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  1. National Health and Aging Trends Study (NHATS) COVID-19 Questionnaires
    Source: Johns Hopkins University, Bloomberg School of Public Health
    Date Published: 6/20/2020
    Format: PDF
    Annotation: This set of questionnaires was used in a supplemental mail study of the National Health and Aging Trends Study (NHATS) conducted in 2020. The questionnaires aim to assess experiences during the COVID-19 outbreak of: 1) NHATS participants (ages 70 and older) and 2) the up to two adult family members and friends who helped NHATS participants the most during the outbreak. Two types of mail questionnaires were administered: 1) questionnaires designed for NHATS participants or their proxy respondents (SP / proxy) and 2) questionnaires designed for adult family members and friends (FF) who helped NHATS participants. The SP questionnaires includes 13 sections. Topics cover symptoms of COVID-19, measures taken to limit spread of the virus, and changes during the pandemic in the NHATS participants' living situation, contact with family and friends, productive activities (e.g., work, volunteering, caregiving), grocery shopping, health care, finances, wellbeing and daily activities. Participants were also asked to provide contact information for the two adult family members or friends who helped most during the outbreak. The FF questionnaire includes 17 sections, many of which align with the sections in the SP/Proxy questionnaires. In addition, the FF questionnaire asks about the FF's relationship with the NHATS participant, help given to the NHATS participant before and during the outbreak and reasons for helping. For those who helped for health or functioning reasons, three additional sections about caregiving are included: time spent helping the NHATS participant, dementia caregiving (if help is memory related) and helping challenges and supports.

    Questions Adapted From: Symptoms of COVID-19 module (questions 5-9 in SP/proxy questionnaire and 15-19 in FF questionnaire) is adapted from MESA, common symptom questions are adapted from CDC definitions; Measures to Limit Spread of COVID-19 questions (question 12 in SP/proxy questionnaire and 22 in FF questionnaire) are adapted from MESA; Questions 13-16 on assisted Living in SP questionnaire is adapted based on AHCA guidance; Questions 17, 18, 21, and 22 in SP/Proxy questionnaire aligned with items in the HRS COVID telephone module; Questions 27-28 in SP/Proxy questionnaire and 50-51 in FF questionnaire aligned with HRS COVID SAQ; Questions 29-30 in SP/Proxy questionnaire aligned with HRS COVID SAQ and life space constriction items in the simplified version of Stalvey et al. (1999); Questions 33-34 in the SP/Proxy questionnaire aligned with content in NHATS. Questions 35-36 in the SP/Proxy questionnaire and 48 in the FF questionnaire aligned with HRS COVID SAQ; Questions 37-40 on changes in grocery shopping in the SP/Proxy questionnaire aligned with content in NHATS; Questions 41-45 on changes in health care in the SP/Proxy questionnaire are adapted from NSOC III (HC module) and HRS COVID telephone module; Question 46 in the SP/Proxy questionnaire and 29 in the FF questionnaire are adapted from HRS COVID telephone module; Questions 47-48 in the SP/Proxy questionnaire 30-31 in the FF questionnaire are adapted from PSID shutdown / COVID19 module; Questions 49-52 in the SP/Proxy questionnaire aligned with HRS COVID SAQ; Question 57 in the SP/Proxy questionnaire and 38 in the FF questionnaire are adapted from PTSD-8 (Hansen et al. 2010); Question 33 in the FF questionnaire aligned with PHQ2 and GAD in NHATS (HC); Question 53 in the SP/Proxy questionnaire and question 34 in the FF questionnaire aligned with NHATS (HC); Questions 60-69 on changes in daily activities in the SP/Proxy questionnaire aligned with NHATS (SC, MO, HA, DT, MC modules); Questions 32, 44, 49, 59-66, 71-76, and 78-79 in the FF questionnaire aligned with NSOC (HC, DI, AC, and CA module); Questions 53-58, and 67-70 in the FF questionnaire aligned with NHATS (SC, MO, HA, DT, MC, HA, and CP modules). References: Stalvey, B., Owsley, C., Sloane, M.E., Ball, K. (1999) The Life Space Questionnaire: A measure of the extent of mobility of older adults. Journal of Applied Gerontology 18: 479-498. Hansen, M., Andersen, T. E., Armour, C., Elklit, A., Palic, S., & Mackrill, T. (2010). PTSD-8: a short PTSD inventory. Clinical practice and epidemiology in mental health: CP & EMH, 6, 101.
    Population: Adults Only
    Length: 69 questions for the Sample Person (SP) Questionnaire, 63 questions for the Proxy Questionnaire, and 79 questions for the Family Members and Friends (FF) Questionnaire.
    Time to Complete: Approximately 20 minutes
    Mode of Administration: Pen and Paper
    Administered by: Self Administered
    Language(s): English (SP/proxy and FF questionnaires), Spanish (SP questionnaire)    ...[See more] [See less]
    URL: https://www.nhats.org/sites/default/files/2021-01/NHATS%20R10%20COVID-19%20Questionnaires.pdf
    Type: Guideline/Assessment Tool
    Access Notes: Free/Publicly Available

    Available Formats: PDF

    Contact Information: Vicki A. Freedman, Institute for Social Research, University of Michigan, vfreedma@umich.edu; Judith Kasper, Johns Hopkins Bloomberg School of Public Health, jkasper1@jhu.edu.
    Includes Research Tools: Yes.
    ID: 24245. From: Disaster Lit®a database of the U.S. National Library of Medicine.
  2. JHU COVID-19 Community Response Survey
    Source: Johns Hopkins University, Bloomberg School of Public Health
    Date Published: 4/25/2020
    Format: PDF
    Annotation: The goal of this toolkit is to provide a set of standardized quantitative and qualitative assessments to harmonize data collection efforts and facilitate comparisons of the impact of the novel coronavirus (COVID-19), and promote collaborations across research efforts. This is intended to be a dynamic resource that will evolve as the epidemic does. These modules were created with a broad sample in mind. The goal was to develop a set of modules that could be applied to multiple populations with some minor tweaks. They can be used cross-sectionally or longitudinally and are designed for a newly selected sample (e.g., include information on basic demographics). The survey asks questions about possible exposure to the virus, experiences with testing and treatment, and some questions about how life has changed as a result of COVID-19 and the preventive measures that have been put in place.

    Population: Adults only
    Length: 148 items
    Time to Complete: 20-30 minutes
    Administered by: Trained Lay Examiner/Interviewer
    Language(s): English

    COVID-19 Community Response Survey: Full Questionnaire https://www.phenxtoolkit.org/toolkit_content/PDF/JHU_C4WARD.pdf
    Knowledge and attitudes toward COVID19: Knowledge; Perceived Threat https://www.phenxtoolkit.org/toolkit_content/PDF/JHU_C4WARD_Perceived_Threat.pdf
    COVID19 symptoms and testing experience: Symptoms; Diagnosis https://www.phenxtoolkit.org/toolkit_content/PDF/JHU_C4WARD_Diagnosis.pdf
    COVID19 and Co-morbidities and care engagement: Health Care; Chronic Health Conditions https://www.phenxtoolkit.org/toolkit_content/PDF/JHU_C4WARD_Health.pdf
    COVID19 and Mental health impacts: Mental Health https://www.phenxtoolkit.org/toolkit_content/PDF/JHU_C4WARD_Mental_Health.pdf
    COVID19 impact and pandemic stress: Overall Impact https://www.phenxtoolkit.org/toolkit_content/PDF/JHU_C4WARD_Impact.pdf
    COVID19 and Social distancing: Social Distancing; Social Impact https://www.phenxtoolkit.org/toolkit_content/PDF/JHU_C4WARD_Social_Distancing.pdf
    COVID19 and Violence and trauma: Violence; Fear of Violence https://www.phenxtoolkit.org/toolkit_content/PDF/JHU_C4WARD_Violence_Trauma.pdf
    COVID19 and Substance use: Substance Use https://www.phenxtoolkit.org/toolkit_content/PDF/JHU_C4WARD_Substance_Use.pdf
    COVID19 and Sexual behavior: Sexual Behavior https://www.phenxtoolkit.org/toolkit_content/PDF/JHU_C4WARD_Sexual_Behavior.pdf    ...[See more] [See less]
    URL: https://www.nlm.nih.gov/dr2/JHU_COVID-19_Community_Response_Survey_v1.3.pdf
    Type: Guideline/Assessment Tool
    Access Notes: Available Formats: PDF
    Free/Publicly Available
    Contact Information: Shruti Mehta, PhD, MPH, Professor and Deputy Chair Department of Epidemiology, Johns Hopkins Bloomberg School of Public Health: smehta@jhu.edu
    Includes Research Tools: Yes.
    ID: 22096. From: Disaster Lit®a database of the U.S. National Library of Medicine.
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