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  1. Mental Health Impact of COVID-19 Pandemic on NIMH Research Participants and Volunteers Protocol
    Source: National Institute of Mental Health [National Institutes of Health] (NIMH)
    Date Published: 4/20/2020
    Format: PDF
    Annotation: This protocol provides the rationale, background, objectives, design, methodology, statistical considerations, organization for the National Institute of Mental Health Psychosocial Impact of COVID-19 Survey: https://dr2.nlm.nih.gov/search/?q=22587
    Abbreviated title: MINH COVID Study    ...[See more] [See less]
    URL: https://disasterinfo.nlm.nih.gov/content/files/20_M_N085_Research_Protocol.pdf
    Type: Study Design/Protocol
    Access Notes: Contact Information:
    Study team: NIMHResearchVolunteer@nih.gov
    Joyce Chung, MD, National Institute of Mental Health (NIMH) Intramural Research Program, joyce.chung@nih.gov
    Includes Research Tools: Yes.
    ID: 24225. From: Disaster Lit®a database of the U.S. National Library of Medicine.
  2. Psychosocial Impact of COVID-19 Survey
    Source: National Institute of Mental Health [National Institutes of Health] (NIMH)
    Date Published: 4/4/2020
    Format: PDF
    Annotation: This measure of psychosocial impact of COVID-19 was developed at the NIMH Intramural Research Program (IRP) in response to the COVID-19 pandemic. The protocol, titled Mental Health Impact of COVID-19 Pandemic on NIMH Patients and Volunteers, was launched in early April 2020. The study will describe the relationship between stressors related to COVID-19 and self-rated measures of mental health symptoms and distress among a range of participants including various patient populations and healthy volunteers. The secondary objectives are to determine whether existing mental health concerns moderates this relationship and to identify risk resilience factors among study participants regarding mental health impact of the COVID-19 pandemic. Participants are asked to repeat the survey every two weeks via the study website (https://nimhcovidstudy.ctss.nih.gov/).

    Questions Adapted From: Our survey stemmed from one that was originally written by Argyris Stringaris in March 2020 at the NIMH IRP, who went on to further develop the measure with our NIMH IRP colleague Kathleen Merikangas. They have since posted their survey on a website: crisissurvey.org. Our measure overlaps with the CRISIS survey for many of the items with a few exceptions. We developed it for use with adults (the original Stringaris measure was for adolescents). It does not have two versions (initial and follow-up), and does not include questions about demographics, mental health, or substance use symptoms.

    Population: Adults Only
    All/Anyone
    First Responders, Emergency Medical Services (EMS) Personnel, Police/Fire Departments
    High Risk/Special/Unique Populations
    Length: 45 items
    Time to Complete: 10 minutes
    Mode of Administration: Online (e.g., computer-assisted interview)
    Administered by: Self Administered
    Language(s): English

    Informed Consent https://disasterinfo.nlm.nih.gov/content/files/20_M_N085_Consent.pdf
    Factor Analysis Report https://disasterinfo.nlm.nih.gov/content/files/Factor_Analysis_Report_3.11.pdf

    Psychosocial Impact of COVID-19 Survey: Full Questionnaire https://www.phenxtoolkit.org/toolkit_content/PDF/Psychosocial_Impact_of_COVID-19_Survey.pdf
    Psychological Impact: General Mental Health; Social Impact https://www.phenxtoolkit.org/toolkit_content/PDF/NIMH_Pyschosocial.pdf
    Social Distancing: Social Distancing https://www.phenxtoolkit.org/toolkit_content/PDF/NIMH_SocialDistancing.pdf
    Hopes and Dreams: General Mental Health; Attitudes https://www.phenxtoolkit.org/toolkit_content/PDF/NIMH_Hopes.pdf
    Health Concerns: General Symptoms; Diagnosis https://www.phenxtoolkit.org/toolkit_content/PDF/NIMH_HealthConcerns.pdf
    Daily Activities: Daily Life https://www.phenxtoolkit.org/toolkit_content/PDF/NIMH_DailyActivities.pdf
    Daily Functioning: Daily Life https://www.phenxtoolkit.org/toolkit_content/PDF/NIMH_DailyFunctioning.pdf    ...[See more] [See less]
    URL: https://www.nlm.nih.gov/dr2/Psychosocial_Impact_of_COVID-19_Survey.pdf
    Type: Guideline/Assessment Tool
    Access Notes: Free/Publicly Available

    Available Formats: PDF

    Contact Information:
    Study team: NIMHResearchVolunteer@nih.gov
    Joyce Chung, MD, National Institute of Mental Health (NIMH) Intramural Research Program, joyce.chung@nih.gov
    Includes Research Tools: Yes.
    ID: 22587. From: Disaster Lit®a database of the U.S. National Library of Medicine.
  3. CoRonavIruS Health Impact Survey (CRISIS)
    Source: National Institute of Mental Health [National Institutes of Health] (NIMH)
    Date Published: 4/2020
    Format: Text
    Annotation: The CRISIS Survey is designed to enable researchers and care providers to examine the extent and impact of life changes induced by the COVID-19 epidemic on the mental health and behavior of individuals and families across diverse international settings. This data may enable the identification of pre-, peri, and post-COVID-19 demographic, social, and clinical predictors of both short- and long-term impairment and distress induced by COVID-19 and its sequelae. The survey is designed to allow for follow-ups on a regular basis, with recommended frequencies of twice monthly or monthly. To facilitate multicultural perspectives, translations in a broad range of languages are available. Download surveys in PDF or Word Format, via GitHub, or via REDCap.


    Population: All/Anyone
    Length: 99 questions
    Time to Complete: 12 minutes
    Administered by: Self Administered/Self Report
    Language(s): English, Brazilian Portuguese, French, German, Greek, Hebrew, Spanish, Swedish, Turkish

    CRISIS Surveys: Adult Self-Report Baseline Current Form: Full Survey https://www.phenxtoolkit.org/toolkit_content/PDF/CRISIS_Baseline_Adult.pdf
    CRISIS Baseline Current Form- Background: Demographics; Health Care https://www.phenxtoolkit.org/toolkit_content/PDF/CRISIS_Baseline_Adult_Background.pdf
    Coronavirus/COVID-19 Health/Exposure Status: Symptoms; Diagnosis; Mental Health https://www.phenxtoolkit.org/toolkit_content/PDF/CRISIS_Baseline_Adult_Status.pdf
    Life Changes Due to Coronavirus/COVID-19 Crisis: Life Changes https://www.phenxtoolkit.org/toolkit_content/PDF/CRISIS_Baseline_Adult_Life_Changes.pdf
    Daily Behaviors During COVID-19: Sleep Changes; Physical Activity https://www.phenxtoolkit.org/toolkit_content/PDF/CRISIS_Baseline_Adult_Daily_Behaviors.pdf
    Emotions/Worries During COVID-19: Mental Health https://www.phenxtoolkit.org/toolkit_content/PDF/CRISIS_Baseline_Adult_Worries.pdf
    Media Use (e.g., mobile devices, media, etc.) During COVID-19: Media Use https://www.phenxtoolkit.org/toolkit_content/PDF/CRISIS_Baseline_Adult_Media_Use.pdf
    Substance Use (e.g., tobacco, alcohol, other drugs) During COVID-19: Substance Use https://www.phenxtoolkit.org/toolkit_content/PDF/CRISIS_Baseline_Adult_Substance_Use.pdf

    CRISIS Surveys: Youth Self-Report Baseline Current Form: Full Survey https://www.phenxtoolkit.org/toolkit_content/PDF/CRISIS_Baseline_Youth.pdf
    CRISIS Baseline Current Form- Background: Demographics; Health Care https://www.phenxtoolkit.org/toolkit_content/PDF/CRISIS_Baseline_Youth_Background.pdf
    Coronavirus/COVID-19 Health/Exposure Status: Symptoms; Diagnosis; Mental Health https://www.phenxtoolkit.org/toolkit_content/PDF/CRISIS_Baseline_Youth_Status.pdf
    Life Changes Due to Coronavirus/COVID-19 Crisis: Life Changes https://www.phenxtoolkit.org/toolkit_content/PDF/CRISIS_Baseline_Youth_Life_Changes.pdf
    Daily Behaviors During COVID-19: Sleep Changes; Physical Activity https://www.phenxtoolkit.org/toolkit_content/PDF/CRISIS_Baseline_Youth_Daily_Behaviors.pdf
    Emotions/Worries During COVID-19: Mental Health https://www.phenxtoolkit.org/toolkit_content/PDF/CRISIS_Baseline_Youth_Worries.pdf
    Media Use (e.g., mobile devices, media, etc.) During COVID-19: Media Use https://www.phenxtoolkit.org/toolkit_content/PDF/CRISIS_Baseline_Youth_Media_Use.pdf
    Substance Use (e.g., tobacco, alcohol, other drugs) During COVID-19: Substance Use https://www.phenxtoolkit.org/toolkit_content/PDF/CRISIS_Baseline_Youth_Substance_Use.pdf

    CRISIS Surveys: Parent/Caregiver Self-Report Baseline Current Form: Full Survey https://www.phenxtoolkit.org/toolkit_content/PDF/CRISIS_Baseline_ParentCaregiver.pdf
    CRISIS BaselineCurrent Form- Background: Demographics; Health Care https://www.phenxtoolkit.org/toolkit_content/PDF/CRISIS_Baseline_ParentCaregiver_Background.pdf
    Coronavirus/COVID-19 Health/Exposure Status: Symptoms; Diagnosis; Mental Health https://www.phenxtoolkit.org/toolkit_content/PDF/CRISIS_Baseline_ParentCaregiver_Status.pdf
    Life Changes Due to Coronavirus/COVID-19 Crisis: Life Changes https://www.phenxtoolkit.org/toolkit_content/PDF/CRISIS_Baseline_ParentCaregiver_Life_Changes.pdf
    Daily Behaviors During COVID-19: Sleep Changes; Physical Activity https://www.phenxtoolkit.org/toolkit_content/PDF/CRISIS_Baseline_ParentCaregiver_Daily_Behaviors.pdf
    Emotions/Worries During COVID-19: Mental Health https://www.phenxtoolkit.org/toolkit_content/PDF/CRISIS_Baseline_ParentCaregiver_Worries.pdf
    Media Use (e.g., mobile devices, media, etc.) During COVID-19: Media Use https://www.phenxtoolkit.org/toolkit_content/PDF/CRISIS_Baseline_ParentCaregiver_Media_Use.pdf
    Substance Use (e.g., tobacco, alcohol, other drugs) During COVID-19: Substance Use https://www.phenxtoolkit.org/toolkit_content/PDF/CRISIS_Baseline_ParentCaregiver_Substance_Use.pdf

    CRISIS Surveys: Adult Self-Report Follow-up Current Form: Full Survey https://www.phenxtoolkit.org/toolkit_content/PDF/CRISIS_FollowUp_Adult.pdf
    Coronavirus/COVID-19 Health/Exposure Status: Symptoms; Diagnosis; Mental Health https://www.phenxtoolkit.org/toolkit_content/PDF/CRISIS_FollowUp_Adult_Status.pdf
    Life Changes Due to Coronavirus/COVID-19 Crisis: Life Changes https://www.phenxtoolkit.org/toolkit_content/PDF/CRISIS_FollowUp_Adult_Life_Changes.pdf
    Daily Behaviors During COVID-19: Sleep Changes; Physical Activity https://www.phenxtoolkit.org/toolkit_content/PDF/CRISIS_FollowUp_Adult_Daily_Behaviors.pdf
    Emotions/Worries During COVID-19: Mental Health https://www.phenxtoolkit.org/toolkit_content/PDF/CRISIS_FollowUp_Adult_Worries.pdf
    Media Use (e.g., mobile devices, media, etc.) During COVID-19: Media Use https://www.phenxtoolkit.org/toolkit_content/PDF/CRISIS_FollowUp_Adult_Media_Use.pdf
    Substance Use (e.g., tobacco, alcohol, other drugs) During COVID-19: Substance Use https://www.phenxtoolkit.org/toolkit_content/PDF/CRISIS_FollowUp_Adult_Substance_Use.pdf

    CRISIS Surveys: Youth Self-Report Follow-up Current Form: Full Survey https://www.phenxtoolkit.org/toolkit_content/PDF/CRISIS_FollowUp_Youth.pdf
    Coronavirus/COVID-19 Health/Exposure Status: Symptoms; Diagnosis; Mental Health https://www.phenxtoolkit.org/toolkit_content/PDF/CRISIS_FollowUp_Youth_Status.pdf
    Life Changes Due to Coronavirus/COVID-19 Crisis: Life Changes https://www.phenxtoolkit.org/toolkit_content/PDF/CRISIS_FollowUp_Youth_Life_Changes.pdf
    Daily Behaviors During COVID-19: Sleep Changes; Physical Activity https://www.phenxtoolkit.org/toolkit_content/PDF/CRISIS_FollowUp_Youth_Daily_Behaviors.pdf
    Emotions/Worries During COVID-19: Mental Health https://www.phenxtoolkit.org/toolkit_content/PDF/CRISIS_FollowUp_Youth_Worries.pdf
    Media Use (e.g., mobile devices, media, etc.) During COVID-19: Media Use https://www.phenxtoolkit.org/toolkit_content/PDF/CRISIS_FollowUp_Youth_Media_Use.pdf
    Substance Use (e.g., tobacco, alcohol, other drugs) During COVID-19: Substance Use https://www.phenxtoolkit.org/toolkit_content/PDF/CRISIS_FollowUp_Youth_Substance_Use.pdf

    CRISIS Surveys: Parent/Caregiver Self-Report Follow-up Current Form: Full Survey https://www.phenxtoolkit.org/toolkit_content/PDF/CRISIS_FollowUp_ParentCaregiver.pdf
    Coronavirus/COVID-19 Health/Exposure Status: Symptoms; Diagnosis; Mental Health https://www.phenxtoolkit.org/toolkit_content/PDF/CRISIS_FollowUp_ParentCaregiver_Status.pdf
    Life Changes Due to Coronavirus/COVID-19 Crisis: Life Changes https://www.phenxtoolkit.org/toolkit_content/PDF/CRISIS_FollowUp_ParentCaregiver_Life_Changes.pdf
    Daily Behaviors During COVID-19: Sleep Changes; Physical Activity https://www.phenxtoolkit.org/toolkit_content/PDF/CRISIS_FollowUp_ParentCaregiver_Daily_Behaviors.pdf
    Emotions/Worries During COVID-19: Mental Health https://www.phenxtoolkit.org/toolkit_content/PDF/CRISIS_FollowUp_ParentCaregiver_Worries.pdf
    Media Use (e.g., mobile devices, media, etc.) During COVID-19: Media Use https://www.phenxtoolkit.org/toolkit_content/PDF/CRISIS_FollowUp_ParentCaregiver_Media_Use.pdf
    Substance Use (e.g., tobacco, alcohol, other drugs) During COVID-19: Substance Use https://www.phenxtoolkit.org/toolkit_content/PDF/CRISIS_FollowUp_ParentCaregiver_Substance_Use.pdf    ...[See more] [See less]
    URL: http://www.crisissurvey.org/download/
    Authors: Merikangas, K.; Milham, M.; Stringaris, A.
    Type: Guideline/Assessment Tool
    Access Notes: Link to Adult Self-Report Baseline https://www.nlm.nih.gov/dr2/CRISIS_Adult_Self-Report_Baseline_Current_Form_V0.3.pdf
    Link to Adult Self-Report Follow Up Form: https://www.nlm.nih.gov/dr2/CRISIS_Adult_Self-Report_Follow_Up_Current_Form_V0.3.pdf
    Link to Parent/Caregiver Baseline Form https://www.nlm.nih.gov/dr2/CRISIS_Parent_Caregiver_Baseline_Current_Form_V0.3.pdf
    Link to Parent Caregiver Follow Up Form: https://www.nlm.nih.gov/dr2/CRISIS_Parent_Caregiver_Follow_Up_Current_Form_V0.3.pdf
    Link to Youth Self-Report Baseline Form https://www.nlm.nih.gov/dr2/CRISIS_Youth_Self-Report_Baseline_Current_Form_V0.3.pdf
    Link to Youth Self Report Follow Up Form: https://www.nlm.nih.gov/dr2/CRISIS_Youth_Self-Report_Follow_Up_Current_Form_V0.3.pdf
    Link to Forms and background material on GitHub: https://github.com/nimh-comppsych/CRISIS

    Free/Publicly Available
    Contact Information: National Institute of Mental Health Intramural Research Program Mood Spectrum Collaboration, Dr. Kathleen Merikangas at merikank@mail.nih.gov
    Includes Research Tools: Yes.
    ID: 21767. From: Disaster Lit®a database of the U.S. National Library of Medicine.
    REDCap: Yes.
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