This website provides access to COVID-19 related data collection tools (CRFs, DCFs, instruments, surveys, questionnaires) that are currently in use. We hope that investigators will consider choosing from these tools rather than developing new ones. The source of each instrument has been verified and contact information is provided in case additional information is needed. We are also striving to provide access to study protocols/study designs and data dictionaries to enhance timeliness for end use, as well as data interoperability and harmonization. Please note, these data collection tools cannot be considered broadly validated and investigators are encouraged to perform validation studies. 

Another important resource is the PhenX Toolkit which provides access to many of the COVID-19 instruments contained in the DR2 collection, but broken down into specific topic areas for improved ease of use. The PhenX Toolkit also provides recommended standard data collection protocols for conducting biomedical research. 

COVID-19 Collection Tools

• DR2 COVID-19 Collection Tools: search of the DR2 Repository provides access to surveys, questionnaires, protocols, data dictionaries, etc.
• PhenX Toolkit Research Domains  provides access to 826 protocols; the PHENX COVID-19 Collection Tools are specific questions from collection tools in DR2 Repository, broken into modules by topic and subtopic.
• RADx-UP Common Data Elements (CDE): The Rapid Acceleration of Diagnostics-Underserved Populations (RADx-UP) Coordination and Data Collection Center (CDCC) provides resources and materials to support the work of our RADx-UP projects and partners. The NIH defined a set of CDEs provide a standard set of study questions that RADx-UP  projects are required to use in their COVID-19 testing studies. 

Common Data Element (CDE) Repositories

• NIH CDE Collections: provide access to structured human and machine-readable definitions of data elements that have been recommended or required by NIH Institutes and Centers and other organizations for use in research and for other purposes
• NIH NCI CDE: primarily derive from data collection forms, spreadsheets, researcher data dictionaries, and protocols used in clinical trials
• COVID-19 Therapeutic Trial Common Data Elements: The NHLBI-CONNECTS set of common data elements describes recommended data elements for all therapeutic clinical trials for COVID-19
• PhenX Toolkit Research Domains: provides access to 826 protocols

Other Repositories of COVID-19 Research Tools

• Societal Experts Action Network (SEAN) COVID-19 Survey Archive
• COVID-19 & Social Determinants of Health Data Collection Instrument Repository
• ISARIC COVID-19 Data Sharing Platform Researchers can request access to the data held in the repository.

COVID-19 Training Material

• NIH Worker Training Material - developed by the NIEHS Worker Training Program
• Other Instructional/Training Material - curated in the National Library of Medicine's Disaster Lit database

COVID-19 Research Funding

• Information for NIH Applicants and Recipients of NIH Funding

Hurricane Disaster Research Tools

Hurricane Environmental Sampling Tools

Limit to tools for data collection on:

• Environmental Exposure
• Lifestyle and Quality of Life
• Mental Health and Cognitive Function
• Occupational Health
• Preparedness
• Social Support and Resiliency
• Specific Body Systems
• Specific Disasters

These resources may be helpful in identifying data collection tools that can be used for disaster-related research. Some of the resources are collections or databases of data instruments, such as PROMIS or PhenX. Some are datasets, like Harvard Dataverse, that may include the data instrument used to create a dataset. And some, like Disaster Lit or ELRHA Publications, contain research reports that may include data instruments in a table or appendix, or provide a citation to the instrument.

If you know of a resource to recommend or have other feedback on the tools, please contact us at dr2@niehs.nih.gov.