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Disaster Lit logo

The Resource Guide for Disaster Medicine and Public Health.

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Database of biomedical journal citations and abstracts.

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Health information resources for the general public.

Displaying records 1 - 7 of 7

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  1. Neuro-QoL: Quality of Life in Neurological Disorders
    Source: Northwestern University
    Format: Text
    Date Published: 6/24/2013
    Annotation: Neuro-QoL is a set of self-report measures that assesses the health-related quality of life (HRQOL) of adults and children with neurological disorders. Neuro-QoL is comprised of item banks and scales that evaluate symptoms, concerns, and issues that are relevant across disorders, along with measures that assess areas most relevant for specific patient populations. This resource was identified by the NIH Disaster Research Response Program (DR2) for researchers looking for pre- and post-disaster data collection instruments. [less]
    Type: Guideline/Assessment Tool
    Includes Research Tools: Yes
    ID: 11236. From Disaster Lit®, a database of the U.S. National Library of Medicine.

  2. NIH (National Institutes of Health) Toolbox for the Assessment of Neurological and Behavioral Function
    Source: National Institutes of Health (NIH)
    Format: Text
    Date Published: 10/2012
    Annotation: This toolbox is a multi-dimensional set of brief measures assessing cognitive, emotional, motor, and sensory function from ages 3 to 85, meeting the need for a standard set of measures that can be used as a "common currency" across diverse study designs and settings. It uses multiple constructs of the four domains: Cognition, Emotion, Motor, and Sensation. Cognition and Emotion have the more relevant instruments for post-disaster data collection. Cognition includes Executive Function, Attention, Episodic Memory, Language, Processing Speed, and Working Memory. Emotion includes Psychological Well-Being, Social Relationships, Stress and Self Efficacy, and Negative Affect. This resource was identified by the NIH Disaster Research Response Program (DR2) for researchers looking for pre- and post-disaster data collection instruments. [less]
    Data Collection on: Mental Health and Cognitive Function
    Type: Database/Dataset
    Includes Research Tools: Yes
    ID: 7968. From Disaster Lit®, a database of the U.S. National Library of Medicine.

  3. NINDS (National Institute of Neurological Disorders and Stroke) Common Data Elements
    Source: National Institute of Neurological Disorders and Stroke [National Institutes of Health] (NINDS)
    Format: Text
    Date Published: 8/2012
    Annotation: This resource is a project to standardize the collection of investigational data in order to facilitate comparison of results across studies and more effectively aggregate information into significant metadata results. It outlines data standards and provides accompanying tools to help investigators and research teams collect and record standardized clinical data. This resource was identified by the NIH Disaster Research Response Program (DR2) for researchers looking for pre- and post-disaster data collection instruments. [less]
    Data Collection on: Mental Health and Cognitive Function
    Type: Guideline/Assessment Tool
    Includes Research Tools: Yes
    ID: 8091. From Disaster Lit®, a database of the U.S. National Library of Medicine.

  4. Assessment Center
    Source: Northwestern University
    Format: Text
    Date Published: 6/2011
    Annotation: Assessment Center is a free, online data collection tool that enables researchers to create study-specific Web sites for capturing participant data securely online. Studies can include measures within the Assessment Center library as well as custom instruments entered by the researcher. The instrument library includes self- and proxy-report short forms, computerized adaptive tests (CATs), and batteries or profiles from Patient-Reported Outcomes Measurement Information System (PROMIS), Quality of Life in Neurological Diseases (Neuro-QoL), NIH Toolbox, and Health LiTT.

    Among other features, Assessment Center also enables downloading library instruments for administration on paper; customization of items or instruments (e.g., format, randomization, skip patterns); real-time scoring of CATs and short forms; storage of protected health information (PHI) in a separate, secure database; automated accrual reports; real-time data export; and ability to capture endorsement of online consent forms. This resource was identified by the NIH Disaster Research Response Program (DR2) for researchers looking for pre- and post-disaster data collection instruments.
    [less]
    Type: Database/Dataset
    Includes Research Tools: Yes
    ID: 11237. From Disaster Lit®, a database of the U.S. National Library of Medicine.

  5. Behavior Rating Inventory of Executive Function (BRIEF)
    Source: Disaster Research Response Program [National Institutes of Health] (DR2)
    Format: Text
    Date Published: 12/2009
    Annotation: The Behavior Rating Inventory of Executive Function (BRIEF) is a questionnaire developed for parents and teachers of school-age children to assess executive function behaviors in the school and home environments. Designed to assess the abilities of a broad range of children and adolescents, the BRIEF is useful when working with children who have learning disabilities and attention disorders, traumatic brain injuries, lead exposure, pervasive developmental disorders, depression, and other developmental, neurological, psychiatric, and medical conditions. This resource was identified by the NIH Disaster Research Response Program (DR2) for researchers looking for pre- and post-disaster data collection instruments.

    Ease of Use in Disaster Setting: Information Difficult
    Population: Children/Teens Only
    Length: 86 items
    Administered by: Parent/Teacher Administered, Specialist/Doctor/Expert
    Language(s): English
    [less]
    Data Collection on: Mental Health and Cognitive Function
    Type: Guideline/Assessment Tool
    Access Notes: Proprietary - Cost/Purchase required

    Citation(s):
    Yang R, Xiang YT, Shuai L, Qian Y, Lai KY, Ungvari GS, Chiu HF, Wang YF. Executive function in children and adolescents with post-traumatic stress disorder 4 and 12 months after the Sichuan earthquake in China. J Child Psychol Psychiatry. 2014 Jan;55(1):31-8. doi: 10.1111/jcpp.12089. Epub 2013 Jun 5. PubMed PMID: 23730971. https://www.ncbi.nlm.nih.gov/pubmed/23730971. Subscription required.

    Contact information:

    Institution: PAR Customer Support
    Phone: 800-331-8378
    Includes Research Tools: Yes
    ID: 12910. From Disaster Lit®, a database of the U.S. National Library of Medicine.

  6. Test of Memory Malingering (TOMM)
    Source: Disaster Research Response Program [National Institutes of Health] (DR2)
    Format: Text
    Date Published: 1996
    Annotation: The Test of Memory Malingering (TOMM) is a visual recognition test designed to help psychologists and psychiatrists distinguish between malingered and true memory impairments. Research has found the TOMM to be sensitive to malingering and insensitive to a wide variety of neurological impairments, which makes it very reliable. This resource was identified by the NIH Disaster Research Response Program (DR2) for researchers looking for pre- and post-disaster data collection instruments.

    Ease of Use in Disaster Setting: Information Difficult
    Population: Adults Only
    Time to Complete: 15 to 20 minutes
    Administered by: Specialist/Doctor/Expert, Self Administered/Self Report
    Language(s): English
    [less]
    Data Collection on: Mental Health and Cognitive Function
    Type: Guideline/Assessment Tool
    Access Notes: Proprietary - Cost/Purchase required

    Citation(s):
    Hetherington HP, Hamid H, Kulas J, Ling G, Bandak F, de Lanerolle NC, Pan JW. MRSI of the medial temporal lobe at 7 T in explosive blast mild traumatic brain injury. Magn Reson Med. 2014 Apr;71(4):1358-67. doi: 10.1002/mrm.24814. Epub 2013 Aug 7. PubMed PMID: 23918077; PubMed Central PMCID: PMC4117409. https://www.ncbi.nlm.nih.gov/pubmed/23918077. Subscription not required.

    Contact information:

    Institution: Pearson Clinical Assessment Group
    Phone: 800-627-7271
    Fax: 800-232-1223
    Email: ClinicalCustomerSupport@Pearson.com
    Includes Research Tools: Yes
    ID: 12924. From Disaster Lit®, a database of the U.S. National Library of Medicine.

  7. Cerebral Performance Categories Scale (CPC Scale)
    Source: University of Pittsburgh
    Format: PDF
    Date Published: 1981
    Annotation: The Cerebral Performance Categories (CPC) score is widely used in research and quality assurance to assess neurologic outcome following cardiac arrest. This resource was identified by the NIH Disaster Research Response Program (DR2) for researchers looking for pre- and post-disaster data collection instruments.

    Ease of Use in Disaster Setting: Information Easy
    Flesch-Kincaid Reading Level: 12.2
    Population: All/Anyone
    Length: 5 items
    Administered by: Specialist/Doctor/Expert Administration
    Language(s): English
    [less]
    Data Collection on: Mental Health and Cognitive Function; Specific Body Systems
    Type: Guideline/Assessment Tool
    Access Notes: Free/Publicly Available

    Citation(s):
    Kiyohara K, Kitamura T, Iwami T, Nishiyama C, Kawamura T. Impact of the Great East Japan earthquake on out-of-hospital cardiac arrest with cardiac origin in non-disaster areas [corrected]. J Epidemiol Community Health. 2015 Feb;69(2):185-8. Epub 2014 Sep 23. PubMed PMID: 25240062. http://www.ncbi.nlm.nih.gov/pubmed/25240062. Subscription required.

    Contact information:
    Institution: Safar Center for Resuscitation Research, University of Pittsburgh
    Address: 3434 Fifth Ave., Pittsburgh, PA 15260
    Phone: 412-383-1900
    Fax: 412-324-0943
    Email: niemann@upmc.edu
    Includes Research Tools: Yes
    ID: 14799. From Disaster Lit®, a database of the U.S. National Library of Medicine.

Displaying records 1 - 7 of 7

of 1