Gov. Office Status
U.S. Department of Health and Human Services
U.S. Department of Health and Human Services
www.hhs.gov

NIH Public Health Emergency and
Disaster Research Response (DR2)

National Institutes of Health National Institutes of
Environmental Health Sciences
U.S. National Library of Medicine
SearchClear Search TermsPrint/DownloadHelp
From Disaster Lit®, a database of the NLM Disaster Information Management Research Center.
Refine Your Results

From Disaster Lit®, a database of the NLM Disaster Information Management Research Center.
Print Page Download Records Return to Results
Skip to main content

Refine Your Results

Data Collection on

COVID-19 Main Topics

Publication Type

Source

REDCap


Results from:

Disaster Lit logo
View additional search results from Disaster Lit
PubMed logo
View search results from PubMed
MedlinePlus logo
View search results from MedlinePlus
Displaying records 1 - 2 of 2
      of 1      
  1. COVID-19: Impact of the Pandemic and HRQoL in Cancer Patients and Survivors (IPHCPS)
    Source: University of Miami (UM)
    Date Published: 4/29/2020
    Format: PDF
    Annotation: This is a brief, self-report, online-based questionnaire administered via REDCap (Research Electronic Data Capture system) to assess: (1) experiences during the COVID-19 pandemic (e.g., exposure, risk factors, testing, isolation, seropositivity, hospitalization, loss of family or friends); (2) COVID-19-specific psychological distress (e.g., fear, anxiety and depressive symptoms); (3) health, financial, and social disruptions; (4) perceived benefits and social support; (5) health related quality of life (HRQoL) in a convenience sample of cancer patients and survivors; and (6) the extent to which resiliency factors, such as social support and perceived benefits, moderate the effects of COVID-19 experiences on COVID-19-specific psychological distress and HRQoL.

    Domains or modules included in survey: I. COVID-19 Experiences. The first section includes 19 questions related to experiences during the COVID-19 pandemic such as exposure, risk factors, testing, isolation, seropositivity, hospitalization, loss of family or friends, loss of income, as well psychosocial experiences related to COVID-19-like fear, anxiety, and depression symptoms (questions 1-19). II. COVID-19 Psychosocial and Practical Experiences. Subscales: COVID-19-Specific Distress (Emotional and Physical Reactions) -- emotional and physical impact of the COVID-19 pandemic (questions 1 through 13). Health Care Disruptions and Concerns (Concerns About Medical Care) -- how the COVID-19 pandemic has impacted general and cancer-related care, as well as health care concerns specific to the pandemic (questions 14 through 17). Disruption to Daily Activities and Social Interactions -- how the pandemic has impacted routines, social activities, and interactions (questions 18 through 23). Financial Hardship -- how the COVID-19 pandemic has affected finances and created and/or exacerbated financial hardships (questions 24 through 28). Perceived Benefits -- how experiences with the pandemic have led to any perceived benefit or positive contribution (questions 29 through 34). Functional Social Support -- availability and use of social resources during the pandemic (questions 35 through 38). Perceived Stress Management (Ability to Manage Stress) -- ability to implement skills to manage pandemic related stressors (questions 39 through 43).

    Scoring: Available upon request. Ongoing psychometric analyses.

    Population: Adults only
    Length: 69 questions
    Administered by: Self Administered/Self Report
    Language(s): English

    Impact of the Pandemic and HRQoL in Cancer Patients and Survivors (IPHCPS): Full Questionnaire https://www.phenxtoolkit.org/toolkit_content/PDF/UMiami_HRQoL.pdf
    COVID-19 Specific Distress (Emotional and Physical Reactions): Mental Health https://www.phenxtoolkit.org/toolkit_content/PDF/UMiami_HRQoL_Distress.pdf
    COVID-19 Health Care Disruptions and Concerns (Concerns About Medical Care): Health Care https://www.phenxtoolkit.org/toolkit_content/PDF/UMiami_HRQoL_Health_Care.pdf
    COVID-19 Disruption to Daily Activities and Social Interactions: Daily Life https://www.phenxtoolkit.org/toolkit_content/PDF/UMiami_HRQoL_Disruption.pdf
    COVID-19 Financial Hardship: Economic Insecurity https://www.phenxtoolkit.org/toolkit_content/PDF/UMiami_HRQoL_Financial.pdf
    COVID-19 Perceived Benefits: Positive Impacts https://www.phenxtoolkit.org/toolkit_content/PDF/UMiami_HRQoL_Perceived_Benefits.pdf
    COVID-19 Functional Social Support: Social Impact https://www.phenxtoolkit.org/toolkit_content/PDF/UMiami_HRQoL_Social.pdf
    COVID-19 Perceived Stress Management (Ability to Manage Stress): Stress https://www.phenxtoolkit.org/toolkit_content/PDF/UMiami_HRQoL_Stress.pdf    ...[See more] [See less]
    URL: https://www.nlm.nih.gov/dr2/COVID-19_IMPACT_HRQOL_QUESTIONNAIRE_FINAL.pdf
    Type: Guideline/Assessment Tool
    Access Notes: Available Formats: PDF
    Free/Publicly Available

    Associated protocol: https://www.nlm.nih.gov/dr2/Impact_of_the_Pandemic_HRQoL_in_Cancer_Patients_and_Survivors.pdf (https://dr2.nlm.nih.gov/search/?q=22131)

    Contact Information: Frank J. Penedo, PhD Professor, Departments of Psychology and Medicine, University of Miami/Associate Director, Sylvester Comprehensive Cancer Center: frank.penedo@miami.edu
    Includes Research Tools: Yes.
    ID: 22130. From: Disaster Lit®a database of the U.S. National Library of Medicine.
    REDCap: Yes.
  2. COVID-19: Well-Being and HRQoL in Cancer Patients and Survivors: Protocol
    Source: University of Miami (UM)
    Date Published: 4/29/2020
    Format: PDF
    Annotation: Cross-sectional study protocol. Sociodemographics: Age -- 18 years or older. Gender -- Nonspecific. Race/ethnicity -- Nonspecific; however, the participant needs to be fluent in English or Spanish. Geographical region: Miami, Florida, and Houston, Texas. Targeted population: ICD-10 confirmed cancer diagnosis for cancer patients or survivors who had an oncology visit within the University of Miami Miller School of Medicine (UM/MSOM) Sylvester Comprehensive Cancer Center health system in the past five years. Study links patient demographic and clinical data via the health system’s electronic data warehouse and uses the survey "Impact of the Pandemic and HRQoL in Cancer Patients and Survivors (IPHCPS)" to assess impacts of COVID-19.

    Population: Adults only
    Language(s): English    ...[See more] [See less]
    URL: https://www.nlm.nih.gov/dr2/Impact_of_the_Pandemic_HRQoL_in_Cancer_Patients_and_Survivors.pdf
    Authors: Penedo, Frank; Antoni, Michael
    Type: Study Design/Protocol
    Access Notes: Free/Publicly Available

    Associated survey: https://www.nlm.nih.gov/dr2/COVID-19_IMPACT_HRQOL_QUESTIONNAIRE_FINAL.pdf (https://dr2.nlm.nih.gov/search/?q=22130)
    Includes Research Tools: Yes.
    ID: 22131. From: Disaster Lit®a database of the U.S. National Library of Medicine.
      of 1