Source:
University of California, San Diego (UCSD)
Date Published:
5/2020
Format:
PDF
Annotation:The COVID-19 Impact Measure was created to be administered to the participants of the NIH-sponsored Adolescent Brain and Cognitive Development (ABCD) longitudinal study of 11,880 diverse community youth enrolled at age 9-10 in 2016-2018 (i.e., birth years 2006-2009) at 21 research sites around the United States. The ABCD sample (63% White, 20% Latinx, 16% Black, 12% more than one race, 2% Asian, <1% American Indian, <1% Pacific Islander; half female) was targeted to match U.S. demographics as defined by the American Community Survey and is being followed until at least age 20. ABCD will send all currently enrolled participants (age range: 11-13) and their parent/guardian the opportunity to complete the ABCD COVID-19 questionnaires. The questionnaires will be administered once a month for four months. Each participant and their parent/guardian will be emailed a unique secure link to the parent and child forms to complete the survey in REDCap. Compensation will be provided upon receipt of the completed form. These measures were developed by a workgroup consisting of ABCD investigators with expertise in adolescent development, mental health, sleep, physical activity, substance use, and disaster response, and the electronic surveys underwent preliminary testing via expert review and pilot testing with adults and children.
Note the Parent Measures contain the English and Spanish wording. The Parent Measure appears in two parts to accommodate parents who have more than one child in the ABCD Study (our design intentionally oversampled identical twins): Part 1 consists of questions that pertain to parent and family factors; Part 2 consists of questions pertaining to each child they have in the study. ABCD's COVID-19 research sends the measure multiple times over several months in 2020; to reduce participant burden, some items have skip-out branching logic and other items are given at one or two survey administrations and other items are administered each time (noted in comments in the measure PDFs).
Domains included in the measure:
* Family Situation: Home composition, economic impact, illness, parent support
* Youth's Schooling: quality, quantity, methods, and supervision
* Youth's Routine and Sleep
* Relationships: friends and family
* COVID Attitudes and Adherence (to public health directives)
* Mental Health and Stress: depression, anxiety, worry, post-traumatic stress
* Substance Use: alcohol, vaping of nicotine and cannabis, other intoxicants
* Screen Use: for school, socializing, other reasons
* Media Exposure to COVID-19
* Physical Health: activity, food access, COVID-19 symptoms
Population: Adults Only
Children/Teens Only Length: ~85-90 items (Youth)* ; ~80-90 items (Parent) *Note: both measures have skip-out branching logic and not all questions may be asked to all participants. Time to Complete: 10-15 minutes Mode of Administration: Online (e.g., computer-assisted interview) Administered by: Self Administered Language(s): English, Spanish (Parent)
Annotation:The COVID-19 Experiences (COVEX) questionnaire was developed by investigators from the Division of Child and Adolescent Psychiatry at Columbia University/New York State Psychiatric Institute for use in our ongoing and new research studies and by affiliated clinical settings to document the experiences of research participants and patients in the time of the COVID-19 pandemic. COVEX can be administered either as an interview or as a self-report measure. It is being translated in other languages.
Section 1: COVID-19 Symptoms & Diagnoses Section 2: Vulnerability to COVID and Direct Exposure Section 3: Living Situation Section 4: Employment/School Changes Section 5: Worries, Mental Health Changes Section 6: Problems and Support during COVID-19 outbreak Section 7: Coping Section 8: Pregnancy-Related Questions (optional) Section 9: Media Use
Questions Adapted From: The following measures were adapted for the development of this survey:
* Harkness, A. (2020). The Pandemic Stress Index. University of Miami.
o Section 5 (7a, 7b, 7c, 7j)
o Section 6 (2, 3)
* Kroenke, K. & Spitzer, R.L. (2002). The PHQ-9: A new depression and diagnostic severity measure.
o Section 5 (1a-1i, 4a-4i)
* Kroenke K, Spitzer RL, Williams JB, Monaha PO, Lowe B. Anxiety disorders in primary care: prevalence, impairment, comorbidity, and detection. Ann Intern Med. 2007;146:317-25.
o Section 5 (1j, 1k, 4j, 4k)
* [KFF Coronavirus Poll (conducted March 11-15, 2020)], (KFF, [March 17, 2020]), (http://files.kff.org/attachment/Topline-KFF-Coronavirus-Poll.pdf, accessed March 31, 2020)]
o Section 5 (8, 9)
* Featherstone, J. D., Bell, R. A., & Ruiz, J. B. (2019). Relationship of people's sources of health information and political ideology with acceptance of conspiratorial beliefs about vaccines. Vaccine, 37(23), 2993-2997.
o Section 9 (4)
Population: Adult Workers
Adults and Teens
Adults Only
Children/Teens Only
High Risk/Special/Unique Populations
Pregnant or Lactating Women
Residential/Workplace Length: ~189 questions Time to Complete: 30 minutes (interview format) Mode of Administration: Face-to-face
Online (e.g., computer-assisted interview)
Pen and Paper
Telephone Administered by: Lay Interviewer
Self Administered Language(s): English, Spanish, Portuguese
Contacts:
Lead Tool Developers Contact Information:
Dr. Prudence Fisher (prudence.fisher@nyspi.columbia.edu)
Dr. Cristiane Duarte (cristiane.duarte@nyspi.columbia.edu)
New York State Psychiatric Institute & Columbia University Irving Medical Center
Annotation:The Coronavirus Disability Survey (COV-DIS) was developed by the University of Michigan Center for Disability Health and Wellness in order to learn about the experiences of persons with disabilities (PWD) during the novel coronavirus (COVID-19) pandemic. The psychometric properties of the COV-DIS have not yet been established, but will be disseminated publicly in the future. The objective of the COV-DIS is to provide critical data on the experiences of PWDs during the COVID-19 pandemic. The risk of many adverse health and disability outcomes is elevated in PWDs. The COV-DIS specifically measures general and psychological well-being, difficulty performing activities and instrumental activities of daily living, employment and financial challenges, and difficulty accessing transportation and information. The COVID-19 pandemic and legally mandated social distancing measures have the potential to exacerbate challenges in each of these domains for the population at large, but particularly for PWDs. Data that are acquired using the COV-DIS may be helpful for attending to the needs and challenges faced by PWDs during the current pandemic, as well as for planning for responses to future waves of COVID-19 and other high-impact societal stressors.
Questions Adapted From: Several items on the COV-DIS were adapted from survey items from the Understanding America Study (UAS), the Osteoporotic Fractures in Men (MrOS) Study, and the Study of Muscle, Mobility, and Aging (SOMMA) with permission from study investigators, as well as from the RAND 36-item Short Form Survey, and the Patient Health Questionnaire-2.
Population: Adults only Length: 32 questions Mode of Administration: Telephone
Email Administered by: Self Administered/Self Report
Lay Interviewer Language(s): English
All materials associated with the COV-DIS are made freely and publicly available at no cost. While not required, we encourage COV-DIS users to register using the following web address:https://umich.qualtrics.com/jfe/form/SV_38Wbm81ILp4VzOB
Contact information: Sara Weiss, MPH, weisssar@med.umich.edu
Full citation: Ehrlich JR, Bernard A, Weiss S, Stein JD, Ulin S, D’Souza C, Riddering A, Edwards P, Meade M, McKee M. (2020). The COV-DIS: Coronavirus Disability Survey
Includes Research Tools:
Yes.
ID:22358. From: Disaster Lit®a database of the U.S. National Library of Medicine.
Source:
University of North Carolina at Chapel Hill (UNC)
Date Published:
5/2020
Format:
PDF
Annotation:The AURORA-CIS is a newly designed short survey to learn and understand the impact of the coronavirus (COVID-19/SARS-CoV-2) pandemic on the trauma survivors currently enrolled in the AURORA Study. This supplementary survey was created to assess the additional impact of the pandemic on the mental health outcomes of the study participants beyond that which could be associated with the traumatic event that led to their emergency room visit. There are four questions asked weekly and an additional fifth question included every month. All questions appear at the end of the participants' regularly deployed weekly smartphone-based flash survey.
The AURORA Study is a 12-month longitudinal study that represents a major national initiative to improve the understanding, prevention, and treatment of post-traumatic neuropsychiatric sequelae. Five thousand participants who present to the emergency department (28 sites) for evaluation after trauma exposure, meet screening and eligibility criteria, and consent to the study will undergo a brief emergency department assessment of trauma-related, psychosocial, neurocognitive, and biological factors. Participants will be discharged with ecological monitoring, and will complete physiologic, biologic, neurocognitive, symptom, and health outcome assessments during one-year follow-up. Subsamples of study participants will undergo in-person deep phenotyping at two weeks and six months, consisting of biologic collection, functional magnetic resonance imaging (fMRI), and psychophysical evaluation. The COVID survey items will be administered to both existing and newly enrolled participants. No pilot testing for the questions was done.
Population: Adults only Length: 5 questions Mode of Administration: Online (e.g., computer-assisted interview) Administered by: Self Administered Language(s): English
Access Notes:
Free/Publicly Available
Available Formats: PDF
Contact Information:
Suraj Chandy Oomman: surajoomman@med.unc.edu or auroracoordinator@med.unc.edu;
Includes Research Tools:
Yes.
ID:22360. From: Disaster Lit®a database of the U.S. National Library of Medicine.
Annotation:This four-page technical documentation report describes a survey fielded through the RAND American Life Panel (ALP) to assess the effects of the coronavirus disease 2019 pandemic on individuals and households across a variety of topics. This report provides a technical description of the survey, including a description of the ALP, the objectives of the survey, and information about the fielding of the survey.
The ALP is a nationally representative internet panel that has been recruited almost entirely through random digit dialing. To ensure that the panel is representative, respondents who do not have access to the internet are provided with a netbook computer and an internet subscription free of cost. This allows the flexibility and lower cost of an internet panel while still representing the segment of the population that does not have internet access. Panel members are invited to participate in online surveys once or twice per month on average. They are compensated financially for each survey to increase response rates and representativeness. The ALP began in 2006; since then, almost 550 surveys have been fielded on a variety of topics, including financial decision-making, health behaviors, retirement decision-making, numeracy, long-term care use, elections, and subjective well-being.
Three times per year, all panel members are asked to complete a survey that contains demographic information and questions about their employment status, household composition, health status, well-being, and health insurance. The responses to these questions are automatically added to all data collected in the panel, saving time and reducing respondent burden. Additional information on the technical aspects of the ALP is provided in Pollard and Baird (2017)." Questions Adapted From: Several questions were taken or adapted from prior surveys; details are provided in the technical survey documentation available at https://www.rand.org/pubs/research_reports/RRA308-1.html Population: Adults only Length: 64 questions (for some questions, respondents are presented with a table and asked to choose a response for each item in the table. Each table is counted as one question) Time to Complete: 20 minutes Mode of Administration: Online (e.g., computer-assisted interview) Administered by: Self Administered Language(s): English
Citations: Carman, Katherine Grace and Shanthi Nataraj, 2020 American Life Panel Survey on Impacts of COVID-19: Technical Documentation, Santa Monica, Calif.: RAND Corporation, 2020. https://www.rand.org/pubs/research_reports/RRA308-1.html
Annotation:C3PNO fosters collaborations and data sharing across the National Institute on Drug Abuse (NIDA) cohorts. C3PNO manages and stimulates the use of the NIDA longitudinal cohorts and addresses high priority research on HIV/AIDS in the context of substance misuse.
In response to the COVID-19 pandemic, NIDA crafted a cross-cutting survey of COVID-19 related risk behaviors and effects. Find the associated protocol: https://dr2.nlm.nih.gov/search/?q=24241
Questions Adapted From: Various sources and original questions Population: Adults and Teens
High Risk/Special/Unique Populations
Multiple Groups
Other
Sexual or Gender Minorities
Substance users, those at risk for or living with HIV/AIDS, men who have sex with men Length: Up to 65 questions but much shorter for non-active substance users Time to Complete: 15 minutes Mode of Administration: Online (e.g., computer-assisted interview)
Telephone Administered by: Self Administered
Trained Lay Examiner/Interviewer Special Considerations: May be conducted by interviewer but designed primarily for online survey Language(s): English
Annotation:The CHPS is a longitudinal survey of all licensed health professionals in New York state. The research focuses on how the pandemic has affected the personal and professional lives of the state's healthcare providers, as well as identifying interventions which may help mitigate it effects. This survey instrument represents the project's baseline assessment effort. The domains of interest include social and professional demographic questions, including health care specialization and practice areas; exposure to COVID-19; availability and access to personal protective equipment related to COVID-19 exposures; reluctance to treat COVID-19 patients; mental health impacts of COVID-19; and allocation of scarce resources and triage decision-making.
Population: Adult Workers Length: 100 items Time to Complete: Approximately 20 minutes Mode of Administration: Online (e.g., computer-assisted interview) Administered by: Self Administered Language(s): English...[See more] [See less]
Citation(s):
COVID-19 Health Care Personnel Study Baseline Survey (2020). Guohua Li, David Abramson, Charles DiMaggio, Christina Hoven, Ezra Susser, and Howard Andrews
Available Formats: PDF
Contact Information: Dr. Guohua Li, MD DrPH, Columbia University Department of Epidemiology Email: gl2240@cumc.columbia.edu
Dr. Charles DiMaggio, PhD MPH, NYU Grossman School of Medicine Email: Charles.DiMaggio@nyumc.org
Dr. David Abramson, PhD MPH, NYU School of Global Public Health Email: david.abramson@nyu.edu
Includes Research Tools:
Yes.
ID:24218. From: Disaster Lit®a database of the U.S. National Library of Medicine.
Annotation:LASI-DAD is the first and only nationally representative and publicly available dataset on late-life cognition and dementia in India. We have drawn a sample of over 4,000 community-residing older adults 60+ years of age from 19 states in India, representing 91.6% of India's ethnically diverse population. We will target one randomly selected adult male and one randomly selected adult female for each household.
Study Parameters: The survey will draw on the 4,096 LASI-DAD households. We will target one randomly selected adult male and one randomly selected adult female for each household. The survey will take 15 minutes and will be administered via phone calls according to the following schedule: a first round, soon to be conducted in May 2020 and every two months thereafter for one year. We will randomly space interview slots over each two-month-long survey wave to facilitate time series analysis of responses to changes in the health and policy environment.
As we plan to re-interview the same respondents over a one-year time period, we will monitor the course of the pandemic carefully and adapt the instrument, as needed, to ensure that it is filling high-priority knowledge gaps. At the same time, we aim to make changes judiciously to ensure that we have a high-quality time-series of central variables.
India is an ethnically and linguistically diverse country. To ensure national representation and high-quality data collection, the instrument and consent are translated into 12 languages: Hindi, Kannada, Malayalam, Gujarati, Tamil, Punjabi, Urdu, Bengali, Assamese, Odiya, Marathi, and Telugu. All interviews will be conducted in respondents' local languages to ensure respondent comprehension and comfort.
Preliminary Testing: We conducted a pilot to verify phone contact rates for the LASI-DAD sample in March 2020. The aim of this pilot is to examine the feasibility of Computer Assisted Telephone Interview for the sample. A first wave of 1,587 households had phone numbers collected between October 2017 and May 2018; we called 51 of these households and were able to get in touch with 25 (49%); the remaining 2,503 households had numbers collected during October 2018 or later. We called 49 of these households and got in touch with 40 (82%). This pilot was conducted over a few days and did not use back-up phone numbers on file with households; these contact rates are therefore lower bounds and suggest that getting in touch with 75-80% of the full sample is feasible.
We then pretested the instrument in April 2020. The aim of the pretest is to assess the time required for the instrument administration, as well as to evaluate how respondents respond to the question contents. We conducted the pretest in six local languages with a sample size of 29 households, 58 interviews. After the pretest and debriefing, we refined the instrument for the survey rollout.
Population: Adults only Length: 34 items Time to Complete: 15 minutes Administered by: Trained Lay Examiner/Interviewer Language(s): English, Hindi, Kannada, Malayalam, Gujarati, Tamil, Punjabi, Urdu, Bengali, Assamese, Odiya, Marathi, and Telugu
Annotation:This is a brief, self-report, online-based questionnaire administered via REDCap (Research Electronic Data Capture system) to assess: (1) experiences during the COVID-19 pandemic (e.g., exposure, risk factors, testing, isolation, seropositivity, hospitalization, loss of family or friends); (2) COVID-19-specific psychological distress (e.g., fear, anxiety and depressive symptoms); (3) health, financial, and social disruptions; (4) perceived benefits and social support; (5) health related quality of life (HRQoL) in a convenience sample of cancer patients and survivors; and (6) the extent to which resiliency factors, such as social support and perceived benefits, moderate the effects of COVID-19 experiences on COVID-19-specific psychological distress and HRQoL.
Domains or modules included in survey: I. COVID-19 Experiences. The first section includes 19 questions related to experiences during the COVID-19 pandemic such as exposure, risk factors, testing, isolation, seropositivity, hospitalization, loss of family or friends, loss of income, as well psychosocial experiences related to COVID-19-like fear, anxiety, and depression symptoms (questions 1-19). II. COVID-19 Psychosocial and Practical Experiences. Subscales: COVID-19-Specific Distress (Emotional and Physical Reactions) -- emotional and physical impact of the COVID-19 pandemic (questions 1 through 13). Health Care Disruptions and Concerns (Concerns About Medical Care) -- how the COVID-19 pandemic has impacted general and cancer-related care, as well as health care concerns specific to the pandemic (questions 14 through 17). Disruption to Daily Activities and Social Interactions -- how the pandemic has impacted routines, social activities, and interactions (questions 18 through 23). Financial Hardship -- how the COVID-19 pandemic has affected finances and created and/or exacerbated financial hardships (questions 24 through 28). Perceived Benefits -- how experiences with the pandemic have led to any perceived benefit or positive contribution (questions 29 through 34). Functional Social Support -- availability and use of social resources during the pandemic (questions 35 through 38). Perceived Stress Management (Ability to Manage Stress) -- ability to implement skills to manage pandemic related stressors (questions 39 through 43).
Scoring: Available upon request. Ongoing psychometric analyses.
Population: Adults only Length: 69 questions Administered by: Self Administered/Self Report Language(s): English
Contact Information: Frank J. Penedo, PhD Professor, Departments of Psychology and Medicine, University of Miami/Associate Director, Sylvester Comprehensive Cancer Center: frank.penedo@miami.edu
Includes Research Tools:
Yes.
ID:22130. From: Disaster Lit®a database of the U.S. National Library of Medicine.
Annotation:Cross-sectional study protocol. Sociodemographics: Age -- 18 years or older. Gender -- Nonspecific. Race/ethnicity -- Nonspecific; however, the participant needs to be fluent in English or Spanish. Geographical region: Miami, Florida, and Houston, Texas. Targeted population: ICD-10 confirmed cancer diagnosis for cancer patients or survivors who had an oncology visit within the University of Miami Miller School of Medicine (UM/MSOM) Sylvester Comprehensive Cancer Center health system in the past five years. Study links patient demographic and clinical data via the health system’s electronic data warehouse and uses the survey "Impact of the Pandemic and HRQoL in Cancer Patients and Survivors (IPHCPS)" to assess impacts of COVID-19.
