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HAALSI COVID Survey: Bi-Directional Associations between Cognitive Function and COVID-19 in Health and Aging in Africa: A Longitudinal Study of an INDEPTH Community in South Africa (HAALSI)
Source: Harvard UniversityDate Published: 5/10/2021Format: PDFAnnotation: This survey instrument will be fielded among the existing cohort from the Health and Aging in Africa: A Longitudinal Study of an INDEPTH Community in South Africa (HAALSI), using a Computer-Assisted Telephone Interview (CATI). the survey is intended to collect information on the health, economic, and social impact of the COVID-19 pandemic on older adults in Agincourt, South Africa. The survey is funded by a supplement grant at the National Institute of Aging (NIA), which aims to assess the bi-directional associations between cognitive function and COVID-19 in HAALSI.
Questions Adapted From: Adapted from similar surveys conducted by other Health and Retirement Survey (HRS) sister studies, including HRS, SHARE, LASI, and ELSA. Questions are also adapted from the main HAALSI survey and the South African Population Research Infrastructure Network (SAPRIN) survey.
Population: Adults Only
Length: 74 questions
Time to Complete: Approximately 20 minutes
Mode of Administration: Telephone
Administered by: Professional Interviewer
Language(s): English, Shangaan...[See more] [See less]Type: Guideline/Assessment ToolAccess Notes: Free/Publicly Available
Available Formats: PDF
Contact Information: Harvard University and the University of Witwatersand haalsi@hsph.harvard.eduIncludes Research Tools: Yes.ID: 24246. From: Disaster Lit®a database of the U.S. National Library of Medicine. -
Recommendations for Common Data Elements for COVID-19 Studies Including Pregnant Participants
Source: National Institute of Child Health and Human Development [National Institutes of Health] (NICHD)Date Published: 12/15/2020Format: TextAnnotation: We present a battery of recommended biomedical and psychosocial common data elements (CDEs) and measures that, when combined across datasets, can improve our collective understanding of COVID-19 in pregnant and lactating women and their neonates. Experts across eight large pregnancy cohort studies developed these recommendations for use by any planned or upcoming COVID-19 study that includes women of reproductive age or pregnant women. We encourage researchers to include some or all of these measures, which cover key medical and psychosocial domains relevant to pregnancy and childbirth, into their studies to maximize the potential for data harmonization while continuing to advance their own study goals.
Common biomedical data elements and measures aim to accelerate our understanding of the clinical course of the disease and its effects on pregnant women and their neonates, which will continue to evolve as treatments and vaccines become available. Here we highlight CDEs and measures across seven domains, which include: Baseline Maternal / Pregnancy Characteristics; Maternal COVID-19 Treatment; Maternal Outcomes; Obstetric / Pregnancy Outcomes; Neonatal Characteristics; Neonatal COVID-19 Testing; and Early Neonatal Outcomes. Recommendations assume that information from all patient visits (e.g., prenatal visits, COVID-19 testing, and delivery) can be collected via medical chart or downloaded data from electronic health records.
Common psychosocial data elements and measures aim to advance our understanding of the psychological, behavioral, and social effects of the virus and the pandemic on pregnant women and their neonates. Here we highlight CDEs and measures across six domains, including: Socioeconomic Status, Housing, and Emergent Financial Strain; Medical Care; Impact on Parenting; Stressful Life Events; Maternal Mental Health; and Health Related Behaviors.
Questions Adapted From: The majority of the recommended CDEs are already in use in ongoing COVID-19 studies, as indicated below and in footnotes throughout.
Biomedical: Adapted from Maternal Fetal Medicine Unit (GRAVID) COVID-19 and Delivery Case Report Forms with additional input from the Study of Pregnancy and Neonatal Health (SPAN) and other ongoing or planned studies.
Psychosocial: The source for each question is provided in the footnotes.
A full list of sources used is as follows:
2020 COVID-19 Household Pulse Survey https://www.census.gov/data/experimental-data-products/household-pulse-survey.html;
All of Us Research Program: COVID-19 Participant Experience Survey (COPE) https://www.nlm.nih.gov/dr2/COPE_Survey_NIH_All_of_Us_Clean_4.27.20.pdf;
Brief Resilient Coping Scale (from MACS-WIHS Baseline COVID-19 Abbreviated Questionnaire) https://www.nlm.nih.gov/dr2/MACS-WIHS_questionnaire_BLCOVID-040620.pdf;
Columbia COVID-19 Questionnaire http://www.columbiamedicine.org/divisions/kiryluk/study_covid19.php;
Coronavirus Health Impact Survey (CRISIS) https://www.nlm.nih.gov/dr2/CRISIS_Parent_Caregiver_Follow_Up_Current_Form_V0.3.pdf;
Coronavirus Perinatal Experiences-Impact Survey (COPE-IS) https://www.nlm.nih.gov/dr2/COPE-Impact_Survey_Perinatal_Pandemic_Survey.pdf;
Environmental Influences on Child Health Outcomes (ECHO) COVID-19 Questionnaire https://www.nlm.nih.gov/dr2/C19-aPV_COVID-19_Questionnaire-Adult_Primary_Version_20200409_v01.30.pdf;
Everyday Discrimination Scale (Short version) https://scholar.harvard.edu/files/davidrwilliams/files/measuring_discrimination_resource_june_2016.pdf;
GAD 7 https://med.dartmouth-hitchcock.org/documents/GAD-7-anxiety-screen.pdf;
Impact of Event Scale-6 https://www.researchgate.net/publication/26250275_Brief_measure_of_posttraumatic_stress_reactions_Impact_of_Event_Scale-6;
Infant Feeding Practices Study II https://www.cdc.gov/breastfeeding/data/ifps/questionnaires.htm;
Intimate Partner Violence ACOG Practice Bulletin https://www.acog.org/clinical/clinical-guidance/committee-opinion/articles/2012/02/intimate-partner-violence ;
JHU Community Response https://www.nlm.nih.gov/dr2/JHU_COVID-19_Community_Response_Survey_v1.3.pdf ;
MACS-WIHS Baseline COVID-19 Abbreviated Questionnaire https://www.nlm.nih.gov/dr2/MACS-WIHS_questionnaire_BLCOVID-040620.pdf;
National Health and Nutrition Examination Survey (NHANES), Demographics Module, 2019-2020 https://wwwn.cdc.gov/nchs/nhanes/continuousnhanes/questionnaires.aspx?BeginYear=2019;
PhenX: Health Reform Monitoring Survey 2015 https://www.phenxtoolkit.org/protocols/view/11502;
PhenX: 6 item standard measure from USDA Economic Research Service https://www.phenxtoolkit.org/protocols/view/270301#tabsource;
PhenX: Edinburgh Postnatal Depression Scale (EPDS) https://www.phenxtoolkit.org/protocols/view/241401;
PhenX: Panel Study of Income Dynamics (PSID), 2007 https://www.phenxtoolkit.org/protocols/view/11301;
PhenX: Pregnancy Risk Assessment Monitoring System (PRAMS) https://www.phenxtoolkit.org/protocols/view/720901;
Pittsburgh Hill / Homewood Research on Neighborhood Change and Health (PHRESH) https://drive.google.com/file/d/1q9DOJGNT7oe_KGMUXFCi73vIu57W3D3O/view;
Postpartum Bonding Questionnaire https://sundspsykologerna.se/files/Brockington-et-al-2006-PBQ-validation-pdf.pdf;
RAND American Life Panel Impact of COVID-19 Survey https://www.phenxtoolkit.org/toolkit_content/PDF/RAND_ALP_COVID19.pdf;
Stanford COVID-19 Community Outcomes (COCO) Survey https://drive.google.com/file/d/1zHnqLG-I8Htl6SdhyFxuJzP_qYRFPgKi/view;
Study of Pregnancy and Neonatal Health (SPAN) https://www.nichd.nih.gov/about/org/diphr/officebranch/eb/SPAN: Attained measures via personal communication
Population: Adult Workers
Adults and Teens
First Responders, Emergency Medical Services (EMS) Personnel, Police/Fire Departments
Military
Pregnant or Lactating Women
Length: There are a total of 121 questions within the tool, 49 of which fall under Biomedical data elements, and 72 of which fall under Psychosocial data elements
Time to Complete: Approximately 20 minutes to complete all questions included in the Psychosocial measure.
Mode of Administration: Face-to-face
Online (e.g., computer-assisted interview)
Pen and Paper
Telephone
Administered by: Lay Interviewer
Professional Interviewer
Self Administered
Specialist/Doctor/Expert
Trained Lay Examiner/Interviewer
Special Considerations: The recommendations herein are not meant to be distributed as one comprehensive questionnaire, but rather represent the recommended measures for collecting information regarding the most important data elements to assess in relation the effects of COVID-19 on pregnant women and their neonates. We encourage researchers to include some or all of these measures into their studies to maximize the potential for data harmonization while continuing to advance their own study goals.
Language(s): English...[See more] [See less]Type: Guideline/Assessment ToolAccess Notes: Free/Publicly Available
"Promoting Data Harmonization to Accelerate COVID-19 Pregnancy Research", February 2021. https://disasterinfo.nlm.nih.gov/content/files/NIHPromotin%20DataHarmonizationAccelerateCOVID19PregnancyResearchBiomedicalPsychosocialBiospecimens_vF.pdf
Available Formats: TEXT
Contact Information: Caroline Signore, NICHD, signorec@mail.nih.gov; Nahida Chakhtoura, NICHD, Nahida.chakhtoura@nih.gov; Jessica Gleason, NICHD, Jessica.gleason@nih.gov; Stephen Gilman, NICHD, Stephen.gilman@nih.govIncludes Research Tools: Yes.ID: 24206. From: Disaster Lit®a database of the U.S. National Library of Medicine. -
Health and Retirement Study: Core Interview COVID-19 Module
Source: University of MichiganDate Published: 9/11/2020Format: PDFAnnotation: As a longitudinal study with rich measurement across a large number of social, health, and economic domains, the Health and Retirement Study (HRS) was designed to capture the impact of unexpected societal events, even without additional measurement specific to the event. To complement these longitudinal measures, HRS has developed several areas of content specifically in response to the coronavirus pandemic designed to dovetail with existing assessment. Information on lifestyle and psychosocial functioning is collected through a self-administered questionnaire (SAQ). Additional questions in the psychosocial SAQ were added to the 2020 wave of data collection. These questions obtain information on lifestyle, personal relationships, work, and feelings in response to the pandemic. These questions cover five subtopics: 1) pandemic-specific concerns related to health, finances, friends and family, and the future; 2) changes in social contact with family and friends, including social support given and received and changes in relationship quality; 3) impact on activities including pandemic-specific behaviors such as wearing a mask, washing hands, social distancing, and using hand sanitizer; 4) additional questions about work status that indicate if the respondent was an essential worker and whether or not they could work at home during the pandemic; and 5) emotional well-being, resilience, and coping during the pandemic.
Population: Adults only
Length: 77 questions
Mode of Administration: Online (e.g., computer-assisted interview)
Administered by: Professional Interviewer
Self Administered
Language(s): English
Health and Retirement Study: Core Interview COVID-19 Module: Full Survey https://www.phenxtoolkit.org/toolkit_content/PDF/UMich_HRS_Module.pdf
Direct Experience of COVID-19: General Symptoms; Diagnosis https://www.phenxtoolkit.org/toolkit_content/PDF/UMich_HRS_Module_Experience.pdf
Health Care Access (general): Health Care https://www.phenxtoolkit.org/toolkit_content/PDF/UMich_HRS_Module_Health_Care.pdf
Economic Impact Payments: Economic Insecurity https://www.phenxtoolkit.org/toolkit_content/PDF/UMich_HRS_Module_Payments.pdf
Work and Business: Employment; Economic Impact https://www.phenxtoolkit.org/toolkit_content/PDF/UMich_HRS_Module_Employment.pdf
Living Arrangements: Housing Security; Home Life https://www.phenxtoolkit.org/toolkit_content/PDF/UMich_HRS_Module_Living_Arrangements.pdf
Caregiving: Community Assistance https://www.phenxtoolkit.org/toolkit_content/PDF/UMich_HRS_Module_Caregiving.pdf...[See more] [See less]Type: Guideline/Assessment ToolAccess Notes: Free/Publicly Available
Web page for questionnaires: https://hrs.isr.umich.edu/data-products/covid-19
Web page for documentation, including a codebook: https://hrs.isr.umich.edu/documentation
2020 HRS COVID-19 Project Data https://hrsdata.isr.umich.edu/data-products/2020-hrs-covid-19-project?_ga=2.149722933.267077146.1615987774-1268362274.1611585873
Available Formats: PDF
Contact Information:
David Weir
Director of Health and Retirement Study
dweir@umich.eduIncludes Research Tools: Yes.ID: 23766. From: Disaster Lit®a database of the U.S. National Library of Medicine. -
Hidden Impact of COVID-19 on Children: A Global Research Series
Source: Save the Children InternationalDate Published: 9/10/2020Format: PDFAnnotation: This global study, with several documents, reveals the hidden impacts of COVID-19 pandemic response measures that are impacting children’s health, nutrition, education, learning, protection, well-being, family finances, and poverty.
Population: Adults and teens (NOTE: it’s ages 11 and up, actually)
Length: approximately 100 questions
Time to Complete: 25 minutes
Mode of Administration: Online (e.g., computer-assisted interview)
Administered by: Parent/Teacher; Self Administered
Language(s): English; Albanian; Amharic; Arabic; Bangla; Burmese; Dari; Filipino/Tagalog; French/ Hindi; Iindonesian; Korean; Khmer; Lao; Mongolian; Mindanao; Nepali; Pashto; Portuguese; Serbian; Sinhala; Spanish; Tamil; Thai; Urdu; Vietnamese
Access The Global Research Series reports, findings, and data: https://resourcecentre.savethechildren.net/library/hidden-impact-covid-19-children-global-research-seriesType: ReportAccess Notes: Free/Publicly Available
Contact: Please contact the research team (attn: Melissa Burgess or Silvia Mila Arlini) at evidence.aro@savethechildren.org with any questionsIncludes Research Tools: Yes.ID: 23693. From: Disaster Lit®a database of the U.S. National Library of Medicine. -
COVID-19: Documenting Challenges Faced by California Families with Children 0-5 Years Old on WIC
Source: University of California, DavisDate Published: 8/2020Format: PDFAnnotation: This is a mixed-method, interviewer-administered tool to (1) identify barriers that WIC (Special Supplemental Nutrition Program for Women, Infants, and Children) participants in California are experiencing in using WIC food benefits (e.g., access to WIC-eligible foods); and (2) identify additional short-term unmet basic needs (e.g., food and housing insecurity, as well as access to unemployment benefits, healthcare, childcare, and social support while required to remain at home) of low-income families during the COVID-19 pandemic.
Questions Adapted From: U.S. Household Food Security Survey Module, USDA ERS: Q43
COVID-19 Community Outcomes (COCO) Needs Assessment, Stanford University: Q1, Q4
The Epidemic Pandemic Impacts Inventory (EPII): Q10a
Patient Health Questionnaire-2 (PHQ-2): Q48
Population: Adults Only
Length: 55 questions
Time to Complete: 30-35 minutes
Mode of Administration: Telephone
Administered by: Professional Interviewer
Language(s): English; Spanish
IRB Application https://disasterinfo.nlm.nih.gov/content/files/WIC_COVID_IRB.pdf
COVID-19 Documenting Challenges Faced by California Families with Children 0-5 Years Old on WIC: Full Questionnaire https://www.phenxtoolkit.org/toolkit_content/PDF/UCANR_WIC.pdf
COVID Impacts: Diagnosis; Overall Impact https://www.phenxtoolkit.org/toolkit_content/PDF/UCANR_WIC_Impacts.pdf
WIC participation and enrollment: Federal Assistance https://www.phenxtoolkit.org/toolkit_content/PDF/UCANR_WIC_Participation.pdf
WIC services: Sources of information about COVID-19 https://www.phenxtoolkit.org/toolkit_content/PDF/UCANR_WIC_Services.pdf
Shopping for WIC foods: Food Security https://www.phenxtoolkit.org/toolkit_content/PDF/UCANR_WIC_Foods.pdf
General food shopping: Food Security; Dietary Intake https://www.phenxtoolkit.org/toolkit_content/PDF/UCANR_WIC_General_Food.pdf
Immigration status: Personal Demographics https://www.phenxtoolkit.org/toolkit_content/PDF/UCANR_WIC_Immigration.pdf
Mental health: General Mental Health https://www.phenxtoolkit.org/toolkit_content/PDF/UCANR_WIC_Mental_Health.pdf
COVID-19 Documenting Challenges Faced by California Families with Children 0-5 Years Old on WIC (Spanish): Full Questionniare https://www.phenxtoolkit.org/toolkit_content/PDF/UCANR_WIC_Spanish.pdf
COVID Impacts (Spanish): Diagnosis; Overall Impact https://www.phenxtoolkit.org/toolkit_content/PDF/UCANR_WIC_Impacts_Spanish.pdf
WIC participation and enrollment (Spanish): Federal Assistance https://www.phenxtoolkit.org/toolkit_content/PDF/UCANR_WIC_Participation_Spanish.pdf
WIC services (Spanish): Sources of information about COVID-19 https://www.phenxtoolkit.org/toolkit_content/PDF/UCANR_WIC_Services_Spanish.pdf
Shopping for WIC foods (Spanish): Food Security https://www.phenxtoolkit.org/toolkit_content/PDF/UCANR_WIC_Foods_Spanish.pdf
General food shopping (Spanish): Food Security; Dietary Intake https://www.phenxtoolkit.org/toolkit_content/PDF/UCANR_WIC_General_Food_Spanish.pdf
Immigration status (Spanish): Personal Demographics https://www.phenxtoolkit.org/toolkit_content/PDF/UCANR_WIC_Immigration_Spanish.pdf
Mental health (Spanish): General Mental Health https://www.phenxtoolkit.org/toolkit_content/PDF/UCANR_WIC_Mental_Health_Spanish.pdf...[See more] [See less]Type: Guideline/Assessment ToolAccess Notes: Free/Publicly Available
Link to Spanish survey: https://www.nlm.nih.gov/dr2/WIC_COVID_Interview_Guide_SPANISH.pdf
Citation(s):
Ritchie, LD & Whaley, SE (2020). COVID-19: Documenting Challenges Faced by California Families with Children 0-5 Years Old on WIC.
Research Brief: Ritchie L, Vital N, Au LE, Gosliner WA, Meza M, Anderson CE, Strochlic R, Plank K, Tsai M, Martinez CE, Olague C, Rios A, Lee DL, Hecht CE, Whaley SE. WIC Especially Critical during the COVID-19 Pandemic: Voices of Participants in Los Angeles County. UC ANR Nutrition Policy Institute. Public Health Foundation Enterprise, Women Infants and Children (WIC). The David and Lucille Packard Foundation. January 2021.
https://ucanr.edu/sites/NewNutritionPolicyInstitute/files/342602.pdf
Available Formats: PDF
Contact Information:
Lorrene Ritchie, PhD, RD
Director and Cooperative Extension Specialist, Nutrition Policy Institute
University of California Division of Agriculture and Natural Resources
Email: lritchie@ucanr.eduIncludes Research Tools: Yes.ID: 23584. From: Disaster Lit®a database of the U.S. National Library of Medicine. -
Vanderbilt Child Health COVID-19 Poll: A National Survey of the Well-being of Parents and Children During COVID-19
Source: Vanderbilt University Medical Center (VUMC)Date Published: 6/5/2020Format: TextAnnotation: The Vanderbilt Child Health COVID-19 Poll was fielded from June 5 to June 10, 2020, using the Ipsos KnowledgePanel, a large online research panel created using probability-based address sampling of U.S. households. Households without internet at the time of recruitment were provided with an internet-enabled tablet. Participants in KnowledgePanel receive nominal periodic incentives to participate. For this survey, we included parents in KnowledgePanel with at least one child in the household younger than 18 years old. Eligible participants were randomly selected from the standing panel, sent an email notification, and sent a subsequent reminder three days later. This survey had a 50% completion rate, with a total of 1,011 responses. Survey weights were designed to provide national estimates of parents with children less than 18 years of age, accounting for differential nonresponse. Benchmarks for survey weighting were obtained from the 2019 March Supplement of the Current Population Survey for all variables, except for language proficiency, which was obtained from the 2018 American Community Survey.
Questions Adapted From: Questions on food security (Q1, Q4), enrollment in food assistance programs (Q2, Q5), and health insurance (Q3, Q6) were adapted from the National Survey of Children's Health.
Population: Adults Only
Length: 14 questions
Time to Complete: 10 minutes
Mode of Administration: Online (e.g., computer-assisted interview)
Administered by: Self Administered
Special Considerations: Households without internet at the time of recruitment were provided with an internet-enabled tablet.
Language(s): English
Vanderbilt Child Health COVID-19 Poll: A National Survey of the Wellbeing of Parents and Children During COVID-19: Economic Insecurity; Health Care; Overall Impact https://www.phenxtoolkit.org/toolkit_content/PDF/Vanderbilt_Child_Health_COVID19.pdfType: Guideline/Assessment ToolAccess Notes: Free/Publicly Available
Citation:
Well-being of Parents and Children During the COVID-19 Pandemic: A National Survey
Stephen W. Patrick, Laura E. Henkhaus, Joseph S. Zickafoose, Kim Lovell, Alese Halvorson, Sarah Loch, Mia Letterie, Matthew M. Davis
Pediatrics Jul 2020, e2020016824; DOI: 10.1542/peds.2020-016824. https://pediatrics.aappublications.org/content/146/4/e2020016824?cct=2287
Available Formats: Text
Contact Information:
Stephen Patrick, MD, MPH, MS
Director, Vanderbilt Center for Child Health Policy
Vanderbilt University Medical Center
Stephen.patrick@vumc.org
Survey conducted by:
Ipsos
Global Market Research and Public Opinion Specialist
https://www.ipsos.com/enIncludes Research Tools: Yes.ID: 23255. From: Disaster Lit®a database of the U.S. National Library of Medicine. -
Costs and Socioeconomic Consequences of Self-isolation and Quarantine for COVID-19 on Vulnerable Populations
Source: University of California, San Francisco (UCSF)Date Published: 6/5/2020Format: PDFAnnotation: This is a self-report, administered questionnaire collected via REDCap (Research Electronic Data Capture system) to assess the costs and socioeconomic consequences of non-pharmaceutical public health interventions to mitigate community transmission of COVID-19 such as stay-at-home/shelter-in-place, self-isolation, and quarantine on high-risk populations (primarily those who are low-income, non-U.S. born, or for whom English is a second language).
This survey is to be administered to all participants who have not had symptoms consistent with COVID-19. This includes participants who may have been quarantined due to being in contact with a person with confirmed COVID-19, but they themselves do not or have not had the disease. Questions and answers of this section should reflect ALL costs related to social distancing, quarantine, and shelter-in-place orders, including lost income, housing instability, and food insecurity. All of the questions are referring to the time period of the shelter-in-place order during which all individuals are asked to stay at home except for those who are considered essential workers or to do essential activities like grocery shopping or accessing health services from March 19 to May 31, 2020.
Population: Adult Workers
Adults Only
Length: Approximately 30 questions
Time to Complete: 20 minutes
Mode of Administration: Face-to-face
Telephone
Administered by: Trained Lay Examiner/Interviewer
Language(s): English, Spanish, Mandarin, Cantonese
Costs and Socioeconomic Consequences of Self-isolation and Quarantine for COVID-19 on Vulnerable Populations: Full Questionnaire https://www.phenxtoolkit.org/toolkit_content/PDF/UCSF_Shelter_In_Place.pdf
Costs Associated with Social Distancing, Quarantine, and “Shelter-in-Place” Orders: Economic Insecurity; Economic Impact https://www.phenxtoolkit.org/toolkit_content/PDF/UCSF_Shelter_In_Place_Costs.pdf
Income Changes because of Social Distancing, Quarantine, or Shelter-in-Place Orders: Economic Impact https://www.phenxtoolkit.org/toolkit_content/PDF/UCSF_Shelter_In_Place_Income.pdf
Accommodations for Employment: Economic Insecurity; Employment https://www.phenxtoolkit.org/toolkit_content/PDF/UCSF_Shelter_In_Place_Accomodations.pdf
Changes in Food Security: Food Security https://www.phenxtoolkit.org/toolkit_content/PDF/UCSF_Shelter_In_Place_Food_Security.pdf...[See more] [See less]Type: Guideline/Assessment ToolAccess Notes: Permission/Request required
Available Formats: PDF
Contact Information:
Neeta Thakur, MD MPH and Priya B. Shete, MD MPH
Division of Pulmonary and Critical Care Medicine
University of California, San Francisco, and San Francisco General Hospital
Email: neeta.thakur@ucsf.edu or priya.shete@ucsf.eduIncludes Research Tools: Yes.ID: 23630. From: Disaster Lit®a database of the U.S. National Library of Medicine.REDCap: Yes. -
Determining Economic Burden Related to COVID-19 and COVID-19-like symptoms: COVID-19 Cost Survey
Source: University of California, San Francisco (UCSF)Date Published: 6/5/2020Format: PDFAnnotation: This is a self-report, administered questionnaire collected via REDCap (Research Electronic Data Capture system) to assess the costs and socioeconomic consequences of having COVID-19 or COVID-19 like symptoms.
Population: Adults Only
Length: Approximately 30 questions
Time to Complete: 20 minutes
Mode of Administration: Face-to-face
Telephone
Administered by: Trained Lay Examiner/Interviewer
Language(s): English, Spanish, Mandarin, Cantonese
Determining Economic Burden related to COVID-19 and COVID-19-like symptoms: Full Questionnaire https://www.phenxtoolkit.org/toolkit_content/PDF/UCSF_COST.pdf
Costs associated with care-seeking for COVID19 related symptoms and COVID19 diagnosis: Economic Impact; Health Care https://www.phenxtoolkit.org/toolkit_content/PDF/UCSF_COST_Costs.pdf
Income Changes: Employment; Economic Insecurity https://www.phenxtoolkit.org/toolkit_content/PDF/UCSF_COST_Income.pdf...[See more] [See less]Type: Guideline/Assessment ToolAccess Notes: Free/Publicly Available
Available Formats: PDF
Contact Information:
Neeta Thakur, MD MPH and Priya B. Shete, MD MPH
Division of Pulmonary and Critical Care Medicine
University of California, San Francisco, and San Francisco General Hospital
Email: neeta.thakur@ucsf.edu or priya.shete@ucsf.eduIncludes Research Tools: Yes.ID: 23631. From: Disaster Lit®a database of the U.S. National Library of Medicine.REDCap: Yes. -
TILDA COVID-19 Self-Completion Questionnaire
Source: Trinity College DublinDate Published: 6/2020Format: PDFAnnotation: This Self-Completion Questionnaire (SCQ) was developed to collect information from participants of The Irish Longitudinal Study on Ageing (TILDA) on the experiences of community-dwelling older adults aged 58 years and older during the COVID-19 pandemic in the Republic Of Ireland. TILDA is a longitudinal cohort studies of community-dwelling older adults that began in 2009. A full description of TILDA and its program of research to date can be accessed at https://tilda.tcd.ie/. The survey was administered in June 2020 and data collection will conclude in September 2020.
Questions Adapted From: The questionnaire includes items used in earlier rounds of TILDA and as such are largely harmonized with other aging cohort studies in the Health and Retirement Study (HRS) family of studies that include the English Longitudinal Study of Ageing (ELSA) and the Survey of Health, Ageing and Retirement in Europe (SHARE).
Population: Adults only
Length: 81 questions
Time to Complete: 30 to 40 minutes
Mode of Administration: Pen and Paper
Administered by: Self Administered
Language(s): English
The Irish Longitudinal Study on Ageing (TILDA) COVID-19 Self-Completion Questionnaire: Full Questionnaire https://www.phenxtoolkit.org/toolkit_content/PDF/TCD_TILDA.pdf
Activities During Covid-19: Home Life; Social Distancing https://www.phenxtoolkit.org/toolkit_content/PDF/TCD_TILDA_Activities.pdf
Health Behaviors: Social Impact; Substance Use; Physical Activity https://www.phenxtoolkit.org/toolkit_content/PDF/TCD_TILDA_Health_Behaviors.pdf
Mental Health: General Mental Health https://www.phenxtoolkit.org/toolkit_content/PDF/TCD_TILDA_Mental_Health.pdf
Work: Employment; Economic Impact https://www.phenxtoolkit.org/toolkit_content/PDF/TCD_TILDA_Work.pdf
State Assistance and Care Giving: Federal Assistance; Home Lifehttps://www.phenxtoolkit.org/toolkit_content/PDF/TCD_TILDA_State_Assistance.pdf
Health Care: Health Care https://www.phenxtoolkit.org/toolkit_content/PDF/TCD_TILDA_Health_Care.pdf
Media: Media Use; Sources of information about COVID-19 https://www.phenxtoolkit.org/toolkit_content/PDF/TCD_TILDA_Media.pdf
Age Discrimination: Attitudes https://www.phenxtoolkit.org/toolkit_content/PDF/TCD_TILDA_Age_Discrimination.pdf
COVID-19 Impact: General Symptoms; Diagnosis https://www.phenxtoolkit.org/toolkit_content/PDF/TCD_TILDA_COVID19_Impact.pdf
General Impact: Overall Impact https://www.phenxtoolkit.org/toolkit_content/PDF/TCD_TILDA_General_Impact.pdf...[See more] [See less]Type: Guideline/Assessment ToolAccess Notes: Free/Publicly Available
Available Formats: PDF
Contact Information:
Dr. Mark Ward
The Irish Longitudinal Study on Ageing (TILDA)
Trinity Central
152-160 Pearse Street A
Trinity College Dublin, the University of Dublin
Dublin 2, D02 R590, Ireland
Email: wardm8@tcd.ieIncludes Research Tools: Yes.ID: 23665. From: Disaster Lit®a database of the U.S. National Library of Medicine. -
Telling Our Stories in the Age of COVID-19
Source: Cornell UniversityDate Published: 5/6/2020Format: PDFAnnotation: Overarching Goal: This study is intended to better understand the day-to-day impact of the novel coronavirus on the lives of the global public. Using regular journal entries along with several open- and close-ended questions specific to the impact of COVID-19, we aim to understand personal experiences of the global pandemic as it occurs in real time. We are specifically interested in situational changes, COVID-19 exposure and experience, COVID-19-related concerns, daily mood changes, and perceived impact, mental health impact, and use of social media.
Study Population: As of May 6, 2020, participants represent 29 countries and 35 states within the United States. At the current time, respondent age range is 18-82 (mean = 44.8) and largely female (89.29%; 9.2% male). There is considerable variation in where people are living (this was check all that apply): 38% are with a spouse/partner, 18% with children <18, 10.2% with adult children, 10.7% with parents, 4.9% with roommates, and the rest in variations on this basic arrangement. Neither socioeconomic status (SES) nor race/ethnicity data was collected.
Study Design: All participants have been recruited using principal investigator networks, organizational partner (Cornell University and Jed Foundation) publicity, and paid advertisements on Facebook in a number of regions around the world and within the United States. Participants enter the study through an online portal (https://www.covid-stories.com/) and are sent an initial survey where living context data are gathered. After signing up, participants receive a daily link to a short survey that assesses change since previous participation in a right of domains. Twice a week, respondents are sent a slightly modified version of the daily survey to assess mental health impact and social media use.
Population: Adults only
Length: 34 questions
Administered by: Self Administered/Self Report
Language(s): English
Supporting material:
Aims, protocol and sample descriptives https://disasterinfo.nlm.nih.gov/content/files/Aims_protocol_sample.docx
Codebook https://disasterinfo.nlm.nih.gov/content/files/Codebook.xlsx
Consent form https://disasterinfo.nlm.nih.gov/content/files/Autoethnography%20_Consent_Form.docx
Daily Journal https://disasterinfo.nlm.nih.gov/content/files/Daily_Journal.docx
Weekly Journal https://disasterinfo.nlm.nih.gov/content/files/Weekly_Journal.docx
Initial Storytelling Journal Entry https://disasterinfo.nlm.nih.gov/content/files/Initial_Covid-19_Storytelling_Journal_Entry.docx
Art Entry https://disasterinfo.nlm.nih.gov/content/files/COVID-19_Art_Entry.docx
PHENX links:
Telling our stories in the age of COVID-19 (TOSC): Full Questionnaire https://www.phenxtoolkit.org/toolkit_content/PDF/Telling_our_stories_in_the_age_of_COVID-19.pdf
COVID-19 Situational and Contextual Factors: Employment; Demographics https://www.phenxtoolkit.org/toolkit_content/PDF/CU_TOSC_Situational.pdf
COVID-19 Regional Restriction Status: Government Response https://www.phenxtoolkit.org/toolkit_content/PDF/CU_TOSC_Restrictions.pdf
COVID-19 Concerns About Health, Finances, and Overall Impact: Health Care; Economic Insecurity https://www.phenxtoolkit.org/toolkit_content/PDF/CU_TOSC_Concerns.pdf
COVID-19 Health Status: Status; Diagnosis https://www.phenxtoolkit.org/toolkit_content/PDF/CU_TOSC_Health_Status.docx.pdf
COVID-19 Impact: Overall Impact https://www.phenxtoolkit.org/toolkit_content/PDF/CU_TOSC_Impact.pdf...[See more] [See less]Type: Guideline/Assessment ToolAccess Notes: Available Formats: PDF
Free/Publicly Available
NOTE: The document at the provided URL includes specific survey domains and measures that are a compendium of all items used across the three surveys (the initial survey, the daily survey, and the twice-a-week survey). Non-COVID-19 specific measures appear at the bottom of the measure list.
Link to Study Website: https://www.covid-stories.com/
Contact information: Janis Whitlock, MPH, PhD, Cornell University: Jlw43@cornell.eduIncludes Research Tools: Yes.ID: 22127. From: Disaster Lit®a database of the U.S. National Library of Medicine.
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