Guideline/Assessment Tool
    Access Notes: Free/Publicly Available

    Citation(s):
    Hutson RA, Trzcinski E, Kolbe AR. Features of child food insecurity after the 2010 Haiti earthquake: results from longitudinal random survey of households. PLoS One. 2014;9(9):e104497. doi: 10.1371/journal.pone.0104497. Epub 2014 Sep 11. PubMed PMID: 25207543; PubMed Central PMCID: PMC4160193. https://www.ncbi.nlm.nih.gov/pubmed/25207543. Subscription not required.

    Contact information:

    Institution: U.S. Department of Agriculture, Economic Research Service
    Contact person: Alisha Coleman-Jensen
    Email: acjensen@ers.usda.gov

    Contact person: Christian Gregory
    Email: cgregory@ers.usda.gov

    Contact person: Matthew Rabbitt
    Email: matthew.rabbitt@ers.usda.gov This link is no longer available. 4/4/2017.
    Includes Research Tools: Yes.
    ID: 12900. From: Disaster Lit®a database of the U.S. National Library of Medicine.
  43. Job Satisfaction Survey (JSS)
    Source: University of South Florida (USF)
    Date Published: 1994
    Format: Text
    Annotation: The Job Satisfaction Survey (JSS) is a 36-item, nine-facet scale to assess employee attitudes about the job and aspects of the job. Each facet is assessed with four items, and a total score is computed from all items. Although the JSS was originally developed for use in human service organizations, it is applicable to all organizations. This resource was identified by the NIH Disaster Research Response program (DR2) for researchers looking for pre- and post-disaster data collection instruments.

    Ease of Use in Disaster Setting: Moderate
    Population: Adults only
    Length: 36 questions
    Administered by: Self Administered/Self Report
    Language(s): English, Albanian, Arabic, Chinese, Czech, Dutch, Farsi, Filipino, French, Hindi, Lithuanian, Malay, Polish, Portuguese, Romanian, Serbian, Spanish, Turkish, Vietnamese, Urdu    ...[See more] [See less]
    URL: http://shell.cas.usf.edu/~pspector/scales/jsspag.html
    Type: Guideline/Assessment Tool
    Access Notes: Free/Publicly Available

    Citation(s):
    Xu J, Wu W. Work satisfaction and posttraumatic growth 1 year after the 2008 Wenchuan earthquake: the perceived stress as a moderating factor. Arch Psychiatr Nurs. 2014 Jun;28(3):206-11. doi: 10.1016/j.apnu.2013.12.006. Epub 2014 May 27. PubMed PMID: 24856275. http://www.ncbi.nlm.nih.gov/pubmed/24856275. Subscription required.

    Contact information:
    Contact person: Paul Spector
    Institution: University of South Florida
    Address: Department of Psychology, PCD4118G, Tampa, FL 33620
    Phone: 813-974-0357
    Fax: 813-974-4617
    Includes Research Tools: Yes.
    ID: 14797. From: Disaster Lit®a database of the U.S. National Library of Medicine.
  44. Sickness Impact Profile (SIP)
    Source: Johns Hopkins University
    Date Published: 1994
    Format: Text
    Annotation: The Sickness Impact Profile (SIP) is a 136-item self- or interviewer-administered, behaviorally-based, health status questionnaire. This generic measure is used to evaluate the impact of disease on both physical and emotional functioning. Everyday activities in 12 categories (sleep and rest, emotional behavior, body care and movement, home management, mobility, social interaction, ambulation, alertness behavior, communication, work, recreation and pastimes, and eating) are measured. Respondents endorse items that describe themselves and are related to their health. Patients are asked to respond to the items as they are on that day. The SIP is scored according to the number and type of items endorsed. Scoring can be done at the level of categories and dimensions, as well as at the total SIP level. The measure has also been used in patients with COPD and asthma. This resource was identified by the NIH Disaster Research Response Program (DR2) for researchers looking for pre- and post-disaster data collection instruments.

    Ease of Use in Disaster Setting: Difficult
    Population: All/Anyone
    Length: 136 questions
    Administered by: Self Administered/Self Report, Lay Interviewer
    Language(s): English, Dutch    ...[See more] [See less]
    URL: http://qol.thoracic.org/sections/instruments/pt/pages/sick.html
    Type: Guideline/Assessment Tool
    Access Notes: Permission/Request required

    Citation(s):
    Chu CK, Wong MS. Comparison of prosthetic outcomes between adolescent transtibial and transfemoral amputees after Sichuan earthquake using Step Activity Monitor and Prosthesis Evaluation Questionnaire. Prosthet Orthot Int. 2014 Nov 26. doi: 10.1177/0309364614556837. Epub 2014 Nov 28. PubMed PMID: 25428900. https://www.ncbi.nlm.nih.gov/pubmed/25428900. Subscription required.
    Includes Research Tools: Yes.
    ID: 12890. From: Disaster Lit®a database of the U.S. National Library of Medicine.
  45. Quality of Life Enjoyment and Satisfaction Questionnaire: Short Form (Q-LES-Q-SF)
    Source: Columbia University
    Date Published: 1993
    Format: PDF
    Annotation: The Quality of Life Enjoyment and Satisfaction Questionnaire (Q-LES-Q) was designed to enable investigators to easily obtain sensitive measures of the degree of enjoyment and satisfaction experienced by subjects in various areas of daily functioning. This resource was identified by the NIH Disaster Research Response Program (DR2) for researchers looking for pre- and post-disaster data collection instruments.

    Ease of Use in Disaster Setting: Difficult
    Population: All/Anyone
    Length: 93 questions; the short form versions of this tool come with 16, 14, or five questions
    Time to Complete: 40-45 minutes
    Administered by: Self Administered/Self Report
    Language(s): English, Afrikaans, Bulgarian, Danish, Flemish, Dutch, French, German, Finnish, Greek, Italian, Latvian, Norwegian, Polish, Portuguese, Russian, Spanish, Swedish, Thai, and Turkish    ...[See more] [See less]
    URL: https://www.phenxtoolkit.org/protocols/view/180302
    Type: Guideline/Assessment Tool
    Access Notes: Permission/Request required

    Citation(s):
    Simeon D, Greenberg J, Nelson D, Schmeidler J, Hollander E.Dissociation and posttraumatic stress 1 year after the World Trade Center disaster: follow-up of a longitudinal survey. J Clin Psychiatry. 2005 Feb;66(2):231-7. PubMed PMID: 15705010. https://www.ncbi.nlm.nih.gov/pubmed/15705010. Subscription required.

    Endicott J, Nee J, Harrison W, Blumenthal R. Quality of Life Enjoyment and Satisfaction Questionnaire: a new measure. Psychopharmacol Bull. 1993;29(2):321-6. PubMed PMID: 8290681. https://www.ncbi.nlm.nih.gov/pubmed/8290681. Subscription required.

    Contact information:

    Contact Person: Dr. Jean Endicott, Ph.D.
    Address: Unit 123, 1051 Riverside Drive, New York, NY 10032
    Phone: 212-543-5536
    Email: je10@columbia.edu

    To view the short form version of this tool:
    Institution: Outcome Tracker
    Email: MZimmerman@Lifespan.org
    Includes Research Tools: Yes.
    ID: 9001. From: Disaster Lit®a database of the U.S. National Library of Medicine.
  46. Prosthetic Profile of the Amputee (PPA)
    Source: American Academy of Orthotists and Prosthetists
    Date Published: 1993
    Format: Text
    Annotation: This 44-question self-report aims to evaluate the factors that are related to prosthetic use after discharge from a rehabilitation center. It consists of questions from the following domains: Current physical condition, prosthesis satisfaction and adaptation, use of prosthesis at home or in the community, leisure, and socioeconomic conditions. It can be used only in the assessment of patients older than 18 years, with unilateral amputations of lower limbs that have been fitted with a prosthesis. This resource was identified by the NIH Disaster Research Response Program (DR2) for researchers looking for pre- and post-disaster data collection instruments.

    Ease of Use in Disaster Setting: Difficult
    Population: High Risk/Special/Unique Populations
    Length: 44 questions
    Administered by: Self Administered/Self Report, Lay Interviewer
    Language(s): English, Dutch, French, Italian, Portuguese, Spanish    ...[See more] [See less]
    URL: http://www.oandp.org/olc/lessons/html/SSC_06/section_07.asp?frmCourseSectionId=08
    Type: Guideline/Assessment Tool
    Access Notes: Permission/Request required

    Citation(s):
    Gauthier-Gagnon C, Gris-š MC. Prosthetic profile of the amputee questionnaire: validity and reliability. Arch Phys Med Rehabil. 1994 Dec;75(12): 1309-14. PubMed PMID: 7993169. https://www.ncbi.nlm.nih.gov/pubmed/7993169. Subscription required.

    Gris-š MCL, Gauthier-Gagnon C, Martineau GG. Prosthetic profile of people with lower extremity amputation: conception and design of a follow-up questionnaire. Arch Phys Med Rehabil. 1993 Aug;74(8):862-70. PubMed PMID: 8347072. https://www.ncbi.nlm.nih.gov/pubmed/8347072. Subscription required.

    Chu CK, Wong MS. Comparison of prosthetic outcomes between adolescent transtibial and transfemoral amputees after Sichuan earthquake using Step Activity Monitor and Prosthesis Evaluation Questionnaire. Prosthet Orthot Int. 2014 Nov 26. doi: 10.1177/0309364614556837. Epub 2014 Nov 28. PubMed PMID: 25428900. https://www.ncbi.nlm.nih.gov/pubmed/25428900. Subscription required.

    Contact information:

    Institution: American Academy of Orthotists and Prosthetists
    Address: 1331 H Street, NW, Suite 501, Washington DC, 20005
    Phone: 202-380-3663
    Fax: 202-380-3447

    This link is no longer available. 3/14/2018.
    Includes Research Tools: Yes.
    ID: 12909. From: Disaster Lit®a database of the U.S. National Library of Medicine.
  47. Trier Social Stress Test (TSST): A Laboratory Stress Protocol
    Source: Trier University
    Date Published: 1993
    Format: Text
    Annotation: The Trier Social Stress Test (TSST) is a laboratory procedure used to reliably induce stress in human research participants. It is a combination of procedures that were previously known to induce stress, but previous procedures did not do so reliably. It has become a standard protocol for the experimental induction of moderate psychological stress in psychobiological research. This resource was identified by the NIH Disaster Research Response Program (DR2) for researchers looking for pre- and post-disaster data collection instruments.

    Ease of Use in Disaster Setting: Difficult
    Flesch-Kincaid Reading Level: 10.3
    Population: All/Anyone
    Time to Complete: 2.5 hours
    Administered by: Specialist/Doctor/Expert
    Language(s): English    ...[See more] [See less]
    URL: http://www.plosone.org/article/fetchSingleRepresentation.action?uri=info%3Adoi%2F10.1371%2Fjournal.pone.0041015.s002
    Type: Guideline/Assessment Tool
    Access Notes: Free/Publicly Available

    Citation(s):
    Busso DS, McLaughlin KA, Sheridan MA. Media exposure and sympathetic nervous system reactivity predict PTSD symptoms after the Boston marathon bombings. Depress Anxiety. 2014 Jul;31(7):551-8. doi: 10.1002/da.22282. Epub 2014 Jul 6. PubMed PMID: 24995832; PubMed Central PMCID: PMC4219737. https://www.ncbi.nlm.nih.gov/pubmed/24995832. Subscription not required.

    Contact information:

    Institution: Trier University
    Email: clemens.kirschbaum@tu-dresden.de
    Includes Research Tools: Yes.
    ID: 12962. From: Disaster Lit®a database of the U.S. National Library of Medicine.
  48. Brief Pain Inventory (BPI)
    Source: University of Texas, MD Anderson Cancer Center
    Date Published: 1991
    Format: Text
    Annotation: The Brief Pain Inventory (BPI) is for patients with pain from chronic diseases or conditions such as cancer, osteoarthritis and low back pain, or pain from acute conditions such as postoperative pain. It assesses the severity of pain, impact of pain on daily function, location of pain, pain medications, and amount of pain relief in the past 24 hours or the past week. It is available in two formats: the BPI short form, which is used for clinical trials and foreign language translations, and the BPI long form, which contains additional descriptive items. This resource was identified by the NIH Disaster Research Response program (DR2) for researchers looking for pre- and post-disaster data collection instruments.

    Ease of Use in Disaster Setting: Easy
    Flesch-Kincaid Reading Level: 4.2
    Population: Adults only
    Length: 9 items (short form); 32 items (long form)
    Administered by: Self Administered/Self Report
    Language(s): English; Arabic; Cebuano; Chinese (Simplified); Chinese (Traditional); Croatian; Czech; Filipino; French; German; Greek; Hebrew; Hindi; Italian; Japanese; Korean; Malay; Norwegian; Russian; Slovak; Slovenian; Spanish; Spanish (Spain); Thai; Afrikaans; Bengali; Bulgarian; Danish; Dutch; Estonian; Finnish; Georgian; Gujarati; Hungarian; Kannada; Latvian; Lithuanian; Malayalam; Marathi; Polish; Portuguese (Brazil); Portuguese (Portugal); Romanian; Serbian; Swedish; Tamil; Telugu; Turkish; Ukrainian; Urdu; Vietnamese; Xhosa; Zulu    ...[See more] [See less]
    URL: https://www.mdanderson.org/research/departments-labs-institutes/departments-divisions/symptom-research/symptom-assessment-tools/brief-pain-inventory.html
    Type: Guideline/Assessment Tool
    Access Notes: Proprietary-Cost/Purchase Required

    Citation(s):
    Kato K, et al. Psychosocial Stress after a Disaster and Low Back Pain Related Interference With Daily Living among College Students: A Cohort Study in Fukushima. Spine. PubMed PMID:28146027. https://www.ncbi.nlm.nih.gov/pubmed/28146027. Subscription required.

    Contact information:
    Institution: Department of Symptom Research, University of Texas, MD Anderson Cancer Center
    Address: Attn: Assessment Tools, 1515 Holcombe Boulevard, Unit 1450
    Houston, Texas 77030
    Email: symptomresearch@mdanderson.org
    Includes Research Tools: Yes.
    ID: 14805. From: Disaster Lit®a database of the U.S. National Library of Medicine.
  49. Hearing Handicap Inventory for Adults (HHIA)
    Source: Northwestern University
    Date Published: 1991
    Format: PDF
    Annotation: The Hearing Handicap Inventory for Adults (HHIA) was designed to both quantify handicap and assess benefit by measuring change in perceived handicap after the fitting of hearing aids. The HHIA is a 25-item self-assessment scale composed of two subscales (emotional and social/situational). This resource was identified by the NIH Disaster Research Response Program (DR2) for researchers looking for pre- and post-disaster data collection instruments.

    Ease of Use in Disaster Setting: Easy
    Population: High Risk/Special/Unique Populations
    Length: 25 questions
    Administered by: Self Administered/Self Report
    Language(s): English, Brazilian Portuguese, Italian    ...[See more] [See less]
    URL: http://www.audiologist.org/_resources/documents/diabetes/Hearing%20Handicap%20Inventory%20For%20Adults%20%28HHIA%29.pdf
    Type: Guideline/Assessment Tool
    Access Notes: Free/Publicly Available

    Citation(s):
    Newman CW, Weinstein BE, Jacobson GP, Hug GA. Test -retest reliability of the Hearing Handicap Inventory for Adults, Ear Hear. 1991 Oct;12(5): 355-357. PubMed PMID:1783240. https://www.ncbi.nlm.nih.gov/pubmed/1783240. Subscription required.

    Remenschneider AK, Lookabaugh S, Aliphas A, Brodsky JR, Devaiah AK, Dagher W, Grundfast KM, Heman-Ackah SE, Rubin S, Sillman J, Tsai AC, Vecchiotti M, Kujawa SG, Lee DJ, Quesnel AM. Otologic outcomes after blast injury: the Boston Marathon experience. Otol Neurotol. 2014 Dec;35(10):1825-34. doi: 10.1097/mao.0000000000000616. Epub 2014 Nov 14. PubMed PMID: 25393974. https://www.ncbi.nlm.nih.gov/pubmed/25393974. Subscription required.

    Contact information:

    Institution: Northwestern University Audiology Clinic
    Address: 2240 Campus Drive, Evanston, IL 60208
    Phone: 847-491-3165
    Fax: 847-467-0410
    Includes Research Tools: Yes.
    ID: 12913. From: Disaster Lit®a database of the U.S. National Library of Medicine.
  50. Dizziness Handicap Inventory (DHI)
    Source: Michigan State University (MSU)
    Date Published: 1991
    Format: PDF
    Annotation: The purpose of this scale is to identify difficulties that patients may be experiencing because of dizziness. The Dizziness Handicap Inventory (DHI) is used in clinical work and in research to assess the impact of dizziness on quality of life. The self-report questionnaire was originally designed to quantify the handicapping effect of dizziness imposed by vestibular system disease, but has also been used for persons with dizziness of other origins. This resource was identified by the NIH Disaster Research Response Program (DR2) for researchers looking for pre- and post-disaster data collection instruments.

    Ease of Use in Disaster Setting: Easy
    Population: All/Anyone
    Length: 25 questions
    Administered by: Self Administered/Self Report
    Language(s): English, Chinese, Dutch, German, Norwegian, Spanish, Swedish    ...[See more] [See less]
    URL: http://www.rehab.msu.edu/_files/_docs/Dizziness_Handicap_Inventory.pdf
    Type: Guideline/Assessment Tool
    Access Notes: Free/Publicly Available

    Citation(s):
    Remenschneider AK, Lookabaugh S, Aliphas A, Brodsky JR, Devaiah AK, Dagher W, Grundfast KM, Heman-Ackah SE, Rubin S, Sillman J, Tsai AC, Vecchiotti M, Kujawa SG, Lee DJ, Quesnel AM. Otologic outcomes after blast injury: the Boston Marathon experience. Otol Neurotol. 2014 Dec;35(10):1825-34. doi: 10.1097/mao.0000000000000616. Epub 2014 Nov 14. PubMed PMID: 25393974. https://www.ncbi.nlm.nih.gov/pubmed/25393974. Subscription required.

    Contact information:

    Institution: Michigan State University Rehabilitation Medicine Clinic
    Address: Eyde Building, 4660 S. Hagadorn Rd. Suite 400 (4th floor), East Lansing, MI 48823
    Phone: 517-355-7648
    Fax: 517-432-1319
    Includes Research Tools: Yes.
    ID: 12919. From: Disaster Lit®a database of the U.S. National Library of Medicine.
  51. Duke Health Profile (DUKE)
    Source: Duke University
    Date Published: 1990
    Format: PDF
    Annotation: For details, see the record from HSRR (Health Services and Sciences Research Resources), a database of the U.S. National Library of Medicine. This resource was identified by the NIH Disaster Research Response Program (DR2) for researchers looking for pre- and post-disaster data collection instruments.

    Ease of Use in Disaster Setting: Easy
    Flesch-Kincaid Reading Level: 5.1    ...[See more] [See less]
    URL: http://www.lssmn.org/uploadedFiles/NuVantage_Wellness_Microsite/NuVantage_Wellness_Content/Web_Resources/Duke%20Health%20Profile.pdf
    Type: Guideline/Assessment Tool
    Access Notes: Permission/Request Required

    Contact information:
    Contact person: Dr. George Parkerson
    Institution: Duke University
    Email: george.parkerson@duke.edu
    Includes Research Tools: Yes.
    ID: 15228. From: Disaster Lit®a database of the U.S. National Library of Medicine.
  52. Duke Severity of Illness Checklist
    Source: Duke University
    Date Published: 1990
    Format: PDF
    Annotation: For details, see the record from HSRR (Health Services and Sciences Research Resources), a database of the U.S. National Library of Medicine. This resource was identified by the NIH Disaster Research Response Program (DR2) for researchers looking for pre- and post-disaster data collection instruments....[See more] [See less]
    URL: https://eprovide.mapi-trust.org/instruments/duke-severity-of-illness-checklist
    Type: Guideline/Assessment Tool
    Access Notes: Proprietary - Cost/Purchase Required

    Contact information:
    Contact person: Dr. George Parkerson
    Institution: Duke University
    Email: george.parkerson@duke.edu
    Includes Research Tools: Yes.
    ID: 15229. From: Disaster Lit®a database of the U.S. National Library of Medicine.
  53. Questionnaire Development Resources
    Source: National Institutes of Health (NIH)
    Date Published: 1989
    Format: Text
    Annotation: For details, see the record from HSRR (Health Services and Sciences Research Resources), a database of the U.S. National Library of Medicine. This resource was identified by the NIH Disaster Research Response Program (DR2) for researchers looking for pre- and post-disaster data collection instruments.

    Ease of Use in Disaster Setting: Easy    ...[See more] [See less]
    URL: https://dceg.cancer.gov/tools/design/questionnaires
    Type: Guideline/Assessment Tool
    Access Notes: Free/Publicly Available

    Contact information:
    Institution: National Institutes of Health, National Cancer Institute
    Email: ncicontactdceg@mail.nih.gov
    Includes Research Tools: Yes.
    ID: 15254. From: Disaster Lit®a database of the U.S. National Library of Medicine.
  54. Numeric Pain Rating Scale
    Source: Northwestern University
    Date Published: 1989
    Format: PDF
    Annotation: This tool measures the subjective intensity of pain that a person has experienced in a 24-hour period. This resource was identified by the NIH Disaster Research Response Program (DR2) for researchers looking for pre- and post-disaster data collection instruments.

    Ease of Use in Disaster Setting: Easy
    Flesch-Kincaid Reading Level: 8.3
    Population: All/Anyone
    Length: One question
    Administered by: Self Administered/Self Report, Lay Interviewer
    Language(s): English    ...[See more] [See less]
    URL: https://www.sralab.org/rehabilitation-measures/numeric-pain-rating-scale
    Type: Guideline/Assessment Tool
    Access Notes: Free/Publicly Available

    Citation(s):
    Yabuki S, Ouchi K, Kikuchi S, Konno S. Pain, quality of life and activity in aged evacuees living in temporary housing after the Great East Japan earthquake of 11 March 2011: a cross-sectional study in Minamisoma City, Fukushima prefecture. BMC Musculoskelet Disord. 2015;16(1):246. doi: 10.1186/s12891-015-0711-2. Epub 2015 Sep 12. PubMed PMID: 26359245; PubMed Central PMCID: PMC4566298. https://www.ncbi.nlm.nih.gov/pubmed/26359245. Subscription not required.

    Contact information:

    Contact person: Jennifer Moore PT, DHS
    Institution: Rehabilitation Institute of Chicago, Northwestern University
    Email: rehabmeasures@ric.org
    Includes Research Tools: Yes.
    ID: 12894. From: Disaster Lit®a database of the U.S. National Library of Medicine.
  55. Functional Assessment of Chronic Illness Therapy (FACIT) Measurement System
    Source: FACIT Measurement System
    Date Published: 1987
    Format: Text
    Annotation: For details, see the record from HSRR (Health Services and Sciences Research Resources), a database of the U.S. National Library of Medicine. This resource was identified by the NIH Disaster Research Response Program (DR2) for researchers looking for pre- and post-disaster data collection instruments....[See more] [See less]
    URL: http://www.facit.org/FACITOrg/Questionnaires
    Type: Guideline/Assessment Tool
    Access Notes: Permission/Request Required

    Contact information:
    Institution: FACIT Measurement System
    Email: information@facit.org
    Includes Research Tools: Yes.
    ID: 15233. From: Disaster Lit®a database of the U.S. National Library of Medicine.
  56. Charlson Comorbidity Index
    Source: Family Practice Notebook
    Date Published: 1987
    Format: Text
    Annotation: This scale is used to assess whether a patient will live long enough to benefit from a specific screening measure or medical intervention. This resource was identified by the NIH Disaster Research Response Program (DR2) for researchers looking for pre- and post-disaster data collection instruments.

    Ease of Use in Disaster Setting: Moderate
    Flesch-Kincaid Reading Level: 14.4
    Population: All/Anyone
    Length: 16 questions
    Administered by: Self Administered/Self Report, Specialist/Doctor/Expert
    Language(s): English    ...[See more] [See less]
    URL: http://www.fpnotebook.com/prevent/Exam/ChrlsnCmrbdtyIndx.htm
    Type: Guideline/Assessment Tool
    Access Notes: Free/Publicly Available

    Citation(s):
    Karatzias T, Yan E, Jowett S. Adverse life events and health: a population study in Hong Kong. J Psychosom Res. 2015 Feb;78(2):173-7. doi: 10.1016/j.jpsychores.2014.11.024. Epub 2014 Dec 17. PubMed PMID: 25498319. https://www.ncbi.nlm.nih.gov/pubmed/25498319. Subscription required.

    Contact information:

    Institution: Family Practice Notebook
    Web: http://www.fpnotebook.com/fpnmvc/note/contact
    Includes Research Tools: Yes.
    ID: 12895. From: Disaster Lit®a database of the U.S. National Library of Medicine.
  57. Pregnancy Risk Assessment Monitoring System (PRAMS) Questionnaires
    Source: Centers for Disease Control and Prevention (CDC)
    Date Published: 1987
    Format: Text
    Annotation: The Pregnancy Risk Assessment Monitoring System (PRAMS) is a joint research project between the state departments of health and the Centers for Disease Control and Prevention, Division of Reproductive Health. The purpose of PRAMS is to find out why some babies are born healthy and others are not. The survey asks new mothers questions about their pregnancy and their new baby. This resource was identified by the NIH Disaster Research Response Program (DR2) for researchers looking for pre- and post-disaster data collection instruments.

    Ease of Use in Disaster Setting: Difficult
    Population: High Risk/Special/Unique Populations
    Length: 59 Core Questions, 185 Standard Questions
    Administered by: Lay Interviewer, Self Administered/Self Report
    Language(s): English, Spanish    ...[See more] [See less]
    URL: https://www.cdc.gov/prams/questionnaire.htm
    Type: Guideline/Assessment Tool
    Access Notes: Free/Publicly Available

    Citation(s):
    Zilversmit L, Sappenfield O, Zotti M, McGehee MA. Preparedness planning for emergencies among postpartum women in Arkansas during 2009. Womens Health Issues. 2014 Jan-Feb;24(1):e83-8. doi: 10.1016/j.whi.2013.10.006. Epub 2014 Jan 21. PubMed PMID: 24439951. https://www.ncbi.nlm.nih.gov/pubmed/24439951. Subscription required.

    Contact information:

    Institution: Centers for Disease Control and Prevention
    Email: PRAMSProposals@cdc.gov
    Includes Research Tools: Yes.
    ID: 12969. From: Disaster Lit®a database of the U.S. National Library of Medicine.
  58. Functional Status Questionnaire
    Source: Disaster Research Response Program [National Institutes of Health] (DR2)
    Date Published: 1986
    Format: PDF
    Annotation: The Functional Status Questionnaire can be used as a self-administered functional assessment that provides information on the patient's physical, psychological, social, and role functions. It can be used both to screen initially for problems and to monitor the patient over time. This resource was identified by the NIH Disaster Research Response Program (DR2) for researchers looking for pre- and post-disaster data collection instruments.

    Ease of Use in Disaster Setting: Moderate
    Population: Adults only
    Length: 33 questions
    Administered by: Self Administered/Self Report
    Language(s): English    ...[See more] [See less]
    URL: http://geriatrictoolkit.missouri.edu/funct/FSQ.pdf
    Type: Guideline/Assessment Tool
    Access Notes: Free/Publicly Available

    Citation(s):
    Der-Martirosian C, Riopelle D, Naranjo D, Yano EM, Rubenstein LV, Dobalian A. Pre-earthquake burden of illness and postearthquake health and preparedness in veterans. Prehosp Disaster Med. 2014 Jun;29(3):223-9. doi: 10.1017/s1049023x14000272. Epub 2014 Apr 12. PubMed PMID: 24721119. https://www.ncbi.nlm.nih.gov/pubmed/24721119. Subscription required.
    Includes Research Tools: Yes.
    ID: 13485. From: Disaster Lit®a database of the U.S. National Library of Medicine.
  59. Disease Activity Score (DAS)
    Source: Radboud University Medical Center
    Date Published: 1985
    Format: Text
    Annotation: The Disease Activity Score (DAS) is a combined index that was developed in the Netherlands in the 1980s to measure the disease activity in patients with rheumatoid arthritis (RA). It has been extensively validated for its use in clinical trials. DAS makes it possible to collect valuable information about the disease activity of a patient in daily clinical practice. The DAS will provide a number between 0 and 10, indicating how active the rheumatoid arthritis is at the moment. This resource was identified by the NIH Disaster Research Response Program (DR2) for researchers looking for pre- and post-disaster data collection instruments.

    Ease of Use in Disaster Setting: Difficult
    Population: All/Anyone
    Length: 28 questions
    Administered by: Specialist/Doctor/Expert
    Language(s): English    ...[See more] [See less]
    URL: http://www.das-score.nl/das28/DAScalculators/DAS28frm%20v26-7-2012.doc
    Type: Guideline/Assessment Tool
    Access Notes: Free/Publicly Available

    Citation(s):
    Loupasakis K, Berman J, Jaber N, Zeig-Owens R, Webber MP, Glaser MS, Moir W, Qayyum B, Weiden MD, Nolan A, Aldrich TK, Kelly KJ, Prezant DJ. Refractory sarcoid arthritis in World Trade Center-exposed New York City firefighters: a case series. J Clin Rheumatol. 2015 Jan;21(1):19-23. doi: 10.1097/rhu.0000000000000185. Epub 2014 Dec 30. PubMed PMID: 25539429. https://www.ncbi.nlm.nih.gov/pubmed/25539429. Subscription required.

    Contact information:

    Contact person: Piet van Riel
    Address: Geert Grooteplein Zuid 8, Department of Rheumatology (470), PO Box 9101, 6500 HB Nijmegen, The Netherlands
    Email: P.vanriel@reuma.umcn.nl
    Includes Research Tools: Yes.
    ID: 12954. From: Disaster Lit®a database of the U.S. National Library of Medicine.
  60. Functional Activities Questionnaire
    Source: National Institute on Aging (NIA)
    Date Published: 1984
    Format: Text
    Annotation: For details, see the record from HSRR (Health Services and Sciences Research Resources), a database of the U.S. National Library of Medicine. This resource was identified by the NIH Disaster Research Response Program (DR2) for researchers looking for pre- and post-disaster data collection instruments.

    Ease of Use in Disaster Setting: Easy
    Flesch-Kincaid Reading Level: 8
    Time to Complete: 6-10 minutes    ...[See more] [See less]
    URL: https://eprovide.mapi-trust.org/instruments/functional-activities-questionnaire
    Type: Guideline/Assessment Tool
    Access Notes: Free/Publicly Available
    Includes Research Tools: Yes.
    ID: 15232. From: Disaster Lit®a database of the U.S. National Library of Medicine.
  61. Addiction Severity Index (ASI)-5th Edition
    Source: University of Washington (UW)
    Date Published: 1980
    Format: PDF
    Annotation: The Addiction Severity Index (ASI) is a semi-structured interview designed to address seven potential problem areas in substance-abusing patients: medical status, employment and support, drug use, alcohol use, legal status, family/social status, and psychiatric status. In one hour, a skilled interviewer can gather information on recent (past 30 days) and lifetime problems in all of the problem areas. The ASI provides an overview of problems related to substance, rather than focusing on any single area. The ASI has been used extensively for treatment planning and outcome evaluation. Outcome evaluation packages for individual programs or for treatment systems are available. This resource was identified by the NIH Disaster Research Response Program (DR2) for researchers looking for pre- and post-disaster data collection instruments.

    Ease of Use in Disaster Setting: Difficult
    Flesch-Kincaid Reading Level: 6.9
    Population: Adults only
    Length: 200 questions
    Administered by: Specialist/Doctor/Expert
    Language(s): English    ...[See more] [See less]
    URL: http://adai.washington.edu/instruments/pdf/Addiction_Severity_Index_Baseline_Followup_4.pdf
    Type: Guideline/Assessment Tool
    Access Notes: Free/Publicly Available

    Citation(s):
    McLellan AT, Luborsky L, O'Brien CP, Woody GE. An improved diagnostic instrument for substance abuse patients: The Addiction Severity Index. J of Nerv Ment Dis. 1980 Jan;168(1):26-33. PubMed PMID: 7351540. https://www.ncbi.nlm.nih.gov/pubmed/7351540. Subscription not required.

    Williams AR, Tofighi B, Rotrosen J, Lee JD, Grossman E. Psychiatric comorbidity, red flag behaviors, and associated outcomes among office-based buprenorphine patients following Hurricane Sandy. J Urban Health. 2014 Apr;91(2):366-75. doi: 10.1007/s11524-014-9866-7. Epub 2014 Mar 13. PubMed PMID: 24619775; PubMed Central PMCID: PMC3978155. https://www.ncbi.nlm.nih.gov/pubmed/24619775. Subscription not required.

    Contact information:

    Contact person: A.T. McLellan, Ph.D.
    Institution: Treatment Research Institute
    Address: Building #7 PV AMC, University Avenue, Philadelphia, PA 19104
    Phone: 215-399-0980
    Fax: 215-399-0987
    Email: tmclellan@tresearch.org This link is no longer available. 6/24/2016.
    Includes Research Tools: Yes.
    ID: 12933. From: Disaster Lit®a database of the U.S. National Library of Medicine.
  62. Eating Attitudes Test (EAT-26)
    Source: River Centre Foundation
    Date Published: 1979
    Format: Text
    Annotation: The Eating Attitudes Test (EAT-26) is a screening measure to help researchers determine whether subjects may have an eating disorder that needs professional attention. This screening measure is not designed to make a diagnosis of an eating disorder or take the place of a professional consultation. The EAT-26 is a refinement of the original EAT-40 that was first published in 1979 and used in one of the first studies to examine socio-cultural factors in the development and maintenance of eating disorders. This can be used in a non-clinical as well as a clinical setting not specifically focused on eating disorders. It is intended primarily for adolescents and adults. This resource was identified by the NIH Disaster Research Response Program (DR2) for researchers looking for pre- and post-disaster data collection instruments.

    Ease of Use in Disaster Setting: Easy
    Flesch-Kincaid Reading Level: 5.4
    Population: All/Anyone
    Length: 26 questions
    Administered by: Self Administered/Self Report
    Language(s): English and many other languages    ...[See more] [See less]
    URL: https://www.eat-26.com/
    Type: Guideline/Assessment Tool
    Access Notes: Free/Publicly Available

    Citation(s):
    St-Hilaire A, Steiger H, Liu A, Laplante DP, Thaler L, Magill T, King S. A prospective study of effects of prenatal maternal stress on later eating-disorder manifestations in affected offspring: preliminary indications based on the Project Ice Storm cohort. Int J Eat Disord. 2015 Jul;48(5):512-6. doi: 10.1002/eat.22391. Epub 2015 Mar 27. PubMed PMID: 25808647. https://www.ncbi.nlm.nih.gov/pubmed/25808647. Subscription required.

    Garner et al. (1982). The Eating Attitudes Test: Psychometric features and clinical correlates. Psychological Medicine, 12, 871-878
    Includes Research Tools: Yes.
    ID: 12925. From: Disaster Lit®a database of the U.S. National Library of Medicine.
  63. Nurses' Health Study
    Source: Harvard University, Harvard T.H. Chan School of Public Health
    Date Published: 1976
    Format: Text
    Annotation: For details, see the record from HSRR (Health Services and Sciences Research Resources), a database of the U.S. National Library of Medicine. This resource was identified by the NIH Disaster Research Response Program (DR2) for researchers looking for pre- and post-disaster data collection instruments.

    Ease of Use in Disaster Setting: Easy    ...[See more] [See less]
    URL: http://www.nurseshealthstudy.org/
    Type: Guideline/Assessment Tool
    Access Notes: Free/Publicly Available

    Contact information:
    Institution: Harvard University, T.H. Chan School of Public Health
    Phone: 617-525-2279
    Email: nhs@channing.harvard.edu
    Includes Research Tools: Yes.
    ID: 15247. From: Disaster Lit®a database of the U.S. National Library of Medicine.
  64. McGill Pain Questionnaire
    Source: Mapi Research Trust
    Date Published: 1975
    Format: Text
    Annotation: For details, see the record from HSRR (Health Services and Sciences Research Resources), a database of the U.S. National Library of Medicine. This resource was identified by the NIH Disaster Research Response Program (DR2) for researchers looking for pre- and post-disaster data collection instruments.

    Ease of Use in Disaster Setting: Moderate    ...[See more] [See less]
    URL: https://eprovide.mapi-trust.org/search?form%5BsearchText%5D=MPQ&form%5BsortByOrder%5D=&form%5Bpage%5D=1&form%5Bezxform_token%5D=0hMhSTwiJR7IoGbnZ8A7EPjPBGFMcos3GnznYjsTDko
    Type: Guideline/Assessment Tool
    Access Notes: Proprietary-Cost/Purchase

    Citation(s):
    Wasiak J, et al. 12-month generic health status and psychological distress outcomes following an Australian natural disaster experience: 2009 Black Saturday Wildfires. Injury. 2013; 44(11). 1443-1447. doi: 10.1016/j.injury.2012.08.060. PMID:23021367. https://www.ncbi.nlm.nih.gov/pubmed/23021367. Subscription required.
    Includes Research Tools: Yes.
    ID: 15242. From: Disaster Lit®a database of the U.S. National Library of Medicine.
  65. Add Health: National Longitudinal Study of Adolescent Health
    Source: National Institute of Child Health and Human Development [National Institutes of Health] (NICHD)
    Format: Text
    Annotation: The National Longitudinal Study of Adolescent Health (Add Health) was developed in response to a mandate from the U.S. Congress to fund a study of adolescent health. Waves I and II of this study focus on the forces that may influence adolescents' health and risk behaviors, including personal traits, families, friendships, romantic relationships, peer groups, schools, neighborhoods, and communities. As participants have aged into adulthood, the scientific goals of the study have expanded and evolved. Wave III data collection included in-home interviews with original respondents and their partners. During Wave IV, a comprehensive personal interview was administered with original Wave 1 respondents that included physical measurements and biospecimen collection. This resource was identified by the NIH Disaster Research Response Program (DR2) for researchers looking for pre- and post-disaster data collection instruments.

    Population: Children/Teens Only
    Administered by: Self Report/Self Administered, Lay Interviewer, Specialist/Doctor/Expert
    Language(s): English    ...[See more] [See less]
    URL: http://www.cpc.unc.edu/projects/addhealth
    Type: Guideline/Assessment Tool
    Access Notes: Free/Publicly Available

    Citation(s):
    Resnick MD, Bearman PS, Blum RW, Bauman KE, Harris KM, Jones J, Tabor J, Beuhring T, Sieving RE, Shew M, Ireland M, Bearinger LH, Udry JR. Protecting adolescents from harm. Findings from the National Longitudinal Study on Adolescent Health. JAMA. 1997 Sep 10;278(10):823-32. PubMed PMID: 9293990. https://www.ncbi.nlm.nih.gov/pubmed/9293990. Subscription required.

    Swallen KC, Reither EN, Haas SA, Meier AM. Overweight, obesity, and health-related quality of life among adolescents: the National Longitudinal Study of Adolescent Health. Pediatrics. 2005 Feb;115(2):340-7. PubMed PMID: 15687442. https://www.ncbi.nlm.nih.gov/pubmed/15687442. Subscription required.

    Cubbin C, Santelli J, Brindis CD, Braveman P. Neighborhood context and sexual behaviors among adolescents: findings from the national longitudinal study of adolescent health. Perspect Sex Reprod Health. 2005 Sep;37(3):125-34. PubMed PMID: 16150660. https://www.ncbi.nlm.nih.gov/pubmed/16150660. Subscription required.

    Contact information:

    Institution: Carolina Population Center, University of North Carolina at Chapel Hill
    Address: CB# 8120, University Square
    123 West Franklin Street, Room 304-C
    Chapel Hill, NC 27516-2524
    Email: addhealth@unc.edu
    Web: http://www.cpc.unc.edu/projects/addhealth/contact

    For more information:
    Institution: Inter-University Consortium for Political and Social Research, Institute for Social Research at the University of Michigan
    http://www.icpsr.umich.edu/icpsrweb/ICPSR/studies/21600
    Includes Research Tools: Yes.
    ID: 8340. From: Disaster Lit®a database of the U.S. National Library of Medicine.
  66. Agricultural Health Study (AHS)
    Source: National Institutes of Health (NIH)
    Format: Text
    Annotation: The Agricultural Health Study (AHS) is a prospective study of cancer and other health outcomes in a cohort of licensed pesticide applicators and their spouses from Iowa and North Carolina. The AHS began in 1993 with the goal of answering important questions about factors that affect the health of farming populations. The goals are to investigate the effects of environmental, occupational, dietary, and genetic factors on the health of the agricultural population. The AHS is sponsored by the National Institutes of Health, (specifically, the National Cancer Institute and the National Institute of Environmental Health Sciences); Environmental Protection Agency; and the National Institute for Occupational Safety and Health. This resource was identified by the NIH Disaster Research Response Program (DR2) for researchers looking for pre- and post-disaster data collection instruments.

    Questionnaires on specific body systems (lung health) and specific disasters (flooding) have not yet been made available on the study website. Contact principal investigator to inquire about these materials.

    Population: High Risk/Special/Unique Population
    Administered by: Self Administered/Self Report, Lay Interviewer, Specialist/Doctor/Expert
    Language(s): English    ...[See more] [See less]
    URL: https://aghealth.nih.gov/
    Type: Guideline/Assessment Tool
    Access Notes: Permission/Request required

    Citation(s):
    Alavanja MC, Sandler DP, McMaster SB, Zahm SH, McDonnell CJ, Lynch CF, Pennybacker M, Rothman N, Dosemeci M, Bond AE, Blair A. The Agricultural Health Study. Environ Health Perspect. 1996 Apr;104(4):362-9. PubMed PMID: 8732939; PubMed Central PMCID: PMC1469343. https://www.ncbi.nlm.nih.gov/pubmed/8732939. Subscription not required.

    Engel LS, Satagopan J, Sima CS, Orlow I, Mujumdar U, Coble J, Roy P, Yoo S, Sandler DP, Alavanja MC. Sun exposure, vitamin D receptor genetic variants, and risk of breast cancer in the Agricultural Health Study. Environ Health Perspect. 2014 Feb;122(2):165-71. doi: 10.1289/ehp.1206274. Epub 2013 Nov 18. PubMed PMID: 24252436; PubMed Central PMCID: PMC3915256. https://www.ncbi.nlm.nih.gov/pubmed/24252436. Subscription not required.

    Kamel F, Goldman SM, Umbach DM, Chen H, Richardson G, Barber MR, Meng C, Marras C, Korell M, Kasten M, Hoppin JA, Comyns K, Chade A, Blair A, Bhudhikanok GS, Webster Ross G, William Langston J, Sandler DP, Tanner CM. Dietary fat intake, pesticide use, and Parkinson's disease. Parkinsonism Relat Disord. 2014 Jan;20(1):82-7. doi: 10.1016/j.parkreldis.2013.09.023. Epub 2013 Oct 1. PubMed PMID: 24120951; PubMed Central PMCID: PMC3936597. https://www.ncbi.nlm.nih.gov/pubmed/24120951. Subscription required.

    Contact information:

    Contact person: Dale P. Sandler, PhD, Principal Investigator
    Institution: National Institute of Environmental Health Sciences
    Phone: 919-541-4668
    Fax: 919-541-2511
    Email: Sandler@niehs.nih

    For more information:
    Institution: National Institute of Environmental Health Sciences
    Web: https://www.niehs.nih.gov/research/atniehs/labs/epi/studies/ahs/

    Institution: Environmental Protection Agency
    Web: http://www.epa.gov/pesticides/health/ag-health.html

    Institution: Iowa State University, Extension and Outreach
    Web: https://www.extension.iastate.edu/pme/AgHealth.html
    Includes Research Tools: Yes.
    ID: 8342. From: Disaster Lit®a database of the U.S. National Library of Medicine.
  67. Behavioral Risk Factor Surveillance System (BRFSS)
    Source: Centers for Disease Control and Prevention (CDC)
    Format: Text
    Annotation: The Behavioral Risk Factor Surveillance System (BRFSS) Questionnaire is a telephone survey that was developed and conducted to monitor state-level prevalence of the major behavioral risks among adults associated with premature morbidity and mortality. The basic philosophy was to collect data on actual behaviors, rather than on attitudes or knowledge, that would be especially useful for planning, initiating, supporting, and evaluating health promotion and disease prevention programs. This resource was identified by the NIH Disaster Research Response Program (DR2) for researchers looking for pre- and post-disaster data collection instruments.

    Population: Residential/Workplace
    Administered by: Lay Interviewer, Specialist/Doctor/Expert
    Language(s): English and Spanish    ...[See more] [See less]
    URL: https://www.cdc.gov/brfss/questionnaires.htm
    Type: Guideline/Assessment Tool
    Access Notes: Free/Publicly Available

    Citation(s):
    Robbins CL, Zapata LB, Farr SL, Kroelinger CD, Morrow B, Ahluwalia I, D'Angelo DV, Barradas D, Cox S, Goodman D, Williams L, Grigorescu V, Barfield WD; Centers for Disease Control and Prevention (CDC). Core state preconception health indicators - pregnancy risk assessment monitoring system and behavioral risk factor surveillance system, 2009. MMWR Surveill Summ. 2014 Apr 25;63(3):1-62. PubMed PMID: 24759729. https://www.ncbi.nlm.nih.gov/pubmed/24759729. Subscription not required.

    Centers for Disease Control and Prevention (CDC). Self-reported increased confusion or memory loss and associated functional difficulties among adults aged ≥ 60 years - 21 States, 2011. MMWR Morb Mortal Wkly Rep. 2013 May 10;62(18):347-50. PubMed PMID: 23657108. https://www.ncbi.nlm.nih.gov/pubmed/23657108. Subscription not required.

    Centers for Disease Control (CDC). Behavioral risk factor survey of Vietnamese--California, 1991. MMWR Morb Mortal Wkly Rep. 1992 Feb 7;41(5):69-72. PubMed PMID: 1732712. https://www.ncbi.nlm.nih.gov/pubmed/1732712. Subscription required.

    Contact information:

    Institution: Centers for Disease Control and Prevention
    Address: 1600 Clifton Rd., Mailstop E-97
    Atlanta, GA 30333
    Phone: 800-CDC-INFO/800-232-4636/TTY: 888-232-6348
    Web: https://www.cdc.gov/brfss/
    Includes Research Tools: Yes.
    ID: 8343. From: Disaster Lit®a database of the U.S. National Library of Medicine.
  68. National Health and Nutrition Examination Survey (NHANES)
    Source: Centers for Disease Control and Prevention, National Center for Health Statistics (CDC NCHS)
    Format: Text
    Annotation: The National Health and Nutrition Examination Survey (NHANES) is a program of studies designed to assess the health and nutritional status of adults and children in the United States. The survey is unique in that it combines interviews and physical examinations. NHANES is a major program of the National Center for Health Statistics (NCHS). The NHANES interview includes demographic, socioeconomic, dietary, and health-related questions. The examination component consists of medical, dental, and physiological measurements, as well as laboratory tests administered by highly trained medical personnel. This resource was identified by the NIH Disaster Research Response Program (DR2) for researchers looking for pre- and post-disaster data collection instruments.

    Population: Residential/Workplace
    Administered by: Self Administered/Self Report, Lay Interviewer, Specialist/Doctor/Expert
    Language(s): English    ...[See more] [See less]
    URL: https://www.cdc.gov/nchs/nhanes/nhanes_questionnaires.htm
    Type: Guideline/Assessment Tool
    Access Notes: Free/Publicly Available

    Citation(s):
    Calafat AM, Wong LY, Kuklenyik Z, Reidy JA, Needham LL. Polyfluoroalkylchemicals in the U.S. population: data from the National Health and Nutrition Examination Survey (NHANES) 2003-2004 and comparisons with NHANES 1999-2000. Environ Health Perspect. 2007 Nov;115(11):1596-602. PubMed PMID: 18007991; PubMed Central PMCID: PMC2072821. https://www.ncbi.nlm.nih.gov/pubmed/18007991. Subscription not required.

    Cutler JA, Sorlie PD, Wolz M, Thom T, Fields LE, Roccella EJ. Trends in hypertension prevalence, awareness, treatment, and control rates in United States adults between 1988-1994 and 1999-2004. Hypertension. 2008 Nov;52(5):818-27. doi: 10.1161/HYPERTENSIONAHA.108.113357. Epub 2008 Oct 13. PubMed PMID: 18852389. https://www.ncbi.nlm.nih.gov/pubmed/18852389. Subscription not required.

    Hoppin JA, Jaramillo R, Salo P, Sandler DP, London SJ, Zeldin DC. Questionnaire predictors of atopy in a US population sample: findings from the National Health and Nutrition Examination Survey, 2005-2006. Am J Epidemiol. 2011 Mar 1;173(5):544-52. doi: 10.1093/aje/kwq392. Epub 2011 Jan 27. PubMed PMID: 21273397; PubMed Central PMCID: PMC3105435. https://www.ncbi.nlm.nih.gov/pubmed/21273397. Subscription not required.

    Contact information:

    Institution: National Center for Health Statistics
    Address: 3311 Toledo Rd., Room 5419
    Hyattsville, MD 20782
    Phone: 1-800-232-4636

    For more information:
    Institution: Centers for Disease Control and Prevention
    Web: https://www.cdc.gov/nchs/nhanes.htm
    Includes Research Tools: Yes.
    ID: 8344. From: Disaster Lit®a database of the U.S. National Library of Medicine.
  69. Hispanic Community Health Study/Study of Latinos (HCHS/SOL)
    Source: National Institutes of Health (NIH)
    Format: Text
    Annotation: The Hispanic Community Health Study/Study of Latinos (HCHS/SOL) is a multi-center epidemiologic study of Hispanic/Latino populations to determine the role of acculturation in the prevalence and development of disease, and to identify risk factors playing a protective or harmful role in Hispanics/Latinos. This resource was identified by the NIH Disaster Research Response Program (DR2) for researchers looking for pre- and post-disaster data collection instruments.

    Population: Ethnic/Religious Minorities
    Administered by: Self Administered/Self Report, Lay Interviewer, Specialist/Doctor/Expert
    Language(s): English and Spanish    ...[See more] [See less]
    URL: https://www2.cscc.unc.edu/hchs/
    Type: Guideline/Assessment Tool
    Access Notes: Free/Publicly Available

    Citation(s):
    Sorlie PD, Aviles-Santa LM, Wassertheil-Smoller S, Kaplan RC, Daviglus ML, Giachello AL, Schneiderman N, Raij L, Talavera G, Allison M, Lavange L, Chambless LE, Heiss G. Design and implementation of the Hispanic Community Health Study/Study of Latinos. Ann Epidemiol. 2010 Aug;20(8):629-41. doi: 10.1016/j.annepidem.2010.03.015. PubMed PMID: 20609343; PubMed Central PMCID: PMC2904957. https://www.ncbi.nlm.nih.gov/pubmed/20609343. Subscription not required.

    Daviglus ML, Talavera GA, Aviles-Santa ML, Allison M, Cai J, Criqui MH, Gellman M, Giachello AL, Gouskova N, Kaplan RC, LaVange L, Penedo F, Perreira K, Pirzada A, Schneiderman N, Wassertheil-Smoller S, Sorlie PD, Stamler J. Prevalence of major cardiovascular risk factors and cardiovascular diseases among Hispanic/Latino individuals of diverse backgrounds in the United States. JAMA. 2012 Nov 7;308(17):1775-84. doi: 10.1001/jama.2012.14517. PubMed PMID: 23117778; PubMed Central PMCID: PMC3777250. https://www.ncbi.nlm.nih.gov/pubmed/23117778. Subscription not required.

    Denes P, Garside DB, Lloyd-Jones D, Gouskova N, Soliman EZ, Ostfeld R, Zhang ZM, Camacho A, Prineas R, Raij L, Daviglus ML. Major and minor electrocardiographic abnormalities and their association with underlying cardiovascular disease and risk factors in Hispanics/Latinos (from the Hispanic
    Community Health Study/Study of Latinos). Am J Cardiol. 2013 Nov 15;112(10):1667-75. doi: 10.1016/j.amjcard.2013.08.004. Epub 2013 Sep 19. PubMed PMID: 24055066; PubMed Central PMCID: PMC3864828. https://www.ncbi.nlm.nih.gov/pubmed/24055066. Subscription required.

    Gallo LC, Penedo FJ, Carnethon M, Isasi CR, Sotres-Alvarez D, Malcarne VL, Roesch SC, Youngblood ME, Daviglus ML, Gonzalez P, Talavera GT. The Hispanic Community Health Study/Study of Latinos Sociocultural Ancillary Study: sample, design, and procedures. Ethn Dis. 2014 Winter;24(1):77-83. PubMed PMID: 24620452; PubMed Central PMCID: PMC3986116. https://www.ncbi.nlm.nih.gov/pubmed/24620452. Subscription required.
    Includes Research Tools: Yes.
    ID: 8346. From: Disaster Lit®a database of the U.S. National Library of Medicine.
  70. Sister Study
    Source: National Institute of Environmental Health Sciences [National Institutes of Health] (NIEHS)
    Format: Text
    Annotation: The Sister Study is prospectively examining environmental and familial risk factors for breast cancer and other diseases in a cohort of 50,000 sisters of women who have had breast cancer. Such sisters have about twice the risk of developing breast cancer as other women. The frequency of relevant genes and shared risk factors will be greater among sisters, increasing the statistical power of the study to detect risks. This resource was identified by the NIH Disaster Research Response Program (DR2) for researchers looking for pre- and post-disaster data collection instruments.

    Population: High Risk/Special/Unique Populations
    Administered by: Self Administered/Self Report, Lay Interviewer
    Language(s): English and Spanish    ...[See more] [See less]
    URL: http://www.sisterstudy.niehs.nih.gov/English/baseline.htm
    Type: Guideline/Assessment Tool
    Access Notes: Permission/Request required

    Citation(s):
    Spector D, Deroo LA, Sandler DP. Lifestyle behaviors in black and white women with a family history of breast cancer. Prev Med. 2011 May;52(5):394-7. doi: 10.1016/j.ypmed.2011.03.001. Epub 2011 Mar 17. PubMed PMID: 21396953; PubMed Central PMCID: PMC3096469. https://www.ncbi.nlm.nih.gov/pubmed/21396953. Subscription not required.

    Lin CJ, DeRoo LA, Jacobs SR, Sandler DP. Accuracy and reliability of self-reported weight and height in the Sister Study. Public Health Nutr. 2012 Jun;15(6):989-99. doi: 10.1017/S1368980011003193. Epub 2011 Dec 9. PubMed PMID: 22152926; PubMed Central PMCID: PMC3511620. https://www.ncbi.nlm.nih.gov/pubmed/22152926. Subscription not required.

    Contact information:

    Institution: National Institute of Environmental Health Sciences, The Sister Study
    Phone: 877-4SISTER (877-474-7837); for deaf or hard of hearing, 866-TTY-4SIS (866-889-4747)
    Email: update@sisterstudy.org
    Web: https://www.sisterstudystars.org/Default.aspx?projectid=50548533-6eba-4470-83c8-d9019d3a14ad
    Includes Research Tools: Yes.
    ID: 8347. From: Disaster Lit®a database of the U.S. National Library of Medicine.
  71. National Health Interview Survey (NHIS)
    Source: Centers for Disease Control and Prevention, National Center for Health Statistics (CDC NCHS)
    Format: Text
    Annotation: The National Health Interview Survey (NHIS) is the principal source of information on the health of the civilian non-institutionalized population of the United States and is one of the major data collection programs of the National Center for Health Statistics (NCHS), which is part of the Centers for Disease Control and Prevention (CDC). Since 1957, the content of the survey has been updated about every 10 to 15 years. A substantially revised NHIS questionnaire was implemented in 1997 and has improved the ability of the NHIS to provide important health information. This resource was identified by the NIH Disaster Research Response Program (DR2) for researchers looking for pre- and post-disaster data collection instruments.

    Population: Residential/Workplace
    Administered by: Lay Interviewer, Specialist/Doctor/Expert
    Language(s): English and Spanish    ...[See more] [See less]
    URL: https://www.cdc.gov/nchs/nhis/nhis_questionnaires.htm
    Type: Guideline/Assessment Tool
    Access Notes: Free/Publicly Available

    Citation(s):
    Pleis JR, Ward BW, Lucas JW. Summary health statistics for U.S. adults: National Health Interview Survey, 2009. Vital Health Stat 10. 2010 Dec;(249):1-207. PubMed PMID: 21905346. https://www.ncbi.nlm.nih.gov/pubmed/21905346. Subscription required.

    Pleis JR, Lucas JW, Ward BW. Summary health statistics for U.S. adults: National Health Interview Survey, 2008. Vital Health Stat 10. 2009 Dec;(242):1-157. PubMed PMID: 20821903. https://www.ncbi.nlm.nih.gov/pubmed/20821903. Subscription required.

    Contact information:

    Institution: Division of Health Interview Statistics, National Center for Health Statistics
    Address: 3311 Toledo RD., Room 2217
    Hyattsville, MD 20782
    Phone: 301-458-4901/301-458-4001
    Fax: 301-458-4035
    Email: nhislist@cdc.gov
    Includes Research Tools: Yes.
    ID: 8352. From: Disaster Lit®a database of the U.S. National Library of Medicine.
  72. North West Public Health Observatory Health, Lifestyle and Well-Being Survey (Public Health England)
    Source: United Kingdom Department of Health (DH)
    Format: PDF
    Annotation: The North West Public Health Observatory Health, Lifestyle and Well-Being Survey (Public Health England) provides a collection of questions for lifestyle health surveys that may be suitable for a wide range of users. The areas of alcohol, smoking, food and diet, physical activity, and general health and well-being are covered, and questions are taken from a wide range of relevant sources. Sources include the General Lifestyle survey, the Health Survey for England, the Scottish Health Survey, the Welsh Health Survey, and the Northern Ireland Health and Social Wellbeing Survey. This resource was identified by the NIH Disaster Research Response Program (DR2) for researchers looking for pre- and post-disaster data collection instruments.

    Population: Residential/Workplace
    Administered by: Self Administered/Self Report, Lay Interviewer, Specialist/Doctor/Expert
    Language(s): English and Spanish    ...[See more] [See less]
    URL: http://www.nwph.net/Publications/NW%20MWB_PHE_Final_28.11.13.pdf
    Type: Guideline/Assessment Tool
    Access Notes: Free/Publicly Available

    Citation(s):
    Bellis MA, Hughes K, Tocque K, Hennell T, Humphrey G, Wyke S. Assessing and communicating the health and judicial impact of alcohol use. Public Health. 2005 Apr;119(4):253-61. PubMed PMID: 15733684. https://www.ncbi.nlm.nih.gov/pubmed/15733684. Subscription required.

    Contact information:

    Institution: North West Public Health Observatory, Centre for Public Health, John Moores University
    Address: Kingsway House, Hatton Garden
    Liverpool L3 2AJ
    Phone: +44 (151) 904 6043
    Fax: +44 (151) 231 8020
    Email: nwpho-contact@ljmu.ac.uk

    Institution: Public Health England
    Address: John Moores University, Henry Cotton Campus
    15-21 Webster Street
    Room 209, 2nd Floor
    Liverpool L3 2ET
    Phone: +44(0)151 231 4535
    Fax: +44(0)151 231 4552
    Email: KITNorthWest@phe.gov.uk
    Includes Research Tools: Yes.
    ID: 8353. From: Disaster Lit®a database of the U.S. National Library of Medicine.
  73. Jackson Heart Study (JHS)
    Source: National Institutes of Health (NIH)
    Format: Text
    Annotation: Since there is a greater prevalence of cardiovascular disease among African-Americans, the purpose of the Jackson Heart Study is to explore the reasons for this disparity and to uncover new approaches to reduce it. The Jackson Heart Study is the largest single-site, prospective, epidemiologic investigation of cardiovascular disease among African-Americans ever undertaken. It is a population-based longitudinal study. This resource was identified by the NIH Disaster Research Response Program (DR2) for researchers looking for pre- and post-disaster data collection instruments.

    Population: Ethnic/Religious Minorities
    Administered by: Lay Interviewer, Specialist/Doctor/Expert
    Language(s): English and Spanish    ...[See more] [See less]
    URL: https://www.jacksonheartstudy.org/jhsinfo/Home/tabid/36/Default.aspx
    Type: Guideline/Assessment Tool
    Access Notes: Free/Publicly Available

    Citation(s):
    Clark CR, Ommerborn MJ, Hickson DA, Grooms KN, Sims M, Taylor HA, Albert MA. Neighborhood disadvantage, neighborhood safety and cardiometabolic risk factors in African Americans: biosocial associations in the Jackson Heart study. PLoS One. 2013 May 14;8(5):e63254. doi: 10.1371/journal.pone.0063254. Print 2013.
    PubMed PMID: 23691005; PubMed Central PMCID: PMC3653956. https://www.ncbi.nlm.nih.gov/pubmed/23691005. Subscription not required.

    Subramanyam MA, James SA, Diez-Roux AV, Hickson DA, Sarpong D, Sims M, Taylor HA Jr, Wyatt SB. Socioeconomic status, John Henryism and blood pressure among African-Americans in the Jackson Heart Study. Soc Sci Med. 2013 Sep;93:139-46. doi: 10.1016/j.socscimed.2013.06.016. Epub 2013 Jun 21. PubMed PMID: 23906131. https://www.ncbi.nlm.nih.gov/pubmed/23906131. Subscription required.

    Newton RL Jr, Han H, Johnson WD, Hickson DA, Church TS, Taylor HA, Tudor-Locke C, Dubbert PM. Steps/day and metabolic syndrome in African American adults: the Jackson Heart Study. Prev Med. 2013 Dec;57(6):855-9. doi: 10.1016/j.ypmed.2013.09.018. Epub 2013 Oct 3. PubMed PMID: 24096141; PubMed Central PMCID: PMC4001862. https://www.ncbi.nlm.nih.gov/pubmed/24096141. Subscription required.

    Contact information:

    Institution: Jackson Heart Study Administration
    Address: Jackson Medical Mall
    350 West Woodrow Wilson Avenue, Suite 701
    Jackson, MS 39213
    Phone: 601-815-5791
    Fax: 601-815-5793
    Email: jhsccdc@umc.edu
    Web: https://www.jacksonheartstudy.org

    Institution: Community Partnership Office
    Phone: 601-979-8730

    Institution: Jackson Heart Study at Tougaloo College
    Phone: 601-977-7820
    Fax: 601-977-4488
    Includes Research Tools: Yes.
    ID: 8355. From: Disaster Lit®a database of the U.S. National Library of Medicine.
  74. National Association of County and City Health Officials (NACCHO) Toolbox
    Source: National Association of County and City Health Officials (NACCHO)
    Format: Text
    Annotation: The National Association of County and City Health Officials (NACCHO) Toolbox is a free, online collection of local public health tools produced by members of the public health community. Tools within the toolbox are materials and resources public health professionals and other external stakeholders can use to inform and improve their work in the promotion and advancement of public health objectives. Current examples of tools include, but are not limited to, case examples, presentations, fact sheets, drills, evaluations, protocols, templates, reports, and training materials. This resource was identified by the NIH Disaster Research Response Program (DR2) for researchers looking for pre- and post-disaster data collection instruments.

    Population: All/Anyone
    Administered by: Self Report/Self Administered, Lay Interviewer, Specialist/Doctor/Expert
    Language(s): English, Spanish, Chinese, Vietnamese, Turkish, Arabic, Russian, French, Korean, and Thai    ...[See more] [See less]
    URL: http://toolbox.naccho.org/pages/index.html
    Type: Database/Dataset
    Access Notes: Site requires free registration. Free/Publicly Available

    Citation(s):
    Parker AM, Shelton SR, Morganti KG, Nelson C. Assessing relationships between state and local public health organizations: evidence from the NACCHO 2008 profile of local health departments. J Public Health Manag Pract. 2012 Mar-Apr;18(2):156-9. doi: 10.1097/PHH.0b013e318223b138. PubMed PMID: 22286284. https://www.ncbi.nlm.nih.gov/pubmed/22286284. Subscription required.

    Leep CJ, Shah GH. NACCHO's National Profile of Local Health Departments study: the premier source of data on local health departments for surveillance, research, and policymaking. J Public Health Manag Pract. 2012 Mar-Apr;18(2):186-9. doi: 10.1097/PHH.0b013e31824445ae. PubMed PMID: 22286289. https://www.ncbi.nlm.nih.gov/pubmed/22286289. Subscription required.

    Rubin S, Bouri N, Jolani N, Minton K. The adoption of social media and mobile health technologies for emergency preparedness by local health departments: a joint perspective from NACCHO and the UPMC center for health security. J Public Health Manag Pract. 2014 Mar-Apr;20(2):259-63. doi: 10.1097/PHH.0000000000000056. PubMed PMID: 24458314. https://www.ncbi.nlm.nih.gov/pubmed/24458314. Subscription required.

    Contact information:

    Institution: The National Association of County and City Health Officials (NACCHO)
    Address: 1100 17th Street, NW, Seventh Floor
    Washington, DC 20036
    Phone: 202-783-5550
    Fax: 202-783-1583
    Email: info@naccho.org
    Includes Research Tools: Yes.
    ID: 8356. From: Disaster Lit®a database of the U.S. National Library of Medicine.
  75. Quality of Worklife Questionnaire
    Source: National Institute for Occupational Safety and Health [Centers for Disease Control and Prevention] (CDC NIOSH)
    Format: PDF
    Annotation: The Quality of Worklife Questionnaire is a special module added by the National Institute for Occupational Safety and Health (NIOSH) to the 2002 General Social Survey in America. The General Social Survey is a biannual, nationally representative, personal interview survey of U.S. households conducted by the National Opinion Research Center and funded by the National Science Foundation. The primary goals of the Quality of Worklife module are to measure how work life and the work experience have changed since the earlier Quality of Employment Surveys, and to establish benchmarks for future surveys. Secondary goals include measuring the relationship between job/organizational characteristics and worker health and safety, and identifying targets for health and safety preventive interventions. This resource was identified by the NIH Disaster Research Response Program (DR2) for researchers looking for pre- and post-disaster data collection instruments.

    Ease of Use in Disaster Setting: Difficult
    Flesch-Kincaid Reading Level: Grade 7.2
    Population: All/Anyone
    Length: 78 questions
    Administered by: Lay Interviewer, Specialist/Doctor/Expert
    Language(s): English    ...[See more] [See less]
    URL: https://www.cdc.gov/niosh/topics/stress/pdfs/qwl2010.pdf
    Type: Guideline/Assessment Tool
    Access Notes: Free/Publicly Available

    Citation(s):
    Smith TD, DeJoy DM. Occupational injury in America: An analysis of risk factors using data from the General Social Survey (GSS). J Safety Res. 2012 Feb; 43(1):67-74. doi: 10.1016/j.jsr.2011.12.002. Epub 2012 Jan 23. https://www.ncbi.nlm.nih.gov/pubmed/22385742. Subscription required.

    Waters TR, Dick RB, Krieg EF. Trends in work-related musculoskeletal disorders: a comparison of risk factors for symptoms using quality of work life data from the 2002 and 2006 general social survey. J Occupy Environ Med. 2011 Sep;53(9):1013-24. doi: 10.1097/JOM.0b013e3181fc8493.
    https://www.ncbi.nlm.nih.gov/pubmed/21278598. Subscription required.

    Contact information:

    Institution: Centers for Disease Control and Prevention, National Institute for Occupational Safety and Health (NIOSH)
    Address:1600 Clifton Rd. Atlanta, GA 30333
    Phone: 800-CDC-INFO (800-232-4636); TTY: (888) 232-6348; Outside the U.S. 513-533-8328
    Fax: 513-533-8347
    Web: https://www.cdc.gov/niosh/contact/; https://www.cdc.gov/niosh/topics/stress/qwlquest.html
    Includes Research Tools: Yes.
    ID: 8635. From: Disaster Lit®a database of the U.S. National Library of Medicine.
  76. Post Deployment Clinical Assessment Tool (PDCAT)
    Source: U.S. Department of Defense (DOD)
    Format: PDF
    Annotation: The Post Deployment Clinical Assessment Tool (PDCAT) Version 7 (2003) is designed for two primary purposes: (1) assisting care managers and care providers in planning and delivering appropriate care; and (2) assisting program managers in evaluating and modifying post-deployment care. This instrument includes sections from several well-known questionnaires and scales, including the Primary Care Evaluation of Mental Disorders (PRIME MD), Patient Health Questionnaires 9 and 15 (PHQ9 and 15), Specialized Care Questionnaire (SCP-Intake), Short-Form 36 (SF-36), and the Centers for Disease Control and Prevention (CDC)'s Behavioral Risk Factor Surveillance System (BRFSS) questionnaire. Each of these scales is scored and provides what are called "Preliminary Indicators" (PIs). These PIs do not provide diagnoses, but are intended to identify potential problem areas that the care manager or health care provider can explore in greater detail with the patient. The PIs are used to flag for probable existence of somatoform disorder, major depression and other depressive syndromes, panic and other anxiety disorders, post-traumatic stress disorder (PTSD), and alcohol abuse. This resource was identified by the NIH Disaster Research Response Program (DR2) for researchers looking for pre- and post-disaster data collection instruments.

    Ease of Use in Disaster Setting: Moderate
    Population: Military
    Length: 39 questions; this does not include subsets of questions.
    Time to Complete: Not specified/given
    Administered by: Self Administered/Self Report, Lay Interviewer, Specialist/Doctor/Expert
    Language(s): English    ...[See more] [See less]
    URL: http://www.pdhealth.mil/downloads/PDCAT_v7.pdf
    Type: Guideline/Assessment Tool
    Access Notes: Free/Publicly Available

    Citation(s):
    Currently, there are no available publications that address the use of this tool or data gathered from this measure.

    Contact information:

    Institution: Department of Defense (DoD) Deployment Health Clinical Center
    Address: Walter Reed National Military Medical Center Building 8, 2nd Floor, Room 2220, 8901 Wisconsin Avenue, Bethesda, MD 20814
    Phone: 866-559-1627; 301-400-1517; DSN 301-469-1517
    Fax: 301-400-2907
    Email: WRNMMC-PDHealth@health.mil
    Webs: http://www.PDHealth.mil

    This link is no longer available. 10/20/2017.
    Includes Research Tools: Yes.
    ID: 8642. From: Disaster Lit®a database of the U.S. National Library of Medicine.
  77. Revised Life Orientation Test (LOT-R)
    Source: University of Miami (UM)
    Format: PDF
    Annotation: The Revised Life Orientation Test (LOT-R) was developed as an abbreviated and improved measure to the LOT; it examines individual differences in generalized optimism versus pessimism. It is important to note that this measure is a research instrument and is not intended for clinical applications. There are no "cut-offs" for optimism or pessimism; instead, it is used as a continuous dimension of variability. This resource was identified by the NIH Disaster Research Response Program (DR2) for researchers looking for pre- and post-disaster data collection instruments.

    Ease of Use in Disaster Setting: Easy
    Flesch-Kincaid Reading Level: Grade 5.2
    Population: Adults and teens
    Length: 10 questions
    Time to Complete: 3-10 minutes
    Administered by: Self Administered/Self Report
    Language(s): English, Serbian, French, Spanish, Dutch, Greek, Chinese, German, Japanese, and Portuguese (Brazil)

    Find translations: https://osf.io/atgm9/    ...[See more] [See less]
    URL: https://www.cmu.edu/dietrich/psychology/pdf/scales/LOTR_Scale.pdf
    Type: Guideline/Assessment Tool
    Access Notes: Free/Publicly Available

    Citation(s):
    Chan CS, Rhodes JE. Religious coping, posttraumatic stress, psychological distress, and posttraumatic growth among female survivors four years after Hurricane Katrina. J Trauma Stress. 2013 Apr;26(2):257-65. Epub 2013 Mar 25. PubMed PMID: 23529889. https://www.ncbi.nlm.nih.gov/pubmed/23529889. Subscription required.

    Herzberg PY, Glaesmer H, Hoyer J. Separating optimism and pessimism: a robust psychometric analysis of the revised Life Orientation Test (LOT-R). Psychol Assess. 2006 Dec;18(4):433-8. PubMed PMID: 17154764. https://www.ncbi.nlm.nih.gov/pubmed/17154764. Subscription required.

    Segerstrom SC, Evans DR, Eisenlohr-Moul TA. Optimism and pessimism dimensions in the Life Orientation Test-Revised: Method and meaning. J Res Pers. 2011;45(1): 126-129. http://www.sciencedirect.com/science/article/pii/S0092656610001613. Subscription required.

    Glaesmer H, Rief W, Martin A, Mewes R, Brähler E, Zenger M, Hinz A. Psychometric properties and population-based norms of the Life Orientation Test Revised (LOT-R). Br J Health Psychol. 2012 May;17(2):432-45. doi: 10.1111/j.2044-8287.2011.02046.x. Epub 2011 Jul 21. PubMed PMID: 22106985. https://www.ncbi.nlm.nih.gov/pubmed/22106985. Subscription required.

    Monzani D, Steca P, Greco A. Brief report: Assessing dispositional optimism in adolescence-Factor structure and concurrent validity of the Life Orientation Test-Revised. J Adolesc. 2014;37(2): 97-101. http://www.sciencedirect.com/science/article/pii/S014019711300170X. Subscription required.

    Contact information:

    Contact person: Dr. Charles S. Carver
    Institution: University of Miami, Department of Psychology
    Address: P.O. Box 248185, Coral Gables, FL 33124-0751
    Phone: 305-284-2817
    Fax: 305-284-3402
    Email: ccarver@miami.edu
    Web: http://www.psy.miami.edu/faculty/ccarver/
    Includes Research Tools: Yes.
    ID: 8987. From: Disaster Lit®a database of the U.S. National Library of Medicine.
  78. World Health Organization Quality of Life Scale (WHOQOL)-100
    Source: World Health Organization (WHO)
    Format: Text
    Annotation: The World Health Organization Quality of Life (WHOQOL-100) instrument is a generic, patient-completed measure of health-related quality of life that was simultaneously developed in 15 sites worldwide. It is focused around the definition of quality of life advocated by the World Health Organization, which includes culture and context that influence an individual's perception of health. The instrument has a modular structure and is organized into five broad domains: physical health (bodily states and functions), psychological health, level of independence and social relationships, and environment. The WHOQOL-100 is one of the most commonly used standard QOL measures in existence. This resource was identified by the NIH Disaster Research Response Program (DR2) for researchers looking for pre- and post-disaster data collection instruments.

    Ease of Use in Disaster Setting: Difficult
    Flesch-Kincaid Reading Level: Grade 9.9
    Population: Adults only
    Length: 100 questions, 24 subscales, six domains
    Time to Complete: 10-20 minutes
    Administered by: Self administered/self report, Lay Interviewer, Specialist/Doctor/Expert
    Language(s): English, Greek, Estonian, Arabic, Bulgarian, Chinese, Czech, Croatian, Danish, Dutch, German, French, Hebrew, Hindi, Hungarian, Zambia, Italian, Japanese, Kannada, Korean, Lithuanian, Malay, Norwegian, Polish, Portuguese, Russian, Shona, Slovak, Swedish, Spanish, Tamil, Urdu, and Turkish    ...[See more] [See less]
    URL: https://www.who.int/mental_health/evidence/WHOQOL_100.pdf?ua=1
    Type: Guideline/Assessment Tool
    Access Notes: Permission/Request required

    Citation(s):
    Osofsky HJ, Osofsky JD, Hansel TC. Deepwater horizon oil spill: mental health effects on residents in heavily affected areas. Disaster Med Public Health Prep. 2011 Dec;5(4):280-6. PubMed PMID: 22146666. https://www.ncbi.nlm.nih.gov/pubmed/22146666. Subscription required.

    Study protocol for the World Health Organization project to develop a Quality of Life assessment instrument (WHOQOL). Qual Life Res. 1993 Apr;2(2):153-9. PubMed PMID: 8518769. https://www.ncbi.nlm.nih.gov/pubmed/8518769. Subscription required.

    The World Health Organization Quality of Life assessment (WHOQOL): position paper from the World Health Organization. Soc Sci Med. 1995 Nov;41(10):1403-9. PubMed PMID: 8560308. https://www.ncbi.nlm.nih.gov/pubmed/8560308. Subscription required.

    The World Health Organization Quality of Life Assessment (WHOQOL): development and general psychometric properties. Soc Sci Med. 1998 Jun;46(12):1569-85. PubMed PMID: 9672396. https://www.ncbi.nlm.nih.gov/pubmed/9672396. Subscription required.

    Bonomi AE, Patrick DL, Bushnell DM, Martin M. Validation of the United States' version of the World Health Organization Quality of Life (WHOQOL) instrument. J Clin Epidemiol. 2000 Jan;53(1):1-12. PubMed PMID: 10693897. https://www.ncbi.nlm.nih.gov/pubmed/10693897. Subscription required.

    The WHOQOL-100 and WHO-BREF (another available version of the WHOQOL) require permission to use, so please reference contact information for additional details. The WHOQOL-HIV and the WHOQOL-SRPB are freely available and accessible to the public through the official WHO site.

    Contact information:

    Institution: World Health Organization, WHOQOL Group, Program on Mental Health, Division of Mental Health and Prevention of Substance Abuse
    Address: CH-1211 Geneva 27, Switzerland
    Phone: 41 22 791 3610 or 4739 or 3634
    Fax: 41 22 791 4160
    Email: whoqol@who.ch, WHOQOL@who.int, or chatterjis@who.int
    Web: https://www.who.int/mental_health/publications/whoqol/en/
    Includes Research Tools: Yes.
    ID: 8989. From: Disaster Lit®a database of the U.S. National Library of Medicine.
  79. World Health Organization Quality of Life-BREF (WHOQOL-BREF)
    Source: World Health Organization (WHO)
    Format: PDF
    Annotation: The World Health Organization Quality of Life (WHOQOL)-BREF instrument comprises 26 items, which measure the following broad domains: physical health, psychological health, social relationships, and environment. The WHOQOL-BREF is a shorter version of the original instrument that may be more convenient for use in large research studies or clinical trials. This resource was identified by the NIH Disaster Research Response Program (DR2) for researchers looking for pre- and post-disaster data collection instruments.

    Ease of Use in Disaster Setting: Moderate
    Flesch-Kincaid Reading Level: Grade 5.9
    Population: All/Anyone
    Length: 26 questions
    Administered by: Self Report/Self Administered, Lay Interviewer, Specialist/Doctor/Expert
    Language(s): English, Chinese, Czech, Farsi, Indonesian, Polish, Spanish, Portuguese, Russian, Thai, Turkish, Persian, Hindi, Malay/Malayalam, Korean, Dutch, and Danish    ...[See more] [See less]
    URL: https://www.who.int/mental_health/publications/whoqol/en/
    Type: Guideline/Assessment Tool
    Access Notes: Permission/Request required

    Citation(s):
    Suzuki Y, Tsutsumi A, Fukasawa M, Honma H, Someya T, Kim Y. Prevalence of mental disorders and suicidal thoughts among community-dwelling elderly adults 3 years after the niigata-chuetsu earthquake. J Epidemiol. 2011;21(2):144-50. Epub 2011 Feb 12. PubMed PMID:21325733. https://www.ncbi.nlm.nih.gov/pubmed/21325733. Subscription not required.

    Development of the World Health Organization WHOQOL-BREF quality of life assessment. The WHOQOL Group. Psychol Med. 1998 May;28(3):551-8. PubMed PMID: 9626712. https://www.ncbi.nlm.nih.gov/pubmed/9626712. Subscription required.

    Skevington SM, Lotfy M, O'Connell KA; WHOQOL Group. The World Health Organization's WHOQOL-BREF quality of life assessment: psychometric properties and results of the international field trial. A report from the WHOQOL group. Qual Life Res. 2004 Mar;13(2):299-310. PubMed PMID: 15085902. https://www.ncbi.nlm.nih.gov/pubmed/15085902. Subscription required.

    Vahedi S. World Health Organization Quality-of-Life Scale (WHOQOL-BREF): Analyses of Their Item Response Theory Properties Based on the Graded Responses Model. Iran J Psychiatry. 2010 Fall;5(4):140-53. PubMed PMID: 22952508; PubMed Central PMCID: PMC3395923. https://www.ncbi.nlm.nih.gov/pubmed/22952508. Subscription not required.

    The WHOQOL-BREF and WHOQOL-100 (another available version of the WHOQOL) require permission to use, so please reference contact information for additional details. The WHOQOL-HIV and the WHOQOL-SRPB are freely available and accessible to the public through the official WHO site.

    Contact information:

    Institution: World Health Organization, WHOQOL Group, Program on Mental Health, Division of Mental Health and Prevention of Substance Abuse
    Address: CH-1211 Geneva 27, Switzerland
    Phone: 41 22 791 3610 or 4739 or 3634
    Fax: 41 22 791 4160
    Email: whoqol@who.ch, WHOQOL@who.int, or chatterjis@who.int
    Web: https://www.who.int/mental_health/publications/whoqol/en/
    Includes Research Tools: Yes.
    ID: 8990. From: Disaster Lit®a database of the U.S. National Library of Medicine.
  80. CDC (Centers for Disease Control and Prevention) Health-Related Quality of Life (HRQOL)
    Source: Centers for Disease Control and Prevention (CDC)
    Format: Text
    Annotation: The Centers for Disease Control and Prevention (CDC) Health-Related Quality of Life (HRQOL) is a measure of an individual's or group's perceived physical or mental health over time. The CDC HRQOL measures include self-rated health and number of physically unhealthy days, mentally unhealthy days, and activity limitation days. This resource was identified by the NIH Disaster Research Response Program (DR2) for researchers looking for pre- and post-disaster data collection instruments.

    Ease of Use in Disaster Setting: Easy
    Flesch-Kincaid Reading Level: Grade 9.9
    Population: All/Anyone
    Length: 14 total questions, three modules
    Administered by: Self Administered/Self Report
    Language(s): English, Spanish
    Spanish translation can be found at: https://www.cdc.gov/hrqol/hrqol14_measure.htm    ...[See more] [See less]
    URL: https://www.cdc.gov/hrqol/hrqol14_measure.htm
    Type: Guideline/Assessment Tool
    Access Notes: Free/Publicly Available

    Citation(s):
    McKibben JB, Fullerton CS, Ursano RJ, Reissman DB, Kowalski-Trakofler K, Shultz JM, Wang L. Sleep and arousal as risk factors for adverse health and work performance in public health workers involved in the 2004 Florida hurricane season. Disaster Med Public Health Prep. 2010 Sep;4 Suppl 1:S55-62. PubMed PMID: 23105036. https://www.ncbi.nlm.nih.gov/pubmed/23105036. Subscription required.

    Hennessy CH, Moriarty DG, Zack MM, Scherr PA, Brackbill R. Measuring health-related quality of life for public health surveillance. Public Health Rep. 1994 Sep-Oct;109(5):665-72. PubMed PMID: 7938388; PubMed Central PMCID:PMC1403555. https://www.ncbi.nlm.nih.gov/pubmed/7938388. Subscription not required.

    Moriarty DG, Zack MM, Kobau R. The Centers for Disease Control and Prevention's Healthy Days Measures - population tracking of perceived physical and mental health over time. Health Qual Life Outcomes. 2003 Sep 2;1:37. PubMed PMID: 14498988; PubMed Central PMCID: PMC201011. https://www.ncbi.nlm.nih.gov/pubmed/14498988. Subscription not required.

    Zullig KJ, Valois RF, Huebner ES, Drane JW. Evaluating the performance of the Centers for Disease Control and Prevention core Health-Related Quality of Life scale with adolescents. Public Health Rep. 2004 Nov-Dec;119(6):577-84. PubMed PMID: 15504449; PubMed Central PMCID: PMC1497669. https://www.ncbi.nlm.nih.gov/pubmed/15504449. Subscription not required.

    Mielenz T, Jackson E, Currey S, DeVellis R, Callahan LF. Psychometric properties of the Centers for Disease Control and Prevention Health-Related Quality of Life (CDC HRQOL) items in adults with arthritis. Health Qual Life Outcomes. 2006 Sep 24;4:66. PubMed PMID: 16995955; PubMed Central PMCID: PMC1609101. https://www.ncbi.nlm.nih.gov/pubmed/16995955. Subscription not required.

    Contact information:

    Institution: Centers for Disease Control and Prevention, Health Related Quality of Life Surveillance Program
    Address: 1600 Clifton Rd., Atlanta, GA 30333
    Phone: 800-CDC-INFO (800-232-4636)/TTY: (888) 232-6348
    Web: https://www.cdc.gov/

    Centers for Disease Control and Prevention
    https://www.cdc.gov/hrqol/methods.htm
    Includes Research Tools: Yes.
    ID: 8992. From: Disaster Lit®a database of the U.S. National Library of Medicine.
  81. Satisfaction With Life Scale (SWLS)
    Source: University of Illinois at Urbana-Champaign
    Format: Text
    Annotation: The Satisfaction With Life Scale (SWLS) is a measure of global cognitive judgments of one's life satisfaction (not a measure of either positive or negative affect). To complete the scale, participants indicate how much they agree or disagree with each of the five items using a seven-point scale that ranges from 7 (strongly agree) to 1 (strongly disagree). This resource was identified by the NIH Disaster Research Response Program (DR2) for researchers looking for pre- and post-disaster data collection instruments.

    Ease of Use in Disaster Setting: Easy
    Flesch-Kincaid Reading Level: Grade 6.3
    Population: All/Anyone
    Length: Five questions
    Time to Complete: 1-5 minutes
    Administered by: Self Administered/Self Report
    Language(s): English, Portuguese, Persian, Polish, Romanian, Russian, Serbian, Setswana, Spanish, Swedish, Thai, Turkish, Urdu, Arabic, Chinese, Czech, Dutch, French, German, Greek, Hebrew, Hindi, Hungarian, Icelandic, Italian, Japanese, Khmer, Korean and Norwegian

    To obtain translations of this tool, visit: http://internal.psychology.illinois.edu/~ediener/SWLS.html    ...[See more] [See less]
    URL: http://labs.psychology.illinois.edu/~ediener/SWLS.html
    Type: Guideline/Assessment Tool
    Access Notes: Free/Publicly Available

    Citation(s):
    Bei B, Bryant C, Gilson KM, Koh J, Gibson P, Komiti A, Jackson A, Judd F. A prospective study of the impact of floods on the mental and physical health of older adults. Aging Ment Health. 2013;17(8):992-1002. Epub 2013 May 28. PubMed PMID: 23711204. https://www.ncbi.nlm.nih.gov/pubmed/23711204. Subscription Required.

    Diener E, Emmons RA, Larsen RJ, Griffin S. The Satisfaction With Life Scale. J Pers Assess. 1985 Feb;49(1):71-5. PubMed PMID: 16367493. https://www.ncbi.nlm.nih.gov/pubmed/16367493. Subscription required.

    Pavot W, Diener E, Colvin CR, Sandvik E. Further validation of the Satisfaction with Life Scale: evidence for the cross-method convergence of well-being measures. J Pers Assess. 1991 Aug;57(1):149-61. PubMed PMID: 1920028. https://www.ncbi.nlm.nih.gov/pubmed/1920028. Subscription required.

    Corrigan JD, Kolakowsky-Hayner S, Wright J, Bellon K, Carufel P. The satisfaction with life scale. J Head Trauma Rehabil. 2013 Nov-Dec;28(6):489-91. doi: 10.1097/HTR.0000000000000004. PubMed PMID: 24189288. https://www.ncbi.nlm.nih.gov/pubmed/24189288. Subscription required.

    The scale is copyrighted but it is free for use without permission or charge by all professionals (researchers and practitioners) as long as proper credit is given to the authors of the scale: Ed Diener, Robert A. Emmons, Randy J. Larsen, and Sharon Griffin, as noted in the 1985 article in the Journal of Personality Assessment.

    Contact information:

    Contact person: Professor Ed Diener
    Institution: University of Illinois at Urbana-Champaign, Department of Psychology
    Address: 603 E. Daniel Street, Champaign, IL 61820
    Phone: 217-333-4804
    Fax: 217-244-5876
    Email: ediener@illinois.edu

    For more information:
    Institution: Fetzer Institute
    Web: http://www.fetzer.org/sites/default/files/images/stories/pdf/selfmeasures/SATISFACTION-SatisfactionWithLife.pdf

    Institution: University of Pennsylvania, Positive Psychology Center
    Web: http://ppc.sas.upenn.edu/resources/questionnaires-researchers/satisfaction-life-scale
    Includes Research Tools: Yes.
    ID: 9002. From: Disaster Lit®a database of the U.S. National Library of Medicine.
  82. Appendix E. NHEXAS (National Human Exposure Assessment Survey) Questionnaires
    Source: U.S. Environmental Protection Agency (EPA)
    Format: PDF
    Annotation: The Environmental Protection Agency (EPA) National Human Exposure Assessment Survey (NHEXAS) is conducted as four projects by researchers in the academic, private, and governmental areas of science collaborating to coordinate studies that share a common questionnaire on activity and sociodemographics, examine the same exposure sources, and send samples for analysis to the same laboratory. The studies are unique in the degree of characterization of exposures of individuals. Multiple chemicals, chemical classes, and exposure pathways and routes are examined for each individual for each study. Studies measure pollutant concentrations in air, water, soil, dust, food, blood, urine, and hair, and on surfaces and human skin using various sampling and analytical techniques; determine direct exposure using personal exposure monitors; and estimate human activity patterns using a series of questionnaires and diaries listed below. This resource was identified by the NIH Disaster Research Response Program (DR2) for researchers looking for pre- and post-disaster data collection instruments.

    Ease of Use in Disaster Setting: Difficult
    Flesch-Kincaid Reading Level: Grade 5.4
    Population: Residential/Workplace
    Length: 118 multi-part questions. Six sections within questionnaire: Descriptive (10 questions), Baseline (44 questions), Time Diary and Activity (28 questions), Technician Walk-Through (11 questions), Followup (11 questions), and 24-Hour Food Diary (14 questions)
    Administered by: Trained Lay Examiner/Interviewer Administration
    Language(s): English    ...[See more] [See less]
    URL: https://nepis.epa.gov/Exe/ZyPURL.cgi?Dockey=P1007PCS.TXT
    Type: Guideline/Assessment Tool
    Access Notes: Free/Publicly Available

    Citation(s):
    Pellizzari E, Lioy P, Quackenboss J, Whitmore R, Clayton A, Freeman N, Waldman J, Thomas K, Rodes C, Wilcosky T. Population-based exposure measurements in EPA region 5: a phase I field study in support of the National Human Exposure Assessment Survey. J Expo Anal Environ Epidemiol. 1995 Jul-Sep;5(3):327-58. Erratum in: J Expo Anal Environ Epidemiol 1995 Oct-Dec;5(4):583. PubMed PMID: 8814775.
    https://www.ncbi.nlm.nih.gov/pubmed/8814775. Print only.

    Clayton CA, Pellizzari ED, Whitmore RW, Perritt RL, Quackenboss JJ. National Human Exposure Assessment Survey (NHEXAS): distributions and associations of lead, arsenic and volatile organic compounds in EPA region 5. J Expo Anal Environ Epidemiol. 1999 Sep-Oct;9(5):381-92. PubMed PMID: 10554141.
    https://www.ncbi.nlm.nih.gov/pubmed/10554141. Print only.

    National Human Exposure Assessment Survey (NHEXAS) Data Analysis Work Group
    U.S. Environmental Protection Agency
    https://nepis.epa.gov/Exe/ZyPURL.cgi?Dockey=P1007PCS.TXT

    Contact information:

    U.S. Environmental Protection Agency
    Phone: 703-347-8561
    Fax: 703-347-8691
    Email: nceadc.comment@epa.gov This link is no longer available. 8/10/2015.
    Includes Research Tools: Yes.
    ID: 7818. From: Disaster Lit®a database of the U.S. National Library of Medicine.
  83. Community Assessment for Public Health Emergency Response (CASPER) Toolkit: Appendix B. Hurricane Ike Community Assessment for Public Health Emergency Questionnaire - Galveston County, Texas, September 2008
    Source: Centers for Disease Control and Prevention, National Center for Environmental Health (CDC NCEH)
    Format: PDF
    Annotation: The questionnaire can be found in Community Assessment for Public Health Emergency Response (CASPER) Toolkit, 2009 edition, Appendix B, published by the Centers for Disease Control and Prevention, National Center for Environmental Health, Division of Environmental Hazards and Health Effects, Health Studies Branch. The questionnaire included general demographic, household type, and extent of damage questions regarding hurricane-related, self-reported injuries and illness; medication availability; generator and gas/charcoal grill use; and access to basic utilities (e.g., electricity, water). At a local health authority or state government's request, questions on tetanus vaccination status (due to potential increase in injuries during relief and recovery) and vector control were added to the questionnaire. This resource was identified by the NIH Disaster Research Response Program (DR2) for researchers looking for pre- and post-disaster data collection instruments.

    Ease of Use in Disaster Setting: Easy
    Population: Residential/Workplace
    Length: 24 multi-part questions
    Administered by: Trained Lay Examiner/Interviewer Administered
    Special Considerations: Interview/Questionnaire was conducted at participant's home.
    Language(s): English    ...[See more] [See less]
    URL: https://www.nlm.nih.gov/dimrc/Hurricane_Ike_Community_Assessment.pdf
    Type: Guideline/Assessment Tool
    Access Notes: Free/Publicly Available

    Citation(s):
    Zane DF, Bayleyegn TM, Haywood TL, Wiltz-Beckham D, Guidry HM, Sanchez C, Wolkin AF. Community assessment for public health emergency response following Hurricane Ike--Texas, 25-30 September 2008. Prehosp Disaster Med. 2010 Nov-Dec;25(6):503-10. PubMed PMID: 21181683
    https://www.ncbi.nlm.nih.gov/pubmed/21181683. Subscription required.

    Contact information:
    Contact person: David F. Zane
    Institution: Texas Department of State Health Services
    Community Preparedness Section (MC 1926)
    Address: PO Box 149347
    Austin, Texas 78714-9347
    Email: david.zane@dshs.state.tx.us

    Appendix B: Sample Data Collection Form. Hurricane Ike Community Assessment for Public Health Emergency Response Questionnaire: Galveston, County, Texas, September 2008.
    MS MS Word: https://www.nlm.nih.gov/dimrc/Hurricane_Ike_Community_Assessment.docx
    PDF: https://www.nlm.nih.gov/dimrc/Hurricane_Ike_Community_Assessment.pdf
    Epi Info file (XML)
    Epi Info Instructions

    Includes Research Tools: Yes.
    ID: 7824. From: Disaster Lit®a database of the U.S. National Library of Medicine.
  84. NIOSH (National Institute for Occupational Safety and Health) Deepwater Horizon Worker Health Survey
    Source: National Institute for Occupational Safety and Health [Centers for Disease Control and Prevention] (CDC NIOSH)
    Format: PDF
    Annotation: The NIOSH (National Institute for Occupational Safety and Health) Deepwater Horizon Worker Health Survey can be found on pages 133-168 of the National Response Team technical assistance document, "Emergency Responder Health Monitoring and Surveillance (ERHMS)." It is a survey of responders to the Deepwater Horizon oil spill that asks questions about exposures and health issues that may have been experienced by workers and volunteers responding to the spill. This resource was identified by the NIH Disaster Research Response Program (DR2) for researchers looking for pre- and post-disaster data collection instruments.

    Ease of Use in Disaster Setting: Moderate
    Population: Cleanup/Disaster Worker
    Length: 141 questions
    Estimated Time to Complete: 25-30 minutes
    Administered by: Lay Interviewer, Specialist/Doctor/Expert
    Language(s): English    ...[See more] [See less]
    URL: https://www.nrt.org/sites/2/files/ERHMS_Final_060512.pdf
    Type: Guideline/Assessment Tool
    Access Notes: Free/Publicly Available

    Citation(s):
    Gibbins J, West C, Dowell C, King B, Niemeier T. Health Hazard Evaluation of Deepwater Horizon Response Workers. US Department of Health and Human Services, Centers for Disease Control and Prevention, National Institute for Occupational Safety and Health, Health Hazard Evaluation Program. Health Hazard Evaluation Interim Report 2. July 12, 2010. https://www.cdc.gov/niosh/hhe/pdfs/interim_report_2.pdf

    Kawamoto M, King B, Bernard B, Gibbins J. Health Hazard Evaluation of Deepwater Horizon Response Workers. US Department of Health and Human Services, Centers for Disease Control and Prevention, National Institute for Occupational Safety and Health, Health Hazard Evaluation Program. Health Hazard Evaluation Interim Report 1. June 23, 2010. https://www.cdc.gov/niosh/hhe/pdfs/interim_report_1.pdf

    King B, Gibbins J. Health Hazard Evaluation of Deepwater Horizon Response Workers. US Department of Health and Human Services, Centers for Disease Control and Prevention, National Institute for Occupational Safety and Health, Health Hazard Evaluation Program. Health Hazard Evaluation Report, HETA 2010-0115 and 2010-0129-3138. August 2011. https://www.cdc.gov/niosh/hhe/reports/pdfs/2010-0115-0129-3138.pdf

    Goldstein BD, Osofsky HJ, Lichtveld MY. The Gulf oil spill. N Engl J Med. 2011 Apr 7;364(14):1334-48. Review. PubMed PMID: 21470011. doi:10.1056/NEJMra1007197. https://www.ncbi.nlm.nih.gov/pubmed/21470011. Subscription not required.

    Contact information:
    Contact person: Dr. Renee Funk
    Institution: Centers for Disease Control and Prevention, National Institute for Occupational Safety and Health
    Phone: 404-498-4853
    Email: cdcnioshgulfworker@cdc.gov

    For more information:
    Institution: National Institute for Occupational Safety and Health
    Phone: 1-800-CDC-INFO (1-800-232-4636)
    TTY: 1-888-232-6348
    Email: cdcinfo@cdc.gov
    Web: http://www.cdc.gov/niosh

    Institution: National Institute for Occupational Safety and Health
    Emergency Responder Health Monitoring and Surveillance
    Web: https://www.cdc.gov/niosh/topics/erhms/

    NIOSH (National Institute for Occupational Safety and Health) Deepwater Horizon Worker Health Survey:
    PDF

    Includes Research Tools: Yes.
    ID: 7839. From: Disaster Lit®a database of the U.S. National Library of Medicine.
  85. Deepwater Horizon Health Hazard Evaluation Survey
    Source: National Institute for Occupational Safety and Health [Centers for Disease Control and Prevention] (CDC NIOSH)
    Format: PDF
    Annotation: This survey is on page 104 of "Emergency Responder Health Monitoring and Surveillance: National Response Team Technical Assistance Document, January 26,2012." The aim of this National Institute for Occupational Safety and Health (NIOSH) survey is to describe acute health effects, evaluate occupational exposures in qualitative or quantitative assessments, and generate hypotheses regarding symptoms potentially related to work activities. The survey examines exposures and symptoms related to the Deepwater Horizon oil spill, and obtains contact and demographic information. This resource was identified by the NIH Disaster Research Response Program (DR2) for researchers looking for pre- and post-disaster data collection instruments.

    Ease of Use in Disaster Setting: Easy
    Population: Cleanup/Disaster Worker
    Length: 14 questions
    Language(s): English    ...[See more] [See less]
    URL: https://www.nrt.org/sites/2/files/ERHMS_Final_060512.pdf
    Type: Guideline/Assessment Tool
    Access Notes: Free/Publicly Available

    Citation(s):
    Durgam S, West C, Ahrenholz S, Sylvain D, Gibbins J. Health Hazard Evaluation of Deepwater Horizon Response Workers. Centers for Disease Control and Prevention. Health Hazard Evaluation Interim Report 4. August 11, 2010.
    https://www.cdc.gov/niosh/hhe/pdfs/interim_report_4.pdf

    Kawamoto M, King B, Bernard B, Gibbins J. Health Hazard Evaluation of Deepwater Horizon Response Workers. Centers for Disease Control and Prevention. Health Hazard Evaluation Interim Report 1. June 23, 2010.
    https://www.cdc.gov/niosh/hhe/pdfs/interim_report_1.pdf

    King B, Gibbins J. Health Hazard Evaluation of Deepwater Horizon Response Workers. Centers for Disease Control and Prevention. Health Hazard Evaluation Report, HETA 2010-0115 and 2010-0129-3138, August 2011.
    https://www.cdc.gov/niosh/hhe/reports/pdfs/2010-0115-0129-3138.pdf

    Goldstein BD, Osofsky HJ, Lichtveld MY. The Gulf oil spill. N Engl J Med. 2011 Apr 7;364(14):1334-48. Review. PubMed PMID: 21470011. doi:10.1056/NEJMra1007197.
    https://www.ncbi.nlm.nih.gov/pubmed/21470011. Subscription not required.

    For more information:
    Centers for Disease Control and Prevention
    National Institute for Occupational Safety and Health
    https://www.cdc.gov/niosh/topics/erhms/

    Deepwater Horizon Health Hazard Evaluation Survey:
    PDF

    Includes Research Tools: Yes.
    ID: 7840. From: Disaster Lit®a database of the U.S. National Library of Medicine.
  86. GuLF STUDY Baseline Telephone Questionnaires: Telephone Enrollment Questionnaire-Introductory Scripts-Section A; Telephone Enrollment Questionnaire-Sections B-L
    Source: National Institute of Environmental Health Sciences [National Institutes of Health] (NIEHS)
    Format: Text
    Annotation: The GuLF STUDY telephone questionnaire is focused on prospectively determining both physical and mental health effects related to the 2010 Deepwater Horizon oil spill, and is collecting information that can be used by individuals, communities, and governments to better understand the consequences of oil spills and plan for future disasters. This resource was identified by the NIH Disaster Research Response Program (DR2) for researchers looking for pre- and post-disaster data collection instruments.

    Ease of Use in Disaster Setting: Difficult
    Population: Cleanup/Disaster Worker
    Length: 11 total sections containing varying numbers of questions
    Estimated Time to Complete: 55 Minutes
    Administered by: Lay Interviewer, Specialist/Doctor/Expert
    Special Considerations: Conducted using CATI (computer assisted telephone system)
    Language(s): English, Spanish, Vietnamese, and Creole; not all translated versions are available on National Institute of Environmental Health Sciences (NIEHS) website.    ...[See more] [See less]
    URL: https://www.niehs.nih.gov/research/atniehs/labs/epi/studies/gulfstudy/questionnaires/index.cfm
    Type: Guideline/Assessment Tool
    Access Notes: Free/Publicly Available

    Scroll down the page to click on "Baseline Telephone Questionnaires" links:

    Telephone Enrollment Questionnaire-Introductory scripts-Section A: https://www.niehs.nih.gov/research/atniehs/labs/epi/studies/gulfstudy/questionnaires/telephone_enrollment_questionnaire_introductory_scripts_section_a_508.pdf

    Telephone Enrollment Questionnaire-Sections B-L: https://www.niehs.nih.gov/research/atniehs/labs/epi/studies/gulfstudy/questionnaires/telephone_enrollment_questionnaire_sections_bl_508.pdf

    Citation(s):
    Kwok RK, Engel LS, Miller AK, et al. The GuLF STUDY: A Prospective Study of Persons Involved in the Deepwater Horizon Oil Spill Response and Clean-Up. Environmental Health Perspectives. 2017;125(4):570-578. doi:10.1289/EHP715.
    https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5382003/.

    Contact information:
    Contact person: Dale P. Sandler, Ph.D.
    Principal Investigator and Chief
    Institution: National Institute of Environmental Health Sciences, Epidemiology Branch
    Phone: 919-541-4668
    Fax: 919-541-2511
    Email: sandler@niehs.nih.gov

    Contact person: Richard Kwok, Ph.D., Staff Scientist
    Institution: National Institute of Environmental Health Sciences
    Phone: 919-627-8892
    Fax: 919-541-2511
    Email: Richard.Kwok@nih.gov
    Includes Research Tools: Yes.
    ID: 7844. From: Disaster Lit®a database of the U.S. National Library of Medicine.
  87. GuLF STUDY Home Visit Baseline Scripts and Questionnaires
    Source: National Institute of Environmental Health Sciences [National Institutes of Health] (NIEHS)
    Format: Text
    Annotation: The GuLF STUDY home questionnaire is focused on prospectively determining both physical and mental health effects related to the 2010 Deepwater Horizon oil spill, and is collecting information that can be used by individuals, communities, and governments to better understand the consequences of oil spills and plan for future disasters. This resource was identified by the NIH Disaster Research Response Program (DR2) for researchers looking for pre- and post-disaster data collection instruments.

    Ease of Use in Disaster Setting: Difficult
    Population: Cleanup/Disaster Worker
    Length: 23 total sections containing varying numbers of questions
    Estimated Time to Complete: 122 Minutes
    Administered by: Lay Interviewer, Specialist/Doctor/Expert
    Special Considerations: Conducted in participant's residence; requires training in phlebotomy and other basic biospecimen collection and processing procedures.
    Language(s): English, Spanish, Vietnamese, and Creole; not all translated versions are available on National Institute of Environmental Health Sciences (NIEHS) website.    ...[See more] [See less]
    URL: https://www.niehs.nih.gov/research/atniehs/labs/epi/studies/gulfstudy/questionnaires/index.cfm
    Type: Guideline/Assessment Tool
    Access Notes: Free/Publicly Available

    Scroll down the page to click on "Home Visit Baseline Scripts and Questionnaires."
    https://www.niehs.nih.gov/research/atniehs/labs/epi/studies/gulfstudy/questionnaires/home_visit_baseline_scripts_and_questionnaires_508.pdf.

    Citation(s):
    Kwok RK, Engel LS, Miller AK, et al. The GuLF STUDY: A Prospective Study of Persons Involved in the Deepwater Horizon Oil Spill Response and Clean-Up. Environmental Health Perspectives. 2017;125(4):570-578. doi:10.1289/EHP715.
    https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5382003/

    Contact information:
    Contact Person: Dale P. Sandler, Ph.D.
    Principal Investigator and Chief
    Institution: National Institute of Environmental Health Sciences, Epidemiology Branch
    Phone: 919-541-4668
    Fax: 919-541-2511
    Email: sandler@niehs.nih.gov

    Contact Person: Richard Kwok, Ph.D., Staff Scientist
    Institution: National Institute of Environmental Health Sciences
    Phone: 919-627-8892
    Fax: 919-541-2511
    Email: Richard.Kwok@nih.gov
    Includes Research Tools: Yes.
    ID: 7845. From: Disaster Lit®a database of the U.S. National Library of Medicine.
  88. Tornado Injury Questionnaire
    Source: Oklahoma State Department of Health
    Format: PDF
    Annotation: This questionnaire about the May 3, 1999, Oklahoma tornadoes examines damages, location of victim during tornado, emergency care and communications, and any injuries sustained due to the tornado event.

    Ease of Use in Disaster Setting:     Easy
    Flesch-Kincaid Reading Level: Grade 5
    Population: Residential/Workplace
    Length: 23 questions
    Administered by: Self Administered/Self Report
    Language(s): English    ...[See more] [See less]
    URL: https://www.ok.gov/health2/documents/Community_survey2.pdf
    Type: Guideline/Assessment Tool
    Access Notes: Free/Publicly Available

    Citation(s):
    Daley WR, Brown S, Archer P, Kruger E, Jordan F, Batts D, Mallonee S. Risk of tornado-related death and injury in Oklahoma, May 3, 1999. Am J Epidemiol. 2005 Jun 15;161(12):1144-50. PubMed PMID: 15937023. https://www.ncbi.nlm.nih.gov/pubmed/15937023. Subscription not required.

    Contact information:
    Institution: Oklahoma State Department of Health
    Address: 1000 NE 10th Street
    Oklahoma City, OK 73117-1299
    Phone: 405-271-3430 or 1-800-522-0204

    For more information:
    Oklahoma Injury Surveillance Toolbox
    http://www.ok.gov/health/Disease,_Prevention,_Preparedness/Injury_Prevention_Service/Injury_Surveillance_Toolbox/
    Includes Research Tools: Yes.
    ID: 7848. From: Disaster Lit®a database of the U.S. National Library of Medicine.
  89. Tornado Injury Questionnaire: Mail Survey to Tornado Survivors
    Source: Oklahoma State Department of Health
    Format: PDF
    Annotation: This questionnaire about the May 3, 1999, Oklahoma tornadoes examines damages, location of victim during tornado, emergency care and communications, and any injuries sustained due to the tornado event.

    Ease of Use in Disaster Setting:     Easy
    Flesch-Kincaid Reading Level: Grade 7.3
    Population: Residential/Workplace
    Length: 16 questions
    Administered by: Self Administered/Self Report
    Language(s): English    ...[See more] [See less]
    URL: https://www.ok.gov/health2/documents/Mail_survey.pdf
    Type: Guideline/Assessment Tool
    Access Notes: Free/Publicly Available

    Citation(s):
    Daley WR, Brown S, Archer P, Kruger E, Jordan F, Batts D, Mallonee S. Risk of tornado-related death and injury in Oklahoma, May 3, 1999. Am J Epidemiol. 2005 Jun 15;161(12):1144-50. PubMed PMID: 15937023. https://www.ncbi.nlm.nih.gov/pubmed/15937023. Subscription not required.

    Contact information:
    Institution: Oklahoma State Department of Health
    Address: 1000 NE 10th Street
    Oklahoma City, OK 73117-1299
    Phone: 405-271-3430 or 1-800-522-0204

    For more information:
    Oklahoma Injury Surveillance Toolbox
    http://www.ok.gov/health/Disease,_Prevention,_Preparedness/Injury_Prevention_Service/Injury_Surveillance_Toolbox/
    Includes Research Tools: Yes.
    ID: 7850. From: Disaster Lit®a database of the U.S. National Library of Medicine.
  90. Checklist for Individual Strength (CIS)
    Source: Radboud University Medical Center
    Format: PDF
    Annotation: The Checklist for Individual Strength (CIS) quantifies subjective fatigue and related behavioral aspects. The CIS consists of a series of statements for which the person has to indicate on a seven-point scale to what extent a particular statement applies to him or her. The original CIS contained 24 questions; however, four of those questions were removed because they did not perform as well as the remaining questions in factor analysis. The full instrument consists of 20 questions; however, there are subscales that can be employed separately with a focus on differing aspects of fatigue. The tool is in the appendix. This resource was identified by the NIH Disaster Research Response Program (DR2) for researchers looking for pre- and post-disaster data collection instruments.

    Ease of Use in Disaster Setting: Easy
    Flesch-Kincaid Reading Level: Grade CIS8R = 3.5; CIS20R = 2.7
    Population: Adults Only
    Length: 8 or 20 questions, depending on version
    Time to Complete: Approximately five minutes
    Administered by: Self Administered/Self Report
    Language(s): English, Japanese, Turkish, Dutch, Swedish, Portuguese, and Korean    ...[See more] [See less]
    URL: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1739950/pdf/v057p00353.pdf
    Type: Guideline/Assessment Tool
    Access Notes: Free/Publicly Available

    Citation(s):
    Huizink AC, Slottje P, Witteveen AM, Bijlsma JA, Twisk JW, Smidt N, Bramsen I, van Mechelen W, van der Ploeg HM, Bouter LM, Smid T. Long term health complaints following the Amsterdam Air Disaster in police officers and fire-fighters. Occup Environ Med. 2006 Oct;63(10):657-62. Epub 2006 Apr 27. PubMed PMID: 16644894. https://www.ncbi.nlm.nih.gov/pubmed/16644894. Subscription not required.

    Vercoulen JH, Swanink CM, Fennis JF, Galama JM, van der Meer JW, Bleijenberg G. Dimensional assessment of chronic fatigue syndrome. J Psychosom Res. 1994 Jul;38(5):383-92. PubMed PMID: 7965927. https://www.ncbi.nlm.nih.gov/pubmed/7965927. Subscription required.

    Aratake Y, Tanaka K, Wada K, Watanabe M, Katoh N, Sakata Y, Aizawa Y. Development of Japanese version of the checklist individual strength questionnaire in a working population. J Occup Health. 2007;49(6): 453-460.

    Beurskens AJ, Bí¼ltmann U, Kant I, Vercoulen JH, Bleijenberg G, Swaen GM. Fatigue among working people: validity of a questionnaire measure. Occup Environ Med. 2000;57(5):353-357.

    Bí¼ltmann U, de Vries M, Beurskens AJ, Bleijenberg G, Vercoulen JH, Kant I. Measurement of prolonged fatigue in the working population: determination of a cutoff point for the checklist individual strength. J Occup Health Psychol. 2000;5(4):411.
    Includes Research Tools: Yes.
    ID: 8071. From: Disaster Lit®a database of the U.S. National Library of Medicine.
  91. RAND Medical Outcomes Study 36-Item Short Form Health Survey (RAND MOS SF-36 Health Survey) and the SF-36 (From QualityMetric)
    Source: RAND Corporation
    Format: Text
    Annotation: The RAND Medical Outcomes Study 36-Item Short Form Health Survey (MOS SF-36 Health Survey) and the SF-36 (QualityMetric) are multi-purpose, short-form health surveys with only 36 questions. Each yields an eight-scale profile of functional health and well-being scores, as well as psychometrically-based physical and mental health summary measures and a preference-based health utility index. Both are generic measures, as opposed to ones that target a specific age, disease, or treatment group. Accordingly, the SF-36 and the RAND MOS SF-36 have proven useful in surveys of general and specific populations, comparing the relative burden of diseases, and in differentiating the health benefits produced by a wide range of different treatments. Some sources describe these tools as quality of life (QOL) measures that produce somewhat subjective scores about an individual's overall quality of life based on the previously outlined domains. It is important to note that the RAND MOS SF-36 is free and publicly available, whereas the SF-36 obtained via QualityMetric carries a cost. Both measures contain the exact same questions and are identical to each other, but have different scoring algorithms. There is a second edition/version of the SF-36 called the SF-36 V2, which is also proprietary and carries a cost. This resource was identified by the NIH Disaster Research Response Program (DR2) for researchers looking for pre- and post-disaster data collection instruments.

    Ease of Use in Disaster Setting: Moderate
    Flesch-Kincaid Reading Level: Grade 7.8
    Population: All/Anyone
    Length: 36 questions
    Time to Complete: On average, completion time is around 10 to 15 minutes; the maximum time estimated has been reported to be about 30 minutes.
    Administered by: Self Administered/Self Report, Lay Interviewer, Specialist/Doctor/Expert
    Language(s): English, Bangla, German, Spanish, Swedish, Italian, French, Korean, Dutch, Portuguese, Chinese, Czech, Finnish, Danish, Hungarian, Hebrew, Japanese, Norwegian, Polish, Romanian, Arabic, Slovak, Russian, Ganda, Welsh, Ukranian, Vietnamese, Kiswahili, and Afrikaans    ...[See more] [See less]
    URL: https://www.rand.org/health-care/surveys_tools/mos/36-item-short-form.html
    Type: Guideline/Assessment Tool
    Access Notes: Free/Publicly Available

    Citation(s):
    van Griensven F, Chakkraband ML, Thienkrua W, Penqjuntr W, Lopes Cardozo B, Tantipiwatanaskul P, Mock PA, Ekassawin S, Varangrat A, Gotway C, Sabin M, Tappero JW, Thailand Post-Tsunami Mental Health Study Group. Mental health problems among adults in tsunami-affected areas in southern Thailand. JAMA. 2006 Aug 2;296(5):537-48. PubMed PMID: 16882960. https://www.ncbi.nlm.nih.gov/pubmed/16882960. Subscription not required.

    Ware JE Jr, Sherbourne CD. The MOS 36-item short-form health survey (SF-36). I. Conceptual framework and item selection. Med Care. 1992 Jun;30(6):473-83. PubMed PMID: 1593914. https://www.ncbi.nlm.nih.gov/pubmed/1593914. Subscription required.

    McHorney CA, Ware JE Jr, Raczek AE. The MOS 36-Item Short-Form Health Survey (SF-36): II. Psychometric and clinical tests of validity in measuring physical and mental health constructs. Med Care. 1993 Mar;31(3):247-63. PubMed PMID: 8450681. https://www.ncbi.nlm.nih.gov/pubmed/8450681. Subscription required.

    Hays RD, Sherbourne CD, Mazel RM. The RAND 36-Item Health Survey 1.0. Health Econ. 1993 Oct;2(3):217-27. PubMed PMID: 8275167. https://www.ncbi.nlm.nih.gov/pubmed/8275167. Subscription required.

    Gandek B, Ware JE Jr, Aaronson NK, Alonso J, Apolone G, Bjorner J, Brazier J, Bullinger M, Fukuhara S, Kaasa S, Leplí¨ge A, Sullivan M. Tests of data quality, scaling assumptions, and reliability of the SF-36 in eleven countries: results from the IQOLA Project. International Quality of Life Assessment. J Clin Epidemiol. 1998 Nov;51(11):1149-58. PubMed PMID: 9817132. https://www.ncbi.nlm.nih.gov/pubmed/9817132. Subscription required.

    All of the surveys from RAND Health are public documents, available without charge. The Medical Outcomes Trust, Health Assessment Lab, and QualityMetric, Inc., are the co-copyright holders of the SF-36, SF-12, and SF-8 Health Surveys.

    Other links where this tool can be accessed and previewed without charge:
    Institution: ClinTools Software
    Web: http://www.clintools.com/victims/resources/assessment/health/SF36.pdf

    Contact information:

    Institution: RAND Customer Service
    Address: P.O. Box 2138
    1776 Main Street
    Santa Monica, CA 90407-2138
    Phone: 310-451-7002, 310-393-0411
    Fax: 310-451-6915
    Email: order@rand.org

    For more information:
    Institution: Rand Corporation
    Web: https://www.rand.org/health-care/surveys_tools/mos/36-item-short-form.html

    Institution: International Quality of Life Assessment
    Web: http://www.iqola.org/instruments
    Includes Research Tools: Yes.
    ID: 8124. From: Disaster Lit®a database of the U.S. National Library of Medicine.
  92. RAND Medical Outcomes Study 20-Item Short Form Health Survey (SF-20)
    Source: RAND Corporation
    Format: Text
    Annotation: The Medical Outcomes Study (MOS) 20-Item Short Form Health Survey (SF-20) is a 20-item abbreviation of the same RAND instrument from which the SF-36 originates. The abridged instrument was intended to reduce respondent burden, while comprehensively addressing important issues in health status measurement. The SF-20 includes 20 items adapted from longer surveys used successfully in the Health Insurance Experiment (HIE). It assesses six important health concepts: physical functioning (six items), role functioning (two items), social functioning (one item), mental health (five items), current health perceptions (five items), and pain (one item). This resource was identified by the NIH Disaster Research Response Program (DR2) for researchers looking for pre- and post-disaster data collection instruments.

    Ease of Use in Disaster Setting: Easy
    Population: Adults Only
    Length: 20 questions
    Time to Complete: Three to five minutes
    Administered by: Self Administered/Self Report, Lay Interviewer, Specialist/Doctor/Expert
    Language(s): English, Polish, and Romanian    ...[See more] [See less]
    URL: https://www.rand.org/health-care/surveys_tools/mos/20-item-short-form.html
    Type: Guideline/Assessment Tool
    Access Notes: Free/Publicly Available

    Citation(s):
    Smith MY, Feldman J, Kelly P, DeHovitz JA, Chirgwin K, Minkoff H. Health-related quality of life of HIV-infected women: evidence for the reliability, validity and responsiveness of the Medical Outcomes Study Short-Form 20. Qual Life Res. 1996 Feb;5(1):47-55. PubMed PMID: 8901366. https://www.ncbi.nlm.nih.gov/pubmed/8901366. Subscription required.

    Smith KW, Avis NE, Assmann SF. Distinguishing between quality of life and health status in quality of life research: a meta-analysis. Qual Life Res. 1999 Aug;8(5):447-59. PubMed PMID: 10474286. https://www.ncbi.nlm.nih.gov/pubmed/10474286. Subscription required.

    Carver DJ, Chapman CA, Thomas VS, Stadnyk KJ, Rockwood K. Validity and reliability of the Medical Outcomes Study Short Form-20 questionnaire as a measure of quality of life in elderly people living at home. Age Ageing. 1999 Mar;28(2):169-74. PubMed PMID: 10350414. https://www.ncbi.nlm.nih.gov/pubmed/10350414. Subscription not required. Also available at: https://www.rand.org/health-care/surveys_tools/mos/20-item-short-form.html. Subscription not required.

    All of the surveys from RAND Health are public documents, available without charge. Please provide an appropriate citation when using these products. In some cases, the materials themselves include specific instructions for citation. Some materials listed are not available from RAND Health. Those links will take users to other websites, where there will be instructions for use. There are no further permissions necessary.

    Contact information:

    Institution: RAND Corporation
    Web: https://www.rand.org/about/locations.html
    Web: https://www.rand.org/about/contacts/keycontacts.html

    For more information:
    Institution: RAND Health
    Web: https://www.rand.org/health-care/surveys_tools.html
    Includes Research Tools: Yes.
    ID: 8127. From: Disaster Lit®a database of the U.S. National Library of Medicine.
  93. Global School-Based Student Health Survey (GSHS): Questionnaire
    Source: Centers for Disease Control and Prevention (CDC)
    Format: Text
    Annotation: The Global School-Based Student Health Survey (GSHS) from the Centers for Disease Control and Prevention (CDC) is a school-based survey conducted primarily among students aged 13 to 17 years. The GSHS uses a standardized scientific sample selection process, common school-based methodology, and core questionnaire modules, core-expanded questions, and country-specific questions that are combined to form a self-administered questionnaire that can be administered during one regular class period. The 11 core questionnaire modules address the leading causes of morbidity and mortality among children and adults worldwide. The 11 GSHS core questionnaire modules measure the most important health behaviors and protective factors among students. At least six of the 11 GSHS core questionnaire modules must be used by each country. Once a core questionnaire module is selected, all the questions in that module must be used without modification. Each core questionnaire module contains three to seven questions. This resource was identified by the NIH Disaster Research Response Program (DR2) for researchers looking for pre- and post-disaster data collection instruments.

    Ease of Use in Disaster Setting: Moderate
    Flesch-Kincaid Reading Level: Grade 6.7
    Population: Children/Teens Only
    Length: 11 modules-62 total core questions; 231 total expanded core questions
    Time to Complete: Not specified/given
    Administered by: Self Administered/Self Report
    Language(s): English, French, Spanish, and Russian
    Check the following website for questionnaire translations:
    https://www.cdc.gov/gshs/questionnaire/index.htm    ...[See more] [See less]
    URL: https://www.cdc.gov/gshs/questionnaire/index.htm
    Type: Guideline/Assessment Tool
    Access Notes: Free/Publicly Available

    Citation(s):
    Granero R, Poni ES, Sánchez Z. Sexuality among 7th, 8th and 9th grade students in the state of Lara, Venezuela. The Global School Health Survey, 2003-2004. P R Health Sci J. 2007 Sep;26(3):213-9. PubMed PMID: 18035813. https://www.ncbi.nlm.nih.gov/pubmed/18035813. Subscription required.

    Becker AE, Roberts AL, Perloe A, Bainivualiku A, Richards LK, Gilman SE, Striegel-Moore RH. Youth health-risk behavior assessment in Fiji: the reliability of Global School-based Student Health Survey content adapted for ethnic Fijian girls. Ethn Health. 2010 Apr;15(2):181-97. doi: 10.1080/13557851003615552. PubMed PMID: 20234961; PubMed Central PMCID: PMC2921325. https://www.ncbi.nlm.nih.gov/pubmed/20234961. Subscription not required.

    Page RM, Danielson M. Multi-country, cross-national comparison of youth tobacco use: findings from global school-based health surveys. Addict Behav. 2011 May;36(5):470-8. doi: 10.1016/j.addbeh.2011.01.008. Epub 2011 Jan 20. PubMed PMID: 21324609. https://www.ncbi.nlm.nih.gov/pubmed/21324609. Subscription required.

    Swahn MH, Palmier JB, Benegas-Segarra A, Sinson FA. Alcohol marketing and drunkenness among students in the Philippines: findings from the nationally representative Global School-based Student Health Survey. BMC Public Health. 2013 Dec 10;13:1159. doi: 10.1186/1471-2458-13-1159. PubMed PMID: 24325264; PubMed Central PMCID: PMC3890547. https://www.ncbi.nlm.nih.gov/pubmed/24325264. Subscription not required.

    Contact information:

    Institution: Adolescent and School Health
    Centers for Disease Control and Prevention
    Address: 4770 Buford Hwy, NE
    Mailstop K-33
    Atlanta, GA 30341
    Phone: 800-CDC-INFO (800-232-4636)
    TTY: (888) 232-6348

    For more information, visit:
    Institution: World Health Organization
    Web: https://www.who.int/ncds/surveillance/gshs/en/
    Includes Research Tools: Yes.
    ID: 8128. From: Disaster Lit®a database of the U.S. National Library of Medicine.
  94. Veterans RAND 12-Item Health Survey (VR-12)
    Source: RAND Corporation
    Format: PDF
    Annotation: The Veterans RAND 12-Item Health Survey (VR-12) is a brief, generic, multi-use, self-administered health survey comprised of 12 items. The instrument is primarily used to measure health-related quality of life, to estimate disease burden, and to evaluate disease-specific benchmarks with military and veteran populations. The Veterans RAND 12-Item Health Survey (VR-12, formerly the Veterans SF-12) was developed from the Veterans RAND 36-Item Health Survey (VR-36) which was developed from the MOS RAND SF-36 Version 1.0. While the names of these assessment tools have changed, the content of the instruments has not. This resource was identified by the NIH Disaster Research Response Program (DR2) for researchers looking for pre- and post-disaster data collection instruments.

    Ease of Use in Disaster Setting: Easy
    Flesch-Kincaid Reading Level: Grade 5.9
    Population: Adults Only
    Length: 12 questions
    Time to Complete: Not specified/given
    Administered by: Self Administered/Self Report, Lay Interviewer, Specialist/Doctor/Expert
    Language(s): English; no additional language translations listed as available.    ...[See more] [See less]
    URL: https://www.aaos.org/uploadedFiles/PreProduction/Quality/Measures/Veterans%20RAND%2012%20%28VR-12%29.pdf
    Type: Guideline/Assessment Tool
    Access Notes: Permission/Request required

    Citation(s):
    JJones D, Kazis L, Lee A, Rogers W, Skinner K, Cassar L, Wilson N, Hendricks A. Health status assessments using the Veterans SF-12 and SF-36: methods for evaluating outcomes in the Veterans Health Administration. J Ambul Care Manage. 2001 Jul;24(3):68-86. PubMed PMID: 11433558. https://www.ncbi.nlm.nih.gov/pubmed/11433558. Subscription required.

    Selim AJ, Rogers W, Fleishman JA, Qian SX, Fincke BG, Rothendler JA, Kazis LE. Updated U.S. population standard for the Veterans RAND 12-item Health Survey (VR-12). Qual Life Res. 2009 Feb;18(1):43-52. doi: 10.1007/s11136-008-9418-2. Epub 2008 Dec 3. PubMed PMID: 19051059. https://www.ncbi.nlm.nih.gov/pubmed/19051059. Subscription required.

    Kazis LE, Selim AJ, Rogers W, Qian SX, Brazier J. Monitoring outcomes for the Medicare Advantage program: methods and application of the VR-12 for evaluation of plans. J Ambul Care Manage. 2012 Oct-Dec;35(4):263-276. doi: 10.1097/JAC.0b013e318267468f. PubMed PMID: 22955087. https://www.ncbi.nlm.nih.gov/pubmed/22955087. Subscription required.

    There is no cost to use the VR-12. However, so that the developers can monitor the use of these instruments, researchers must obtain permission by requesting to use the instrument in a letter on institutional letterhead to Dr. Lewis Kazis. The letter should state that the requestor agrees to the terms and conditions given by the RAND Corporation and indicate that the user plans to give appropriate acknowledgements for the VR-12. An abstract of the project should be included with the request.

    Contact information:

    Contact person: Lewis E. Kazis, Sc.D.
    Associate Professor and Director
    Institution: Boston University School of Public Health (T3-W)
    Center for the Assessment of Pharmaceutical Practices (CAPP)
    Department of Health Policy and Management
    Address: 715 Albany Street
    Boston, MA 02118
    Phone: 617-414-1418
    Fax: 617-638-5374
    Email: lek@bu.edu

    For more information:
    U.S. Department of Veterans Affairs, Health Economics Resource Center
    http://www.herc.research.va.gov/include/page.asp?id=home
    Includes Research Tools: Yes.
    ID: 8129. From: Disaster Lit®a database of the U.S. National Library of Medicine.
  95. CDC (Centers for Disease Control and Prevention) HRQOL-14 (Health-Related Quality of Life-14) "Healthy Days Measure"
    Source: Centers for Disease Control and Prevention (CDC)
    Format: Text
    Annotation: This measure contains three modules (Healthy Days Core, Healthy Days Symptoms, and Activity Limitation Module). There are four core questions and 10 additional questions about health-related quality of life. These questions ask about recent pain, depression, anxiety, sleeplessness, vitality, and the cause, duration, and severity of a current activity limitation an individual may have in his or her life. This resource was identified by the NIH Disaster Research Response Program (DR2) for researchers looking for pre- and post-disaster data collection instruments.

    Ease of Use in Disaster Setting: Easy
    Population: Adults Only
    Length: Three modules, 14 total questions
    Time to Complete: Two to five minutes
    Administered by: Self Administered/Self Report
    Language(s): English, Spanish, Spanish, Vietnamese, Chinese (Mandarin and Cantonese dialects), Turkish, Korean, Khmer (Cambodian), Haitian Creole, Dutch, Portuguese, and Tagalog    ...[See more] [See less]
    URL: https://www.cdc.gov/hrqol/hrqol14_measure.htm
    Type: Guideline/Assessment Tool
    Access Notes: Free/Publicly Available

    Citation(s):
    McKibben JB, Fullerton CS, Ursano RJ, Reissman DB, Kowalski-Trakofler K, Shultz JM, Wang L. Sleep and arousal as risk factors for adverse health and work performance in public health workers involved in the 2004 Florida hurricane season. Disaster Med Public Health Prep. 2010 Sep;4 Suppl 1:S55-62. PubMed PMID: 23105036. https://www.ncbi.nlm.nih.gov/pubmed/23105036. Subscription required.

    Moriarty DG, Zack MM, Kobau R. The Centers for Disease Control and Prevention's Healthy Days Measures - population tracking of perceived physical and mental health over time. Health Qual Life Outcomes. 2003 Sep 2;1:37. PubMed PMID: 14498988; PubMed Central PMCID: PMC201011. https://www.ncbi.nlm.nih.gov/pubmed/14498988. Subscription not required.

    Barile JP, Reeve BB, Smith AW, Zack MM, Mitchell SA, Kobau R, Cella DF, Luncheon C, Thompson WW. Monitoring population health for Healthy People 2020: evaluation of the NIH PROMIS® Global Health, CDC Healthy Days, and satisfaction with life instruments. Qual Life Res. 2013 Aug;22(6):1201-11. doi: 10.1007/s11136-012-0246-z. Epub 2012 Aug 18. PubMed PMID: 23404737. https://www.ncbi.nlm.nih.gov/pubmed/23404737. Subscription required.

    Contact information:

    Copyright: Permission is not needed to use the Healthy Days Measures (CDC HRQOL-4 or HRQOL-14), nor is there any charge for using them. Copies of the measures in English and Spanish are available in the Methods and Measures section of the CDC HRQOL website at https://www.cdc.gov/hrqol/. It is recommended that the use of this tool be properly cited.

    The recommended citation is: Moriarty DG, Zack MM, Kobau R. The Centers for Disease Control and Prevention's Healthy Days Measures - population tracking of perceived physical and mental health over time. Health Qual Life Outcomes. 2003 Sep 2;1:37.
    Includes Research Tools: Yes.
    ID: 8130. From: Disaster Lit®a database of the U.S. National Library of Medicine.
  96. Quality of Well-Being Scale: Self-Administered (QWB-SA)
    Source: University of California, San Diego (UCSD)
    Format: Text
    Annotation: This tool is used to measure health-related quality of life, to monitor the health of populations over time, or to evaluate the efficacy and effectiveness of clinical therapies of practices using a preference-weighted self-administered measure. The Quality of Well-Being Scale (QWB) has been extensively validated, and its psychometric properties are well established. The self-administered version of the QWB (QWB-SA) has been developed and validated in response to limitations of the QWB, and is easier to administer in most research and clinical assessment protocols. The questionnaire examines the presence or absence of symptoms and functioning on specific days prior to administration. The QWB and QWB-SA are preference-weighted measures of health status and overall well-being over the previous three days in four domains: mobility, physical activities, social activities, and symptom/problem complexes. This resource was identified by the NIH Disaster Research Response Program (DR2) for researchers looking for pre- and post-disaster data collection instruments.

    Ease of Use in Disaster Setting: Moderate
    Population: Adults Only
    Length: QWB-24 questions
    QWB-SA-five sections, 78 total questions, including all subquestions and branching. Earlier versions have 56 or 71 items. Some versions of the questionnaire present the total number of items as 10, but this manner of numbering does not account for subsets of questions within a question.
    Time to Complete: 10 to 20 minutes
    Administered by: Self Administered/Self Report, Lay Interviewer, Specialist/Doctor/Expert
    Special Considerations: Training is required for the interview-based QWB. If using the interviewer-administered version, a trained professional and or technician will need to administer the questionnaire.
    Language(s): English, French, German, Chinese, Hmong, Japanese, Swedish, Khmer, Laotian, Navajo, Spanish, Italian, Dutch, and Vietnamese    ...[See more] [See less]
    URL: https://hoap.ucsd.edu/qwb-info/
    Type: Guideline/Assessment Tool
    Access Notes: Permission/Request required

    Citation(s):
    Kaplan RM, Anderson JP, Ganiats TG. The Quality of Well-being Scale: rationale for a single quality of life index. S.R. Walker & R.M. Rosser (eds) Quality of life assessment: Key issues in the 1990s. London: Kluwer Academic Publishers; 1993:65-94.

    Kaplan RM, Sieber WJ, Ganiats TG. The Quality of Well-Being scale: Comparison of the interviewer-administered version with a self-administered questionnaire. Psychol Health. 1997;12:783-791. http://rmkaplan.bol.ucla.edu/Robert_M._Kaplan/1997_Publications_files/0282.pdf. Subscription not required.

    Andresen EM, Rothenberg BM, Kaplan RM. Performance of a self-administered mailed version of the Quality of Well-Being (QWB-SA) questionnaire among older adults. Med Care 1998;36:1349-1360. PubMed PMID: 9749658. https://www.ncbi.nlm.nih.gov/pubmed/9749658 Subscription required.

    Not-for-profit use is free with signed copyright agreement. Optional assistance for scoring is available for a fee.

    For-profit use has an annual fee, in addition to the required signed copyright agreement. Optional assistance for scoring is available for an additional fee.

    Contact information:

    Contact person: Robert M. Kaplan, PhD
    Institution: University of California, San Diego
    Department of Family and Preventive Medicine
    Address: 9500 Gilman Drive
    La Jolla, CA 92093-0622
    Web: http://www.outcomes-trust.org/instruments.htm#QWB


    For more information about scoring and instrument use:
    Institution: University of California, San Diego
    Web: https://hoap.ucsd.edu/qwb-info/QWB-Manual.pdf
    Includes Research Tools: Yes.
    ID: 8131. From: Disaster Lit®a database of the U.S. National Library of Medicine.
  97. Activities of Daily Living (ADL) and Instrumental Activities of Daily Living (IADL)
    Source: University of Nebraska Medical Center (UNMC)
    Format: Text
    Annotation: The Lawton Instrumental Activities of Daily Living (IADL) Scale is an appropriate instrument to assess independent living skills. The IADL Scale was developed to assess more complex activities necessary for functioning in community settings (e.g., shopping, cooking, and managing finances). The capacity to handle these complex functions normally is lost before basic activities of daily living (ADL) (e.g., eating, bathing, toileting) which are measured by ADL scales (i.e., Katz Index of Activities of Daily Living). The IADL instrument is most useful for identifying how a person is functioning at the present time and for identifying improvement or deterioration over time. There are eight domains of function measured with the IADL scale. Assessing IADLs may identify incipient decline in older adults or other individuals who are otherwise capable and healthy.

    For the ADL instrument, clinicians typically use the tool to detect problems in performing activities of daily living and to plan care accordingly. ADLs are the activities that are fundamental for self care, such as bathing and toileting on one's own. The Index ranks adequacy of performance in the six functions of bathing, dressing, toileting, transferring, continence, and feeding. Clients are scored yes/no for independence in each of the six functions. This resource was identified by the NIH Disaster Research Response     Program (DR2) for researchers looking for pre- and post-disaster data collection instruments.

    Ease of Use in Disaster Setting: Easy
    Flesch-Kincaid Reading Level: Grade 5.8
    Population: Adults Only
    Length: IADL-eight questions
    ADL-six questions, although some versions contain an additional seventh variable/question.
    Time to Complete: IADL-10 to 15 minutes
    ADL-two to five minutes
    Administered by: Self Administered/Self Report, Lay Interviewer, Specialist/Doctor/Expert
    Language(s): IADL: English, German, Korean, Greek, Vietnamese, Japanese, Chinese, Spanish, Arabic, and Malay
    ADL: English, Spanish, Portuguese, Korean, German, and Persian (Dari, Farsi, Parsi)    ...[See more] [See less]
    URL: https://clas.uiowa.edu/socialwork/sites/clas.uiowa.edu.socialwork/files/NursingHomeResource/documents/Katz%20ADL_LawtonIADL.pdf
    Type: Guideline/Assessment Tool
    Access Notes: Free/Publicly Available

    Citation(s):
    Ardalan A, Mazaheri M, Mowafi H, Vanrooyen M, Teimoori F, Abbasi R. Impact of the 26 December 2003 Bam Earthquake on activities of daily living and instrumental activities of daily living of older people. Prehosp Disaster Med. 2011 Apr;26(2):99-108. PubMed PMID: 21888729. https://www.ncbi.nlm.nih.gov/pubmed/21888729. Subscription required.

    Lawton MP, Brody EM. Assessment of older people: self-maintaining and instrumental activities of daily living. Gerontologist. 1969 Autumn;9(3):179-86. PubMed PMID: 5349366. https://www.ncbi.nlm.nih.gov/pubmed/5349366. Subscription required.

    Katz S, Downs TD, Cash HR, Grotz RC. Progress in development of the index of ADL. Gerontologist. 1970 Spring;10(1):20-30. PubMed PMID: 5420677. https://www.ncbi.nlm.nih.gov/pubmed/5420677. Subscription required.

    Katz S. Assessing self-maintenance: activities of daily living, mobility, and instrumental activities of daily living. J Am Geriatr Soc. 1983 Dec;31(12):721-7. Review. PubMed PMID: 6418786. https://www.ncbi.nlm.nih.gov/pubmed/6418786. Subscription required.

    Graf C. The Lawton instrumental activities of daily living scale. Am J Nurs. 2008 Apr;108(4):52-62; quiz 62-3. doi: 10.1097/01.NAJ.0000314810.46029.74. Review. PubMed PMID: 18367931. https://www.ncbi.nlm.nih.gov/pubmed/18367931. Subscription required.

    For links to the ADL, visit:
    Institution: University of Iowa
    Web: http://webmedia.unmc.edu/intmed/geriatrics/reynolds/pearlcards/functionaldisability/activities_of_daily_living.htm; http://clas.uiowa.edu/socialwork/files/socialwork/NursingHomeResource/documents/Katz%20ADL_LawtonIADL.pdf

    Institution: University of Nebraska Medical Center
    Web: http://webmedia.unmc.edu/intmed/geriatrics/reynolds/pearlcards/functionaldisability/ADLs_form.pdf

    Institution: New York University College of Nursing
    Web: http://journals.lww.com/ajnonline/toc/2008/04000

    For links to the IADL, visit:
    Institution: University of Nebraska Medical Center
    Web: http://webmedia.unmc.edu/intmed/geriatrics/reynolds/pearlcards/functionaldisability/IADLs_form.pdf
    Includes Research Tools: Yes.
    ID: 8134. From: Disaster Lit®a database of the U.S. National Library of Medicine.
  98. Pittsburgh Sleep Quality Index (PSQI)
    Source: University of Pittsburgh
    Format: Text
    Annotation: The Pittsburgh Sleep Quality Index (PSQI) is an effective instrument used to measure the quality and patterns of sleep in the older adult. It differentiates "poor" from "good" sleep by measuring seven domains: subjective sleep quality, sleep latency, sleep duration, habitual sleep efficiency, sleep disturbances, use of sleep medication, and daytime dysfunction over the last month. The client self rates each of these seven areas of sleep. The PSQI is best used as a screening tool to identify patients who may require further sleep testing. The global PSQI score is rather good at identifying the likely presence of sleep disorders. This resource was identified by the NIH Disaster Research Response Program (DR2) for researchers looking for pre- and post-disaster data collection instruments.

    Ease of Use in Disaster Setting: Easy
    Flesch-Kincaid Reading Level: Grade 6
    Population: Adults Only
    Length: 10 questions (sometimes nine in other/alternative versions) with 19 total items, plus five additional items reported by a "bed partner" or roommate for clinical use only.
    Time to Complete: Not specified/given
    Administered by: Self Administered/Self Report
    Language(s): English, Afrikaans, Arabic, Bulgarian, Cebuano, Czech, Danish, Dutch, Indonesian, Estonian, Filipino, Finnish, French, German, Greek, Hindi, Hebrew, Hungarian, Italian, Japanese, Kannada, Korean, Latvian, Lithuanian, Malay, Mandarin, Marathi, Norwegian, Polish, Portuguese, Romanian, Russian, Slovak, Spanish, Swedish, Turkish, Ukranian, and Zulu    ...[See more] [See less]
    URL: https://tuftshealthplan.com/documents/providers/general/the-pittsburgh-sleep-quality-index-(psqi
    Type: Guideline/Assessment Tool
    Access Notes: Free/Publicly Available

    Citation(s):
    Palmieri PA, Chipman KJ, Canetti D, Johnson RJ, Hobfoll SE. Prevalence and correlates of sleep problems in adult israeli jews exposed to actual or threatened terrorist or rocket attacks. J Clin Sleep Med. 2010 Dec 15:6(6):557-64. PubMed PMID: 21206544. https://www.ncbi.nlm.nih.gov/pubmed/21206544. Subscription not required.

    Buysse DJ, Reynolds CF 3rd, Monk TH, Berman SR, Kupfer DJ. The Pittsburgh Sleep Quality Index: a new instrument for psychiatric practice and research. Psychiatry Res. 1989 May;28(2):193-213. PubMed PMID: 2748771. https://www.ncbi.nlm.nih.gov/pubmed/2748771 Subscription required.

    PSQI is under copyright and is owned by the University of Pittsburgh; it may be reprinted without charge only for non-commercial research and educational purposes. Users may not make changes or modifications of this form without prior written permission from the University of Pittsburgh.

    Please cite the reference for the PSQI in any publications. If users intend to reproduce the article in which the instrument was published, please contact Elsevier Science Ireland Ltd., the publisher of Psychiatry Research. Any questions regarding reprinting of the article should be directed to:
    Institution: Elsevier Science Ireland Ltd., Permissions Department
    Address: Elsevier House, Brookvale Plaza
    East Park, Shannon, Co. Clare, Ireland
    Phone: 353-61-709600
    Fax: 353-61-709100/709101

    Contact information:

    Institution: Western Psychiatric Institute and Clinic
    Address: 3811 O'Hara Street
    E-1127, Pittsburgh, PA 15213
    Phone: 412-246-6413, 412-246-6451
    Fax: 412-246-5300
    Email: buyssedj@upmc.edu, upsmi@pitt.edu

    For links to the nine-question version:
    Institution: New York University College of Nursing
    http://www.tuftshealthplan.com/providers/pdf/pittsburg_sleep_quality_index.pdf

    Institution: Capital Health
    Web: http://www.capitalhealth.org/medical-services/sleep-medicine/~/media/Files/medical%20services/PSQI.ashx

    For link to the 10-question version:
    Institution: University of Pittsburgh
    Web: https://outcometracker.org/library/PSQI.pdf
    Includes Research Tools: Yes.
    ID: 8136. From: Disaster Lit®a database of the U.S. National Library of Medicine.
  99. Social Science Data Archive
    Source: University of California, Los Angeles (UCLA)
    Date Published: 1961
    Format: Text
    Annotation: The mission of the University of California, Los Angeles (UCLA) Social Science Data Archive (SSDA) is to provide a foundation for social science research with UCLA faculty support throughout an entire research project involving original data collection or the reuse of publicly available studies. The Dataverse consists of unique surveys, enumerations, public opinion polls, and de-identified administrative records. Topics of studies include political attitudes and behavior; social and economic attitudes and behaviors; studies of health status and health outcomes; families, children, and women; international surveys of occupational and social mobility; the Los Angeles County Social Surveys; California Polls; and census data for the United States and other countries. In addition, the SSDA provides access to data from the Inter-university Consortium for Political and Social Research and the Roper Center for Public Opinion Research. Materials from SSDA are used with software programs, such as SPSS, SAS, STATA, and R to carry out statistical analysis. Assistance in using statistical packages is provided by the IDRE Statistical consulting office. This resource was identified by the NIH Disaster Research Response Program (DR2) for researchers looking for pre- and post-disaster data collection instruments.

    Population: All/Anyone
    Language(s): English    ...[See more] [See less]
    URL: https://www.library.ucla.edu/location/data-science-center/data-archive-collections
    Type: Database/Dataset
    Access Notes: Free/Publicly Available

    Contact information:

    Institute: University of California, Los Angeles
    Address: Institute for Social Science Research Data Archives Library, 1120-H Rolfe Hall, 345 Portola Plaza, Los Angeles, CA 90095-1484
    Phone: 310-825-0716
    Email: libbie@g.ucla.edu
    Includes Research Tools: Yes.
    ID: 12946. From: Disaster Lit®a database of the U.S. National Library of Medicine.
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