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Displaying records 1 - 6 of 6
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  1. PhenX Toolkit
    Source: National Human Genome Research Institute [National Institutes of Health] (NHGRI)
    Date Published: 1/31/2014
    Format: Text
    Annotation: This resource provides 794 standard measures related to complex diseases, phenotypic traits, and environmental exposures. Use of PhenX measures facilitates combining data from a variety of studies, and makes it easy for investigators to expand a study design beyond the primary research focus. It includes these sections relevant to post-disaster data collection: Alcohol Substance Abuse, Demographics, Environmental Exposure, Psychiatric Psychosocial, and Social Environments. This resource was identified by the NIH Disaster Research Response Program (DR2) for researchers looking for pre- and post-disaster data collection instruments....[See more] [See less]
    URL: https://www.phenxtoolkit.org/
    Type: Database/Dataset
    Includes Research Tools: Yes.
    ID: 8030. From: Disaster Lit®a database of the U.S. National Library of Medicine.
  2. NIH (National Institutes of Health) Toolbox for the Assessment of Neurological and Behavioral Function
    Source: National Institutes of Health (NIH)
    Date Published: 10/2012
    Format: Text
    Annotation: This toolbox is a multi-dimensional set of brief measures assessing cognitive, emotional, motor, and sensory function from ages 3 to 85, meeting the need for a standard set of measures that can be used as a "common currency" across diverse study designs and settings. It uses multiple constructs of the four domains: Cognition, Emotion, Motor, and Sensation. Cognition and Emotion have the more relevant instruments for post-disaster data collection. Cognition includes Executive Function, Attention, Episodic Memory, Language, Processing Speed, and Working Memory. Emotion includes Psychological Well-Being, Social Relationships, Stress and Self Efficacy, and Negative Affect. This resource was identified by the NIH Disaster Research Response Program (DR2) for researchers looking for pre- and post-disaster data collection instruments....[See more] [See less]
    URL: http://www.healthmeasures.net/explore-measurement-systems/nih-toolbox
    Type: Database/Dataset
    Includes Research Tools: Yes.
    ID: 7968. From: Disaster Lit®a database of the U.S. National Library of Medicine.
  3. GuLF STUDY: Gulf Long-Term Follow-Up Study
    Source: National Institute of Environmental Health Sciences [National Institutes of Health] (NIEHS)
    Date Published: 9/7/2011
    Format: Text
    Annotation: This web page provides information and materials about a health study for individuals who helped with the oil spill response and cleanup, took training, signed up to work, or were sent to the Gulf to help in some way after the Deepwater Horizon disaster. This resource was identified by the NIH Disaster Research Response Program (DR2) for researchers looking for pre- and post-disaster data collection instruments....[See more] [See less]
    URL: https://gulfstudy.nih.gov/en/index.html
    Type: Web Page
    Includes Research Tools: Yes.
    ID: 5300. From: Disaster Lit®a database of the U.S. National Library of Medicine.
  4. Assessment Center
    Source: Northwestern University
    Date Published: 6/2011
    Format: Text
    Annotation: Assessment Center is a free, online data collection tool that enables researchers to create study-specific websites for capturing participant data securely online. Studies can include measures within the Assessment Center library, as well as custom instruments entered by the researcher. The instrument library includes self- and proxy-report short forms, computerized adaptive tests (CATs), and batteries or profiles from Patient-Reported Outcomes Measurement Information System (PROMIS), Quality of Life in Neurological Diseases (Neuro-QoL), NIH Toolbox, and Health LiTT.

    Among other features, Assessment Center also enables downloading library instruments for administration on paper; customization of items or instruments (e.g., format, randomization, skip patterns); real-time scoring of CATs and short forms; storage of protected health information (PHI) in a separate, secure database; automated accrual reports; real-time data export; and ability to capture endorsement of online consent forms. This resource was identified by the NIH Disaster Research Response     Program (DR2) for researchers looking for pre- and post-disaster data collection instruments....[See more] [See less]
    URL: https://www.assessmentcenter.net/
    Type: Database/Dataset
    Includes Research Tools: Yes.
    ID: 11237. From: Disaster Lit®a database of the U.S. National Library of Medicine.
  5. National Association of County and City Health Officials (NACCHO) Toolbox
    Source: National Association of County and City Health Officials (NACCHO)
    Format: Text
    Annotation: The National Association of County and City Health Officials (NACCHO) Toolbox is a free, online collection of local public health tools produced by members of the public health community. Tools within the toolbox are materials and resources public health professionals and other external stakeholders can use to inform and improve their work in the promotion and advancement of public health objectives. Current examples of tools include, but are not limited to, case examples, presentations, fact sheets, drills, evaluations, protocols, templates, reports, and training materials. This resource was identified by the NIH Disaster Research Response Program (DR2) for researchers looking for pre- and post-disaster data collection instruments.

    Population: All/Anyone
    Administered by: Self Report/Self Administered, Lay Interviewer, Specialist/Doctor/Expert
    Language(s): English, Spanish, Chinese, Vietnamese, Turkish, Arabic, Russian, French, Korean, and Thai    ...[See more] [See less]
    URL: http://toolbox.naccho.org/pages/index.html
    Type: Database/Dataset
    Access Notes: Site requires free registration. Free/Publicly Available

    Citation(s):
    Parker AM, Shelton SR, Morganti KG, Nelson C. Assessing relationships between state and local public health organizations: evidence from the NACCHO 2008 profile of local health departments. J Public Health Manag Pract. 2012 Mar-Apr;18(2):156-9. doi: 10.1097/PHH.0b013e318223b138. PubMed PMID: 22286284. https://www.ncbi.nlm.nih.gov/pubmed/22286284. Subscription required.

    Leep CJ, Shah GH. NACCHO's National Profile of Local Health Departments study: the premier source of data on local health departments for surveillance, research, and policymaking. J Public Health Manag Pract. 2012 Mar-Apr;18(2):186-9. doi: 10.1097/PHH.0b013e31824445ae. PubMed PMID: 22286289. https://www.ncbi.nlm.nih.gov/pubmed/22286289. Subscription required.

    Rubin S, Bouri N, Jolani N, Minton K. The adoption of social media and mobile health technologies for emergency preparedness by local health departments: a joint perspective from NACCHO and the UPMC center for health security. J Public Health Manag Pract. 2014 Mar-Apr;20(2):259-63. doi: 10.1097/PHH.0000000000000056. PubMed PMID: 24458314. https://www.ncbi.nlm.nih.gov/pubmed/24458314. Subscription required.

    Contact information:

    Institution: The National Association of County and City Health Officials (NACCHO)
    Address: 1100 17th Street, NW, Seventh Floor
    Washington, DC 20036
    Phone: 202-783-5550
    Fax: 202-783-1583
    Email: info@naccho.org
    Includes Research Tools: Yes.
    ID: 8356. From: Disaster Lit®a database of the U.S. National Library of Medicine.
  6. Social Science Data Archive
    Source: University of California, Los Angeles (UCLA)
    Date Published: 1961
    Format: Text
    Annotation: The mission of the University of California, Los Angeles (UCLA) Social Science Data Archive (SSDA) is to provide a foundation for social science research with UCLA faculty support throughout an entire research project involving original data collection or the reuse of publicly available studies. The Dataverse consists of unique surveys, enumerations, public opinion polls, and de-identified administrative records. Topics of studies include political attitudes and behavior; social and economic attitudes and behaviors; studies of health status and health outcomes; families, children, and women; international surveys of occupational and social mobility; the Los Angeles County Social Surveys; California Polls; and census data for the United States and other countries. In addition, the SSDA provides access to data from the Inter-university Consortium for Political and Social Research and the Roper Center for Public Opinion Research. Materials from SSDA are used with software programs, such as SPSS, SAS, STATA, and R to carry out statistical analysis. Assistance in using statistical packages is provided by the IDRE Statistical consulting office. This resource was identified by the NIH Disaster Research Response Program (DR2) for researchers looking for pre- and post-disaster data collection instruments.

    Population: All/Anyone
    Language(s): English    ...[See more] [See less]
    URL: https://www.library.ucla.edu/location/data-science-center/data-archive-collections
    Type: Database/Dataset
    Access Notes: Free/Publicly Available

    Contact information:

    Institute: University of California, Los Angeles
    Address: Institute for Social Science Research Data Archives Library, 1120-H Rolfe Hall, 345 Portola Plaza, Los Angeles, CA 90095-1484
    Phone: 310-825-0716
    Email: libbie@g.ucla.edu
    Includes Research Tools: Yes.
    ID: 12946. From: Disaster Lit®a database of the U.S. National Library of Medicine.
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