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International Sexual Health And REproductive (I-SHARE) Health Survey during COVID-19
Source: Academic Network for Sexual and Reproductive Health and Rights Policy [Ghent University] (ANSER)Date Published: 6/2020Format: TextAnnotation: I-SHARE is a cross-sectional, multi-country study on sexual and reproductive health well-being in the time of the COVID-19 crisis. The survey instrument is online-based, administered by local organizations in participating countries (34 countries to date), and designed to assess the impact of social distancing measures on sexual risk behaviors, intimate partner violence, and access to essential reproductive health services. The data collected from the survey are divided into the following sections: socio-demographics, compliance with social-distancing measures, couple and family relationships, sexual behavior, access to contraceptives, access to reproductive health services, abortion, sexual and gender-based violence, female genital mutation/cutting and early/forced marriage (optional), HIV/STI, mental health (optional), and nutrition (optional). The survey is for individuals 18 years or older, with some sections specifically for women.
Population: Adults Only
Length: 13 sections, 152 questions
Time to Complete: 15-20 minutes
Mode of Administration: Online (e.g., computer-assisted interview)
Administered by: Self Administered
Language(s): English, Italian, Portuguese, Arabic, Latvian, Russian, German, Spanish, Bahasa Melayu, Czech, Danish, French, Khmer, Swedish; find over 35 translations of the survey: https://www.dropbox.com/sh/m2r9vpwv2g6asqb/AAAcMwakH2Xi512iEaKJJtR0a?dl=0)
I-SHARE Health Survey during COVID-19: Full Questionnaire https://www.phenxtoolkit.org/toolkit_content/PDF/I-SHARE_COVID19.pdf
Socio-demographics: Locational Demographics; Personal Demographics https://www.phenxtoolkit.org/toolkit_content/PDF/I-SHARE_COVID19_Sociodemographics.pdf
Compliance with social distancing measures: Social Distancing; Economic Impact; Substance Use https://www.phenxtoolkit.org/toolkit_content/PDF/I-SHARE_COVID19_Compliance.pdf
Couple and family relationships: Family Impact https://www.phenxtoolkit.org/toolkit_content/PDF/I-SHARE_COVID19_Relationships.pdf
Sexual behavior: Sexual Behavior https://www.phenxtoolkit.org/toolkit_content/PDF/I-SHARE_COVID19_Sexual_Behavior.pdf
Access to contraceptives: Pregnancy History; Contraceptives; Health Care https://www.phenxtoolkit.org/toolkit_content/PDF/I-SHARE_COVID19_Contraceptives.pdf
Access to reproductive health care: Current Pregnancy; Health Care https://www.phenxtoolkit.org/toolkit_content/PDF/I-SHARE_COVID19_Reproductive_Care.pdf
Abortion: Abortion; Health Care https://www.phenxtoolkit.org/toolkit_content/PDF/I-SHARE_COVID19_Abortion.pdf
Sexual and gender based violence: Violence; Partner Dynamics https://www.phenxtoolkit.org/toolkit_content/PDF/I-SHARE_COVID19_Violence.pdf
Female genital mutilation/early or forced marriage: Early Marriage; Female Circumcision https://www.phenxtoolkit.org/toolkit_content/PDF/I-SHARE_COVID19_Forced_Marriage.pdf
HIV/STI: HIV https://www.phenxtoolkit.org/toolkit_content/PDF/I-SHARE_COVID19_HIV.pdf
Mental health: General Mental Health https://www.phenxtoolkit.org/toolkit_content/PDF/I-SHARE_COVID19_Mental_Health.pdf
Nutrition: Food Security https://www.phenxtoolkit.org/toolkit_content/PDF/I-SHARE_COVID19_Nutrition.pdf...[See more] [See less]Type: Guideline/Assessment ToolAccess Notes: Free/Publicly Available
Associated protocol: https://www.nlm.nih.gov/dr2/I-SHAREProtocol19June2020.pdf
Link to study website: https://ishare.web.unc.edu
Available Formats: Text
Citations:
Hlatshwako TG, Shah SJ, Kosana P, Adebayo E, Hendriks J, Larsson EC, Hensel DJ, Erausquin JT, Marks M, Michielsen K, Saltis H, Francis JM, Wouters E, Tucker JD. Online health survey research during COVID-19. Lancet Digit Health. 2021 Feb;3(2):e76-e77. doi: 10.1016/S2589-7500(21)00002-9. PMID: 33509387. https://pubmed.ncbi.nlm.nih.gov/33509387/
Michielsen K, Larrson EC, Kågesten A, Erausquin JT, Griffin S, Van de Velde S, Tucker JD; I-SHARE Team. International Sexual Health And REproductive health (I-SHARE) survey during COVID-19: study protocol for online national surveys and global comparative analyses. Sex Transm Infect. 2021 Mar;97(2):88-92. doi: 10.1136/sextrans-2020-054664. Epub 2020 Oct 20. PMID: 33082232. https://pubmed.ncbi.nlm.nih.gov/33082232/
Contact Information:
Kristien Michielsen
Ghent University
Academic Network for Sexual and Reproductive Health and Rights Policy (ANSER)
Email: kristien.michielsen@ugent.be
Joseph D. Tucker
University of North Carolina at Chapel Hill
London School of Hygiene and Tropical Medicine (LSHTM)
Email: jdtucker@med.unc.eduIncludes Research Tools: Yes.ID: 23308. From: Disaster Lit®a database of the U.S. National Library of Medicine. -
International Sexual Health And REproductive (I-SHARE) Health Survey during COVID-19: Study Protocol for Online National Surveys and Global Comparative Analyses
Source: Academic Network for Sexual and Reproductive Health and Rights Policy [Ghent University] (ANSER)Date Published: 6/2020Format: PDFAnnotation: COVID-19 may have a profound impact on sexual behaviors, reproductive health, and social life across the world. Shelter-in-place regulations that have extended across the globe may influence condomless sex, exacerbate intimate partner violence, and reduce access to essential reproductive health services. Population-representative research is challenging during shelter-in-place, leaving major gaps in our understanding of sexual and reproductive health during COVID-19. This International Sexual Health And REproductive (I-SHARE) study protocol manuscript describes a common plan for online national surveys and global comparative analyses.
Methods: The purpose of this cross-sectional study is to better understand sexual and reproductive health in selected countries during COVID-19 and facilitate multi-national comparisons. Participants will be recruited in selected countries through an online survey. The survey link will be disseminated through local, regional, and national networks. In each country, a lead organization will be responsible for organizing ethical review, translation, and survey administration. The consortium network provides support for national studies, coordination, and multi-national comparison. We will use multi-level modeling to determine the relationship between COVID-19 and condomless sex, gender-based violence, access to reproductive health services, HIV testing, and other key items. This study protocol defines primary outcomes, pre-specified subanalyses, and analysis plans.
The I-SHARE study examines sexual and reproductive health at the national and global level. We will use multi-level modeling to examine country-level variables associated with outcomes of interest. This will provide a foundation for subsequent online multi-country comparison using more robust sampling methodologies.
Population: Adults Only
Language(s): English...[See more] [See less]Type: Study Design/ProtocolAccess Notes: Free/Publicly Available
Associated Survey: https://www.nlm.nih.gov/dr2/I-SHARE_Survey.xlsx
Link to study website: https://ishare.web.unc.edu
Available Formats: PDF
Contact Information:
Kristien Michielsen
Ghent University
Academic Network for Sexual and Reproductive Health and Rights Policy (ANSER)
Email: kristien.michielsen@ugent.be
Joseph D. Tucker
University of North Carolina at Chapel Hill
London School of Hygiene and Tropical Medicine (LSHTM)
Email: jdtucker@med.unc.eduIncludes Research Tools: Yes.ID: 23309. From: Disaster Lit®a database of the U.S. National Library of Medicine. -
Neuro-QoL: Quality of Life in Neurological Disorders
Source: Northwestern UniversityDate Published: 6/24/2013Format: TextAnnotation: Neuro-QoL is a set of self-report measures that assesses the health-related quality of life (HRQOL) of adults and children with neurological disorders. Neuro-QoL is comprised of item banks and scales that evaluate symptoms, concerns, and issues that are relevant across disorders, along with measures that assess areas most relevant for specific patient populations. This resource was identified by the NIH Disaster Research Response Program (DR2) for researchers looking for pre- and post-disaster data collection instruments....[See more] [See less]Type: Guideline/Assessment ToolIncludes Research Tools: Yes.ID: 11236. From: Disaster Lit®a database of the U.S. National Library of Medicine. -
Assessment Center
Source: Northwestern UniversityDate Published: 6/2011Format: TextAnnotation: Assessment Center is a free, online data collection tool that enables researchers to create study-specific websites for capturing participant data securely online. Studies can include measures within the Assessment Center library, as well as custom instruments entered by the researcher. The instrument library includes self- and proxy-report short forms, computerized adaptive tests (CATs), and batteries or profiles from Patient-Reported Outcomes Measurement Information System (PROMIS), Quality of Life in Neurological Diseases (Neuro-QoL), NIH Toolbox, and Health LiTT.
Among other features, Assessment Center also enables downloading library instruments for administration on paper; customization of items or instruments (e.g., format, randomization, skip patterns); real-time scoring of CATs and short forms; storage of protected health information (PHI) in a separate, secure database; automated accrual reports; real-time data export; and ability to capture endorsement of online consent forms. This resource was identified by the NIH Disaster Research Response Program (DR2) for researchers looking for pre- and post-disaster data collection instruments....[See more] [See less]Type: Database/DatasetIncludes Research Tools: Yes.ID: 11237. From: Disaster Lit®a database of the U.S. National Library of Medicine. -
Hearing Handicap Inventory for Adults (HHIA)
Source: Northwestern UniversityDate Published: 1991Format: PDFAnnotation: The Hearing Handicap Inventory for Adults (HHIA) was designed to both quantify handicap and assess benefit by measuring change in perceived handicap after the fitting of hearing aids. The HHIA is a 25-item self-assessment scale composed of two subscales (emotional and social/situational). This resource was identified by the NIH Disaster Research Response Program (DR2) for researchers looking for pre- and post-disaster data collection instruments.
Ease of Use in Disaster Setting: Easy
Population: High Risk/Special/Unique Populations
Length: 25 questions
Administered by: Self Administered/Self Report
Language(s): English, Brazilian Portuguese, Italian...[See more] [See less]Type: Guideline/Assessment ToolAccess Notes: Free/Publicly Available
Citation(s):
Newman CW, Weinstein BE, Jacobson GP, Hug GA. Test -retest reliability of the Hearing Handicap Inventory for Adults, Ear Hear. 1991 Oct;12(5): 355-357. PubMed PMID:1783240. https://www.ncbi.nlm.nih.gov/pubmed/1783240. Subscription required.
Remenschneider AK, Lookabaugh S, Aliphas A, Brodsky JR, Devaiah AK, Dagher W, Grundfast KM, Heman-Ackah SE, Rubin S, Sillman J, Tsai AC, Vecchiotti M, Kujawa SG, Lee DJ, Quesnel AM. Otologic outcomes after blast injury: the Boston Marathon experience. Otol Neurotol. 2014 Dec;35(10):1825-34. doi: 10.1097/mao.0000000000000616. Epub 2014 Nov 14. PubMed PMID: 25393974. https://www.ncbi.nlm.nih.gov/pubmed/25393974. Subscription required.
Contact information:
Institution: Northwestern University Audiology Clinic
Address: 2240 Campus Drive, Evanston, IL 60208
Phone: 847-491-3165
Fax: 847-467-0410Includes Research Tools: Yes.ID: 12913. From: Disaster Lit®a database of the U.S. National Library of Medicine. -
Numeric Pain Rating Scale
Source: Northwestern UniversityDate Published: 1989Format: PDFAnnotation: This tool measures the subjective intensity of pain that a person has experienced in a 24-hour period. This resource was identified by the NIH Disaster Research Response Program (DR2) for researchers looking for pre- and post-disaster data collection instruments.
Ease of Use in Disaster Setting: Easy
Flesch-Kincaid Reading Level: 8.3
Population: All/Anyone
Length: One question
Administered by: Self Administered/Self Report, Lay Interviewer
Language(s): English...[See more] [See less]Type: Guideline/Assessment ToolAccess Notes: Free/Publicly Available
Citation(s):
Yabuki S, Ouchi K, Kikuchi S, Konno S. Pain, quality of life and activity in aged evacuees living in temporary housing after the Great East Japan earthquake of 11 March 2011: a cross-sectional study in Minamisoma City, Fukushima prefecture. BMC Musculoskelet Disord. 2015;16(1):246. doi: 10.1186/s12891-015-0711-2. Epub 2015 Sep 12. PubMed PMID: 26359245; PubMed Central PMCID: PMC4566298. https://www.ncbi.nlm.nih.gov/pubmed/26359245. Subscription not required.
Contact information:
Contact person: Jennifer Moore PT, DHS
Institution: Rehabilitation Institute of Chicago, Northwestern University
Email: rehabmeasures@ric.orgIncludes Research Tools: Yes.ID: 12894. From: Disaster Lit®a database of the U.S. National Library of Medicine.
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