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  1. RADx Common Data Elements
    Source: National Institutes of Health (NIH)
    Date Published: 3/25/2021
    Format: Text
    Annotation: The RADx program represents an unprecedented investment by the NIH to mitigate the COVID-19 pandemic by accelerating access to testing. There is much to be learned, both in the present as well as over time. To glean the maximum value from the data generated through RADx, all studies involving human participants are required to collect information on 12 key data elements, referred to as common data elements (CDEs).
    Guidance: https://disasterinfo.nlm.nih.gov/content/files/RADx_Exec_Guidance_equired_CDE.docx
    Letter: https://disasterinfo.nlm.nih.gov/content/files/RADX_2021-03-25_Letter.docx
    PDF version: https://disasterinfo.nlm.nih.gov/content/files/RADxExecCommRequiredCDEs2_RADx.pdf
    REDCap: https://disasterinfo.nlm.nih.gov/content/files/RADx%20Exec%20Comm%20Required%20CDEs2%20_%20REDCap.pdf
    Data Dictionary https://disasterinfo.nlm.nih.gov/content/files/RADxExecCommRequiredCDEs2_DataDictionary_2021-04-19.csv


    Includes Common Data Elements From: Yes
    Language(s): English    ...[See more] [See less]
    URL: https://disasterinfo.nlm.nih.gov/content/files/RADx_Exec_Comm_Required_CDE.docx
    Type: Guideline/Assessment Tool
    Access Notes: Free/Publicly Available

    Available Formats: Text

    Contact Information: Dr. Patti Brennan email: patti.brennan@nih.gov
    Includes Research Tools: Yes.
    ID: 24244. From: Disaster Lit®a database of the U.S. National Library of Medicine.
    REDCap: Yes.
  2. National Institutes of Health (NIH) Environmental influences on Child Health Outcomes (ECHO) COVID-19 Questionnaires
    Source: National Institutes of Health (NIH)
    Date Published: 4/2020
    Format: Text
    Annotation: The National Institutes of Health (NIH) Environmental influences on Child Health Outcomes (ECHO) COVID-19 Task Force led the development of the ECHO COVID-19 questionnaires. The Task Force, co-chaired by ECHO investigators Tracy Bastain, PhD, and Carrie Breton, PhD, of the Keck School of Medicine at the University of Southern California, and comprised of 21 additional cohort investigators, as well as representatives from the ECHO NIH Program Office, Coordinating Center (CC), Data Analysis Center (DAC), and Person-Reported Outcome (PRO) Core, developed questionnaires for pregnant women and caregivers, children ages 0 to 12 years old (via parent report), and adolescents ages 13 years and older (via self-report). The purpose of these questionnaires is to assess the impact of being infected with and living during the time of the COVID-19 outbreak. Questionnaire content includes original items developed by the Task Force, as well as modified items from existing surveys and source materials listed in the access notes.

    Population: Adults and teens, High Risk/Special/Unique Populations
    Length: 70 questions
    Administered by: Self Administered/Self Report
    Administered by: Parent/Teacher
    Language(s): English, Spanish

    ENLGISH:
    COVID-19 Questionnaire - Adult Primary Version: Full Questionnaire https://www.phenxtoolkit.org/toolkit_content/PDF/ECHO_Adult_Primary.pdf
    COVID-19 Infection - Adult Primary Version: Symptoms and Diagnosis https://www.phenxtoolkit.org/toolkit_content/PDF/ECHO_Adult_Primary_Infection.pdf
    Impacts of the COVID-19 Outbreak - Adult Primary Version: Social Impact, Employment and Mental Health https://www.phenxtoolkit.org/toolkit_content/PDF/ECHO_Adult_Primary_Impact.pdf
    Impacts of the COVID-19 Outbreak on Pregnancy - Current - Adult Primary Version Current: Pregnancy and Health Care https://www.phenxtoolkit.org/toolkit_content/PDF/ECHO_Adult_Primary_Pregnancy_Current.pdf
    Impacts of the COVID-19 Outbreak on Pregnancy - Recall - Adult Primary Version: Past Pregnancy and Health Care https://www.phenxtoolkit.org/toolkit_content/PDF/ECHO_Adult_Primary_Pregnancy_Recall.pdf

    COVID-19 Questionnaire - Adult Alternate Version: Full Questionnaire https://www.phenxtoolkit.org/toolkit_content/PDF/ECHO_Adult_Alternate.pdf
    COVID-19 Infection - Adult Alternate Version: Symptoms and Diagnosis https://www.phenxtoolkit.org/toolkit_content/PDF/ECHO_Adult_Alternate_Infection.pdf
    Impacts of the COVID-19 Outbreak - Adult Alternate Version: Social Impact and Employment https://www.phenxtoolkit.org/toolkit_content/PDF/ECHO_Adult_Alternate_Impact.pdf
    Impacts of the COVID-19 Outbreak on Pregnancy - Current - Adult Alternate Version: Current Pregnancy and Health Care https://www.phenxtoolkit.org/toolkit_content/PDF/ECHO_Adult_Alternate_Pregnancy_Current.pdf
    Impacts of the COVID-19 Outbreak on Pregnancy - Recall - Adult Alternate Version: Past Pregnancy and Health Care https://www.phenxtoolkit.org/toolkit_content/PDF/ECHO_Adult_Alternate_Pregnancy_Recall.pdf

    COVID-19 Questionnaire - Child Parent-Report Version: Full Questionnaire https://www.phenxtoolkit.org/toolkit_content/PDF/ECHO_Child_Parent.pdf
    COVID-19 Infection - Child Parent-Report Version: Symptoms and Diagnosis https://www.phenxtoolkit.org/toolkit_content/PDF/ECHO_Child_Parent_Infection.pdf
    Impacts of the COVID-19 Outbreak on the Child Enrolled in ECHO: Social Impact and Education https://www.phenxtoolkit.org/toolkit_content/PDF/ECHO_Child_Parent_Report_Impacts.pdf

    COVID-19 Questionnaire - Child Self-Report Primary Version: Full Questionnaire https://www.phenxtoolkit.org/toolkit_content/PDF/ECHO_Child_Self_Report_Primary.pdf
    COVID-19 Infection - Child Self-Report - Primary Version: Symptoms and Diagnosis https://www.phenxtoolkit.org/toolkit_content/PDF/ECHO_Child_Self_Report_Primary_Infection.pdf
    Impacts of the COVID-19 Outbreak - Child Self-Report - Primary Version: Social Impact, Education and Mental Health https://www.phenxtoolkit.org/toolkit_content/PDF/ECHO_Child_Self_Report_Primary_Impacts.pdf

    COVID-19 Questionnaire - Child Self-Report Alternate Version: Full Questionnaire https://www.phenxtoolkit.org/toolkit_content/PDF/ECHO_Child_Self_Report_Alternate.pdf
    COVID-19 Infection - Child Self-Report - Alternate Version: Symptoms and Diagnosis https://www.phenxtoolkit.org/toolkit_content/PDF/ECHO_Child_Self_Report_Alternate_Infection.pdf
    Impacts of the COVID-19 Outbreak - Child Self-Report - Alternate Version: Social Impact and Education https://www.phenxtoolkit.org/toolkit_content/PDF/ECHO_Child_Self_Report_Alternate_Impacts.pdf

    SPANISH:
    COVID-19 Questionnaire - Adult Primary Version (Spanish): Full Questionnaire https://www.phenxtoolkit.org/toolkit_content/PDF/ECHO_AdultPrimary_Spanish.pdf
    COVID-19 Infection - Adult Primary Version (Spanish):General Symptoms; Diagnosis https://www.phenxtoolkit.org/toolkit_content/PDF/ECHO_AdultPrimary_Infection_Spanish.pdf
    Impacts of the COVID-19 Outbreak - Adult Primary Version (Spanish): Social Impact; Employment; General Mental Health https://www.phenxtoolkit.org/toolkit_content/PDF/ECHO_AdultPrimary_Impacts_Spanish.pdf
    Impacts of the COVID-19 Outbreak on Pregnancy - Current - Adult Primary Version (Spanish): Current Pregnancy; Health Care https://www.phenxtoolkit.org/toolkit_content/PDF/ECHO_AdultPrimary_Pregnancy_Current_Spanish.pdf
    Impacts of the COVID-19 Outbreak on Pregnancy - Recall - Adult Primary Version (Spanish): Past Pregnancy; Health Care https://www.phenxtoolkit.org/toolkit_content/PDF/ECHO_AdultPrimary_Pregnancy_Past_Spanish.pdf

    COVID-19 Questionnaire - Adult Alternate Version (Spanish): Full Questionnaire https://www.phenxtoolkit.org/toolkit_content/PDF/ECHO_AdultAlternate_Spanish.pdf
    COVID-19 Infection - Adult Alternate Version (Spanish):General Symptoms; Diagnosis https://www.phenxtoolkit.org/toolkit_content/PDF/ECHO_AdultAlternate_Infection_Spanish.pdf
    Impacts of the COVID-19 Outbreak - Adult Alternate Version (Spanish): Social Impact; Employment; General Mental Health https://www.phenxtoolkit.org/toolkit_content/PDF/ECHO_AdultAlternate_Impacts_Spanish.pdf
    Impacts of the COVID-19 Outbreak on Pregnancy - Current - Adult Alternate Version (Spanish): Current Pregnancy; Health Care https://www.phenxtoolkit.org/toolkit_content/PDF/ECHO_AdultAlternate_Pregnancy_Current_Spanish.pdf
    Impacts of the COVID-19 Outbreak on Pregnancy - Recall - Adult Alternate Version (Spanish):Past Pregnancy; Health Care https://www.phenxtoolkit.org/toolkit_content/PDF/ECHO_AdultAlternate_Pregnancy_Past_Spanish.pdf

    COVID-19 Questionnaire - Child Parent-Report Version (Spanish): Full Questionnaire https://www.phenxtoolkit.org/toolkit_content/PDF/ECHO_ChildParentReport_Spanish.pdf
    COVID-19 Infection - Child Parent-Report Version (Spanish): General Symptoms; Diagnosis https://www.phenxtoolkit.org/toolkit_content/PDF/ECHO_ChildParentReport_Infection_Spanish.pdf
    Impacts of the COVID-19 Outbreak on the Child Enrolled in ECHO (Spanish): Social Impact; Past Pregnancy https://www.phenxtoolkit.org/toolkit_content/PDF/ECHO_ChildParentReport_Impacts_Spanish.pdf

    COVID-19 Questionnaire - Child Self-Report Primary Version (Spanish): Full Questionnaire
    COVID-19 Infection - Child Self-Report - Primary Version (Spanish): General Symptoms; Diagnosis https://www.phenxtoolkit.org/toolkit_content/PDF/ECHO_ChildPrimary_Infection_Spanish.pdf
    Impacts of the COVID-19 Outbreak - Child Self-Report - Primary Version (Spanish): Social Impact; Past Pregnancy; General Mental Health https://www.phenxtoolkit.org/toolkit_content/PDF/ECHO_ChildPrimary_Impacts_Spanish.pdf

    COVID-19 Questionnaire - Child Self-Report Alternate Version (Spanish): Full Questionnaire https://www.phenxtoolkit.org/toolkit_content/PDF/ECHO_ChildAlternate_Spanish.pdf
    COVID-19 Infection - Child Self-Report - Alternate Version (Spanish): General Symptoms; Diagnosis https://www.phenxtoolkit.org/toolkit_content/PDF/ECHO_ChildAlternate_Infection_Spanish.pdf
    Impacts of the COVID-19 Outbreak - Child Self-Report - Alternate Version (Spanish): Social Impact; Past Pregnancy https://www.phenxtoolkit.org/toolkit_content/PDF/ECHO_ChildAlternate_Impacts_Spanish.pdf    ...[See more] [See less]
    URL: https://www.nih.gov/echo
    Authors: Bastain, Tracy; Breton, Carrie
    Type: Guideline/Assessment Tool
    Access Notes: ECHO COVID-19 Questionnaire Cover Page and References: https://www.nlm.nih.gov/dr2/ECHO_COVID-19_Cover_Page_References.pdf
    ECHO COVID-19 Questionnaire Adult Primary Version Form C19-aPV: https://www.nlm.nih.gov/dr2/C19-aPV_COVID-19_Questionnaire-Adult_Primary_Version_20200409_v01.30.pdf
    ECHO COVID-19 Questionnaire Adult Alternate Version Form C19-aAV: https://www.nlm.nih.gov/dr2/C19-aAV_COVID-19_Questionnaire-Adult_Alternate_Version_20200410_v01.31.pdf
    ECHO COVID-19 Questionnaire Child-Parent Report Form C19-cPR: https://www.nlm.nih.gov/dr2/C19-cPR_COVID-19_Questionnaire-Child_Parent-Report_Version_20200409_v01.30.pdf
    ECHO COVID-19 Questionnaire Child Self-Report Primary Version Form C19-cPV: https://www.nlm.nih.gov/dr2/C19-cPV_COVID-19_Questionnaire-Child_Self-Report_Primary_Version_20200608_v01.31.pdf
    ECHO COVID-19 Questionnaire Child Self-Report Alternate Version Form C19-cAV: https://www.nlm.nih.gov/dr2/C19-cAV_COVID-19_Questionnaire-Child_Self-Report_Alternate_Version_20200608_v01.31.pdf

    Spanish Language Questionnaires:
    COVID-19 Questionnaire - Adult Primary Version: Full Questionnaire Spanish https://www.nlm.nih.gov/dr2/C19-aPV_Spanish_COVID-19_Questionnaire-Adult_Primary_Version_20200409_v01.30.pdf
    COVID-19 Questionnaire - Adult Alternate Version: Full Questionnaire Spanish https://www.nlm.nih.gov/dr2/C19-aAV_Spanish_COVID-19_Questionnaire-Adult_Alternate_Version_20200410_v01.31.pdf
    COVID-19 Questionnaire - Child Parent-Report Version: Full Questionnaire Spanish https://www.nlm.nih.gov/dr2/C19-cPR_Spanish_COVID-19_Questionnaire-Child_Parent-Report_Version_20200617_v01.30.pdf
    COVID-19 Questionnaire - Child Self-Report Primary Version: Full Questionnaire Spanish https://www.nlm.nih.gov/dr2/C19-cPV_Spanish_COVID-19_Questionnaire-Child_Self-Report_Primary_Version_20200608_v01.31.pdf
    COVID-19 Questionnaire - Child Self-Report Alternate Version: Full Questionnaire Spanish https://www.nlm.nih.gov/dr2/C19-cAV_Spanish_COVID-19_Questionnaire-Child_Self-Report_Alternate_Version_20200608_v01.31.pdf

    Freely publicly available
    Contact information: Duke University, Dr. Brian Smith, Echocc@duke.edu
    Includes Research Tools: Yes.
    ID: 21805. From: Disaster Lit®a database of the U.S. National Library of Medicine.
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