Annotation:The COVID-19 Experiences (COVEX) questionnaire was developed by investigators from the Division of Child and Adolescent Psychiatry at Columbia University/New York State Psychiatric Institute for use in our ongoing and new research studies and by affiliated clinical settings to document the experiences of research participants and patients in the time of the COVID-19 pandemic. COVEX can be administered either as an interview or as a self-report measure. It is being translated in other languages.
Section 1: COVID-19 Symptoms & Diagnoses Section 2: Vulnerability to COVID and Direct Exposure Section 3: Living Situation Section 4: Employment/School Changes Section 5: Worries, Mental Health Changes Section 6: Problems and Support during COVID-19 outbreak Section 7: Coping Section 8: Pregnancy-Related Questions (optional) Section 9: Media Use
Questions Adapted From: The following measures were adapted for the development of this survey:
* Harkness, A. (2020). The Pandemic Stress Index. University of Miami.
o Section 5 (7a, 7b, 7c, 7j)
o Section 6 (2, 3)
* Kroenke, K. & Spitzer, R.L. (2002). The PHQ-9: A new depression and diagnostic severity measure.
o Section 5 (1a-1i, 4a-4i)
* Kroenke K, Spitzer RL, Williams JB, Monaha PO, Lowe B. Anxiety disorders in primary care: prevalence, impairment, comorbidity, and detection. Ann Intern Med. 2007;146:317-25.
o Section 5 (1j, 1k, 4j, 4k)
* [KFF Coronavirus Poll (conducted March 11-15, 2020)], (KFF, [March 17, 2020]), (http://files.kff.org/attachment/Topline-KFF-Coronavirus-Poll.pdf, accessed March 31, 2020)]
o Section 5 (8, 9)
* Featherstone, J. D., Bell, R. A., & Ruiz, J. B. (2019). Relationship of people's sources of health information and political ideology with acceptance of conspiratorial beliefs about vaccines. Vaccine, 37(23), 2993-2997.
o Section 9 (4)
Population: Adult Workers
Adults and Teens
Adults Only
Children/Teens Only
High Risk/Special/Unique Populations
Pregnant or Lactating Women
Residential/Workplace Length: ~189 questions Time to Complete: 30 minutes (interview format) Mode of Administration: Face-to-face
Online (e.g., computer-assisted interview)
Pen and Paper
Telephone Administered by: Lay Interviewer
Self Administered Language(s): English, Spanish, Portuguese
Contacts:
Lead Tool Developers Contact Information:
Dr. Prudence Fisher (prudence.fisher@nyspi.columbia.edu)
Dr. Cristiane Duarte (cristiane.duarte@nyspi.columbia.edu)
New York State Psychiatric Institute & Columbia University Irving Medical Center
Annotation:This four-page technical documentation report describes a survey fielded through the RAND American Life Panel (ALP) to assess the effects of the coronavirus disease 2019 pandemic on individuals and households across a variety of topics. This report provides a technical description of the survey, including a description of the ALP, the objectives of the survey, and information about the fielding of the survey.
The ALP is a nationally representative internet panel that has been recruited almost entirely through random digit dialing. To ensure that the panel is representative, respondents who do not have access to the internet are provided with a netbook computer and an internet subscription free of cost. This allows the flexibility and lower cost of an internet panel while still representing the segment of the population that does not have internet access. Panel members are invited to participate in online surveys once or twice per month on average. They are compensated financially for each survey to increase response rates and representativeness. The ALP began in 2006; since then, almost 550 surveys have been fielded on a variety of topics, including financial decision-making, health behaviors, retirement decision-making, numeracy, long-term care use, elections, and subjective well-being.
Three times per year, all panel members are asked to complete a survey that contains demographic information and questions about their employment status, household composition, health status, well-being, and health insurance. The responses to these questions are automatically added to all data collected in the panel, saving time and reducing respondent burden. Additional information on the technical aspects of the ALP is provided in Pollard and Baird (2017)." Questions Adapted From: Several questions were taken or adapted from prior surveys; details are provided in the technical survey documentation available at https://www.rand.org/pubs/research_reports/RRA308-1.html Population: Adults only Length: 64 questions (for some questions, respondents are presented with a table and asked to choose a response for each item in the table. Each table is counted as one question) Time to Complete: 20 minutes Mode of Administration: Online (e.g., computer-assisted interview) Administered by: Self Administered Language(s): English
Citations: Carman, Katherine Grace and Shanthi Nataraj, 2020 American Life Panel Survey on Impacts of COVID-19: Technical Documentation, Santa Monica, Calif.: RAND Corporation, 2020. https://www.rand.org/pubs/research_reports/RRA308-1.html
Annotation:The CHPS is a longitudinal survey of all licensed health professionals in New York state. The research focuses on how the pandemic has affected the personal and professional lives of the state's healthcare providers, as well as identifying interventions which may help mitigate it effects. This survey instrument represents the project's baseline assessment effort. The domains of interest include social and professional demographic questions, including health care specialization and practice areas; exposure to COVID-19; availability and access to personal protective equipment related to COVID-19 exposures; reluctance to treat COVID-19 patients; mental health impacts of COVID-19; and allocation of scarce resources and triage decision-making.
Population: Adult Workers Length: 100 items Time to Complete: Approximately 20 minutes Mode of Administration: Online (e.g., computer-assisted interview) Administered by: Self Administered Language(s): English...[See more] [See less]
Citation(s):
COVID-19 Health Care Personnel Study Baseline Survey (2020). Guohua Li, David Abramson, Charles DiMaggio, Christina Hoven, Ezra Susser, and Howard Andrews
Available Formats: PDF
Contact Information: Dr. Guohua Li, MD DrPH, Columbia University Department of Epidemiology Email: gl2240@cumc.columbia.edu
Dr. Charles DiMaggio, PhD MPH, NYU Grossman School of Medicine Email: Charles.DiMaggio@nyumc.org
Dr. David Abramson, PhD MPH, NYU School of Global Public Health Email: david.abramson@nyu.edu
Includes Research Tools:
Yes.
ID:24218. From: Disaster Lit®a database of the U.S. National Library of Medicine.
Source:
Johns Hopkins University, Bloomberg School of Public Health
Date Published:
4/25/2020
Format:
PDF
Annotation:The goal of this toolkit is to provide a set of standardized quantitative and qualitative assessments to harmonize data collection efforts and facilitate comparisons of the impact of the novel coronavirus (COVID-19), and promote collaborations across research efforts. This is intended to be a dynamic resource that will evolve as the epidemic does. These modules were created with a broad sample in mind. The goal was to develop a set of modules that could be applied to multiple populations with some minor tweaks. They can be used cross-sectionally or longitudinally and are designed for a newly selected sample (e.g., include information on basic demographics). The survey asks questions about possible exposure to the virus, experiences with testing and treatment, and some questions about how life has changed as a result of COVID-19 and the preventive measures that have been put in place.
Population: Adults only Length: 148 items Time to Complete: 20-30 minutes Administered by: Trained Lay Examiner/Interviewer Language(s): English
Access Notes:
Available Formats: PDF
Free/Publicly Available
Contact Information: Shruti Mehta, PhD, MPH, Professor and Deputy Chair Department of Epidemiology, Johns Hopkins Bloomberg School of Public Health: smehta@jhu.edu
Includes Research Tools:
Yes.
ID:22096. From: Disaster Lit®a database of the U.S. National Library of Medicine.
Annotation:The authors of this eleven-page document developed, factor-analyzed, and validated these questionnaires across three COVID-19 studies. Participants were recruited via Amazon’s Mechanical Turk (a common recruitment tool in the social sciences). They were from the United States and came from every region of the U.S. in numbers proportional to the populations in those regions. Newly-selected participants completed the survey once online in a cross-sectional design. The sample had typical Mechanical Turk characteristics for age (range = 20 to 76, mean age = 41), gender (48% female), and race/ethnicity (largest groups were White/European-American = 78%, Asian = 9%, and Black/African-American = 7%). The method they followed was to use Exploratory Factor Analyses in Study 1, then use Confirmatory Factor Analyses in Studies 2 and 3 to hone the questionnaires. They further validated the questionnaires by showing they had expected correlations with other important variables (e.g., political ideology). This work offers researchers a battery of social psychological questionnaires to measure coronavirus-related phenomena for the duration of the pandemic in U.S. participants.
The collection tool includes a sample consent form, research protocol, instruction manual, preliminary testing and pilot data, results, as wells as the Survey/Questionnaire.
Citation: Conway, L. G., III, Woodard, S. R., & Zubrod, A. (2020, April 7). Social Psychological Measurements of COVID-19: Coronavirus Perceived Threat, Government Response, Impacts, and Experiences Questionnaires. Direct Access: https://psyarxiv.com/z2x9a/.
Contact Information: Access to these scales on Qualtrics can be obtained by e-mailing Dr. Lucian Gideon Conway, III (University of Montana) at luke.conway@umontana.edu.
Includes Research Tools:
Yes.
ID:21726. From: Disaster Lit®a database of the U.S. National Library of Medicine.
Annotation:The Patient Experience Research Centre (PERC) at Imperial College London is developing research to explore and understand people’s views about, experiences of, and behavioral response to the COVID-19 outbreak in the United Kingdom and elsewhere. To guide that effort and to help inform COVID-19 research and responses more broadly, PERC launched an online community involvement initiative detailed in this 31-page report that sought rapid, early insight from members of the public and aimed to establish a network for ongoing community engagement.
Annotation:This web page details the results of the latest Kaiser Family Foundation Health Tracking poll, conducted March 25-30, 2020, which found that as many cities and states were issuing public health guidance requiring social distancing or shelter-in-place measures, seven in 10 Americans (72 percent) said their lives have been disrupted “a lot” or “some” by the coronavirus (COVID-19) outbreak. The vast majority of the public say U.S. policy should be prioritizing the slowing down of the spread of the coronavirus rather than the U.S. economy.
Annotation:The National Institutes of Health (NIH) Environmental influences on Child Health Outcomes (ECHO) COVID-19 Task Force led the development of the ECHO COVID-19 questionnaires. The Task Force, co-chaired by ECHO investigators Tracy Bastain, PhD, and Carrie Breton, PhD, of the Keck School of Medicine at the University of Southern California, and comprised of 21 additional cohort investigators, as well as representatives from the ECHO NIH Program Office, Coordinating Center (CC), Data Analysis Center (DAC), and Person-Reported Outcome (PRO) Core, developed questionnaires for pregnant women and caregivers, children ages 0 to 12 years old (via parent report), and adolescents ages 13 years and older (via self-report). The purpose of these questionnaires is to assess the impact of being infected with and living during the time of the COVID-19 outbreak. Questionnaire content includes original items developed by the Task Force, as well as modified items from existing surveys and source materials listed in the access notes.
Source:
University of California, San Francisco (UCSF)
Date Published:
3/25/2020
Format:
PDF
Annotation:This is a self-report, administered questionnaire collected via REDCap (Research Electronic Data Capture system) to assess experiences with non-pharmaceutical public health interventions to mitigate community transmission of COVID-19 such as stay-at-home/shelter-in-place, self-isolation, and quarantine on high-risk populations (primarily those who are low-income, non-U.S. born, or for whom English is a second language). The questionnaire covers several key domains, including 1) Demographics; 2) Health Literacy; 3) Perceived Stress for the individual and household; 4) Health Risk Belief; 5) Access to healthcare, including telehealth; 6) Barriers to self-isolation; 7) Changes in socioeconomic status; and 8) Unmet social needs. Special attention is paid to determinants rooted in education, income, safety, food security, and housing.
Population: Adults Only Length: Eight sections, approximately 100 questions Time to Complete: 45 minutes Mode of Administration: Face-to-face
Telephone Administered by: Trained Lay Examiner/Interviewer Language(s): English, Spanish, Mandarin, Cantonese
Contact Information:
Neeta Thakur, MD MPH and Priya B. Shete, MD MPH
Division of Pulmonary and Critical Care Medicine
University of California, San Francisco, and San Francisco General Hospital
Email: neeta.thakur@ucsf.edu or priya.shete@ucsf.edu
Includes Research Tools:
Yes.
ID:23633. From: Disaster Lit®a database of the U.S. National Library of Medicine.
Source:
Montreal Behavioural Medicine Centre (MBMC)
Date Published:
3/24/2020
Format:
Text
Annotation:This 11-page survey is for a study to explore the global awareness, attitudes, and adoption of recommended (and in some cases mandated) preventive measures and behaviors to slow the spread of the COVID-19 virus. The survey information will be provided to health authorities so that they can adapt the dissemination and implementation of future prevention measures to optimize public health interventions in an effort to reduce the global burden of COVID-19. See more details about the research: https://mbmc-cmcm.ca/covid19/research/
Population: All/Anyone Length: 43 questions Time to Complete: 20 minutes Administered by: Self Administered/Self Report Languages: English, multiple languages https://mbmc-cmcm.ca/covid19/
The iCARES Collaborator Documents webpage provides access to data dictionaries, methodology paper, timelines, Survey Waves, and more. https://osf.io/nswcm/
Free/Publicly Available
Contact Information: covid19study@mbmc-cmcm.ca; Montreal Behavioural Medicine Centre, Dr. Kim Lavoie at kim.lavoie@mbmc-cmcm.ca; Dr. Simon Bacon at simon.bacon@mbmc-cmcm.ca
Includes Research Tools:
Yes.
ID:21680. From: Disaster Lit®a database of the U.S. National Library of Medicine.
