Source:
Academic Network for Sexual and Reproductive Health and Rights Policy [Ghent University] (ANSER)
Date Published:
6/2020
Format:
Text
Annotation:I-SHARE is a cross-sectional, multi-country study on sexual and reproductive health well-being in the time of the COVID-19 crisis. The survey instrument is online-based, administered by local organizations in participating countries (34 countries to date), and designed to assess the impact of social distancing measures on sexual risk behaviors, intimate partner violence, and access to essential reproductive health services. The data collected from the survey are divided into the following sections: socio-demographics, compliance with social-distancing measures, couple and family relationships, sexual behavior, access to contraceptives, access to reproductive health services, abortion, sexual and gender-based violence, female genital mutation/cutting and early/forced marriage (optional), HIV/STI, mental health (optional), and nutrition (optional). The survey is for individuals 18 years or older, with some sections specifically for women.
Population: Adults Only Length: 13 sections, 152 questions Time to Complete: 15-20 minutes Mode of Administration: Online (e.g., computer-assisted interview) Administered by: Self Administered Language(s): English, Italian, Portuguese, Arabic, Latvian, Russian, German, Spanish, Bahasa Melayu, Czech, Danish, French, Khmer, Swedish; find over 35 translations of the survey: https://www.dropbox.com/sh/m2r9vpwv2g6asqb/AAAcMwakH2Xi512iEaKJJtR0a?dl=0)
Citations:
Hlatshwako TG, Shah SJ, Kosana P, Adebayo E, Hendriks J, Larsson EC, Hensel DJ, Erausquin JT, Marks M, Michielsen K, Saltis H, Francis JM, Wouters E, Tucker JD. Online health survey research during COVID-19. Lancet Digit Health. 2021 Feb;3(2):e76-e77. doi: 10.1016/S2589-7500(21)00002-9. PMID: 33509387. https://pubmed.ncbi.nlm.nih.gov/33509387/
Michielsen K, Larrson EC, Kågesten A, Erausquin JT, Griffin S, Van de Velde S, Tucker JD; I-SHARE Team. International Sexual Health And REproductive health (I-SHARE) survey during COVID-19: study protocol for online national surveys and global comparative analyses. Sex Transm Infect. 2021 Mar;97(2):88-92. doi: 10.1136/sextrans-2020-054664. Epub 2020 Oct 20. PMID: 33082232. https://pubmed.ncbi.nlm.nih.gov/33082232/
Contact Information:
Kristien Michielsen
Ghent University
Academic Network for Sexual and Reproductive Health and Rights Policy (ANSER)
Email: kristien.michielsen@ugent.be
Joseph D. Tucker
University of North Carolina at Chapel Hill
London School of Hygiene and Tropical Medicine (LSHTM)
Email: jdtucker@med.unc.edu
Includes Research Tools:
Yes.
ID:23308. From: Disaster Lit®a database of the U.S. National Library of Medicine.
Source:
Academic Network for Sexual and Reproductive Health and Rights Policy [Ghent University] (ANSER)
Date Published:
6/2020
Format:
PDF
Annotation:COVID-19 may have a profound impact on sexual behaviors, reproductive health, and social life across the world. Shelter-in-place regulations that have extended across the globe may influence condomless sex, exacerbate intimate partner violence, and reduce access to essential reproductive health services. Population-representative research is challenging during shelter-in-place, leaving major gaps in our understanding of sexual and reproductive health during COVID-19. This International Sexual Health And REproductive (I-SHARE) study protocol manuscript describes a common plan for online national surveys and global comparative analyses.
Methods: The purpose of this cross-sectional study is to better understand sexual and reproductive health in selected countries during COVID-19 and facilitate multi-national comparisons. Participants will be recruited in selected countries through an online survey. The survey link will be disseminated through local, regional, and national networks. In each country, a lead organization will be responsible for organizing ethical review, translation, and survey administration. The consortium network provides support for national studies, coordination, and multi-national comparison. We will use multi-level modeling to determine the relationship between COVID-19 and condomless sex, gender-based violence, access to reproductive health services, HIV testing, and other key items. This study protocol defines primary outcomes, pre-specified subanalyses, and analysis plans.
The I-SHARE study examines sexual and reproductive health at the national and global level. We will use multi-level modeling to examine country-level variables associated with outcomes of interest. This will provide a foundation for subsequent online multi-country comparison using more robust sampling methodologies.
Contact Information:
Kristien Michielsen
Ghent University
Academic Network for Sexual and Reproductive Health and Rights Policy (ANSER)
Email: kristien.michielsen@ugent.be
Joseph D. Tucker
University of North Carolina at Chapel Hill
London School of Hygiene and Tropical Medicine (LSHTM)
Email: jdtucker@med.unc.edu
Includes Research Tools:
Yes.
ID:23309. From: Disaster Lit®a database of the U.S. National Library of Medicine.
Annotation:This Self-Completion Questionnaire (SCQ) was developed to collect information from participants of The Irish Longitudinal Study on Ageing (TILDA) on the experiences of community-dwelling older adults aged 58 years and older during the COVID-19 pandemic in the Republic Of Ireland. TILDA is a longitudinal cohort studies of community-dwelling older adults that began in 2009. A full description of TILDA and its program of research to date can be accessed at https://tilda.tcd.ie/. The survey was administered in June 2020 and data collection will conclude in September 2020.
Questions Adapted From: The questionnaire includes items used in earlier rounds of TILDA and as such are largely harmonized with other aging cohort studies in the Health and Retirement Study (HRS) family of studies that include the English Longitudinal Study of Ageing (ELSA) and the Survey of Health, Ageing and Retirement in Europe (SHARE). Population: Adults only Length: 81 questions Time to Complete: 30 to 40 minutes Mode of Administration: Pen and Paper Administered by: Self Administered Language(s): English
Contact Information:
Dr. Mark Ward
The Irish Longitudinal Study on Ageing (TILDA)
Trinity Central
152-160 Pearse Street A
Trinity College Dublin, the University of Dublin
Dublin 2, D02 R590, Ireland
Email: wardm8@tcd.ie
Includes Research Tools:
Yes.
ID:23665. From: Disaster Lit®a database of the U.S. National Library of Medicine.
Annotation:
This 7-item self-report instrument is intended for individuals who are participating in ongoing clinical research during the coronavirus pandemic. It was developed to quantify changes in psychosocial, functional, and financial factors that may influence clinical research participation and clinical research study outcomes. The domains measured include: (1.) Access to Healthcare, (2.) Social Support, (3.) Finances, (4.) Ability to Meet Basic Needs, (5.) Mental and Emotional Health as well as a participant (subjective) experience of personal and family exposure to coronavirus. It was designed to quickly assess, in a minimally-burdensome manner, the positive and negative aspects of the pandemic on multiple mediating factors that may impact study outcomes.
This instrument has a 3-month look back which can be adjusted to fit the study design. The tool is intended to be delivered at multiple time points (baseline and follow-up) to measure changes over time.
This instrument was developed by researchers for the Pain Management Collaboratory (PMC) which involves 11 pragmatic trials studying non-pharmacological approaches to pain management (e.g. physical therapy, chiropractic care, meditation) in military personnel and veterans; however, this instrument was written broadly enough to be used with any adult population involved in clinical research.
Questions Adapted From: The Phenotype and Outcome Work Group, within the Pain Management Collaboratory Coordinating Center (PMC3), is comprised of representatives from 11 pragmatic pain trials. The PMC3 collected COVID-related questionnaires from public sources, published instruments, and investigators within the Collaboratory. The Work Group members then met to review the resources compiled by PMC3, identified the key domains of interest, selected a question/response structure proposed for use by three PMC trial groups, revised the language within each question item until a consensus was obtained, and drafted the final instrument. This instrument has been approved by the Steering Committee for harmonized use of across PMC trials. Population: Adults Only Length: 7 items Time to Complete: <5 minutes Mode of Administration: Online (e.g., computer-assisted interview); Pen and Paper; Telephone Administered by: Self Administered Language(s): English
Annotation:In order to increase physical activity and reduce chronic stress on a population level, researchers and city planners are exploring features of the built environment, including access to urban green space that may promote healthy lifestyles. Parks serve as places to engage in physical activity (PA) in direct contact with nature -- called "green exercise" -- which has been shown to lower perceived stress and risk of chronic disease. In addition, research indicates that passive exposure to green space (e.g., visual, as in the sight of plants and trees, and auditory, as in birdsong) may lower stress. However, many adults may experience barriers to getting outdoors, visiting parks, and engaging in PA during COVID-19 lockdowns, particularly people with compromised immune systems like those living with cancer. Exploring both how and why physical activity and outdoor behaviors have changed can help us to further understand the decision-making process and potential interventions that will benefit the health and well-being of breast cancer patients.
Questions Adapted From: Questions about usage of outdoor spaces were both novel and adapted from University of Minnesota and Kansas State University surveys on outdoor activities during COVID-19. Perceived stress scale from Cohen (Cohen, S., T. Kamarck, and R. Mermelstein, A global measure of perceived stress. Journal of Health and Social Behavior, 1983. 24: p. 385-396). Quality of life questions from PROMIS (Hays, R.D., et al., Development of physical and mental health summary scores from the patient-reported outcomes measurement information system (PROMIS) global items. Quality of life research: an international journal of quality of life aspects of treatment, care and rehabilitation, 2009. 18(7): p. 873-880). Symptom experience from Cleeland (Cleeland, C.S., Symptom burden: multiple symptoms and their impact as patient-reported outcomes. J Natl Cancer Inst Monogr, 2007(37): p. 16-21).
Population: Adults Only Length: 150 questions, including health and demographic questions Time to Complete: 20 minutes Mode of Administration: Online (e.g., computer-assisted interview) Administered by: Self Administered Language(s): English
Annotation:Unique questions and the standardized Perceived Stress Scale are used to assess psychological stress due to remote work during the COVID-19 crisis. The purpose is to measure the level of stress during this time and characterize it according to location, gender, income, and other factors. It includes confidential survey questions about homeschooling, dependent care, full-time remote work, and social distancing.
Population: Adults only Length: 37 questions Time to Complete: 8-10 minutes Administered by: Self Administered Language(s): English, Spanish French, Italian, Japanese, Chinese
Annotation:
Basic information
The coronavirus anxiety scale (CAS) is a self-report mental health screener of dysfunctional anxiety associated with the coronavirus crisis. Because a significant number of people experience clinically significant fear and anxiety during an infectious disease outbreak, the CAS was developed to help clinicians and researchers efficiently identify cases of individuals functionally impaired by coronavirus-related anxiety.
Psychometric properties
Independent studies of adults residing across the United State have demonstrated that the CAS is a reliable instrument (αs > .90), with solid factorial (single-factor; invariant across sociodemographics) and construct (correlated with anxiety, depression, suicidal ideation, and drug/alcohol coping) validity. The diagnostic properties of the CAS (90% sensitivity and 85% specificity) are comparable to related screening instruments, such as the Generalized Anxiety Disorder-7.
Scoring and interpretation
Each item of the CAS is rated on a 5-point scale, from 0 (not at all) to 4 (nearly every day), based on experiences over the past two weeks. This scaling format is consistent with the DSM-5’s cross-cutting symptom measure. A CAS total score ≥ 9 indicates probable dysfunctional coronavirus-related anxiety. Elevated scores on a particular item or a high total scale score (≥ 9) may indicate problematic symptoms for the individual that might warrant further assessment and/or treatment. Clinical judgement should guide the interpretation of the CAS results.
Annotation:
Basic information
The Obsession with COVID-19 Scale (OCS) is a self-report mental health screener of persistent and disturbed thinking about COVID-19. Because the COVID-19 crisis affects nearly every aspect of a person’s life, the OCS was developed to help clinicians and researchers efficiently identify cases of individuals functionally impaired by their COVID-19 related thinking patterns.
Psychometric properties
The OCS was developed on two large samples of adults (n = 775; n = 398) residing across the United States. The OCS is a reliable instrument (αs > .83), with solid factorial (single-factor) and construct (correlated with coronavirus anxiety, spiritual crisis, alcohol/drug coping, extreme hopelessness, and suicidal ideation) validity. The diagnostic properties of the OCS (81% to 93% sensitivity and 73% to 76% specificity) are comparable to related screening instruments, such as the General Health Questionnaire (GHQ).
Scoring and interpretation
Each item of the OCS is rated on a 5-point scale, from 0 (not at all) to 4 (nearly every day), based on experiences over the past two weeks. This scaling format is consistent with the DSM-5’s cross-cutting symptom measure. An OCS total score ≥ 7 indicates probable dysfunctional thinking about COVID-19. Elevated scores on a particular item or a high total scale score (≥ 7) may indicate problematic symptoms for the individual that might warrant further assessment and/or treatment. Clinical judgement should guide the interpretation of the OCS results.
Annotation:Overarching Goal: This study is intended to better understand the day-to-day impact of the novel coronavirus on the lives of the global public. Using regular journal entries along with several open- and close-ended questions specific to the impact of COVID-19, we aim to understand personal experiences of the global pandemic as it occurs in real time. We are specifically interested in situational changes, COVID-19 exposure and experience, COVID-19-related concerns, daily mood changes, and perceived impact, mental health impact, and use of social media.
Study Population: As of May 6, 2020, participants represent 29 countries and 35 states within the United States. At the current time, respondent age range is 18-82 (mean = 44.8) and largely female (89.29%; 9.2% male). There is considerable variation in where people are living (this was check all that apply): 38% are with a spouse/partner, 18% with children <18, 10.2% with adult children, 10.7% with parents, 4.9% with roommates, and the rest in variations on this basic arrangement. Neither socioeconomic status (SES) nor race/ethnicity data was collected.
Study Design: All participants have been recruited using principal investigator networks, organizational partner (Cornell University and Jed Foundation) publicity, and paid advertisements on Facebook in a number of regions around the world and within the United States. Participants enter the study through an online portal (https://www.covid-stories.com/) and are sent an initial survey where living context data are gathered. After signing up, participants receive a daily link to a short survey that assesses change since previous participation in a right of domains. Twice a week, respondents are sent a slightly modified version of the daily survey to assess mental health impact and social media use.
Population: Adults only Length: 34 questions Administered by: Self Administered/Self Report Language(s): English
Access Notes:
Available Formats: PDF
Free/Publicly Available
NOTE: The document at the provided URL includes specific survey domains and measures that are a compendium of all items used across the three surveys (the initial survey, the daily survey, and the twice-a-week survey). Non-COVID-19 specific measures appear at the bottom of the measure list.
Annotation:The Coronavirus Impact Scale was developed by Joan Kaufman and Joel Stoddard. It asks 12 questions, and is used to rate how COVID-19 has changed a person's life.
Population: All/Anyone Length: 12 questions Administered by: Trained Lay Examiner/Interviewer Language(s): English, Spanish, French Canadian
Access Notes:
Free/Publicly Available
Contact Information: Joel Stoddard, MD MAS, at joel.stoddard@cuanschutz.edu, Joan Kaufman, PhD., at joan.kaufman@kennedykrieger.org
Includes Research Tools:
Yes.
ID:21816. From: Disaster Lit®a database of the U.S. National Library of Medicine.
