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  1. ABCD COVID-19 Impact Measure
    Source: University of California, San Diego (UCSD)
    Date Published: 5/2020
    Format: PDF
    Annotation: The COVID-19 Impact Measure was created to be administered to the participants of the NIH-sponsored Adolescent Brain and Cognitive Development (ABCD) longitudinal study of 11,880 diverse community youth enrolled at age 9-10 in 2016-2018 (i.e., birth years 2006-2009) at 21 research sites around the United States. The ABCD sample (63% White, 20% Latinx, 16% Black, 12% more than one race, 2% Asian, <1% American Indian, <1% Pacific Islander; half female) was targeted to match U.S. demographics as defined by the American Community Survey and is being followed until at least age 20. ABCD will send all currently enrolled participants (age range: 11-13) and their parent/guardian the opportunity to complete the ABCD COVID-19 questionnaires. The questionnaires will be administered once a month for four months. Each participant and their parent/guardian will be emailed a unique secure link to the parent and child forms to complete the survey in REDCap. Compensation will be provided upon receipt of the completed form. These measures were developed by a workgroup consisting of ABCD investigators with expertise in adolescent development, mental health, sleep, physical activity, substance use, and disaster response, and the electronic surveys underwent preliminary testing via expert review and pilot testing with adults and children.

    Note the Parent Measures contain the English and Spanish wording. The Parent Measure appears in two parts to accommodate parents who have more than one child in the ABCD Study (our design intentionally oversampled identical twins): Part 1 consists of questions that pertain to parent and family factors; Part 2 consists of questions pertaining to each child they have in the study. ABCD's COVID-19 research sends the measure multiple times over several months in 2020; to reduce participant burden, some items have skip-out branching logic and other items are given at one or two survey administrations and other items are administered each time (noted in comments in the measure PDFs).

    Domains included in the measure:
    * Family Situation: Home composition, economic impact, illness, parent support
    * Youth's Schooling: quality, quantity, methods, and supervision
    * Youth's Routine and Sleep
    * Relationships: friends and family
    * COVID Attitudes and Adherence (to public health directives)
    * Mental Health and Stress: depression, anxiety, worry, post-traumatic stress
    * Substance Use: alcohol, vaping of nicotine and cannabis, other intoxicants
    * Screen Use: for school, socializing, other reasons
    * Media Exposure to COVID-19
    * Physical Health: activity, food access, COVID-19 symptoms

    Population: Adults Only
    Children/Teens Only
    Length: ~85-90 items (Youth)* ; ~80-90 items (Parent) *Note: both measures have skip-out branching logic and not all questions may be asked to all participants.
    Time to Complete: 10-15 minutes
    Mode of Administration: Online (e.g., computer-assisted interview)
    Administered by: Self Administered
    Language(s): English, Spanish (Parent)

    ABCD COVID-19 Impact Measure - Parent Questionnaire https://www.phenxtoolkit.org/toolkit_content/PDF/UCSD_ABCD_Parent.pdf
    Family Situation: Economic Insecurity; Avoidant Behaviors https://www.phenxtoolkit.org/toolkit_content/PDF/UCSD_ABCD_Parent_Family.pdf
    Youth's Schooling: Education https://www.phenxtoolkit.org/toolkit_content/PDF/UCSD_ABCD_Parent_Schooling.pdf
    Youth's Routine and Sleep: Physical Activity; Sleep Changes https://www.phenxtoolkit.org/toolkit_content/PDF/UCSD_ABCD_Parent_Routine.pdf
    Relationships: Family Impact; Hygiene; Social Impact https://www.phenxtoolkit.org/toolkit_content/PDF/UCSD_ABCD_Parent_Relationships.pdf
    COVID Attitudes & Adherence: Conflict; Attitudes https://www.phenxtoolkit.org/toolkit_content/PDF/UCSD_ABCD_Parent_Attitudes.pdf
    Mental Health & Stress: Mental Health; Stress https://www.phenxtoolkit.org/toolkit_content/PDF/UCSD_ABCD_Parent_Mental_Health.pdf
    Substance Use: Substance Use https://www.phenxtoolkit.org/toolkit_content/PDF/UCSD_ABCD_Parent_Substance_Use.pdf
    Screen Use: Media Use https://www.phenxtoolkit.org/toolkit_content/PDF/UCSD_ABCD_Parent_Screen_Use.pdf
    Media Exposure to COVID-19: Sources of information about COVID-19 https://www.phenxtoolkit.org/toolkit_content/PDF/UCSD_ABCD_Parent_Media_Exposure.pdf
    Physical Health: Symptoms; Diagnosis; Health Care https://www.phenxtoolkit.org/toolkit_content/PDF/UCSD_ABCD_Parent_Physical_Health.pdf

    ABCD COVID-19 Impact Measure - Youth Questionnaire https://www.phenxtoolkit.org/toolkit_content/PDF/UCSD_ABCD_Youth.pdf
    School Schedule: Education https://www.phenxtoolkit.org/toolkit_content/PDF/UCSD_ABCD_Youth_School.pdf
    Youth's Routine and Sleep: Sleep Changes https://www.phenxtoolkit.org/toolkit_content/PDF/UCSD_ABCD_Youth_Routine_and_Sleep.pdf
    Parents/Guardians: Home Life https://www.phenxtoolkit.org/toolkit_content/PDF/UCSD_ABCD_Youth_Guardians.pdf
    Relationships: Family Impact; Social Impact https://www.phenxtoolkit.org/toolkit_content/PDF/UCSD_ABCD_Youth_Relationships.pdf
    Mental Health & Stress: Mental Health https://www.phenxtoolkit.org/toolkit_content/PDF/UCSD_ABCD_Youth_Mental_Health_Stress.pdf
    Substance Use: Substance Use https://www.phenxtoolkit.org/toolkit_content/PDF/UCSD_ABCD_Youth_Substance_Use.pdf
    Media Exposure to COVID-19: Sources of information about COVID-19 https://www.phenxtoolkit.org/toolkit_content/PDF/UCSD_ABCD_Youth_Media.pdf
    Screen Use: Media Use https://www.phenxtoolkit.org/toolkit_content/PDF/UCSD_ABCD_Youth_Screen_Use.pdf
    Physical Health: Physical Activity https://www.phenxtoolkit.org/toolkit_content/PDF/UCSD_ABCD_Youth_Physical_Health.pdf    ...[See more] [See less]
    URL: https://www.nlm.nih.gov/dr2/ABCD_COVID-19_Impact_Measure-Parent.pdf
    Type: Guideline/Assessment Tool
    Access Notes: Free/Publicly Available Youth Survey: https://www.nlm.nih.gov/dr2/ABCD_COVID-19_Impact_Measure-Youth.pdf
    Available Formats: PDF
    Contact Information:
    Susan Tapert, PhD.
    abcd-covid@ucsd.edu
    Includes Research Tools: Yes.
    ID: 22354. From: Disaster Lit®a database of the U.S. National Library of Medicine.
    REDCap: Yes.
  2. CAIR (Complementary and Integrative Research Lab) Pandemic Impact Questionnaire (C-PIQ)
    Source: University of California, San Diego (UCSD)
    Date Published: 4/2020
    Format: PDF
    Annotation: This brief measure includes exposure, mental health impact, and growth related to the COVID-19 pandemic. The researchers also provide a brief measure with scoring which includes annotations for creating the subscale scores of exposure, mental health impact, and growth.

    CAIR-PIQ Complementary and Integrative Research Lab (CAIR) Pandemic Impact Questionnaire (PIQ): Full Survey https://www.phenxtoolkit.org/toolkit_content/PDF/CAIR_PIQ.pdf
    COVID-19 Health Impacts: Symptoms; Status; Health Care https://www.phenxtoolkit.org/toolkit_content/PDF/CAIR_PIQ_Health.pdf
    COVID-19 Negative Social and Behavioral Impacts: Labor Market; Economic Insecurity https://www.phenxtoolkit.org/toolkit_content/PDF/CAIR_PIQ_Negative.pdf
    COVID-19 Mental Health Impact: Mental Health https://www.phenxtoolkit.org/toolkit_content/PDF/CAIR_PIQ_Mental.pdf
    COVID-19 Impact on Sleep: Sleep Changes https://www.phenxtoolkit.org/toolkit_content/PDF/CAIR_PIQ_Sleep.pdf
    COVID-19 Positive Impacts: Positive Impacts https://www.phenxtoolkit.org/toolkit_content/PDF/CAIR_PIQ_Positive_Impacts.pdf    ...[See more] [See less]
    URL: https://www.nlm.nih.gov/dr2/CAIR-PIQ_for_administration.pdf
    Authors: Lang, Ariel J.
    Type: Guideline/Assessment Tool
    Access Notes: Link to Measure with Scoring: C-PIQ: https://www.nlm.nih.gov/dr2/CAIR-PIQ_scoring.pdf

    Measure adapted from MacLean & Cloitre, 2020; CRISIS V0.2; and Taku, Cann, Calhoun & Tedeschi, 2008

    Contact: University of California, San Diego Dr. Ariel J. Lang ajlang@health.ucsd.edu
    Includes Research Tools: Yes.
    ID: 21923. From: Disaster Lit®a database of the U.S. National Library of Medicine.
  3. Quality of Well-Being Scale: Self-Administered (QWB-SA)
    Source: University of California, San Diego (UCSD)
    Format: Text
    Annotation: This tool is used to measure health-related quality of life, to monitor the health of populations over time, or to evaluate the efficacy and effectiveness of clinical therapies of practices using a preference-weighted self-administered measure. The Quality of Well-Being Scale (QWB) has been extensively validated, and its psychometric properties are well established. The self-administered version of the QWB (QWB-SA) has been developed and validated in response to limitations of the QWB, and is easier to administer in most research and clinical assessment protocols. The questionnaire examines the presence or absence of symptoms and functioning on specific days prior to administration. The QWB and QWB-SA are preference-weighted measures of health status and overall well-being over the previous three days in four domains: mobility, physical activities, social activities, and symptom/problem complexes. This resource was identified by the NIH Disaster Research Response Program (DR2) for researchers looking for pre- and post-disaster data collection instruments.

    Ease of Use in Disaster Setting: Moderate
    Population: Adults Only
    Length: QWB-24 questions
    QWB-SA-five sections, 78 total questions, including all subquestions and branching. Earlier versions have 56 or 71 items. Some versions of the questionnaire present the total number of items as 10, but this manner of numbering does not account for subsets of questions within a question.
    Time to Complete: 10 to 20 minutes
    Administered by: Self Administered/Self Report, Lay Interviewer, Specialist/Doctor/Expert
    Special Considerations: Training is required for the interview-based QWB. If using the interviewer-administered version, a trained professional and or technician will need to administer the questionnaire.
    Language(s): English, French, German, Chinese, Hmong, Japanese, Swedish, Khmer, Laotian, Navajo, Spanish, Italian, Dutch, and Vietnamese    ...[See more] [See less]
    URL: https://hoap.ucsd.edu/qwb-info/
    Type: Guideline/Assessment Tool
    Access Notes: Permission/Request required

    Citation(s):
    Kaplan RM, Anderson JP, Ganiats TG. The Quality of Well-being Scale: rationale for a single quality of life index. S.R. Walker & R.M. Rosser (eds) Quality of life assessment: Key issues in the 1990s. London: Kluwer Academic Publishers; 1993:65-94.

    Kaplan RM, Sieber WJ, Ganiats TG. The Quality of Well-Being scale: Comparison of the interviewer-administered version with a self-administered questionnaire. Psychol Health. 1997;12:783-791. http://rmkaplan.bol.ucla.edu/Robert_M._Kaplan/1997_Publications_files/0282.pdf. Subscription not required.

    Andresen EM, Rothenberg BM, Kaplan RM. Performance of a self-administered mailed version of the Quality of Well-Being (QWB-SA) questionnaire among older adults. Med Care 1998;36:1349-1360. PubMed PMID: 9749658. https://www.ncbi.nlm.nih.gov/pubmed/9749658 Subscription required.

    Not-for-profit use is free with signed copyright agreement. Optional assistance for scoring is available for a fee.

    For-profit use has an annual fee, in addition to the required signed copyright agreement. Optional assistance for scoring is available for an additional fee.

    Contact information:

    Contact person: Robert M. Kaplan, PhD
    Institution: University of California, San Diego
    Department of Family and Preventive Medicine
    Address: 9500 Gilman Drive
    La Jolla, CA 92093-0622
    Web: http://www.outcomes-trust.org/instruments.htm#QWB


    For more information about scoring and instrument use:
    Institution: University of California, San Diego
    Web: https://hoap.ucsd.edu/qwb-info/QWB-Manual.pdf
    Includes Research Tools: Yes.
    ID: 8131. From: Disaster Lit®a database of the U.S. National Library of Medicine.
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