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  1. International Sexual Health And REproductive (I-SHARE) Health Survey during COVID-19
    Source: Academic Network for Sexual and Reproductive Health and Rights Policy [Ghent University] (ANSER)
    Date Published: 6/2020
    Format: Text
    Annotation: I-SHARE is a cross-sectional, multi-country study on sexual and reproductive health well-being in the time of the COVID-19 crisis. The survey instrument is online-based, administered by local organizations in participating countries (34 countries to date), and designed to assess the impact of social distancing measures on sexual risk behaviors, intimate partner violence, and access to essential reproductive health services. The data collected from the survey are divided into the following sections: socio-demographics, compliance with social-distancing measures, couple and family relationships, sexual behavior, access to contraceptives, access to reproductive health services, abortion, sexual and gender-based violence, female genital mutation/cutting and early/forced marriage (optional), HIV/STI, mental health (optional), and nutrition (optional). The survey is for individuals 18 years or older, with some sections specifically for women.

    Population: Adults Only
    Length: 13 sections, 152 questions
    Time to Complete: 15-20 minutes
    Mode of Administration: Online (e.g., computer-assisted interview)
    Administered by: Self Administered
    Language(s): English, Italian, Portuguese, Arabic, Latvian, Russian, German, Spanish, Bahasa Melayu, Czech, Danish, French, Khmer, Swedish; find over 35 translations of the survey: https://www.dropbox.com/sh/m2r9vpwv2g6asqb/AAAcMwakH2Xi512iEaKJJtR0a?dl=0)


    I-SHARE Health Survey during COVID-19: Full Questionnaire https://www.phenxtoolkit.org/toolkit_content/PDF/I-SHARE_COVID19.pdf
    Socio-demographics: Locational Demographics; Personal Demographics https://www.phenxtoolkit.org/toolkit_content/PDF/I-SHARE_COVID19_Sociodemographics.pdf
    Compliance with social distancing measures: Social Distancing; Economic Impact; Substance Use https://www.phenxtoolkit.org/toolkit_content/PDF/I-SHARE_COVID19_Compliance.pdf
    Couple and family relationships: Family Impact https://www.phenxtoolkit.org/toolkit_content/PDF/I-SHARE_COVID19_Relationships.pdf
    Sexual behavior: Sexual Behavior https://www.phenxtoolkit.org/toolkit_content/PDF/I-SHARE_COVID19_Sexual_Behavior.pdf
    Access to contraceptives: Pregnancy History; Contraceptives; Health Care https://www.phenxtoolkit.org/toolkit_content/PDF/I-SHARE_COVID19_Contraceptives.pdf
    Access to reproductive health care: Current Pregnancy; Health Care https://www.phenxtoolkit.org/toolkit_content/PDF/I-SHARE_COVID19_Reproductive_Care.pdf
    Abortion: Abortion; Health Care https://www.phenxtoolkit.org/toolkit_content/PDF/I-SHARE_COVID19_Abortion.pdf
    Sexual and gender based violence: Violence; Partner Dynamics https://www.phenxtoolkit.org/toolkit_content/PDF/I-SHARE_COVID19_Violence.pdf
    Female genital mutilation/early or forced marriage: Early Marriage; Female Circumcision https://www.phenxtoolkit.org/toolkit_content/PDF/I-SHARE_COVID19_Forced_Marriage.pdf
    HIV/STI: HIV https://www.phenxtoolkit.org/toolkit_content/PDF/I-SHARE_COVID19_HIV.pdf
    Mental health: General Mental Health https://www.phenxtoolkit.org/toolkit_content/PDF/I-SHARE_COVID19_Mental_Health.pdf
    Nutrition: Food Security https://www.phenxtoolkit.org/toolkit_content/PDF/I-SHARE_COVID19_Nutrition.pdf
    ...[See more] [See less]
    Type: Guideline/Assessment Tool
    Access Notes: Free/Publicly Available
    Associated protocol: https://www.nlm.nih.gov/dr2/I-SHAREProtocol19June2020.pdf
    Link to study website: https://ishare.web.unc.edu

    Available Formats: Text

    Citations:
    Hlatshwako TG, Shah SJ, Kosana P, Adebayo E, Hendriks J, Larsson EC, Hensel DJ, Erausquin JT, Marks M, Michielsen K, Saltis H, Francis JM, Wouters E, Tucker JD. Online health survey research during COVID-19. Lancet Digit Health. 2021 Feb;3(2):e76-e77. doi: 10.1016/S2589-7500(21)00002-9. PMID: 33509387. https://pubmed.ncbi.nlm.nih.gov/33509387/

    Michielsen K, Larrson EC, Kågesten A, Erausquin JT, Griffin S, Van de Velde S, Tucker JD; I-SHARE Team. International Sexual Health And REproductive health (I-SHARE) survey during COVID-19: study protocol for online national surveys and global comparative analyses. Sex Transm Infect. 2021 Mar;97(2):88-92. doi: 10.1136/sextrans-2020-054664. Epub 2020 Oct 20. PMID: 33082232. https://pubmed.ncbi.nlm.nih.gov/33082232/

    Contact Information:
    Kristien Michielsen
    Ghent University
    Academic Network for Sexual and Reproductive Health and Rights Policy (ANSER)
    Email: kristien.michielsen@ugent.be

    Joseph D. Tucker
    University of North Carolina at Chapel Hill
    London School of Hygiene and Tropical Medicine (LSHTM)
    Email: jdtucker@med.unc.edu
    Includes Research Tools: Yes.
    ID: 23308. From: Disaster Lit®a database of the U.S. National Library of Medicine.

  2. International Sexual Health And REproductive (I-SHARE) Health Survey during COVID-19: Study Protocol for Online National Surveys and Global Comparative Analyses
    Source: Academic Network for Sexual and Reproductive Health and Rights Policy [Ghent University] (ANSER)
    Date Published: 6/2020
    Format: PDF
    Annotation: COVID-19 may have a profound impact on sexual behaviors, reproductive health, and social life across the world. Shelter-in-place regulations that have extended across the globe may influence condomless sex, exacerbate intimate partner violence, and reduce access to essential reproductive health services. Population-representative research is challenging during shelter-in-place, leaving major gaps in our understanding of sexual and reproductive health during COVID-19. This International Sexual Health And REproductive (I-SHARE) study protocol manuscript describes a common plan for online national surveys and global comparative analyses.

    Methods: The purpose of this cross-sectional study is to better understand sexual and reproductive health in selected countries during COVID-19 and facilitate multi-national comparisons. Participants will be recruited in selected countries through an online survey. The survey link will be disseminated through local, regional, and national networks. In each country, a lead organization will be responsible for organizing ethical review, translation, and survey administration. The consortium network provides support for national studies, coordination, and multi-national comparison. We will use multi-level modeling to determine the relationship between COVID-19 and condomless sex, gender-based violence, access to reproductive health services, HIV testing, and other key items. This study protocol defines primary outcomes, pre-specified subanalyses, and analysis plans.

    The I-SHARE study examines sexual and reproductive health at the national and global level. We will use multi-level modeling to examine country-level variables associated with outcomes of interest. This will provide a foundation for subsequent online multi-country comparison using more robust sampling methodologies.

    Population: Adults Only
    Language(s): English
    ...[See more] [See less]
    Type: Study Design/Protocol
    Access Notes: Free/Publicly Available
    Associated Survey: https://www.nlm.nih.gov/dr2/I-SHARE_Survey.xlsx
    Link to study website: https://ishare.web.unc.edu

    Available Formats: PDF

    Contact Information:
    Kristien Michielsen
    Ghent University
    Academic Network for Sexual and Reproductive Health and Rights Policy (ANSER)
    Email: kristien.michielsen@ugent.be

    Joseph D. Tucker
    University of North Carolina at Chapel Hill
    London School of Hygiene and Tropical Medicine (LSHTM)
    Email: jdtucker@med.unc.edu
    Includes Research Tools: Yes.
    ID: 23309. From: Disaster Lit®a database of the U.S. National Library of Medicine.

  3. Neuro-QoL: Quality of Life in Neurological Disorders
    Source: Northwestern University
    Date Published: 6/24/2013
    Format: Text
    Annotation: Neuro-QoL is a set of self-report measures that assesses the health-related quality of life (HRQOL) of adults and children with neurological disorders. Neuro-QoL is comprised of item banks and scales that evaluate symptoms, concerns, and issues that are relevant across disorders, along with measures that assess areas most relevant for specific patient populations. This resource was identified by the NIH Disaster Research Response Program (DR2) for researchers looking for pre- and post-disaster data collection instruments....[See more] [See less]
    Type: Guideline/Assessment Tool
    Includes Research Tools: Yes.
    ID: 11236. From: Disaster Lit®a database of the U.S. National Library of Medicine.

  4. Assessment Center
    Source: Northwestern University
    Date Published: 6/2011
    Format: Text
    Annotation: Assessment Center is a free, online data collection tool that enables researchers to create study-specific websites for capturing participant data securely online. Studies can include measures within the Assessment Center library, as well as custom instruments entered by the researcher. The instrument library includes self- and proxy-report short forms, computerized adaptive tests (CATs), and batteries or profiles from Patient-Reported Outcomes Measurement Information System (PROMIS), Quality of Life in Neurological Diseases (Neuro-QoL), NIH Toolbox, and Health LiTT.

    Among other features, Assessment Center also enables downloading library instruments for administration on paper; customization of items or instruments (e.g., format, randomization, skip patterns); real-time scoring of CATs and short forms; storage of protected health information (PHI) in a separate, secure database; automated accrual reports; real-time data export; and ability to capture endorsement of online consent forms. This resource was identified by the NIH Disaster Research Response
    Program (DR2) for researchers looking for pre- and post-disaster data collection instruments....[See more] [See less]
    Type: Database/Dataset
    Includes Research Tools: Yes.
    ID: 11237. From: Disaster Lit®a database of the U.S. National Library of Medicine.

  5. Hearing Handicap Inventory for Adults (HHIA)
    Source: Northwestern University
    Date Published: 1991
    Format: PDF
    Annotation: The Hearing Handicap Inventory for Adults (HHIA) was designed to both quantify handicap and assess benefit by measuring change in perceived handicap after the fitting of hearing aids. The HHIA is a 25-item self-assessment scale composed of two subscales (emotional and social/situational). This resource was identified by the NIH Disaster Research Response Program (DR2) for researchers looking for pre- and post-disaster data collection instruments.

    Ease of Use in Disaster Setting: Easy
    Population: High Risk/Special/Unique Populations
    Length: 25 questions
    Administered by: Self Administered/Self Report
    Language(s): English, Brazilian Portuguese, Italian
    ...[See more] [See less]
    Type: Guideline/Assessment Tool
    Access Notes: Free/Publicly Available

    Citation(s):
    Newman CW, Weinstein BE, Jacobson GP, Hug GA. Test -retest reliability of the Hearing Handicap Inventory for Adults, Ear Hear. 1991 Oct;12(5): 355-357. PubMed PMID:1783240. https://www.ncbi.nlm.nih.gov/pubmed/1783240. Subscription required.

    Remenschneider AK, Lookabaugh S, Aliphas A, Brodsky JR, Devaiah AK, Dagher W, Grundfast KM, Heman-Ackah SE, Rubin S, Sillman J, Tsai AC, Vecchiotti M, Kujawa SG, Lee DJ, Quesnel AM. Otologic outcomes after blast injury: the Boston Marathon experience. Otol Neurotol. 2014 Dec;35(10):1825-34. doi: 10.1097/mao.0000000000000616. Epub 2014 Nov 14. PubMed PMID: 25393974. https://www.ncbi.nlm.nih.gov/pubmed/25393974. Subscription required.

    Contact information:

    Institution: Northwestern University Audiology Clinic
    Address: 2240 Campus Drive, Evanston, IL 60208
    Phone: 847-491-3165
    Fax: 847-467-0410
    Includes Research Tools: Yes.
    ID: 12913. From: Disaster Lit®a database of the U.S. National Library of Medicine.

  6. Numeric Pain Rating Scale
    Source: Northwestern University
    Date Published: 1989
    Format: PDF
    Annotation: This tool measures the subjective intensity of pain that a person has experienced in a 24-hour period. This resource was identified by the NIH Disaster Research Response Program (DR2) for researchers looking for pre- and post-disaster data collection instruments.

    Ease of Use in Disaster Setting: Easy
    Flesch-Kincaid Reading Level: 8.3
    Population: All/Anyone
    Length: One question
    Administered by: Self Administered/Self Report, Lay Interviewer
    Language(s): English
    ...[See more] [See less]
    Type: Guideline/Assessment Tool
    Access Notes: Free/Publicly Available

    Citation(s):
    Yabuki S, Ouchi K, Kikuchi S, Konno S. Pain, quality of life and activity in aged evacuees living in temporary housing after the Great East Japan earthquake of 11 March 2011: a cross-sectional study in Minamisoma City, Fukushima prefecture. BMC Musculoskelet Disord. 2015;16(1):246. doi: 10.1186/s12891-015-0711-2. Epub 2015 Sep 12. PubMed PMID: 26359245; PubMed Central PMCID: PMC4566298. https://www.ncbi.nlm.nih.gov/pubmed/26359245. Subscription not required.

    Contact information:

    Contact person: Jennifer Moore PT, DHS
    Institution: Rehabilitation Institute of Chicago, Northwestern University
    Email: rehabmeasures@ric.org
    Includes Research Tools: Yes.
    ID: 12894. From: Disaster Lit®a database of the U.S. National Library of Medicine.

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