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RADx-UP Common Data Elements
Source: Duke UniversityDate Published: 1/11/2021Format: TextAnnotation: RADx-UP is a part of RADx, the overall National Institutes of Health (NIH) initiative to help speed innovation in the development and implementation of COVID-19 testing. In order to ensure consistency in how RADx-UP projects collect data for the RADx Data Hub and simplify the analysis of that data, the NIH defined a set of Common Data Elements (CDEs). The NIH CDEs provide a standard set of study questions that RADx-UP projects are required to use in their COVID-19 testing studies. The RADx-UP Coordination and Data Collection Center (CDCC) also provided an Informed Consent Form (ICF) data sharing language template to help standardize the consent process.
The consistent use of the CDEs and ICF data sharing language by RADx-UP projects will allow the RADx-UP consortium to aggregate data from across all the populations and communities that projects study and engage. In addition, the CDCC will be able to deposit that collected data with the RADx Data Hub, leading to rapid and increased learning about this pandemic.
REDCap Data Dictionary Codebook PDF: https://radx-up.org/wp-content/uploads/2021/01/RADx-UP-_-REDCap20201230_codebook-.pdf
RADx-UP Data Dictionary Codebook CSV (updated Jan. 11th): https://radx-up.org/wp-content/uploads/2021/01/RADxUPDev_DataDictionary_2020-12-30.csv
RADx-UP PDF form for paper data collection: https://radx-up.org/wp-content/uploads/2021/01/RADxUP_20201230_forms.pdf
Spanish REDCap Data Dictionary Codebook PDF: https://radx-up.org/wp-content/uploads/2021/01/RADxUPDev_ES_20201230_codebook_20210127.pdf
Spanish REDCap Data Codebook CSV: https://radx-up.org/wp-content/uploads/2021/01/RADxUPDev_DataDictionary_2020-12-30_ES-US_20210127.csv
Spanish RADx-UP PDF form for paper data collection: https://radx-up.org/wp-content/uploads/2021/01/RADxUPDev_ES_20201230_forms_202010127.pdf
Data Transfer Agreement
RADx-UP CDCC Data Transfer Agreement: https://radx-up.org/wp-content/uploads/2021/02/RADx-UP-CDCC-Data-Transfer-Agreement-15Jan21.pdf
Data Harmonization Guidance
NIH Guidance on RADx-UP Data Harmonization: https://radx-up.org/wp-content/uploads/2021/01/RADx-UP_Data_Harmonization_Guidance_CDEs.pdf
Informed Consent Data Sharing
RADx-UP Informed Consent Data Sharing Template Language: https://radx-up.org/wp-content/uploads/2021/02/RADx-UP-ICF-template_v.1.0_12.30.2020.pdf
RADx-UP Informed Consent Data Sharing Template Language (Spanish): https://radx-up.org/wp-content/uploads/2021/02/RADx-UP-ICF-template_v.1.0_12.30.2020_ES-US.pdf
Population: Adults
Length: 265 questions
Mode of Administration: Online (e.g., computer-assisted interview), Paper/written
Language(s): English, Spanish...[See more] [See less]Type: Guideline/Assessment ToolAccess Notes: Free/Publicly Available
RADx-UP Toolkit https://radx-up.org/toolkit/: The Rapid Acceleration of Diagnostics-Underserved Populations (RADx-UP) Coordination and Data Collection Center (CDCC) toolkit provides resources and materials to support the work of our RADx-UP projects and partners.
Available Formats: Text
Contact Information: Laura Johnson (DCRI) Email: laura2.johnson@duke.eduIncludes Research Tools: Yes.ID: 24221. From: Disaster Lit®a database of the U.S. National Library of Medicine.REDCap: Yes. -
COVID-19 Beliefs, Behaviors & Norms Survey (KAP CoVID Study)
Source: Johns Hopkins University, Bloomberg School of Public HealthDate Published: 1/2021Format: PDFAnnotation: This study was implemented in collaboration between John Hopkins Bloomberg School of Public Health's Center for Communication Programs with the Massachusetts Institute of Technology (MIT), the World Health Organization and Facebook's Data for Good. Sixty-nine countries were identified for recruitment of Facebook users at the outset of this study. Countries were selected where Facebook usage was sufficiently widespread and could plausibly result in samples representing a range of national characteristics. Twenty countries were identified as longitudinal (wave) countries and another 49 countries were identified as cross-sectional (snapshot) countries. In the end, two countries were removed due to inadequate response rates.
Wave 1 Survey: https://ccp.jhu.edu/wp-content/uploads/Global_Survey_Brief_Methods_Section.pdf (published July 6, 2020)
Wave 2 Survey: https://ccp.jhu.edu/wp-content/uploads/Survey-v1-and-v2_jan2021.pdf (published January 2021)
Population: All/Anyone
Length: 134 questions
Language(s): English...[See more] [See less]Type: Guideline/Assessment ToolAccess Notes: Free/Publicly Available
Find more information on the study: https://covidsurvey.mit.edu/
Citation(s):
Collis, A., Garimella, K., Moehring, A., Rahimian, M.A., Babalola, S., Gobat, N., Shattuck, D., Stolow, J., Eckles, D., & Aral, S. (2020). Global survey on COVID-19 beliefs, behaviors, and norms. Technical report, MIT Sloan School of Management https://covidsurvey.mit.edu/covid_survey_files/COVID_BBN_survey_report.pdf
Available Formats: PDF
Contact Information: CCPinfo@jhu.eduIncludes Research Tools: Yes.ID: 24216. From: Disaster Lit®a database of the U.S. National Library of Medicine. -
C4R COVID-19 Questionnaire: Collaborative Cohort of Cohorts for COVID-19 Research
Source: Columbia UniversityDate Published: 1/2021Format: PDFAnnotation: The purpose of this questionnaire is to ascertain data on COVID-19 testing, self-reported COVID-19 diagnoses and hospitalizations, symptoms, recovery, re-infection, and vaccination. It also assesses the impact of the pandemic on access to healthcare, finances, health-related behaviors, social interactions, and mood. This questionnaire can be administered to individuals with no prior COVID assessments as well as those with prior COVID assessments. If prior assessments are available, text is provided to guide the interviewer to gather new information.
Questions Adapted From: Please see page 2 of the questionnaire.
Population: Adults only
Mode of Administration: Online (e.g., computer-assisted interview)
Pen and Paper
Telephone
Administered by: Professional Interviewer
Self Administered
Specialist/Doctor/Expert
Trained Lay Examiner/Interviewer
Language(s): English, Spanish, Chinese...[See more] [See less]Type: Guideline/Assessment ToolAccess Notes: Free/Publicly Available
Find information about Data collection for the Collaborative Cohort of Cohorts for COVID-19 Research (C4R): https://c4r-nih.org/content/data-collection
Redcap data dictionary and codebook are available upon request.
As part of the NIH NHLBI CONNECTS program, the C4R observational study is collecting participant data and samples to better understand COVID-19 and the associated symptoms and side effects. Find more information on the CONNECTS component of the C4R study: https://nhlbi-connects.org/secure/study/6.
Citation(s):
C4R Investigators (2020). C4R Questionnaire.
Available Formats: PDF
Contact Information: c4r@cumc.columbia.eduIncludes Research Tools: Yes.ID: 24223. From: Disaster Lit®a database of the U.S. National Library of Medicine.REDCap: Yes. -
Recommendations for Common Data Elements for COVID-19 Studies Including Pregnant Participants
Source: National Institute of Child Health and Human Development [National Institutes of Health] (NICHD)Date Published: 12/15/2020Format: TextAnnotation: We present a battery of recommended biomedical and psychosocial common data elements (CDEs) and measures that, when combined across datasets, can improve our collective understanding of COVID-19 in pregnant and lactating women and their neonates. Experts across eight large pregnancy cohort studies developed these recommendations for use by any planned or upcoming COVID-19 study that includes women of reproductive age or pregnant women. We encourage researchers to include some or all of these measures, which cover key medical and psychosocial domains relevant to pregnancy and childbirth, into their studies to maximize the potential for data harmonization while continuing to advance their own study goals.
Common biomedical data elements and measures aim to accelerate our understanding of the clinical course of the disease and its effects on pregnant women and their neonates, which will continue to evolve as treatments and vaccines become available. Here we highlight CDEs and measures across seven domains, which include: Baseline Maternal / Pregnancy Characteristics; Maternal COVID-19 Treatment; Maternal Outcomes; Obstetric / Pregnancy Outcomes; Neonatal Characteristics; Neonatal COVID-19 Testing; and Early Neonatal Outcomes. Recommendations assume that information from all patient visits (e.g., prenatal visits, COVID-19 testing, and delivery) can be collected via medical chart or downloaded data from electronic health records.
Common psychosocial data elements and measures aim to advance our understanding of the psychological, behavioral, and social effects of the virus and the pandemic on pregnant women and their neonates. Here we highlight CDEs and measures across six domains, including: Socioeconomic Status, Housing, and Emergent Financial Strain; Medical Care; Impact on Parenting; Stressful Life Events; Maternal Mental Health; and Health Related Behaviors.
Questions Adapted From: The majority of the recommended CDEs are already in use in ongoing COVID-19 studies, as indicated below and in footnotes throughout.
Biomedical: Adapted from Maternal Fetal Medicine Unit (GRAVID) COVID-19 and Delivery Case Report Forms with additional input from the Study of Pregnancy and Neonatal Health (SPAN) and other ongoing or planned studies.
Psychosocial: The source for each question is provided in the footnotes.
A full list of sources used is as follows:
2020 COVID-19 Household Pulse Survey https://www.census.gov/data/experimental-data-products/household-pulse-survey.html;
All of Us Research Program: COVID-19 Participant Experience Survey (COPE) https://www.nlm.nih.gov/dr2/COPE_Survey_NIH_All_of_Us_Clean_4.27.20.pdf;
Brief Resilient Coping Scale (from MACS-WIHS Baseline COVID-19 Abbreviated Questionnaire) https://www.nlm.nih.gov/dr2/MACS-WIHS_questionnaire_BLCOVID-040620.pdf;
Columbia COVID-19 Questionnaire http://www.columbiamedicine.org/divisions/kiryluk/study_covid19.php;
Coronavirus Health Impact Survey (CRISIS) https://www.nlm.nih.gov/dr2/CRISIS_Parent_Caregiver_Follow_Up_Current_Form_V0.3.pdf;
Coronavirus Perinatal Experiences-Impact Survey (COPE-IS) https://www.nlm.nih.gov/dr2/COPE-Impact_Survey_Perinatal_Pandemic_Survey.pdf;
Environmental Influences on Child Health Outcomes (ECHO) COVID-19 Questionnaire https://www.nlm.nih.gov/dr2/C19-aPV_COVID-19_Questionnaire-Adult_Primary_Version_20200409_v01.30.pdf;
Everyday Discrimination Scale (Short version) https://scholar.harvard.edu/files/davidrwilliams/files/measuring_discrimination_resource_june_2016.pdf;
GAD 7 https://med.dartmouth-hitchcock.org/documents/GAD-7-anxiety-screen.pdf;
Impact of Event Scale-6 https://www.researchgate.net/publication/26250275_Brief_measure_of_posttraumatic_stress_reactions_Impact_of_Event_Scale-6;
Infant Feeding Practices Study II https://www.cdc.gov/breastfeeding/data/ifps/questionnaires.htm;
Intimate Partner Violence ACOG Practice Bulletin https://www.acog.org/clinical/clinical-guidance/committee-opinion/articles/2012/02/intimate-partner-violence ;
JHU Community Response https://www.nlm.nih.gov/dr2/JHU_COVID-19_Community_Response_Survey_v1.3.pdf ;
MACS-WIHS Baseline COVID-19 Abbreviated Questionnaire https://www.nlm.nih.gov/dr2/MACS-WIHS_questionnaire_BLCOVID-040620.pdf;
National Health and Nutrition Examination Survey (NHANES), Demographics Module, 2019-2020 https://wwwn.cdc.gov/nchs/nhanes/continuousnhanes/questionnaires.aspx?BeginYear=2019;
PhenX: Health Reform Monitoring Survey 2015 https://www.phenxtoolkit.org/protocols/view/11502;
PhenX: 6 item standard measure from USDA Economic Research Service https://www.phenxtoolkit.org/protocols/view/270301#tabsource;
PhenX: Edinburgh Postnatal Depression Scale (EPDS) https://www.phenxtoolkit.org/protocols/view/241401;
PhenX: Panel Study of Income Dynamics (PSID), 2007 https://www.phenxtoolkit.org/protocols/view/11301;
PhenX: Pregnancy Risk Assessment Monitoring System (PRAMS) https://www.phenxtoolkit.org/protocols/view/720901;
Pittsburgh Hill / Homewood Research on Neighborhood Change and Health (PHRESH) https://drive.google.com/file/d/1q9DOJGNT7oe_KGMUXFCi73vIu57W3D3O/view;
Postpartum Bonding Questionnaire https://sundspsykologerna.se/files/Brockington-et-al-2006-PBQ-validation-pdf.pdf;
RAND American Life Panel Impact of COVID-19 Survey https://www.phenxtoolkit.org/toolkit_content/PDF/RAND_ALP_COVID19.pdf;
Stanford COVID-19 Community Outcomes (COCO) Survey https://drive.google.com/file/d/1zHnqLG-I8Htl6SdhyFxuJzP_qYRFPgKi/view;
Study of Pregnancy and Neonatal Health (SPAN) https://www.nichd.nih.gov/about/org/diphr/officebranch/eb/SPAN: Attained measures via personal communication
Population: Adult Workers
Adults and Teens
First Responders, Emergency Medical Services (EMS) Personnel, Police/Fire Departments
Military
Pregnant or Lactating Women
Length: There are a total of 121 questions within the tool, 49 of which fall under Biomedical data elements, and 72 of which fall under Psychosocial data elements
Time to Complete: Approximately 20 minutes to complete all questions included in the Psychosocial measure.
Mode of Administration: Face-to-face
Online (e.g., computer-assisted interview)
Pen and Paper
Telephone
Administered by: Lay Interviewer
Professional Interviewer
Self Administered
Specialist/Doctor/Expert
Trained Lay Examiner/Interviewer
Special Considerations: The recommendations herein are not meant to be distributed as one comprehensive questionnaire, but rather represent the recommended measures for collecting information regarding the most important data elements to assess in relation the effects of COVID-19 on pregnant women and their neonates. We encourage researchers to include some or all of these measures into their studies to maximize the potential for data harmonization while continuing to advance their own study goals.
Language(s): English...[See more] [See less]Type: Guideline/Assessment ToolAccess Notes: Free/Publicly Available
"Promoting Data Harmonization to Accelerate COVID-19 Pregnancy Research", February 2021. https://disasterinfo.nlm.nih.gov/content/files/NIHPromotin%20DataHarmonizationAccelerateCOVID19PregnancyResearchBiomedicalPsychosocialBiospecimens_vF.pdf
Available Formats: TEXT
Contact Information: Caroline Signore, NICHD, signorec@mail.nih.gov; Nahida Chakhtoura, NICHD, Nahida.chakhtoura@nih.gov; Jessica Gleason, NICHD, Jessica.gleason@nih.gov; Stephen Gilman, NICHD, Stephen.gilman@nih.govIncludes Research Tools: Yes.ID: 24206. From: Disaster Lit®a database of the U.S. National Library of Medicine. -
KFF COVID-19 Vaccine Monitor
Source: Kaiser Family Foundation (KFF)Date Published: 12/15/2020Format: PDFAnnotation: The KFF COVID-19 Vaccine Monitor is an ongoing research project tracking the public's attitudes and experiences with COVID-19 vaccinations. Using a combination of surveys and focus groups, this project tracks the dynamic nature of public opinion as vaccine development unfolds, including vaccine confidence and hesitancy, trusted messengers and messages, as well as the public's experiences with vaccination as distribution begins.
Population: Adults only
Mode of Administration: Telephone
Language(s): English
Data Dashboard: https://www.kff.org/coronavirus-covid-19/dashboard/kff-covid-19-vaccine-monitor-dashboard/
Vaccine Monitor Report Archive https://www.kff.org/coronavirus-covid-19/kff-covid-19-vaccine-monitor-archives/
Website for initial release of Vaccine Monitor: https://www.kff.org/coronavirus-covid-19/report/kff-covid-19-vaccine-monitor-december-2020/...[See more] [See less]Type: Guideline/Assessment ToolAccess Notes: Free/Publicly Available
Available Formats: PDF
Contact Information: Kaiser Family Foundation (KFF) https://www.kff.org/contact-us/Includes Research Tools: Yes.ID: 24234. From: Disaster Lit®a database of the U.S. National Library of Medicine. -
Health and Retirement Study: Core Interview COVID-19 Module
Source: University of MichiganDate Published: 9/11/2020Format: PDFAnnotation: As a longitudinal study with rich measurement across a large number of social, health, and economic domains, the Health and Retirement Study (HRS) was designed to capture the impact of unexpected societal events, even without additional measurement specific to the event. To complement these longitudinal measures, HRS has developed several areas of content specifically in response to the coronavirus pandemic designed to dovetail with existing assessment. Information on lifestyle and psychosocial functioning is collected through a self-administered questionnaire (SAQ). Additional questions in the psychosocial SAQ were added to the 2020 wave of data collection. These questions obtain information on lifestyle, personal relationships, work, and feelings in response to the pandemic. These questions cover five subtopics: 1) pandemic-specific concerns related to health, finances, friends and family, and the future; 2) changes in social contact with family and friends, including social support given and received and changes in relationship quality; 3) impact on activities including pandemic-specific behaviors such as wearing a mask, washing hands, social distancing, and using hand sanitizer; 4) additional questions about work status that indicate if the respondent was an essential worker and whether or not they could work at home during the pandemic; and 5) emotional well-being, resilience, and coping during the pandemic.
Population: Adults only
Length: 77 questions
Mode of Administration: Online (e.g., computer-assisted interview)
Administered by: Professional Interviewer
Self Administered
Language(s): English
Health and Retirement Study: Core Interview COVID-19 Module: Full Survey https://www.phenxtoolkit.org/toolkit_content/PDF/UMich_HRS_Module.pdf
Direct Experience of COVID-19: General Symptoms; Diagnosis https://www.phenxtoolkit.org/toolkit_content/PDF/UMich_HRS_Module_Experience.pdf
Health Care Access (general): Health Care https://www.phenxtoolkit.org/toolkit_content/PDF/UMich_HRS_Module_Health_Care.pdf
Economic Impact Payments: Economic Insecurity https://www.phenxtoolkit.org/toolkit_content/PDF/UMich_HRS_Module_Payments.pdf
Work and Business: Employment; Economic Impact https://www.phenxtoolkit.org/toolkit_content/PDF/UMich_HRS_Module_Employment.pdf
Living Arrangements: Housing Security; Home Life https://www.phenxtoolkit.org/toolkit_content/PDF/UMich_HRS_Module_Living_Arrangements.pdf
Caregiving: Community Assistance https://www.phenxtoolkit.org/toolkit_content/PDF/UMich_HRS_Module_Caregiving.pdf...[See more] [See less]Type: Guideline/Assessment ToolAccess Notes: Free/Publicly Available
Web page for questionnaires: https://hrs.isr.umich.edu/data-products/covid-19
Web page for documentation, including a codebook: https://hrs.isr.umich.edu/documentation
2020 HRS COVID-19 Project Data https://hrsdata.isr.umich.edu/data-products/2020-hrs-covid-19-project?_ga=2.149722933.267077146.1615987774-1268362274.1611585873
Available Formats: PDF
Contact Information:
David Weir
Director of Health and Retirement Study
dweir@umich.eduIncludes Research Tools: Yes.ID: 23766. From: Disaster Lit®a database of the U.S. National Library of Medicine. -
Hidden Impact of COVID-19 on Children: A Global Research Series
Source: Save the Children InternationalDate Published: 9/10/2020Format: PDFAnnotation: This global study, with several documents, reveals the hidden impacts of COVID-19 pandemic response measures that are impacting children’s health, nutrition, education, learning, protection, well-being, family finances, and poverty.
Population: Adults and teens (NOTE: it’s ages 11 and up, actually)
Length: approximately 100 questions
Time to Complete: 25 minutes
Mode of Administration: Online (e.g., computer-assisted interview)
Administered by: Parent/Teacher; Self Administered
Language(s): English; Albanian; Amharic; Arabic; Bangla; Burmese; Dari; Filipino/Tagalog; French/ Hindi; Iindonesian; Korean; Khmer; Lao; Mongolian; Mindanao; Nepali; Pashto; Portuguese; Serbian; Sinhala; Spanish; Tamil; Thai; Urdu; Vietnamese
Access The Global Research Series reports, findings, and data: https://resourcecentre.savethechildren.net/library/hidden-impact-covid-19-children-global-research-seriesType: ReportAccess Notes: Free/Publicly Available
Contact: Please contact the research team (attn: Melissa Burgess or Silvia Mila Arlini) at evidence.aro@savethechildren.org with any questionsIncludes Research Tools: Yes.ID: 23693. From: Disaster Lit®a database of the U.S. National Library of Medicine. -
KFF/The Undefeated Survey on Race and Health
Source: Kaiser Family Foundation (KFF)Date Published: 8/20/2020Format: PDFAnnotation: The Survey on Race and Health, a joint project between KFF and ESPN's The Undefeated, explores the public's views and experiences on the topics of health care, racial discrimination, and the coronavirus pandemic, with a special focus on Black adults, a group that has borne a disproportionate burden of COVID-19 cases and deaths. This survey of 1,769 U.S. adults includes an oversample of 777 Black Americans to allow for in-depth reporting among this group, as well as comparison groups of White and Hispanic adults. This project focuses on African Americans' views and experiences of being Black in America, including views of unconscious bias and structural racism; experiences of discrimination within and outside of health care settings; trust in the health care system; the social and economic impacts of the pandemic; and views of a potential coronavirus vaccine.
Population: Adults Only
African Americans
Mode of Administration: Online (e.g., computer-assisted interview)
Telephone
Language(s): English
Background Website on KFF/The Undefeated Survey on Race and Health https://www.kff.org/racial-equity-and-health-policy/report/kff-the-undefeated-survey-on-race-and-health/
Race, Health, and COVID-19: The Views and Experiences of Black Americans http://files.kff.org/attachment/Report-Race-Health-and-COVID-19-The-Views-and-Experiences-of-Black-Americans.pdf
Infographics
Reports: https://theundefeated.com/tag/race-and-health-care/
Infographic: 13 Key Findings on the Experiences and Attitudes of Black Adults in the U.S. http://files.kff.org/attachment/Infographic-13-Key-Findings-on-the-Experiences-and-Attitudes-of-Black-Adults-in-the-US.pdf
Infographic: The Racial Divide in Health Care Experiences and COVID-19 Impacts http://files.kff.org/attachment/Infographic-The-Racial-Divide-in-Health-Care-Experiences-and-COVID-19-Impacts.pdf...[See more] [See less]Type: Guideline/Assessment ToolAccess Notes: Free/Publicly Available
Available Formats: PDF
Contact Information: Kaiser Family Foundation (KFF) https://www.kff.org/contact-us/; The Undefeated contact@theundefeated.comIncludes Research Tools: Yes.ID: 24235. From: Disaster Lit®a database of the U.S. National Library of Medicine. -
Coronavirus Victimization Distress Scale (CVDS)
Source: Fordham UniversityDate Published: 8/2020Format: PDFAnnotation: The Coronavirus Victimization Distress Scale (CVDS) is a brief self-report questionnaire developed by Fordham University's Center for Ethics Education and Applied Developmental Psychology Program as part of the Pathways to Health Study. The CVDS assesses bully and cyberbully victimization distress results from being viewed as having coronavirus. Questions include distress about being verbally and physically bullied, treated rudely or unfairly, verbally taunted in public, and cyberbullied because of coronavirus.
Population: Adults and Teens
Ethnic/Religious Groups
Sexual or Gender Minorities
Length: 5 items
Time to Complete: Less than 5 minutes
Mode of Administration: Online (e.g., computer-assisted interview)
Administered by: Self Administered
Language(s): English...[See more] [See less]Type: Guideline/Assessment ToolAccess Notes: Free/Publicly Available
Available Formats: PDF
Contact Information:
Celia B. Fisher, Ph.D.
Center for Ethics Education
Fordham University
Email: Fisher@fordham.edu
Administrator:
Lori Merone
Email: lmerone@fordham.eduIncludes Research Tools: Yes.ID: 23535. From: Disaster Lit®a database of the U.S. National Library of Medicine. -
Survey Tool and Guidance: Rapid, Simple, Flexible Behavioural Insights on COVID-19
Source: World Health Organization, Regional Office for EuropeDate Published: 7/29/2020Format: PDFAnnotation: This 42-page document provides guidance to Member States in the WHO European Region that wish to conduct behavioral insights studies related to COVID-19. This tool is evidence-informed; can be regularly applied; is flexible to adjust to the changing situation; and follows high ethical standards....[See more] [See less]Type: Guideline/Assessment ToolAccess Notes: Free/Publicly Available
Contact information: Katrine Habersaat (habersaatk@who.int) or Martha Scherzer (scherzerm@who.int)
Direct link to document: https://apps.who.int/iris/bitstream/handle/10665/333549/WHO-EURO-2020-696-40431-54222-eng.pdf?sequence=1&isAllowed=y
Link to resource in Russian: https://apps.who.int/iris/handle/10665/333550ID: 23230. From: Disaster Lit®a database of the U.S. National Library of Medicine. -
COVID-19 Survey for Workers
Source: University of California, DavisDate Published: 7/16/2020Format: PDFAnnotation: The purpose of this COVID-19 survey is to facilitate a rapid research response to the COVID-19 pandemic that will describe the affected population of frontline workers, their vulnerabilities, and their most urgent needs; and identify critical unmet needs and compare across geographic areas, types of facilities, job types, and sociodemographic characteristics.
Population: Adult Workers
Length: 80 questions
Time to Complete: 15-20 minutes
Mode of Administration: Online (e.g., computer-assisted interview)
Pen and Paper
Telephone
Administered by: Self Administered
Language(s): English, Spanish
Survey for Workers: Full Questionnaire https://www.phenxtoolkit.org/toolkit_content/PDF/UCD_Workers.pdf
Covid-19 Infection: General Symptoms; Diagnosis https://www.phenxtoolkit.org/toolkit_content/PDF/UCD_Workers_Infection.pdf
The Workplace: Employment; Personal Protective Equipment; Health Care https://www.phenxtoolkit.org/toolkit_content/PDF/UCD_Workers_Workplace.pdf
Demographics: Personal Demographics; Chronic Health Conditions https://www.phenxtoolkit.org/toolkit_content/PDF/UCD_Workers_Demographics.pdf
Changes to your life since COVID-19: Overall Impact https://www.phenxtoolkit.org/toolkit_content/PDF/UCD_Workers_Life_Changes.pdf
Financial situation: Economic Insecurity https://www.phenxtoolkit.org/toolkit_content/PDF/UCD_Workers_Financial.pdf
Living situation: Personal Demographics; Home Life https://www.phenxtoolkit.org/toolkit_content/PDF/UCD_Workers_Living_Situation.pdf
Knowledge about COVID-19 protection measures: Attitudes; Knowledge
https://www.phenxtoolkit.org/toolkit_content/PDF/UCD_Workers_Knowledge.pdf
Pregnancy: Current Pregnancy; Past Pregnancy https://www.phenxtoolkit.org/toolkit_content/PDF/UCD_Workers_Pregnancy.pdf...[See more] [See less]Type: Guideline/Assessment ToolAccess Notes: Free/Publicly Available
Public survey available: https://redcap.ucdmc.ucdavis.edu/redcap/surveys/index.php?s=AXALYRE8RF
Available Formats: PDF
Contact Information:
University of California, Davis
Natalie Nardone, nlnardone@ucdavis.eduIncludes Research Tools: Yes.ID: 23745. From: Disaster Lit®a database of the U.S. National Library of Medicine.REDCap: Yes. -
COVID-19 Impact Survey
Source: National Alzheimer’s Coordinating Center (NACC)Date Published: 7/2/2020Format: PDFAnnotation: The COVID-19 Impact Survey was used to gather data on the effect of the pandemic on participants enrolled in the clinical cores of the National Institute on Aging (NIA) Alzheimer's Disease Research Centers, a population of mostly older Americans with cognitive status ranging from normal to mild cognitive impairment to dementia (resulting from Alzheimer's disease and a range of other etiologies). An additional survey was created for the co-participants.
Questions Adapted From: N/A
Population: Adults Only
Length: 21 questions for the participant, 10 for the co-participant
Time to Complete: 15 minutes for participant, 10 minutes for co-participant
Mode of Administration: Face-to-face
Online (e.g., computer-assisted interview)
Pen and Paper
Telephone
Administered by: Self Administered
Specialist/Doctor/Expert
Trained Lay Examiner/Interviewer
Language(s): English
COVID-19 Impact Survey: Full Questionnaire https://www.phenxtoolkit.org/toolkit_content/PDF/NACC_COVID.pdf
COVID-19 Impact Survey - Participant: Diagnosis; General Mental Health; Overall Impact https://www.phenxtoolkit.org/toolkit_content/PDF/NACC_COVID_Participant.pdf
COVID-19 Impact Survey - Co-participant: General Mental Health; Overall Impact; Health Care https://www.phenxtoolkit.org/toolkit_content/PDF/NACC_COVID_Coparticipant.pdf
COVID-19 Technology Accessibility Survey: Technology Use https://www.phenxtoolkit.org/toolkit_content/PDF/NACC_Covid_Tech_Survey.pdf...[See more] [See less]Type: Guideline/Assessment ToolAccess Notes: Free/Publicly Available; Direct link to document: https://www.alz.washington.edu/NONMEMBER/Covid-impact-surveys.pdf
Available Formats: PDF
Contact Information: National Alzheimer's Coordinating Center, Elizabeth Robichaud, naccmail@uw.edu
Survey originally developed by the ADRC Clinical Task Force, Allan Levey, MD, PhD, ChairIncludes Research Tools: Yes.ID: 23179. From: Disaster Lit®a database of the U.S. National Library of Medicine. -
Multidimensional Face Mask Perceptions Scale: Eight Dimensional Measure to Gauge Negative Perceptions of Face Mask Wearing
Source: University of South AlabamaDate Published: 7/2020Format: TextAnnotation: This is a 32-item, eight-dimension, self-report scale that can be administered online or via pencil and paper. The purpose of this scale is to assess perceptions regarding face mask wearing, and it is composed of eight dimensions with four items representing each dimension. The eight dimensions (with example items) are: comfort ("Face masks disrupt my breathing"), efficacy doubts ("Face masks provide few health benefits"), access ("I do not know where to buy a face mask"), compensation ("I stay away from people when I go out"), inconvenience ("I forget to wear a face mask when going out"), appearance ("Face masks look silly"), attention ("Face masks make people seem untrustworthy"), and independence ("I do not like blindly following suggestions"). The scale is administered with the following instructions: "Please indicate the extent to which you disagree to agree with the following statements regarding face masks, which refers to cloth coverings worn on the face typically intended to prevent the spread of disease and illness. Answer each of the following items as if they began with: When I do not wear a face mask in public it is because. . ." The psychometric properties and validity of the scale were strongly supported in a prior study (Howard, 2020). In Study 1, Howard (2020) utilized a qualitative coding approach to create the items based on participants' stated reasons for not wearing face masks. In Study 2, Howard (2020) supported the factor structure of the scale via exploratory factor analysis (EFA), provided evidence of the scale's concurrent validity, and demonstrated that certain dimensions significantly correlated to face mask wearing. In Study 3, Howard (2020) further supported the factor structure of the scale via confirmatory factor analysis (CFA). Together, these cumulative results provide assurance that this scale adequately gauges face mask perceptions in a multidimensional manner.
Population: Adult Workers
Adults and Teens
All/Anyone
Cleanup/Disaster Worker
Length: 32 Items
Time to Complete: 3 Minutes
Mode of Administration: Face-to-face
Online (e.g., computer-assisted interview)
Pen and Paper
Telephone
Administered by: Lay Interviewer
Parent/Teacher
Professional Interviewer
Self Administered
Specialist/Doctor/Expert
Trained Lay Examiner/Interviewer
Language(s): English
Multidimensional Face Mask Perceptions Scale: Attitudes; Personal Protective Equipment https://www.phenxtoolkit.org/toolkit_content/PDF/SA_MD_Face_Mask_Perceptions_Scale.pdfType: Guideline/Assessment ToolAccess Notes: Free/Publicly Available
Citation(s):
Howard, M. C. (2020). Understanding face mask use to prevent coronavirus and other illnesses: Development of a multidimensional face mask perceptions scale. British Journal of Health Psychology.
Available Formats: TEXT
Contact Information: Dr. Matt C. Howard
University of South Alabama
337 Mitchell College of Business
Mobile, AL 36695
MHoward@SouthAlabama.edu
MattCHoward.comIncludes Research Tools: Yes.ID: 23058. From: Disaster Lit®a database of the U.S. National Library of Medicine. -
Health and Retirement Study: Questionnaire on Your Everyday Life and Well-being
Source: University of MichiganDate Published: 7/2020Format: PDFAnnotation: As a longitudinal study with rich measurement across a large number of social, health, and economic domains, the Health and Retirement Study (HRS) was designed to capture the impact of unexpected societal events, even without additional measurement specific to the event. To complement these longitudinal measures, HRS has developed several areas of content specifically in response to the coronavirus pandemic designed to dovetail with existing assessment. Information on lifestyle and psychosocial functioning is collected through a self-administered questionnaire (SAQ). Additional questions in the psychosocial SAQ were added to the 2020 wave of data collection. These questions obtain information on lifestyle, personal relationships, work, and feelings in response to the pandemic. These questions cover five subtopics: 1) pandemic-specific concerns related to health, finances, friends and family, and the future; 2) changes in social contact with family and friends, including social support given and received and changes in relationship quality; 3) impact on activities, including pandemic-specific behaviors such as wearing a mask, washing hands, social distancing, and using hand sanitizer; 4) additional questions about work status that indicate if the respondent was an essential worker and whether or not they could work at home during the pandemic; and 5) emotional well-being, resilience, and coping during the pandemic.
Population: Adults only
Length: 78 questions
Mode of Administration: Pen and Paper
Administered by: Self Administered
Language(s): English
Health and Retirement Study: Questionnaire on Your Everyday life and Well-being: Full Questionnaire https://www.phenxtoolkit.org/toolkit_content/PDF/UMich_HRS_SAQ.pdf
Mental Health: General Mental Health https://www.phenxtoolkit.org/toolkit_content/PDF/UMich_HRS_SAQ_Mental_Health.pdf
Perceptions: Attitudes; Employment https://www.phenxtoolkit.org/toolkit_content/PDF/UMich_HRS_SAQ_Perceptions.pdf
Risk Reduction Behaviors: Social Impact; Daily Life https://www.phenxtoolkit.org/toolkit_content/PDF/UMich_HRS_SAQ_Behaviors.pdf
HRS 2021 Survey “Perspectives on the Pandemic”: https://disasterinfo.nlm.nih.gov/content/files/HRS_2021_COVID_MAILOUT_IRB_APPROVED_210427.pdf
HRS 2021 Survey “Perspectives on the Pandemic” Cover page: https://disasterinfo.nlm.nih.gov/content/files/HRS_2021_COVID_MAILOUT_COVERPAGE_210427.pdf...[See more] [See less]Type: Guideline/Assessment ToolAccess Notes: Free/Publicly Available
Web page for questionnaires: https://hrs.isr.umich.edu/data-products/covid-19
Web page for documentation, including a codebook: https://hrs.isr.umich.edu/documentation
Available Formats: PDF
Contact Information:
David Weir,
Director of Health and Retirement Study
Email: dweir@umich.eduIncludes Research Tools: Yes.ID: 23765. From: Disaster Lit®a database of the U.S. National Library of Medicine. -
COVID Response Tactics Sharing - Healthcare Engineering: Instrument to Measure and Compare the Tangible COVID Protection Activities Completed by Healthcare Facilities
Source: American Society for Health Care Engineering (ASHE)Date Published: 6/26/2020Format: PDFAnnotation: At the start of the COVID crisis, hospitals wrestled with the best ways to adapt existing infrastructure to best protect patient and staff health, and to expand critical clinical space to meet patient surge needs. The COVID Response Tactics Sharing (CRTS) survey instrument and reporting project was created to allow health care engineering professionals the ability to report the tangible changes they made to prepare their health care organizations for the COVID response, and to compare themselves with others on these activities. This survey was created, fielded and continues to be reported by researchers within the American Society of Health Care Engineering (ASHE), which is a professional membership group of the American Hospital Association. This tool was first created and deployed June of 2020 and measures strategic decision-making and the concrete COVID related activities of health care engineers (e.g., social distancing protections, conversion of spaces to negative pressure, creation of alternate health care spaces, regulatory impacts). Since its deployment, more than 1,500 different health care facilities have participated in the survey. The survey will continue data collection throughout the crisis, and for those interested in participating as part of the ASHE effort, regular reporting is offered so that organizations can better understand the strategy and resulting impacts (patient protections, financial) of critical health care engineering activities allowing this information to applied for future emergencies. Those interested in using the survey questions are also invited to do so as long as ASHE and the American Hospital Association are cited.
Questions Adapted From: The survey was created by the American Society for Healthcare Engineering (ASHE: a part of the American Hospital Association). A research methodologist consulted with SMEs in the field of health care engineering and experts in emergency preparedness and communicable infectious diseases to ensure that questions were created that would capture the data needed to yield actionable information on preparedness efforts. Given that America has not seen a pandemic in over 100 years and that information on how the health care environment (particularly pressurization of spaces) influenced spread, this field had to react quickly to prepare the physical environment for patient surge. The questions in the survey collect this information and can be segmented by time, hospital type and geographical location to provide insight for future disasters of this kind.
Includes Common Data Elements From: No
Population: Health care organizations
Length: 170 items* However, not all items will apply to all audiences. If respondent organizations did not perform these tasks, the survey is much shorter.
Time to Complete: Approximately 20 minutes
Mode of Administration: Online (e.g., computer-assisted interview)
Administered by: Self Administered/Self Report
Special Considerations: There are two options for participation. 1) Organizations can choose to click ASHE's direct link to the survey here: Clicking this link and participating in the survey enrolls respondent organizations in ASHE CRTS survey and reporting project. Respondent organization's that choose to participate in this way will receive updated reports based on the results. 2) Organizations can utilize the data dictionary to select question items. Please cite the American Society for Health Care Engineering, and the American Hospital Association. Please also consider contacting ASHE for opportunities to collaborate.
Language(s): English
Find additional documentation: https://www.ashe.org/CRTSType: Guideline/Assessment ToolAccess Notes: Free/Publicly Available
Citation(s):
Walt, Lisa. “ASHE research highlights the field's response to COVID-19” Health Facilities Management November/December 2020 Cover Story. https://www.hfmmagazine.com/articles/4059-ashe-research-highlights-the-fields-response-to-covid-19
COVID Response Tactics Sharing (CRTS) 2020: Brief Report https://www.ashe.org/system/files/media/file/2020/11/ashe_crts_survey_report-FINAL.pdf
Available Formats: PDF
Contact Information: Lisa Walt, PhD; Email: lwalt@aha.orgIncludes Research Tools: Yes.ID: 24227. From: Disaster Lit®a database of the U.S. National Library of Medicine. -
National Health and Aging Trends Study (NHATS) COVID-19 Questionnaires
Source: Johns Hopkins University, Bloomberg School of Public HealthDate Published: 6/20/2020Format: PDFAnnotation: This set of questionnaires was used in a supplemental mail study of the National Health and Aging Trends Study (NHATS) conducted in 2020. The questionnaires aim to assess experiences during the COVID-19 outbreak of: 1) NHATS participants (ages 70 and older) and 2) the up to two adult family members and friends who helped NHATS participants the most during the outbreak. Two types of mail questionnaires were administered: 1) questionnaires designed for NHATS participants or their proxy respondents (SP / proxy) and 2) questionnaires designed for adult family members and friends (FF) who helped NHATS participants. The SP questionnaires includes 13 sections. Topics cover symptoms of COVID-19, measures taken to limit spread of the virus, and changes during the pandemic in the NHATS participants' living situation, contact with family and friends, productive activities (e.g., work, volunteering, caregiving), grocery shopping, health care, finances, wellbeing and daily activities. Participants were also asked to provide contact information for the two adult family members or friends who helped most during the outbreak. The FF questionnaire includes 17 sections, many of which align with the sections in the SP/Proxy questionnaires. In addition, the FF questionnaire asks about the FF's relationship with the NHATS participant, help given to the NHATS participant before and during the outbreak and reasons for helping. For those who helped for health or functioning reasons, three additional sections about caregiving are included: time spent helping the NHATS participant, dementia caregiving (if help is memory related) and helping challenges and supports.
Questions Adapted From: Symptoms of COVID-19 module (questions 5-9 in SP/proxy questionnaire and 15-19 in FF questionnaire) is adapted from MESA, common symptom questions are adapted from CDC definitions; Measures to Limit Spread of COVID-19 questions (question 12 in SP/proxy questionnaire and 22 in FF questionnaire) are adapted from MESA; Questions 13-16 on assisted Living in SP questionnaire is adapted based on AHCA guidance; Questions 17, 18, 21, and 22 in SP/Proxy questionnaire aligned with items in the HRS COVID telephone module; Questions 27-28 in SP/Proxy questionnaire and 50-51 in FF questionnaire aligned with HRS COVID SAQ; Questions 29-30 in SP/Proxy questionnaire aligned with HRS COVID SAQ and life space constriction items in the simplified version of Stalvey et al. (1999); Questions 33-34 in the SP/Proxy questionnaire aligned with content in NHATS. Questions 35-36 in the SP/Proxy questionnaire and 48 in the FF questionnaire aligned with HRS COVID SAQ; Questions 37-40 on changes in grocery shopping in the SP/Proxy questionnaire aligned with content in NHATS; Questions 41-45 on changes in health care in the SP/Proxy questionnaire are adapted from NSOC III (HC module) and HRS COVID telephone module; Question 46 in the SP/Proxy questionnaire and 29 in the FF questionnaire are adapted from HRS COVID telephone module; Questions 47-48 in the SP/Proxy questionnaire 30-31 in the FF questionnaire are adapted from PSID shutdown / COVID19 module; Questions 49-52 in the SP/Proxy questionnaire aligned with HRS COVID SAQ; Question 57 in the SP/Proxy questionnaire and 38 in the FF questionnaire are adapted from PTSD-8 (Hansen et al. 2010); Question 33 in the FF questionnaire aligned with PHQ2 and GAD in NHATS (HC); Question 53 in the SP/Proxy questionnaire and question 34 in the FF questionnaire aligned with NHATS (HC); Questions 60-69 on changes in daily activities in the SP/Proxy questionnaire aligned with NHATS (SC, MO, HA, DT, MC modules); Questions 32, 44, 49, 59-66, 71-76, and 78-79 in the FF questionnaire aligned with NSOC (HC, DI, AC, and CA module); Questions 53-58, and 67-70 in the FF questionnaire aligned with NHATS (SC, MO, HA, DT, MC, HA, and CP modules). References: Stalvey, B., Owsley, C., Sloane, M.E., Ball, K. (1999) The Life Space Questionnaire: A measure of the extent of mobility of older adults. Journal of Applied Gerontology 18: 479-498. Hansen, M., Andersen, T. E., Armour, C., Elklit, A., Palic, S., & Mackrill, T. (2010). PTSD-8: a short PTSD inventory. Clinical practice and epidemiology in mental health: CP & EMH, 6, 101.
Population: Adults Only
Length: 69 questions for the Sample Person (SP) Questionnaire, 63 questions for the Proxy Questionnaire, and 79 questions for the Family Members and Friends (FF) Questionnaire.
Time to Complete: Approximately 20 minutes
Mode of Administration: Pen and Paper
Administered by: Self Administered
Language(s): English (SP/proxy and FF questionnaires), Spanish (SP questionnaire)...[See more] [See less]Type: Guideline/Assessment ToolAccess Notes: Free/Publicly Available
Available Formats: PDF
Contact Information: Vicki A. Freedman, Institute for Social Research, University of Michigan, vfreedma@umich.edu; Judith Kasper, Johns Hopkins Bloomberg School of Public Health, jkasper1@jhu.edu.Includes Research Tools: Yes.ID: 24245. From: Disaster Lit®a database of the U.S. National Library of Medicine. -
TILDA COVID-19 Self-Completion Questionnaire
Source: Trinity College DublinDate Published: 6/2020Format: PDFAnnotation: This Self-Completion Questionnaire (SCQ) was developed to collect information from participants of The Irish Longitudinal Study on Ageing (TILDA) on the experiences of community-dwelling older adults aged 58 years and older during the COVID-19 pandemic in the Republic Of Ireland. TILDA is a longitudinal cohort studies of community-dwelling older adults that began in 2009. A full description of TILDA and its program of research to date can be accessed at https://tilda.tcd.ie/. The survey was administered in June 2020 and data collection will conclude in September 2020.
Questions Adapted From: The questionnaire includes items used in earlier rounds of TILDA and as such are largely harmonized with other aging cohort studies in the Health and Retirement Study (HRS) family of studies that include the English Longitudinal Study of Ageing (ELSA) and the Survey of Health, Ageing and Retirement in Europe (SHARE).
Population: Adults only
Length: 81 questions
Time to Complete: 30 to 40 minutes
Mode of Administration: Pen and Paper
Administered by: Self Administered
Language(s): English
The Irish Longitudinal Study on Ageing (TILDA) COVID-19 Self-Completion Questionnaire: Full Questionnaire https://www.phenxtoolkit.org/toolkit_content/PDF/TCD_TILDA.pdf
Activities During Covid-19: Home Life; Social Distancing https://www.phenxtoolkit.org/toolkit_content/PDF/TCD_TILDA_Activities.pdf
Health Behaviors: Social Impact; Substance Use; Physical Activity https://www.phenxtoolkit.org/toolkit_content/PDF/TCD_TILDA_Health_Behaviors.pdf
Mental Health: General Mental Health https://www.phenxtoolkit.org/toolkit_content/PDF/TCD_TILDA_Mental_Health.pdf
Work: Employment; Economic Impact https://www.phenxtoolkit.org/toolkit_content/PDF/TCD_TILDA_Work.pdf
State Assistance and Care Giving: Federal Assistance; Home Lifehttps://www.phenxtoolkit.org/toolkit_content/PDF/TCD_TILDA_State_Assistance.pdf
Health Care: Health Care https://www.phenxtoolkit.org/toolkit_content/PDF/TCD_TILDA_Health_Care.pdf
Media: Media Use; Sources of information about COVID-19 https://www.phenxtoolkit.org/toolkit_content/PDF/TCD_TILDA_Media.pdf
Age Discrimination: Attitudes https://www.phenxtoolkit.org/toolkit_content/PDF/TCD_TILDA_Age_Discrimination.pdf
COVID-19 Impact: General Symptoms; Diagnosis https://www.phenxtoolkit.org/toolkit_content/PDF/TCD_TILDA_COVID19_Impact.pdf
General Impact: Overall Impact https://www.phenxtoolkit.org/toolkit_content/PDF/TCD_TILDA_General_Impact.pdf...[See more] [See less]Type: Guideline/Assessment ToolAccess Notes: Free/Publicly Available
Available Formats: PDF
Contact Information:
Dr. Mark Ward
The Irish Longitudinal Study on Ageing (TILDA)
Trinity Central
152-160 Pearse Street A
Trinity College Dublin, the University of Dublin
Dublin 2, D02 R590, Ireland
Email: wardm8@tcd.ieIncludes Research Tools: Yes.ID: 23665. From: Disaster Lit®a database of the U.S. National Library of Medicine. -
Social Risk Factors for COVID-19 Exposure Questionnaire
Source: Harvard University, Harvard T.H. Chan School of Public HealthDate Published: 5/21/2020Format: PDFAnnotation: This is a self-report, online-based questionnaire designed for use with seropositivity testing and administered via Qualtrics to assess exposure to COVID-19 and modifying factors, such as mask usage, in: (1) the residence and household; (2) while taking transportation; and (3) through work and employment. Modules included in survey: I. Introduction. The first section includes three questions related to concerns about exposure to COVID-19 in the home, while using typical forms of transportation, and in the workplace (questions 2 through 4). II. About You. This second section includes up to 13 questions on demographic factors and the survey-taker's experience with COVID-19 testing (questions 6 through 18). III. Residence and Household. This third section includes up to 14 questions about the type and size of the residence, number and ages of other household members, and COVID-19 infection histories of the other household members (questions 20 through 33). IV. Transportation. This fourth section includes up to seven questions about the frequency of activities outside of the home (work/employment, outdoor exercise and recreation, essential errands, and personal and social activities), and the type of transportation used for those activities. If the survey-taker reports use of public transportation, they are asked about mask usage and social distancing while on public transportation (questions 35 through 41). V. Work and Employment (General). This section includes up to four questions about occupation, industry, and work for pay since the beginning of the COVID-19 pandemic (questions 43 through 46). VI. Work and Employment (Work Outside the Home). This section includes up to 13 questions focusing on work outside the home. In particular, survey-takers are asked about hours worked per week, the percent of remote work performed, contact with the public, contact with co-workers, PPE usage, and employer COVID-19 policies (questions 47 through 59).
Questions Adapted From: Q11, Q23, Q46 - American Community Survey; Q9, Q10, Q12, Q13, Q24, Q43, Q44 - U.S. Census Bureau 2020 COVID-19 Household Pulse Survey; Q7, Q8, Q18, Q25 - John Hopkins University COVID-19 Community Response Survey
Population: Adults only
Length: 59 questions
Time to Complete: 15-30 minutes
Mode of Administration: Online (e.g., computer-assisted interview)
Administered by: Self Administered
Language(s): English...[See more] [See less]Type: Guideline/Assessment ToolAccess Notes: Free/Publicly Available
Format: Qualtrics Survey Format (QSF)
Citation(s):
Suggested citation: Accorsi, E.K., Cowger, T., Lipsitch, M. (2020). Social Risk Factors for COVID-19 Exposure Questionnaire.
Contact Information:
Marc Lipsitch, DPhil
Professor of Epidemiology
Director, Center for Communicable Disease Dynamics
Harvard T.H. Chan School of Public Health
Email: mlipsitc@hsph.harvard.edu
Emma Accorsi, PhD Candidate
Harvard T.H. Chan School of Public Health
Email: eaccorsi@g.harvard.eduIncludes Research Tools: Yes.ID: 23536. From: Disaster Lit®a database of the U.S. National Library of Medicine. -
Pain Management Collaboratory (PMC) Coronavirus Pandemic (COVID-19) Measures: Version 2.0
Source: Yale UniversityDate Published: 5/20/2020Format: PDFAnnotation: This 7-item self-report instrument is intended for individuals who are participating in ongoing clinical research during the coronavirus pandemic. It was developed to quantify changes in psychosocial, functional, and financial factors that may influence clinical research participation and clinical research study outcomes. The domains measured include: (1.) Access to Healthcare, (2.) Social Support, (3.) Finances, (4.) Ability to Meet Basic Needs, (5.) Mental and Emotional Health as well as a participant (subjective) experience of personal and family exposure to coronavirus. It was designed to quickly assess, in a minimally-burdensome manner, the positive and negative aspects of the pandemic on multiple mediating factors that may impact study outcomes.
This instrument has a 3-month look back which can be adjusted to fit the study design. The tool is intended to be delivered at multiple time points (baseline and follow-up) to measure changes over time.
This instrument was developed by researchers for the Pain Management Collaboratory (PMC) which involves 11 pragmatic trials studying non-pharmacological approaches to pain management (e.g. physical therapy, chiropractic care, meditation) in military personnel and veterans; however, this instrument was written broadly enough to be used with any adult population involved in clinical research.
Questions Adapted From: The Phenotype and Outcome Work Group, within the Pain Management Collaboratory Coordinating Center (PMC3), is comprised of representatives from 11 pragmatic pain trials. The PMC3 collected COVID-related questionnaires from public sources, published instruments, and investigators within the Collaboratory. The Work Group members then met to review the resources compiled by PMC3, identified the key domains of interest, selected a question/response structure proposed for use by three PMC trial groups, revised the language within each question item until a consensus was obtained, and drafted the final instrument. This instrument has been approved by the Steering Committee for harmonized use of across PMC trials.
Population: Adults Only
Length: 7 items
Time to Complete: <5 minutes
Mode of Administration: Online (e.g., computer-assisted interview); Pen and Paper; Telephone
Administered by: Self Administered
Language(s): English
Pain Management Collaboratory (PMV) Coronavirus Pandemic (COVID-19) Measures: Overall Impact https://www.phenxtoolkit.org/toolkit_content/PDF/Yale_PMV_Covid19.pdfType: Guideline/Assessment ToolAccess Notes: Free/Publicly Available
Contact Information:
Yale University
Pain Management Collaboratory Coordinating Center
Email: painmanagementcollaboratory@yale.eduID: 23059. From: Disaster Lit®a database of the U.S. National Library of Medicine. -
Coping with COVID Through Nature: Evidence from Breast Cancer Patients
Source: Michigan State University (MSU)Date Published: 5/18/2020Format: PDFAnnotation: In order to increase physical activity and reduce chronic stress on a population level, researchers and city planners are exploring features of the built environment, including access to urban green space that may promote healthy lifestyles. Parks serve as places to engage in physical activity (PA) in direct contact with nature -- called "green exercise" -- which has been shown to lower perceived stress and risk of chronic disease. In addition, research indicates that passive exposure to green space (e.g., visual, as in the sight of plants and trees, and auditory, as in birdsong) may lower stress. However, many adults may experience barriers to getting outdoors, visiting parks, and engaging in PA during COVID-19 lockdowns, particularly people with compromised immune systems like those living with cancer. Exploring both how and why physical activity and outdoor behaviors have changed can help us to further understand the decision-making process and potential interventions that will benefit the health and well-being of breast cancer patients.
Questions Adapted From: Questions about usage of outdoor spaces were both novel and adapted from University of Minnesota and Kansas State University surveys on outdoor activities during COVID-19. Perceived stress scale from Cohen (Cohen, S., T. Kamarck, and R. Mermelstein, A global measure of perceived stress. Journal of Health and Social Behavior, 1983. 24: p. 385-396). Quality of life questions from PROMIS (Hays, R.D., et al., Development of physical and mental health summary scores from the patient-reported outcomes measurement information system (PROMIS) global items. Quality of life research: an international journal of quality of life aspects of treatment, care and rehabilitation, 2009. 18(7): p. 873-880). Symptom experience from Cleeland (Cleeland, C.S., Symptom burden: multiple symptoms and their impact as patient-reported outcomes. J Natl Cancer Inst Monogr, 2007(37): p. 16-21).
Population: Adults Only
Length: 150 questions, including health and demographic questions
Time to Complete: 20 minutes
Mode of Administration: Online (e.g., computer-assisted interview)
Administered by: Self Administered
Language(s): English
Coping with COVID through nature: Evidence from breast cancer patients and the output from the intake form: Full Questionnaire https://www.phenxtoolkit.org/toolkit_content/PDF/MSU_CWC.pdf
Community Impacts: Physical Activity; Community Access https://www.phenxtoolkit.org/toolkit_content/PDF/MSU_CWC_Community.pdf
Environmental Factors: Nature Appreciation https://www.phenxtoolkit.org/toolkit_content/PDF/MSU_CWC_Enrvironmental.pdf
Mental Health: General Mental Health https://www.phenxtoolkit.org/toolkit_content/PDF/MSU_CWC_Mental_Health.pdf
Cancer Impact: Non-COVID-19 Symptoms and Medicines https://www.phenxtoolkit.org/toolkit_content/PDF/MSU_CWC_Cancer.pdf
Personal Demographics: Personal Demographics; Health Care https://www.phenxtoolkit.org/toolkit_content/PDF/MSU_CWC_Demographics.pdf...[See more] [See less]Type: Guideline/Assessment ToolAccess Notes: Permission/Request required
Citation(s):
Licensing required for the MDAIS questions only. All other questions freely available.
Available Formats: PDF
Contact Information: Amber Pearson
Michigan State University
apearson@msu.eduIncludes Research Tools: Yes.ID: 22691. From: Disaster Lit®a database of the U.S. National Library of Medicine. -
Telling Our Stories in the Age of COVID-19
Source: Cornell UniversityDate Published: 5/6/2020Format: PDFAnnotation: Overarching Goal: This study is intended to better understand the day-to-day impact of the novel coronavirus on the lives of the global public. Using regular journal entries along with several open- and close-ended questions specific to the impact of COVID-19, we aim to understand personal experiences of the global pandemic as it occurs in real time. We are specifically interested in situational changes, COVID-19 exposure and experience, COVID-19-related concerns, daily mood changes, and perceived impact, mental health impact, and use of social media.
Study Population: As of May 6, 2020, participants represent 29 countries and 35 states within the United States. At the current time, respondent age range is 18-82 (mean = 44.8) and largely female (89.29%; 9.2% male). There is considerable variation in where people are living (this was check all that apply): 38% are with a spouse/partner, 18% with children <18, 10.2% with adult children, 10.7% with parents, 4.9% with roommates, and the rest in variations on this basic arrangement. Neither socioeconomic status (SES) nor race/ethnicity data was collected.
Study Design: All participants have been recruited using principal investigator networks, organizational partner (Cornell University and Jed Foundation) publicity, and paid advertisements on Facebook in a number of regions around the world and within the United States. Participants enter the study through an online portal (https://www.covid-stories.com/) and are sent an initial survey where living context data are gathered. After signing up, participants receive a daily link to a short survey that assesses change since previous participation in a right of domains. Twice a week, respondents are sent a slightly modified version of the daily survey to assess mental health impact and social media use.
Population: Adults only
Length: 34 questions
Administered by: Self Administered/Self Report
Language(s): English
Supporting material:
Aims, protocol and sample descriptives https://disasterinfo.nlm.nih.gov/content/files/Aims_protocol_sample.docx
Codebook https://disasterinfo.nlm.nih.gov/content/files/Codebook.xlsx
Consent form https://disasterinfo.nlm.nih.gov/content/files/Autoethnography%20_Consent_Form.docx
Daily Journal https://disasterinfo.nlm.nih.gov/content/files/Daily_Journal.docx
Weekly Journal https://disasterinfo.nlm.nih.gov/content/files/Weekly_Journal.docx
Initial Storytelling Journal Entry https://disasterinfo.nlm.nih.gov/content/files/Initial_Covid-19_Storytelling_Journal_Entry.docx
Art Entry https://disasterinfo.nlm.nih.gov/content/files/COVID-19_Art_Entry.docx
PHENX links:
Telling our stories in the age of COVID-19 (TOSC): Full Questionnaire https://www.phenxtoolkit.org/toolkit_content/PDF/Telling_our_stories_in_the_age_of_COVID-19.pdf
COVID-19 Situational and Contextual Factors: Employment; Demographics https://www.phenxtoolkit.org/toolkit_content/PDF/CU_TOSC_Situational.pdf
COVID-19 Regional Restriction Status: Government Response https://www.phenxtoolkit.org/toolkit_content/PDF/CU_TOSC_Restrictions.pdf
COVID-19 Concerns About Health, Finances, and Overall Impact: Health Care; Economic Insecurity https://www.phenxtoolkit.org/toolkit_content/PDF/CU_TOSC_Concerns.pdf
COVID-19 Health Status: Status; Diagnosis https://www.phenxtoolkit.org/toolkit_content/PDF/CU_TOSC_Health_Status.docx.pdf
COVID-19 Impact: Overall Impact https://www.phenxtoolkit.org/toolkit_content/PDF/CU_TOSC_Impact.pdf...[See more] [See less]Type: Guideline/Assessment ToolAccess Notes: Available Formats: PDF
Free/Publicly Available
NOTE: The document at the provided URL includes specific survey domains and measures that are a compendium of all items used across the three surveys (the initial survey, the daily survey, and the twice-a-week survey). Non-COVID-19 specific measures appear at the bottom of the measure list.
Link to Study Website: https://www.covid-stories.com/
Contact information: Janis Whitlock, MPH, PhD, Cornell University: Jlw43@cornell.eduIncludes Research Tools: Yes.ID: 22127. From: Disaster Lit®a database of the U.S. National Library of Medicine. -
ABCD COVID-19 Impact Measure
Source: University of California, San Diego (UCSD)Date Published: 5/2020Format: PDFAnnotation: The COVID-19 Impact Measure was created to be administered to the participants of the NIH-sponsored Adolescent Brain and Cognitive Development (ABCD) longitudinal study of 11,880 diverse community youth enrolled at age 9-10 in 2016-2018 (i.e., birth years 2006-2009) at 21 research sites around the United States. The ABCD sample (63% White, 20% Latinx, 16% Black, 12% more than one race, 2% Asian, <1% American Indian, <1% Pacific Islander; half female) was targeted to match U.S. demographics as defined by the American Community Survey and is being followed until at least age 20. ABCD will send all currently enrolled participants (age range: 11-13) and their parent/guardian the opportunity to complete the ABCD COVID-19 questionnaires. The questionnaires will be administered once a month for four months. Each participant and their parent/guardian will be emailed a unique secure link to the parent and child forms to complete the survey in REDCap. Compensation will be provided upon receipt of the completed form. These measures were developed by a workgroup consisting of ABCD investigators with expertise in adolescent development, mental health, sleep, physical activity, substance use, and disaster response, and the electronic surveys underwent preliminary testing via expert review and pilot testing with adults and children.
Note the Parent Measures contain the English and Spanish wording. The Parent Measure appears in two parts to accommodate parents who have more than one child in the ABCD Study (our design intentionally oversampled identical twins): Part 1 consists of questions that pertain to parent and family factors; Part 2 consists of questions pertaining to each child they have in the study. ABCD's COVID-19 research sends the measure multiple times over several months in 2020; to reduce participant burden, some items have skip-out branching logic and other items are given at one or two survey administrations and other items are administered each time (noted in comments in the measure PDFs).
Domains included in the measure:
* Family Situation: Home composition, economic impact, illness, parent support
* Youth's Schooling: quality, quantity, methods, and supervision
* Youth's Routine and Sleep
* Relationships: friends and family
* COVID Attitudes and Adherence (to public health directives)
* Mental Health and Stress: depression, anxiety, worry, post-traumatic stress
* Substance Use: alcohol, vaping of nicotine and cannabis, other intoxicants
* Screen Use: for school, socializing, other reasons
* Media Exposure to COVID-19
* Physical Health: activity, food access, COVID-19 symptoms
Population: Adults Only
Children/Teens Only
Length: ~85-90 items (Youth)* ; ~80-90 items (Parent) *Note: both measures have skip-out branching logic and not all questions may be asked to all participants.
Time to Complete: 10-15 minutes
Mode of Administration: Online (e.g., computer-assisted interview)
Administered by: Self Administered
Language(s): English, Spanish (Parent)
ABCD COVID-19 Impact Measure - Parent Questionnaire https://www.phenxtoolkit.org/toolkit_content/PDF/UCSD_ABCD_Parent.pdf
Family Situation: Economic Insecurity; Avoidant Behaviors https://www.phenxtoolkit.org/toolkit_content/PDF/UCSD_ABCD_Parent_Family.pdf
Youth's Schooling: Education https://www.phenxtoolkit.org/toolkit_content/PDF/UCSD_ABCD_Parent_Schooling.pdf
Youth's Routine and Sleep: Physical Activity; Sleep Changes https://www.phenxtoolkit.org/toolkit_content/PDF/UCSD_ABCD_Parent_Routine.pdf
Relationships: Family Impact; Hygiene; Social Impact https://www.phenxtoolkit.org/toolkit_content/PDF/UCSD_ABCD_Parent_Relationships.pdf
COVID Attitudes & Adherence: Conflict; Attitudes https://www.phenxtoolkit.org/toolkit_content/PDF/UCSD_ABCD_Parent_Attitudes.pdf
Mental Health & Stress: Mental Health; Stress https://www.phenxtoolkit.org/toolkit_content/PDF/UCSD_ABCD_Parent_Mental_Health.pdf
Substance Use: Substance Use https://www.phenxtoolkit.org/toolkit_content/PDF/UCSD_ABCD_Parent_Substance_Use.pdf
Screen Use: Media Use https://www.phenxtoolkit.org/toolkit_content/PDF/UCSD_ABCD_Parent_Screen_Use.pdf
Media Exposure to COVID-19: Sources of information about COVID-19 https://www.phenxtoolkit.org/toolkit_content/PDF/UCSD_ABCD_Parent_Media_Exposure.pdf
Physical Health: Symptoms; Diagnosis; Health Care https://www.phenxtoolkit.org/toolkit_content/PDF/UCSD_ABCD_Parent_Physical_Health.pdf
ABCD COVID-19 Impact Measure - Youth Questionnaire https://www.phenxtoolkit.org/toolkit_content/PDF/UCSD_ABCD_Youth.pdf
School Schedule: Education https://www.phenxtoolkit.org/toolkit_content/PDF/UCSD_ABCD_Youth_School.pdf
Youth's Routine and Sleep: Sleep Changes https://www.phenxtoolkit.org/toolkit_content/PDF/UCSD_ABCD_Youth_Routine_and_Sleep.pdf
Parents/Guardians: Home Life https://www.phenxtoolkit.org/toolkit_content/PDF/UCSD_ABCD_Youth_Guardians.pdf
Relationships: Family Impact; Social Impact https://www.phenxtoolkit.org/toolkit_content/PDF/UCSD_ABCD_Youth_Relationships.pdf
Mental Health & Stress: Mental Health https://www.phenxtoolkit.org/toolkit_content/PDF/UCSD_ABCD_Youth_Mental_Health_Stress.pdf
Substance Use: Substance Use https://www.phenxtoolkit.org/toolkit_content/PDF/UCSD_ABCD_Youth_Substance_Use.pdf
Media Exposure to COVID-19: Sources of information about COVID-19 https://www.phenxtoolkit.org/toolkit_content/PDF/UCSD_ABCD_Youth_Media.pdf
Screen Use: Media Use https://www.phenxtoolkit.org/toolkit_content/PDF/UCSD_ABCD_Youth_Screen_Use.pdf
Physical Health: Physical Activity https://www.phenxtoolkit.org/toolkit_content/PDF/UCSD_ABCD_Youth_Physical_Health.pdf...[See more] [See less]Type: Guideline/Assessment ToolAccess Notes: Free/Publicly Available Youth Survey: https://www.nlm.nih.gov/dr2/ABCD_COVID-19_Impact_Measure-Youth.pdf
Available Formats: PDF
Contact Information:
Susan Tapert, PhD.
abcd-covid@ucsd.eduIncludes Research Tools: Yes.ID: 22354. From: Disaster Lit®a database of the U.S. National Library of Medicine.REDCap: Yes. -
New Approach to Controlling Chlamydia Transmission in Young People: Sexual Behavior in the Time of COVID-19
Source: Tulane UniversityDate Published: 5/2020Format: PDFAnnotation: This is a sub-study of an NIH funded R01. The goal of the main study is to find out if community chlamydia screening of young men will reduce infection rates in women. The sub-study was to examine how sexual behavior changed as a result of the stay at home order in order to better understand how to interpret our testing rates in the main study.
Questions Adapted From: The survey questions are our own questions that we have refined over 20 years of research.
Population: High Risk/Special/Unique Populations
Length: 51 questions
Time to Complete: 15 minutes
Mode of Administration: Online (e.g., computer-assisted interview)
Administered by: Self Administered
Language(s): English only
A new approach to controlling chlamydia transmission in young people - sexual behavior in the time of COVID-19: Full Questionnaire https://www.phenxtoolkit.org/toolkit_content/PDF/Tulane_Chlamydia_COVID19.pdf
Housing and income due to COVID: Housing Security; Economic Impact https://www.phenxtoolkit.org/toolkit_content/PDF/Tulane_Chlamydia_COVID19_Housing.pdf
COVID-19 symptom check: Symptoms; Diagnosis https://www.phenxtoolkit.org/toolkit_content/PDF/Tulane_Chlamydia_COVID19_Symptoms.pdf
PPE and COVID: Personal Protective Equipment https://www.phenxtoolkit.org/toolkit_content/PDF/Tulane_Chlamydia_COVID19_PPE.pdf
COVID-19 risk perceptions: Perceived Threat; Hygiene https://www.phenxtoolkit.org/toolkit_content/PDF/Tulane_Chlamydia_COVID19_Risk.pdf
COVID-19 related communications: Sources of information about COVID-19 https://www.phenxtoolkit.org/toolkit_content/PDF/Tulane_Chlamydia_COVID19_Communication.pdf
STD/STI testing during COVID: Diagnosis; Non-COVID-19 Symptoms and Medicines https://www.phenxtoolkit.org/toolkit_content/PDF/Tulane_Chlamydia_COVID19_STD_Testing.pdf
Sexual behaviors during COVID: Sexual Behavior https://www.phenxtoolkit.org/toolkit_content/PDF/Tulane_Chlamydia_COVID19_Sexual_Behaviors.pdf
Substance use during COVID: Substance Use https://www.phenxtoolkit.org/toolkit_content/PDF/Tulane_Chlamydia_COVID19_Substance_Use.pdf...[See more] [See less]Type: Guideline/Assessment ToolAccess Notes: Free/Publicly Available
Available Formats: PDF
Contact Information: Patricia Kissinger, PhD
Tulane University School of Public Health and Tropical Medicine
kissing@tulane.eduIncludes Research Tools: Yes.ID: 22356. From: Disaster Lit®a database of the U.S. National Library of Medicine. -
COVID-19 Experiences (COVEX)
Source: Columbia UniversityDate Published: 5/2020Format: PDFAnnotation: The COVID-19 Experiences (COVEX) questionnaire was developed by investigators from the Division of Child and Adolescent Psychiatry at Columbia University/New York State Psychiatric Institute for use in our ongoing and new research studies and by affiliated clinical settings to document the experiences of research participants and patients in the time of the COVID-19 pandemic. COVEX can be administered either as an interview or as a self-report measure. It is being translated in other languages.
Section 1: COVID-19 Symptoms & Diagnoses Section 2: Vulnerability to COVID and Direct Exposure Section 3: Living Situation Section 4: Employment/School Changes Section 5: Worries, Mental Health Changes Section 6: Problems and Support during COVID-19 outbreak Section 7: Coping Section 8: Pregnancy-Related Questions (optional) Section 9: Media Use
Questions Adapted From: The following measures were adapted for the development of this survey:
* Harkness, A. (2020). The Pandemic Stress Index. University of Miami.
o Section 5 (7a, 7b, 7c, 7j)
o Section 6 (2, 3)
* Kroenke, K. & Spitzer, R.L. (2002). The PHQ-9: A new depression and diagnostic severity measure.
o Section 5 (1a-1i, 4a-4i)
* Kroenke K, Spitzer RL, Williams JB, Monaha PO, Lowe B. Anxiety disorders in primary care: prevalence, impairment, comorbidity, and detection. Ann Intern Med. 2007;146:317-25.
o Section 5 (1j, 1k, 4j, 4k)
* [KFF Coronavirus Poll (conducted March 11-15, 2020)], (KFF, [March 17, 2020]), (http://files.kff.org/attachment/Topline-KFF-Coronavirus-Poll.pdf, accessed March 31, 2020)]
o Section 5 (8, 9)
* Featherstone, J. D., Bell, R. A., & Ruiz, J. B. (2019). Relationship of people's sources of health information and political ideology with acceptance of conspiratorial beliefs about vaccines. Vaccine, 37(23), 2993-2997.
o Section 9 (4)
Population: Adult Workers
Adults and Teens
Adults Only
Children/Teens Only
High Risk/Special/Unique Populations
Pregnant or Lactating Women
Residential/Workplace
Length: ~189 questions
Time to Complete: 30 minutes (interview format)
Mode of Administration: Face-to-face
Online (e.g., computer-assisted interview)
Pen and Paper
Telephone
Administered by: Lay Interviewer
Self Administered
Language(s): English, Spanish, Portuguese
COVID-19 Experiences (COVEX): Full Questionnaire https://www.phenxtoolkit.org/toolkit_content/PDF/Fisher_COVEX.pdf
COVID-19 Symptoms & Diagnoses: Symptoms; Diagnosis https://www.phenxtoolkit.org/toolkit_content/PDF/Fisher_COVEX_Symptoms.pdf
Vulnerability to COVID and Direct Exposure: Substance Use; Exposure https://www.phenxtoolkit.org/toolkit_content/PDF/Fisher_COVEX_Vulnerability.pdf
Changes in Living Situation due to COVID: Home Life https://www.phenxtoolkit.org/toolkit_content/PDF/Fisher_COVEX_Living_Situation.pdf
Changes in Employment/School due to COVID: Employment; Education https://www.phenxtoolkit.org/toolkit_content/PDF/Fisher_COVEX_Employment_Education.pdf
Worries, Mental Health Changes due to COVID: Mental Health; Substance Use https://www.phenxtoolkit.org/toolkit_content/PDF/Fisher_COVEX_Worries.pdf
Problems and Support during COVID-19 outbreak: Resources; Health Care https://www.phenxtoolkit.org/toolkit_content/PDF/Fisher_COVEX_Problems.pdf
Coping with COVID: Mental Health; Positive Impacts https://www.phenxtoolkit.org/toolkit_content/PDF/Fisher_COVEX_Coping.pdf
Pregnancy-Related during COVID: Current Pregnancy; Past Pregnancy https://www.phenxtoolkit.org/toolkit_content/PDF/Fisher_COVEX_Pregnancy.pdf
Media Use during COVID: Media Use; Sources of information about COVID-19 https://www.phenxtoolkit.org/toolkit_content/PDF/Fisher_COVEX_Media.pdf...[See more] [See less]Type: Guideline/Assessment ToolAccess Notes: Free/Publicly Available
Link to Spanish language translation: https://disasterinfo.nlm.nih.gov/content/files/COVEX_Final_SpanishVersion_rev.pdf
Link to Portuguese language translation: https://disasterinfo.nlm.nih.gov/content/files/COVEX_pt_Brazil_Portuguese_v1.1_july2020.pdf
Contacts:
Lead Tool Developers Contact Information:
Dr. Prudence Fisher (prudence.fisher@nyspi.columbia.edu)
Dr. Cristiane Duarte (cristiane.duarte@nyspi.columbia.edu)
New York State Psychiatric Institute & Columbia University Irving Medical Center
Available Formats: PDF
Citation Fisher, P.W., Desai, P., Klotz, J., Turner, J.B., Reyes-Portillo, J.A., Ghisolfi, I., Canino, G., and Duarte, C.S. (2020) COVID-19 Experiences (COVEX).Includes Research Tools: Yes.ID: 22357. From: Disaster Lit®a database of the U.S. National Library of Medicine. -
2020 American Life Panel Survey on Impacts of COVID-19
Source: RAND CorporationDate Published: 5/2020Format: PDFAnnotation: This four-page technical documentation report describes a survey fielded through the RAND American Life Panel (ALP) to assess the effects of the coronavirus disease 2019 pandemic on individuals and households across a variety of topics. This report provides a technical description of the survey, including a description of the ALP, the objectives of the survey, and information about the fielding of the survey.
The ALP is a nationally representative internet panel that has been recruited almost entirely through random digit dialing. To ensure that the panel is representative, respondents who do not have access to the internet are provided with a netbook computer and an internet subscription free of cost. This allows the flexibility and lower cost of an internet panel while still representing the segment of the population that does not have internet access. Panel members are invited to participate in online surveys once or twice per month on average. They are compensated financially for each survey to increase response rates and representativeness. The ALP began in 2006; since then, almost 550 surveys have been fielded on a variety of topics, including financial decision-making, health behaviors, retirement decision-making, numeracy, long-term care use, elections, and subjective well-being.
Three times per year, all panel members are asked to complete a survey that contains demographic information and questions about their employment status, household composition, health status, well-being, and health insurance. The responses to these questions are automatically added to all data collected in the panel, saving time and reducing respondent burden. Additional information on the technical aspects of the ALP is provided in Pollard and Baird (2017)."
Questions Adapted From: Several questions were taken or adapted from prior surveys; details are provided in the technical survey documentation available at https://www.rand.org/pubs/research_reports/RRA308-1.html
Population: Adults only
Length: 64 questions (for some questions, respondents are presented with a table and asked to choose a response for each item in the table. Each table is counted as one question)
Time to Complete: 20 minutes
Mode of Administration: Online (e.g., computer-assisted interview)
Administered by: Self Administered
Language(s): English
RAND American Life Panel Survey: Impacts of COVID-19 Full Questionnaire: https://www.phenxtoolkit.org/toolkit_content/PDF/RAND_ALP_COVID19.pdf
Subjective Wellbeing: Attitudes; General Mental Health https://www.phenxtoolkit.org/toolkit_content/PDF/RAND_ALP_COVID19_Wellbeing.pdf
Mental Health: General Mental Health https://www.phenxtoolkit.org/toolkit_content/PDF/RAND_ALP_COVID19_Mental_Health.pdf
Disruption to routine behaviors: Overall Impact; Daily Impact https://www.phenxtoolkit.org/toolkit_content/PDF/RAND_ALP_COVID19_Routine.pdf
Health Care: Health Care; General Mental Health https://www.phenxtoolkit.org/toolkit_content/PDF/RAND_ALP_COVID19_Health_Care.pdf
Experience with COVID-19: Diagnosis https://www.phenxtoolkit.org/toolkit_content/PDF/RAND_ALP_COVID19_Experience.pdf
Information and Trust: Sources of information about COVID-19; Knowledge; Attitudes https://www.phenxtoolkit.org/toolkit_content/PDF/RAND_ALP_COVID19_Information.pdf
Common ingroup identity: Attitudes https://www.phenxtoolkit.org/toolkit_content/PDF/RAND_ALP_COVID19_Identity.pdf
Financial well-being: Economic Impact; Economic Insecurity https://www.phenxtoolkit.org/toolkit_content/PDF/RAND_ALP_COVID19_Information.pdf
Online shopping and delivery: Resources; Attitudes https://www.phenxtoolkit.org/toolkit_content/PDF/RAND_ALP_COVID19_Shopping.pdf
Schooling: Education https://www.phenxtoolkit.org/toolkit_content/PDF/RAND_ALP_COVID19_Schooling.pdf
Employment: Employment https://www.phenxtoolkit.org/toolkit_content/PDF/RAND_ALP_COVID19_Employment.pdf
Domestic Conflict: Conflict https://www.phenxtoolkit.org/toolkit_content/PDF/RAND_ALP_COVID19_Conflict.pdf
Political Affiliation: Personal Demographics https://www.phenxtoolkit.org/toolkit_content/PDF/RAND_ALP_COVID19_Affiliation.pdf...[See more] [See less]Authors: Carman, Katherine Grace; Nataraj, ShanthiType: Guideline/Assessment ToolAccess Notes: Link to Technical Documentation: https://www.rand.org/pubs/research_reports/RRA308-1.html
Link to April 2020 Survey Results https://www.nlm.nih.gov/dr2/RAND_ALP_COVID_2020_April_results.pdf
Link to May 2020 results https://www.rand.org/content/dam/rand/pubs/research_reports/RRA300/RRA308-1/RAND_RRA308-2-v2.pdf
Link to August 2020 results https://www.rand.org/content/dam/rand/pubs/research_reports/RRA300/RRA308-1/RAND_RRA308-8.pdf
Free/Publicly Available
Citations: Carman, Katherine Grace and Shanthi Nataraj, 2020 American Life Panel Survey on Impacts of COVID-19: Technical Documentation, Santa Monica, Calif.: RAND Corporation, 2020. https://www.rand.org/pubs/research_reports/RRA308-1.html
Contact information: RAND Corporation, Katherine Grace Carman, kcarman@rand.orgIncludes Research Tools: Yes.ID: 22408. From: Disaster Lit®a database of the U.S. National Library of Medicine. -
C3PNO COVID-19 Survey: Collaborating Consortium of Cohorts Producing NIDA Opportunities (C3PNO) Survey of COVID-19 Risks/Effects, Substance Use, and HIV/AIDS
Source: National Institute on Drug Abuse (NIDA)Date Published: 5/1/2020Format: PDFAnnotation: C3PNO fosters collaborations and data sharing across the National Institute on Drug Abuse (NIDA) cohorts. C3PNO manages and stimulates the use of the NIDA longitudinal cohorts and addresses high priority research on HIV/AIDS in the context of substance misuse.
In response to the COVID-19 pandemic, NIDA crafted a cross-cutting survey of COVID-19 related risk behaviors and effects. Find the associated protocol: https://dr2.nlm.nih.gov/search/?q=24241
Questions Adapted From: Various sources and original questions
Population: Adults and Teens
High Risk/Special/Unique Populations
Multiple Groups
Other
Sexual or Gender Minorities
Substance users, those at risk for or living with HIV/AIDS, men who have sex with men
Length: Up to 65 questions but much shorter for non-active substance users
Time to Complete: 15 minutes
Mode of Administration: Online (e.g., computer-assisted interview)
Telephone
Administered by: Self Administered
Trained Lay Examiner/Interviewer
Special Considerations: May be conducted by interviewer but designed primarily for online survey
Language(s): English
C3PNO COVID-19 Survey: Full survey https://www.phenxtoolkit.org/toolkit_content/PDF/C3PNO_COVID-19.pdf
Demographics: Employment; Home Life https://www.phenxtoolkit.org/toolkit_content/PDF/C3PNO_COVID-19_Demographics.pdf
COVID-19 Topics: Overall Impact; General Symptoms; Diagnosis https://www.phenxtoolkit.org/toolkit_content/PDF/C3PNO_COVID-19_Topics.pdf
Mental Health: General Mental Health https://www.phenxtoolkit.org/toolkit_content/PDF/C3PNO_COVID-19_Mental_Health.pdf
Healthcare and HIV: Health Care; HIV https://www.phenxtoolkit.org/toolkit_content/PDF/C3PNO_COVID-19_Health_Care.pdf
Relationships: Sexual Behavior https://www.phenxtoolkit.org/toolkit_content/PDF/C3PNO_COVID-19_Relationships.pdf
Substance Use: Substance Use https://www.phenxtoolkit.org/toolkit_content/PDF/C3PNO_COVID-19_Substance_Use.pdf
C3PNO Cross-Cohort Assessments https://disasterinfo.nlm.nih.gov/content/files/C3PNO%20COVID-19%20Survey%20Measures_Compendium_042820.xlsx
C3PNO mSTUDY Remote Consent Form: https://disasterinfo.nlm.nih.gov/content/files/C3PNO_mSTUDY%20Cohort_COVID19_Remote%20Visit_Consent.pdf WORD version: https://disasterinfo.nlm.nih.gov/content/files/C3PNO_mSTUDY%20Cohort_COVID19_Remote%20Visit_Consent.docx
Version 2:
C3PNO COVID19 Supplement Survey REDCap Data Dictionary Codebook: https://disasterinfo.nlm.nih.gov/content/files/C3PNO%20COVID19%20Supplement%20Survey%20_%20REDCap.pdf
C3PNO COVID19 Supplement Survey Codebook https://disasterinfo.nlm.nih.gov/content/files/C3PNO COVID-19 supplement survey codebook_091820.xlsx
C3PNO COVID-19 Supplement Round II Survey Flow https://disasterinfo.nlm.nih.gov/content/files/C3PNO_COVID-19_Supplement_Round_II%20(1).docx
C3PNO COVID-19 Supplement Round II QSF https://disasterinfo.nlm.nih.gov/content/files/C3PNO_COVID-19_Supplement_Round_II%20(1).qsf
C3PNO COVID-19 Supplement Survey Data Dictionary 2020-09-29 https://disasterinfo.nlm.nih.gov/content/files/C3PNOCOVID19SupplementSurvey_DataDictionary_2020-09-28.csv...[See more] [See less]URL: https://www.nlm.nih.gov/dr2/C3PNO_COVID-19_Supplement_Survey_for_DR2_and_PhenX_Repositories.pdfType: Guideline/Assessment ToolAccess Notes: Permission/Request required; Codebook: https://www.nlm.nih.gov/dr2/C3PNO_COVID-19_supplement_survey_codebook.xlsx; The Collaborating Consortium of Cohorts Producing NIDA Opportunities (C3PNO) project website: https://www.c3pno.org/C3PNOWebApplication
Available Formats: PDF
Contact Information: Pamina Gorbach, Dr. PH (UCLA)
C3PNO Principal Investigator
pgorbach@ucla.eduIncludes Research Tools: Yes.ID: 22690. From: Disaster Lit®a database of the U.S. National Library of Medicine.REDCap: Yes. -
University of Utah MIND Lab Measures of COVID-19 Information Trust, Barriers, and Behaviors
Source: University of UtahDate Published: 5/1/2020Format: PDFAnnotation: This survey seeks to understand sources of COVID-19 health information access and trust of those sources by minority communities to assess barriers to health information. It assesses the impact of COVID-19 on the individual, access to PPE (personal protective equipment) at work, prevention behaviors understanding, and barriers to implementing behaviors.
Population: Adults Only
Length: 58 questions
Time to Complete: 2 to 5 minutes
Mode of Administration: Online (e.g., computer-assisted interview)
Administered by: Self Administered
Special Considerations: Self administered via system such as REDCap. Can also be administered by intact person over the phone.
Language(s): English, Spanish
University of Utah MIND Lab Measures of COVID-19 Information Trust, Barriers, and Behaviors: Full Questionnaire https://www.phenxtoolkit.org/toolkit_content/PDF/Phenix-Welsh-Upload-20200829.pdf
Trust and Information COVID-19: Sources of information about COVID-19 https://www.phenxtoolkit.org/toolkit_content/PDF/UUtah_ITBB_Trust_Info.pdf
Social Distancing: Social Distancing https://www.phenxtoolkit.org/toolkit_content/PDF/UUtah_ITBB_Social_Distancing.pdf
Diagnosis COVID-19: Diagnosis https://www.phenxtoolkit.org/toolkit_content/PDF/UUtah_ITBB_Diagnosis.pdf
Exposure: Exposure https://www.phenxtoolkit.org/toolkit_content/PDF/UUtah_ITBB_Exposure.pdf
Demographics: Personal Demographics https://www.phenxtoolkit.org/toolkit_content/PDF/UUtah_ITBB_Demographics.pdf...[See more] [See less]Type: Guideline/Assessment ToolAccess Notes: Free/Publicly Available
Available Formats: PDF
Contact Information:
Robert Welsh, PhD
Associate Professor, Department of Psychiatry
University of Utah
Email: robert.c.welsh@utah.eduIncludes Research Tools: Yes.ID: 23632. From: Disaster Lit®a database of the U.S. National Library of Medicine.REDCap: Yes. -
Longitudinal Aging Study in India - Diagnostic Assessment of Dementia (LASI-DAD) Genomics Study: Monitoring the Health and Socioeconomic Impacts of COVID-19 : RTI COVID-India
Source: University of Southern California (USC)Date Published: 4/29/2020Format: PDFAnnotation: LASI-DAD is the first and only nationally representative and publicly available dataset on late-life cognition and dementia in India. We have drawn a sample of over 4,000 community-residing older adults 60+ years of age from 19 states in India, representing 91.6% of India's ethnically diverse population. We will target one randomly selected adult male and one randomly selected adult female for each household.
Study Parameters: The survey will draw on the 4,096 LASI-DAD households. We will target one randomly selected adult male and one randomly selected adult female for each household. The survey will take 15 minutes and will be administered via phone calls according to the following schedule: a first round, soon to be conducted in May 2020 and every two months thereafter for one year. We will randomly space interview slots over each two-month-long survey wave to facilitate time series analysis of responses to changes in the health and policy environment.
As we plan to re-interview the same respondents over a one-year time period, we will monitor the course of the pandemic carefully and adapt the instrument, as needed, to ensure that it is filling high-priority knowledge gaps. At the same time, we aim to make changes judiciously to ensure that we have a high-quality time-series of central variables.
India is an ethnically and linguistically diverse country. To ensure national representation and high-quality data collection, the instrument and consent are translated into 12 languages: Hindi, Kannada, Malayalam, Gujarati, Tamil, Punjabi, Urdu, Bengali, Assamese, Odiya, Marathi, and Telugu. All interviews will be conducted in respondents' local languages to ensure respondent comprehension and comfort.
Preliminary Testing: We conducted a pilot to verify phone contact rates for the LASI-DAD sample in March 2020. The aim of this pilot is to examine the feasibility of Computer Assisted Telephone Interview for the sample. A first wave of 1,587 households had phone numbers collected between October 2017 and May 2018; we called 51 of these households and were able to get in touch with 25 (49%); the remaining 2,503 households had numbers collected during October 2018 or later. We called 49 of these households and got in touch with 40 (82%). This pilot was conducted over a few days and did not use back-up phone numbers on file with households; these contact rates are therefore lower bounds and suggest that getting in touch with 75-80% of the full sample is feasible.
We then pretested the instrument in April 2020. The aim of the pretest is to assess the time required for the instrument administration, as well as to evaluate how respondents respond to the question contents. We conducted the pretest in six local languages with a sample size of 29 households, 58 interviews. After the pretest and debriefing, we refined the instrument for the survey rollout.
Population: Adults only
Length: 34 items
Time to Complete: 15 minutes
Administered by: Trained Lay Examiner/Interviewer
Language(s): English, Hindi, Kannada, Malayalam, Gujarati, Tamil, Punjabi, Urdu, Bengali, Assamese, Odiya, Marathi, and Telugu
This instrument has been developed in two stages; it was first pushed out the baseline interview in May 2020 during the lockdown period, and then further refined with additional content: https://disasterinfo.nlm.nih.gov/content/files/RTI_India_instrument.docx
RTI India Interviewer Manual https://disasterinfo.nlm.nih.gov/content/files/RTI_India_round6manual_final.docx
Longitudinal Aging Study in India – Diagnostic Assessment of Dementia (LASI-DAD): Full Full Questionnaire https://www.phenxtoolkit.org/toolkit_content/PDF/LASI-DAD.pdf
COVID19-related knowledge and behaviors: Social Distancing; Hygiene; Knowledge https://www.phenxtoolkit.org/toolkit_content/PDF/LASI-DAD_Knowledge.pdf
COVID19 and Health care and food security: Health Care; Symptoms; Food Security https://www.phenxtoolkit.org/toolkit_content/PDF/LASI-DAD_Health.pdf
COVID19 and Economic Effects: Economic Impact https://www.phenxtoolkit.org/toolkit_content/PDF/LASI-DAD_Economic.pdf
COVID19 and Discrimination and (mis) information: Sources of information about COVID-19; Social Impact https://www.phenxtoolkit.org/toolkit_content/PDF/LASI-DAD_Discrimination.pdf
COVID19 and Mental Health, coping and wellbeing: Mental Health; Overall Impact https://www.phenxtoolkit.org/toolkit_content/PDF/LASI-DAD_Mental_Health.pdf...[See more] [See less]Type: Guideline/Assessment ToolAccess Notes: Available Formats: PDF
Free/Publicly Available
Contact Information: Help@lasi-dad.orgIncludes Research Tools: Yes.ID: 22098. From: Disaster Lit®a database of the U.S. National Library of Medicine. -
JHU COVID-19 Community Response Survey
Source: Johns Hopkins University, Bloomberg School of Public HealthDate Published: 4/25/2020Format: PDFAnnotation: The goal of this toolkit is to provide a set of standardized quantitative and qualitative assessments to harmonize data collection efforts and facilitate comparisons of the impact of the novel coronavirus (COVID-19), and promote collaborations across research efforts. This is intended to be a dynamic resource that will evolve as the epidemic does. These modules were created with a broad sample in mind. The goal was to develop a set of modules that could be applied to multiple populations with some minor tweaks. They can be used cross-sectionally or longitudinally and are designed for a newly selected sample (e.g., include information on basic demographics). The survey asks questions about possible exposure to the virus, experiences with testing and treatment, and some questions about how life has changed as a result of COVID-19 and the preventive measures that have been put in place.
Population: Adults only
Length: 148 items
Time to Complete: 20-30 minutes
Administered by: Trained Lay Examiner/Interviewer
Language(s): English
COVID-19 Community Response Survey: Full Questionnaire https://www.phenxtoolkit.org/toolkit_content/PDF/JHU_C4WARD.pdf
Knowledge and attitudes toward COVID19: Knowledge; Perceived Threat https://www.phenxtoolkit.org/toolkit_content/PDF/JHU_C4WARD_Perceived_Threat.pdf
COVID19 symptoms and testing experience: Symptoms; Diagnosis https://www.phenxtoolkit.org/toolkit_content/PDF/JHU_C4WARD_Diagnosis.pdf
COVID19 and Co-morbidities and care engagement: Health Care; Chronic Health Conditions https://www.phenxtoolkit.org/toolkit_content/PDF/JHU_C4WARD_Health.pdf
COVID19 and Mental health impacts: Mental Health https://www.phenxtoolkit.org/toolkit_content/PDF/JHU_C4WARD_Mental_Health.pdf
COVID19 impact and pandemic stress: Overall Impact https://www.phenxtoolkit.org/toolkit_content/PDF/JHU_C4WARD_Impact.pdf
COVID19 and Social distancing: Social Distancing; Social Impact https://www.phenxtoolkit.org/toolkit_content/PDF/JHU_C4WARD_Social_Distancing.pdf
COVID19 and Violence and trauma: Violence; Fear of Violence https://www.phenxtoolkit.org/toolkit_content/PDF/JHU_C4WARD_Violence_Trauma.pdf
COVID19 and Substance use: Substance Use https://www.phenxtoolkit.org/toolkit_content/PDF/JHU_C4WARD_Substance_Use.pdf
COVID19 and Sexual behavior: Sexual Behavior https://www.phenxtoolkit.org/toolkit_content/PDF/JHU_C4WARD_Sexual_Behavior.pdf...[See more] [See less]Type: Guideline/Assessment ToolAccess Notes: Available Formats: PDF
Free/Publicly Available
Contact Information: Shruti Mehta, PhD, MPH, Professor and Deputy Chair Department of Epidemiology, Johns Hopkins Bloomberg School of Public Health: smehta@jhu.eduIncludes Research Tools: Yes.ID: 22096. From: Disaster Lit®a database of the U.S. National Library of Medicine. -
Mental Health Impact of COVID-19 Pandemic on NIMH Research Participants and Volunteers Protocol
Source: National Institute of Mental Health [National Institutes of Health] (NIMH)Date Published: 4/20/2020Format: PDFAnnotation: This protocol provides the rationale, background, objectives, design, methodology, statistical considerations, organization for the National Institute of Mental Health Psychosocial Impact of COVID-19 Survey: https://dr2.nlm.nih.gov/search/?q=22587
Abbreviated title: MINH COVID Study...[See more] [See less]Type: Study Design/ProtocolAccess Notes: Contact Information:
Study team: NIMHResearchVolunteer@nih.gov
Joyce Chung, MD, National Institute of Mental Health (NIMH) Intramural Research Program, joyce.chung@nih.govIncludes Research Tools: Yes.ID: 24225. From: Disaster Lit®a database of the U.S. National Library of Medicine. -
Coronavirus Racial Bias Scale: Fordham University Pathways to Health Study
Source: Fordham UniversityDate Published: 4/14/2020Format: PDFAnnotation: The Coronavirus Racial Bias Scale (CRBS) is a brief self-report questionnaire developed by Fordham University's Center for Ethics Education and Applied Developmental Psychology Program as part of the Pathways to Health Study. The CRBS assesses beliefs about how the coronavirus has negatively affected people of their race/ethnicity. Questions include beliefs regarding coronavirus-related increase in negative racial/ethnic public attitudes, racial/ethnic biases resulting in loss of employment and access to health services, and increases in racially charged social media and cyberbullying.
Population: Adults and Teens; Ethnic/Religious Groups
Length: 9 items
Time to Complete: Less than 5 minutes
Mode of Administration: Self Administered
Language(s): English
Coronavirus Racial Bias Scale (CRBS): Full Survey https://www.phenxtoolkit.org/toolkit_content/PDF/Fordham_CRBS.pdf
Mental Health: General Mental Health https://www.phenxtoolkit.org/toolkit_content/PDF/CRBS_Mental_Health.pdf
Perceptions: Racial/Ethnic Disparities https://www.phenxtoolkit.org/toolkit_content/PDF/CRBS_Perceptions.pdf
Daily Impact: Daily Impact https://www.phenxtoolkit.org/toolkit_content/PDF/CRBS_Daily_Impact.pdf...[See more] [See less]Type: Guideline/Assessment ToolAccess Notes: Free/Publicly Available
Contact Information:
Celia B. Fisher, Ph.D.
Center for Ethics Education
Fordham University
Fisher@fordham.edu
Administrator: Lori Merone
lmerone@fordham.eduIncludes Research Tools: Yes.ID: 22497. From: Disaster Lit®a database of the U.S. National Library of Medicine. -
Social Psychological Survey of COVID-19: Coronavirus Perceived Threat, Government Response, Impacts, and Experiences Questionnaires
Source: University of MontanaDate Published: 4/13/2020Format: PDFAnnotation: The authors of this eleven-page document developed, factor-analyzed, and validated these questionnaires across three COVID-19 studies. Participants were recruited via Amazon’s Mechanical Turk (a common recruitment tool in the social sciences). They were from the United States and came from every region of the U.S. in numbers proportional to the populations in those regions. Newly-selected participants completed the survey once online in a cross-sectional design. The sample had typical Mechanical Turk characteristics for age (range = 20 to 76, mean age = 41), gender (48% female), and race/ethnicity (largest groups were White/European-American = 78%, Asian = 9%, and Black/African-American = 7%). The method they followed was to use Exploratory Factor Analyses in Study 1, then use Confirmatory Factor Analyses in Studies 2 and 3 to hone the questionnaires. They further validated the questionnaires by showing they had expected correlations with other important variables (e.g., political ideology). This work offers researchers a battery of social psychological questionnaires to measure coronavirus-related phenomena for the duration of the pandemic in U.S. participants.
The collection tool includes a sample consent form, research protocol, instruction manual, preliminary testing and pilot data, results, as wells as the Survey/Questionnaire.
Population: Multiple Groups
Length: 89 questions
Administered by: Self Administered/Self Report
Language(s): English...[See more] [See less]Type: Guideline/Assessment ToolAccess Notes: Permission/Request required
Citation: Conway, L. G., III, Woodard, S. R., & Zubrod, A. (2020, April 7). Social Psychological Measurements of COVID-19: Coronavirus Perceived Threat, Government Response, Impacts, and Experiences Questionnaires. Direct Access: https://psyarxiv.com/z2x9a/.
Contact Information: Access to these scales on Qualtrics can be obtained by e-mailing Dr. Lucian Gideon Conway, III (University of Montana) at luke.conway@umontana.edu.Includes Research Tools: Yes.ID: 21726. From: Disaster Lit®a database of the U.S. National Library of Medicine. -
COVID-19 and Perinatal Experiences (COPE) Study
Source: New York University (NYU)Date Published: 4/7/2020Format: TextAnnotation: This survey assesses the impact of the COVID-19 outbreak on the feelings and experiences of pregnant women and new moms.
Population: Adults only
Length: 87 questions
Administered by: Self Administered/Self Report
Language(s): English, Brazilian Portuguese, Dutch, French, German, Portuguese, Spanish
Coronavirus Perinatal Experiences Impact Survey (COPE-IS): Full Survey https://www.phenxtoolkit.org/toolkit_content/PDF/COS_COPE_IS.pdf
Prenatal Experiences of COVID-19 Current Pregnancy: Health Care https://www.phenxtoolkit.org/toolkit_content/PDF/COS_COPE_IS_Prenatal.pdf
Perinatal Experiences of COVID-19:Past Pregnancy; Health Care https://www.phenxtoolkit.org/toolkit_content/PDF/COS_COPE_IS_Perinatal.pdf
Exposures and Symptoms: Symptoms; Diagnosis; Mental Health https://www.phenxtoolkit.org/toolkit_content/PDF/COS_COPE_IS_Exposures.pdf
Financial Impacts: Employment; Economic Insecurity https://www.phenxtoolkit.org/toolkit_content/PDF/COS_COPE_IS_Financial.pdf
Social Support Impacts: Social Impact https://www.phenxtoolkit.org/toolkit_content/PDF/COS_COPE_IS_Social_Support.pdf
Social Distancing and Restricted Activities: Social Distancing; Home Life https://www.phenxtoolkit.org/toolkit_content/PDF/COS_COPE_IS_Social_Distancing.pdf
Coping and Adjustment: Mental Health; Substance Use; Dietary Intake https://www.phenxtoolkit.org/toolkit_content/PDF/COS_COPE_IS_Coping.pdf
Emotional Impact: Stress; Sleep Changes; Daily Impact https://www.phenxtoolkit.org/toolkit_content/PDF/COS_COPE_IS_Emotions.pdf
Health Background, Mental Health, and Substance Use: Health History; Substance Use https://www.phenxtoolkit.org/toolkit_content/PDF/COS_COPE_IS_Health_Background.pdf
Demographics:Demographics https://www.phenxtoolkit.org/toolkit_content/PDF/COS_COPE_IS_Demographics.pdf
COVID-19 - Coronavirus Perinatal Experience - Impact Update: https://www.phenxtoolkit.org/toolkit_content/PDF/COS_COPE_IU.pdf
Exposures and Symptoms:Symptoms; Exposure https://www.phenxtoolkit.org/toolkit_content/PDF/COS_COPE_IU_Exposures.pdf
Adjustments: Daily Life; Stress; Overall Impact https://www.phenxtoolkit.org/toolkit_content/PDF/COS_COPE_IU_Adjustments.pdf...[See more] [See less]Authors: VanTieghem, Michelle; Thomason, Moriah; Graham, Alice; Sullivan, Elinor; Vatalaro, Tessa; et al.Type: Guideline/Assessment ToolAccess Notes: Link to Coronavirus Perinatal Experiences Impact Survey (COPE-IS): https://www.nlm.nih.gov/dr2/COPE-Impact_Survey_Perinatal_Pandemic_Survey.pdf
Link to Coronavirus Perinatal Experience - Impact Update (COPE-IU): https://www.nlm.nih.gov/dr2/COPE-Impact_Update_Perinatal_Pandemic_Survey.pdf
IRB examples and REDCAP Baseline Survey Zip files in English and Spanish are available.
Free/Publicly Available
Contact Information: New York University (NYU), moriah.thomason@nyulangone.orgIncludes Research Tools: Yes.ID: 21878. From: Disaster Lit®a database of the U.S. National Library of Medicine.REDCap: Yes. -
COVID-19 Impact on Health and Wellbeing Survey
Source: UT Health Rio Grande ValleyDate Published: 4/5/2020Format: PDFAnnotation: The COVID-19 Impact on Health and Wellbeing Survey was designed to examine how mental health and wellbeing are impacted by shelter in home/place mandates. This survey was created as a result of collaborative efforts involving UTRGV Departments of Population Health & Biostatistics, Family Medicine, Psychological Sciences, and Sociology. The survey instrument was created using REDCap, is available in English and Spanish, was designed to be anonymous, and takes approximately 20-30 minutes to complete. Most survey sections, including demographics, ask specifically how daily living has been impacted by sheltering in place/home due to the COVID-19 pandemic.
Population: Adults only
Length: 174 questions
Time to Complete: 20-30 minutes
Administered by: Self Administered/Self Report
Language(s): English, Spanish
COVID19 Impact on Health and Wellbeing Survey (CIHWS): Full Questionnaire https://www.phenxtoolkit.org/toolkit_content/PDF/UTRGV_CIHWS.pdf
COVID19 related Depression: Mental Health https://www.phenxtoolkit.org/toolkit_content/PDF/UTRGV_CIHWS_Depression.pdf
COVID19 related Anxiety/Stress: Mental Health; Stress https://www.phenxtoolkit.org/toolkit_content/PDF/UTRGV_CIHWS_Anxiety.pdf
COVID19 related Health literacy: Health Literacy https://www.phenxtoolkit.org/toolkit_content/PDF/UTRGV_CIHWS_Health_Literacy.pdf
COVID19 related Trusted sources of information: Sources of information about COVID-19 https://www.phenxtoolkit.org/toolkit_content/PDF/UTRGV_CIHWS_Trusted_Sources.pdf
COVID19 related Compliance: Social Distancing https://www.phenxtoolkit.org/toolkit_content/PDF/UTRGV_CIHWS_Compliance.pdf
COVID19 related Financial stress: Economic Insecurity https://www.phenxtoolkit.org/toolkit_content/PDF/UTRGV_CIHWS_Financial.pdf
COVID19 related Physical activity: Physical Activity https://www.phenxtoolkit.org/toolkit_content/PDF/UTRGV_CIHWS_Physical_Activity.pdf
COVID19 Impact on Health and Wellbeing Survey (CIHWS) (Spanish): Full Questionnaire https://www.phenxtoolkit.org/toolkit_content/PDF/UTRGV_CIHWS_Span.pdf
COVID19 related Depression (Spanish): Mental Health https://www.phenxtoolkit.org/toolkit_content/PDF/UTRGV_CIHWS_Depression_Span.pdf
COVID19 related Anxiety/Stress (Spanish): Mental Health; Stress https://www.phenxtoolkit.org/toolkit_content/PDF/UTRGV_CIHWS_Anxiety_Span.pdf
COVID19 related Health literacy (Spanish): Health Literacy https://www.phenxtoolkit.org/toolkit_content/PDF/UTRGV_CIHWS_Health_Literacy_Span.pdf
COVID19 related Trusted sources of information (Spanish): Sources of information about COVID-19 https://www.phenxtoolkit.org/toolkit_content/PDF/UTRGV_CIHWS_Trusted_Sources_Span.pdf
COVID19 related Compliance (Spanish): Social Distancing https://www.phenxtoolkit.org/toolkit_content/PDF/UTRGV_CIHWS_Compliance_Span.pdf
COVID19 related Financial stress (Spanish): Economic Insecurity https://www.phenxtoolkit.org/toolkit_content/PDF/UTRGV_CIHWS_Financial_Span.pdf
COVID19 related Physical activity (Spanish): Physical Activity https://www.phenxtoolkit.org/toolkit_content/PDF/UTRGV_CIHWS_Physical_Activity_Span.pdf...[See more] [See less]Type: Guideline/Assessment ToolAccess Notes: Available Formats: PDF
Link to Survey in Spanish: https://www.nlm.nih.gov/dr2/COVID_Impact_on_Health_Wellbeing_Span.pdf
Link to Description of Topics in Survey: https://www.nlm.nih.gov/dr2/COVID_Impact_on_health_wellbeing_Topics-5-2-20.docx
Link to Study Sample Information: https://www.nlm.nih.gov/dr2/COVID_Impact_on_health_wellbeing_sample_Info.docx
Contact Information: Candace Robledo, PhD, MPH: candace.robledo@utrgv.eduIncludes Research Tools: Yes.ID: 22126. From: Disaster Lit®a database of the U.S. National Library of Medicine.REDCap: Yes. -
Psychosocial Impact of COVID-19 Survey
Source: National Institute of Mental Health [National Institutes of Health] (NIMH)Date Published: 4/4/2020Format: PDFAnnotation: This measure of psychosocial impact of COVID-19 was developed at the NIMH Intramural Research Program (IRP) in response to the COVID-19 pandemic. The protocol, titled Mental Health Impact of COVID-19 Pandemic on NIMH Patients and Volunteers, was launched in early April 2020. The study will describe the relationship between stressors related to COVID-19 and self-rated measures of mental health symptoms and distress among a range of participants including various patient populations and healthy volunteers. The secondary objectives are to determine whether existing mental health concerns moderates this relationship and to identify risk resilience factors among study participants regarding mental health impact of the COVID-19 pandemic. Participants are asked to repeat the survey every two weeks via the study website (https://nimhcovidstudy.ctss.nih.gov/).
Questions Adapted From: Our survey stemmed from one that was originally written by Argyris Stringaris in March 2020 at the NIMH IRP, who went on to further develop the measure with our NIMH IRP colleague Kathleen Merikangas. They have since posted their survey on a website: crisissurvey.org. Our measure overlaps with the CRISIS survey for many of the items with a few exceptions. We developed it for use with adults (the original Stringaris measure was for adolescents). It does not have two versions (initial and follow-up), and does not include questions about demographics, mental health, or substance use symptoms.
Population: Adults Only
All/Anyone
First Responders, Emergency Medical Services (EMS) Personnel, Police/Fire Departments
High Risk/Special/Unique Populations
Length: 45 items
Time to Complete: 10 minutes
Mode of Administration: Online (e.g., computer-assisted interview)
Administered by: Self Administered
Language(s): English
Informed Consent https://disasterinfo.nlm.nih.gov/content/files/20_M_N085_Consent.pdf
Factor Analysis Report https://disasterinfo.nlm.nih.gov/content/files/Factor_Analysis_Report_3.11.pdf
Psychosocial Impact of COVID-19 Survey: Full Questionnaire https://www.phenxtoolkit.org/toolkit_content/PDF/Psychosocial_Impact_of_COVID-19_Survey.pdf
Psychological Impact: General Mental Health; Social Impact https://www.phenxtoolkit.org/toolkit_content/PDF/NIMH_Pyschosocial.pdf
Social Distancing: Social Distancing https://www.phenxtoolkit.org/toolkit_content/PDF/NIMH_SocialDistancing.pdf
Hopes and Dreams: General Mental Health; Attitudes https://www.phenxtoolkit.org/toolkit_content/PDF/NIMH_Hopes.pdf
Health Concerns: General Symptoms; Diagnosis https://www.phenxtoolkit.org/toolkit_content/PDF/NIMH_HealthConcerns.pdf
Daily Activities: Daily Life https://www.phenxtoolkit.org/toolkit_content/PDF/NIMH_DailyActivities.pdf
Daily Functioning: Daily Life https://www.phenxtoolkit.org/toolkit_content/PDF/NIMH_DailyFunctioning.pdf...[See more] [See less]Type: Guideline/Assessment ToolAccess Notes: Free/Publicly Available
Available Formats: PDF
Contact Information:
Study team: NIMHResearchVolunteer@nih.gov
Joyce Chung, MD, National Institute of Mental Health (NIMH) Intramural Research Program, joyce.chung@nih.govIncludes Research Tools: Yes.ID: 22587. From: Disaster Lit®a database of the U.S. National Library of Medicine. -
Online Community Involvement in COVID-19 Research and Outbreak Response: Early Insights from a UK Perspective: Report 14
Source: Imperial College LondonDate Published: 4/3/2020Format: PDFAnnotation: The Patient Experience Research Centre (PERC) at Imperial College London is developing research to explore and understand people’s views about, experiences of, and behavioral response to the COVID-19 outbreak in the United Kingdom and elsewhere. To guide that effort and to help inform COVID-19 research and responses more broadly, PERC launched an online community involvement initiative detailed in this 31-page report that sought rapid, early insight from members of the public and aimed to establish a network for ongoing community engagement.
Population: Adults and teens
Language(s): English, Mandarin, Japanese, Spanish, French, Arabic, Italian...[See more] [See less]Authors: Pristera, Philippa; Papageorgiou, Vasiliki; Kaur, Meerat; Atchison, Christina; Redd, Rozlyn; et al.Type: Guideline/Assessment ToolAccess Notes: Direct link to document: https://www.imperial.ac.uk/media/imperial-college/medicine/mrc-gida/2020-04-03-COVID19-Report-14.pdf
Find report summaries in Arabic, French, Italian, Japanese, Mandarin, and Spanish on this page.
Free/Publicly Available
Contact Information: Patient Experience Research Centre (PERC) at Imperial College London, Helen, Ward at h.ward@imperial.ac.ukIncludes Research Tools: Yes.ID: 21620. From: Disaster Lit®a database of the U.S. National Library of Medicine. -
CDC COVID-19 Community Survey Question Bank (Draft)
Source: Centers for Disease Control and Prevention (CDC)Date Published: 4/2/2020Format: TextAnnotation: This resource is a series of 33 questions to ask about COVID-19 in a community survey. Categories include epidemiology, community interventions, and at-risk populations.
Population: All/Anyone
Length: 33 questions
Administered by: Self Administered/Self Report
Language(s): English...[See more] [See less]Type: Guideline/Assessment ToolIncludes Research Tools: Yes.ID: 21527. From: Disaster Lit®a database of the U.S. National Library of Medicine. -
Impact of Coronavirus on Life in America
Source: Kaiser Family Foundation (KFF)Date Published: 4/2/2020Format: TextAnnotation: This web page details the results of the latest Kaiser Family Foundation Health Tracking poll, conducted March 25-30, 2020, which found that as many cities and states were issuing public health guidance requiring social distancing or shelter-in-place measures, seven in 10 Americans (72 percent) said their lives have been disrupted “a lot” or “some” by the coronavirus (COVID-19) outbreak. The vast majority of the public say U.S. policy should be prioritizing the slowing down of the spread of the coronavirus rather than the U.S. economy.
Population: Adults only
Administered by: Trained Lay Examiner/Interviewer
Language(s): English...[See more] [See less]Authors: Kirzinger, Ashley; Kearney, Audrey; Hamel, Liz; Brodie, MollyannType: Guideline/Assessment ToolAccess Notes: Link to Topline and Methodology: http://files.kff.org/attachment/Topline-KFF-Health-Tracking-Poll-Early-April-2020.pdf
Permission/Request required
Contact Information: Henry J. Kaiser Family FoundationIncludes Research Tools: Yes.ID: 21679. From: Disaster Lit®a database of the U.S. National Library of Medicine. -
California COVID-19 Health Surveys: Data and Charts
Source: California Health Care Foundation (CHCF)Date Published: 4/1/2020Format: TextAnnotation: This web page provides a series of short surveys to assess demand on California's health care system during the coronavirus pandemic.
Population: Adults only
Length: 2 items
Administered by: Self Administered/Self Report
Language(s): English...[See more] [See less]Type: Guideline/Assessment ToolAccess Notes: Link to COVID-19 California Tracking Polls https://www.chcf.org/collection/covid-19-california-tracking-polls/
Contact Information: California Healthcare Foundation (CHCF)Includes Research Tools: Yes.ID: 21550. From: Disaster Lit®a database of the U.S. National Library of Medicine. -
UnderStandingAmerica Study COVID-19 Surveys
Source: Center for Economic and Social Research [University of Southern California Dornsife] (CESR)Date Published: 4/1/2020Format: PDFAnnotation: The Understanding America Study (UAS) is a probability-based online panel of adult US residents that began in 2014. Over six years, the UAS has developed an extensive catalogue of questions and responses on a variety of topics related to social science, demography and health. Beginning in March 2020, the UAS started a high-frequency longitudinal data collection related to the COVID19 pandemic.
Population: Adults only
Length: 99 questions
Time to Complete: 20 minutes
Administered by: Trained Lay Examiner/Interviewer
Language(s): English, Spanish
Documentation links to codebooks, questionnaires, reports: https://uasdata.usc.edu/page/Covid-19+Documentation
Data: information on how to access the data, etc. https://uasdata.usc.edu/page/Covid-19+Data
Additional data can be found: https://covid19pulse.usc.edu/...[See more] [See less]Authors: Bennett, Daniel; Bruine de Bruin, Wandi; Darling, Jill; Kapteyn, Arie; Thomas, KylaType: Guideline/Assessment ToolAccess Notes: Citation(s): Publications: https://uasdata.usc.edu/page/Covid-19+Publications
Permission/Request required
Contact Information: Ms. Jill Darling (University of Southern California) at jilldarl@usc.edu; uas-l@usc.edu, TaniaGutsche (ProjectandPanelManager, Center for Economic and Social Research, University of Southern California) at tgutsche@usc.eduIncludes Research Tools: Yes.ID: 21649. From: Disaster Lit®a database of the U.S. National Library of Medicine. -
Fear of COVID-19 Scale
Source: Nottingham Trent UniversityDate Published: 4/2020Format: PDFAnnotation: The Fear of COVID-19 Scale, a seven-item scale, has robust psychometric properties. It is reliable and valid in assessing fear of COVID-19 among the general population and will also be useful in allaying COVID-19 fears among individuals. Authors are from Nottingham Trent University, The Hong Kong Polytechnic University, Tabriz University of Medical Sciences, Baqiyatallah University of Medical Sciences, and Jönköping University.
Population: Adults only
Length: 7 items
Administered by: Lay Interviewer
Language(s): English, Persian, Farsi
Fear of COVID-19 Scale: Mental Health https://www.phenxtoolkit.org/toolkit_content/PDF/NTU_FCS.pdfAuthors: Ahorsu, Daniel Kwasi; Lin, Chung-Ying; Imani, Vida; Saffari, Mohsen; Griffiths, Mark D.; et al.Type: Guideline/Assessment ToolAccess Notes: Citation: Ahorsu, D.K., Lin, C., Imani, V. et al. The Fear of COVID-19 Scale: Development and Initial Validation. Int J Ment Health Addiction (2020). https://link.springer.com/article/10.1007%2Fs11469-020-00270-8
Free/Publicly Available
Contact Information: Nottingham Trent University, Dr. Mark Griffiths, Mark.Griffiths@ntu.ac.ukIncludes Research Tools: Yes.ID: 21768. From: Disaster Lit®a database of the U.S. National Library of Medicine. -
CAIR (Complementary and Integrative Research Lab) Pandemic Impact Questionnaire (C-PIQ)
Source: University of California, San Diego (UCSD)Date Published: 4/2020Format: PDFAnnotation: This brief measure includes exposure, mental health impact, and growth related to the COVID-19 pandemic. The researchers also provide a brief measure with scoring which includes annotations for creating the subscale scores of exposure, mental health impact, and growth.
CAIR-PIQ Complementary and Integrative Research Lab (CAIR) Pandemic Impact Questionnaire (PIQ): Full Survey https://www.phenxtoolkit.org/toolkit_content/PDF/CAIR_PIQ.pdf
COVID-19 Health Impacts: Symptoms; Status; Health Care https://www.phenxtoolkit.org/toolkit_content/PDF/CAIR_PIQ_Health.pdf
COVID-19 Negative Social and Behavioral Impacts: Labor Market; Economic Insecurity https://www.phenxtoolkit.org/toolkit_content/PDF/CAIR_PIQ_Negative.pdf
COVID-19 Mental Health Impact: Mental Health https://www.phenxtoolkit.org/toolkit_content/PDF/CAIR_PIQ_Mental.pdf
COVID-19 Impact on Sleep: Sleep Changes https://www.phenxtoolkit.org/toolkit_content/PDF/CAIR_PIQ_Sleep.pdf
COVID-19 Positive Impacts: Positive Impacts https://www.phenxtoolkit.org/toolkit_content/PDF/CAIR_PIQ_Positive_Impacts.pdf...[See more] [See less]Authors: Lang, Ariel J.Type: Guideline/Assessment ToolAccess Notes: Link to Measure with Scoring: C-PIQ: https://www.nlm.nih.gov/dr2/CAIR-PIQ_scoring.pdf
Measure adapted from MacLean & Cloitre, 2020; CRISIS V0.2; and Taku, Cann, Calhoun & Tedeschi, 2008
Contact: University of California, San Diego Dr. Ariel J. Lang ajlang@health.ucsd.eduIncludes Research Tools: Yes.ID: 21923. From: Disaster Lit®a database of the U.S. National Library of Medicine. -
COVID-19 Evaluation of Risk in Emergency Departments (Project COVERED)
Source: University of Iowa (UI)Date Published: 4/2020Format: PDFAnnotation: Project COVERED is a prospective enrolled-cohort analysis of 1,600 health care personnel (HCP) working in 20 U.S. emergency departments (EDs) with the following primary objectives: (1) to estimate the attributable risk of occupational acquisition of COVID-19 infection for ED HCP; (2) to identify patient-, provider-, facility-, and procedure-based risk factors associated with SARS-CoV-2 transmission to ED HCP; and (3) to determine the prevalence of symptomatic and asymptomatic COVID-19 infection. Secondary aims of the study include: (1) to measure how ED operations change in response to the COVID-19 pandemic; (2) to measure how organizational factors contribute to HCP well-being during the pandemic; and (3) to understand how HCPs are using PPE, and applying countermeasures to reduce transmission outside the workplace. Data are collected from participants and from facilities on a weekly basis during a planned 12-week observation period.
Modules included in the surveys include: (1) Participant interest screening form; (2) Participant enrollment form/baseline participant survey; (3) Baseline facility form; (4) Weekly participant survey; (5) Weekly facility survey; (6) Endotracheal intubation/cardiac arrest form; (7) Patient information form; (8) Post-serology follow-up form (week 4); (9) Post-serology site PI organizational factors form; (10) Participant six-month follow-up survey; (11) Facility six-month follow-up survey; and (12) Baseline positive testing follow-up form. In addition to survey data, participants are providing serum serology and nasal PCR samples for testing every two weeks. Survey are all administered from a central REDCap system, and participants are sent survey requests by email and text message.
The Data Collection forms link to Data Dictionary Codebooks.
Population: Adult Workers
Length: 611 questions
Time to Complete: 12 weeks
Mode of Administration: Online (e.g., computer-assisted interview)
Administered by: Self Administered
Language(s): Engilsh
COVID-19 Evaluation of Risk in Emergency Departments: Full Questionnaire https://www.phenxtoolkit.org/toolkit_content/PDF/ICTS_COVERED.pdf
Participant Interest Screening Form: Participant Intake https://www.phenxtoolkit.org/toolkit_content/PDF/ICTS_COVERED_Participant_Screening.pdf
Participant Enrollment/Baseline Form: Participant Enrollment https://www.phenxtoolkit.org/toolkit_content/PDF/ICTS_COVERED_Participant_Enrollment.pdf
Facility Baseline Form: Critical Care Facilities https://www.phenxtoolkit.org/toolkit_content/PDF/ICTS_COVERED_Facility.pdf
Participant Weekly Survey: Participant Weekly Survey https://www.phenxtoolkit.org/toolkit_content/PDF/ICTS_COVERED_Participant_Weekly.pdf
Facility Weekly Survey: Facility Weekly Survey https://www.phenxtoolkit.org/toolkit_content/PDF/ICTS_COVERED_Facility_Weekly.pdf
Participant Endotracheal Intubation/Cardiac Arrest Event Form: Critical Care Participants https://www.phenxtoolkit.org/toolkit_content/PDF/ICTS_COVERED_Participant_Intubation.pdf
Facility Endotracheal Intubation/Cardiac Arrest Event Form: Critical Care Facilities https://www.phenxtoolkit.org/toolkit_content/PDF/ICTS_COVERED_Facility_Intubation.pdf
Participant Post-Serology Follow-Up Form (Week 4): Participant Follow-Up https://www.phenxtoolkit.org/toolkit_content/PDF/ICTS_COVERED_Participant_Post_Serology.pdf
Facility Organizational Factors Post-Serology Form (Week 4): Facility Follow-Up https://www.phenxtoolkit.org/toolkit_content/PDF/ICTS_COVERED_Facility_Post_Serology.pdf
Participant 6-Month Follow-Up Form: Participant Follow-Up https://www.phenxtoolkit.org/toolkit_content/PDF/ICTS_COVERED_Participant_FollowUp.pdf
Facility 6-Month Follow-Up Form: Facility Follow-Up https://www.phenxtoolkit.org/toolkit_content/PDF/ICTS_COVERED_Facility_FollowUp.pdf
Participant Baseline Positive-Test Follow-Up Form: Participant Follow-Up https://www.phenxtoolkit.org/toolkit_content/PDF/ICTS_COVERED_Positive_Test_FollowUp.pdf...[See more] [See less]Type: Guideline/Assessment ToolAccess Notes: Project website: https://medicine.uiowa.edu/content/covid-evaluation-risk-emergency-departments-covered-project
Free/Publicly Available
Available Formats: PDF
Contact Information:
Nicholas Mohr, MD, MS (nicholas-mohr@uiowa.edu)
Project Leadership:
Nicholas Mohr, MD (University of Iowa) and Dave Talan, MD (University of California-Los Angeles)
Instrument Development Team:
Nicholas Mohr, MD (University of Iowa)
Dave Talan, MD (University of California-Los Angeles)
Anusha Krishnadasan, PhD (University of California-Los Angeles)
Karisa Harland, PhD (University of Iowa)
Kelli Wallace, MS (University of Iowa)
James Willey, MD (University of Iowa)
Sponsor: Centers for Disease Control and Prevention (CDC)Includes Research Tools: Yes.ID: 22586. From: Disaster Lit®a database of the U.S. National Library of Medicine.REDCap: Yes. -
Impact of COVID-19 on Behaviors Across the Cancer Control Continuum in Ohio
Source: Ohio State University (OSU)Date Published: 4/2020Format: PDFAnnotation: This survey was created in April 2020, and first administered in June 2020. It is targeted to established cohorts who must be current residents of Ohio.
Population: Adults Only
Ethnic/Religious Groups
Sexual or Gender Minorities
Length: 131 questions
Time to Complete: 30 minutes self-administered, 45 minutes interviewer-administered
Mode of Administration: Online (e.g., computer-assisted interview)
Pen and Paper
Telephone
Administered by: Professional Interviewer
Self-Administered
Language(s): English
Data Dictionary https://disasterinfo.nlm.nih.gov/content/files/P1164ImpactOfCOVID19Ohio_DataDictionary_2021-02-26.csv
Impact of COVID-19 on Behaviors across the Cancer Control Continuum in Ohio: Full Questionnaire https://www.phenxtoolkit.org/toolkit_content/PDF/OSUMC_Impact-COVID19.pdf
Symptoms, diagnosis, information sources: General Symptoms; Diagnosis; Sources of information about COVID-19 https://www.phenxtoolkit.org/toolkit_content/PDF/OSUMC_Impact-COVID19_Symptoms.pdf
Personal, family, daily life impacts: Employment; Home Life https://www.phenxtoolkit.org/toolkit_content/PDF/OSUMC_Impact-COVID19_Personal.pdf
Stress, anxiety, food or economic insecurity, sleep, mental health: General Mental Health; Economic Insecurity; Diagnosis https://www.phenxtoolkit.org/toolkit_content/PDF/OSUMC_Impact-COVID19_Stress.pdf
Social distancing behaviors: Social Distancing; Social Impact https://www.phenxtoolkit.org/toolkit_content/PDF/OSUMC_Impact-COVID19_Social_Distancing.pdf
Health, health care access during pandemic, cancer-specific questions: Health Care; Non-COVID-19 Symptoms and Medicines https://www.phenxtoolkit.org/toolkit_content/PDF/OSUMC_Impact-COVID19_Health.pdf
Healthful behaviors including physical activity, healthy diet, alcohol and drug use: Physical Activity; Dietary Intake; Substance Use https://www.phenxtoolkit.org/toolkit_content/PDF/OSUMC_Impact-COVID19_Healthful_Behaviors.pdf
Demographics: Personal Demographics; Locational Demographics https://www.phenxtoolkit.org/toolkit_content/PDF/OSUMC_Impact-COVID19_Demographics.pdf...[See more] [See less]Type: Guideline/Assessment ToolAccess Notes: Free/Publicly Available
Available Formats: TEXT
Contact Information:
Dr. Electra Paskett
Ohio State University
Email: electra.paskett@osumc.eduIncludes Research Tools: Yes.ID: 22805. From: Disaster Lit®a database of the U.S. National Library of Medicine. -
COVID-19 Questionnaire on Impact of and Barriers to Stay at Home, Self-isolation, and Quarantine for Vulnerable Populations
Source: University of California, San Francisco (UCSF)Date Published: 3/25/2020Format: PDFAnnotation: This is a self-report, administered questionnaire collected via REDCap (Research Electronic Data Capture system) to assess experiences with non-pharmaceutical public health interventions to mitigate community transmission of COVID-19 such as stay-at-home/shelter-in-place, self-isolation, and quarantine on high-risk populations (primarily those who are low-income, non-U.S. born, or for whom English is a second language). The questionnaire covers several key domains, including 1) Demographics; 2) Health Literacy; 3) Perceived Stress for the individual and household; 4) Health Risk Belief; 5) Access to healthcare, including telehealth; 6) Barriers to self-isolation; 7) Changes in socioeconomic status; and 8) Unmet social needs. Special attention is paid to determinants rooted in education, income, safety, food security, and housing.
Population: Adults Only
Length: Eight sections, approximately 100 questions
Time to Complete: 45 minutes
Mode of Administration: Face-to-face
Telephone
Administered by: Trained Lay Examiner/Interviewer
Language(s): English, Spanish, Mandarin, Cantonese
COVID-19 Questionnaire on Impact of and Barriers to Stay at Home, Self-Isolation, and Quarantine for Vulnerable Populations: Full Questionnaire https://www.phenxtoolkit.org/toolkit_content/PDF/UCSF_COVID19_Impact_and_Barriers.pdf
Demographic: Personal Demographics https://www.phenxtoolkit.org/toolkit_content/PDF/UCSF_COVID19_Questionnaire_Demographics.pdf
Health Literacy: Health Literacy https://www.phenxtoolkit.org/toolkit_content/PDF/UCSF_COVID19_Questionnaire_Health_Literacy.pdf
Perceived Stress Scale (Adult): Stress https://www.phenxtoolkit.org/toolkit_content/PDF/UCSF_COVID19_Questionnaire_Perceived_Stress_Adult.pdf
Perceived Stress Scale (Child): Stress https://www.phenxtoolkit.org/toolkit_content/PDF/UCSF_COVID19_Questionnaire_Perceived_Stress_Child.pdf
Health Risk Belief: Knowledge; Attitudes https://www.phenxtoolkit.org/toolkit_content/PDF/UCSF_COVID19_Questionnaire_Perceived_Health_Risk.pdf
Access To Covid19 Care And Care For Chronic Conditions: Knowledge; Telehealth; Technology Use https://www.phenxtoolkit.org/toolkit_content/PDF/UCSF_COVID19_Questionnaire_Access.pdf
Covid19 Impact And Barriers To Self-Isolation: Sources of information about COVID-19; Overall Impact https://www.phenxtoolkit.org/toolkit_content/PDF/UCSF_COVID19_Questionnaire_Self_Isolation.pdf
Part II. AHCM Screening Tool https://www.phenxtoolkit.org/toolkit_content/PDF/UCSF_COVID19_Questionnaire_Screening.pdf...[See more] [See less]Type: Guideline/Assessment ToolAccess Notes: Permission/Request required
Available Formats: PDF
Contact Information:
Neeta Thakur, MD MPH and Priya B. Shete, MD MPH
Division of Pulmonary and Critical Care Medicine
University of California, San Francisco, and San Francisco General Hospital
Email: neeta.thakur@ucsf.edu or priya.shete@ucsf.eduIncludes Research Tools: Yes.ID: 23633. From: Disaster Lit®a database of the U.S. National Library of Medicine.REDCap: Yes. -
Harvard Dataverse COVID-19 Data Collection
Source: Harvard CollegeDate Published: 2/2020Format: TextAnnotation: This is a general collection of COVID-19 data deposited in the Harvard Dataverse repository. The list in this collection is maintained by the Harvard Dataverse data curation team (IQSS and Harvard Library). Researchers who deposit their related data into Harvard Dataverse will have their data linked to this collection, to increase discoverability of their data. The Harvard Dataverse Repository is a free data repository open to all researchers from any discipline, both inside and outside of the Harvard community, where you can share, archive, cite, access, and explore research data. Each individual Dataverse collection is a customizable collection of datasets (or a virtual repository) for organizing, managing, and showcasing datasets.
Language(s): English...[See more] [See less]Type: Guideline/Assessment ToolAccess Notes: Free/Publicly Available
Available Formats: Text
Contact Information: support@dataverse.harvard.eduIncludes Research Tools: Yes.ID: 24231. From: Disaster Lit®a database of the U.S. National Library of Medicine.
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